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Empowered Patients: 3 Twitter Users Inspiring Awareness

Empowered Patients: 3 Twitter Users Inspiring Awareness | Co-creation in health | Scoop.it
As empowered patients, these three people on Twitter have used social media to spread awareness of health issues and create communities.
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Co-creation in health
E-citizens, e-patients, communities in shaping e-health, health literacy.
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Take a peek at the world's most exquisite libraries - CNN.com

Take a peek at the world's most exquisite libraries - CNN.com | Co-creation in health | Scoop.it
Take a peek at the world's most exquisite libraries

Via Nikos Papaioannou, Giuseppe Fattori
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Art Jones's curator insight, May 28, 11:58 AM

Simply Beautiful!

Classical Architecture, Frescos and so many Books

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Plus ça change...

Plus ça change... | Co-creation in health | Scoop.it
French journalism’s battle for survival

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Pharma and Twitter: a happy marriage or time for a divorce?

Pharma and Twitter: a happy marriage or time for a divorce? | Co-creation in health | Scoop.it

Although initially designed around friends and family use, global multinational corporations have been quick to jump on the social media bandwagon by compiling marketing teams made-up of young graduates with an innate understanding of how to utilise the platforms effectively.

Pharma has been arriving slower to the table than most other industries however, given the strict regulations it must adhere to around the world – especially in Europe – which bars pharma talking to patients about prescription medicines.


But this has not stopped some within the industry from pursuing a new digital strategy based on social media, and Twitter appears to be the platform of choice for their communication departments.

This micro-blogging site, which only allows 140 characters per tweet, was established in 2006 and has quickly become the site of choice for celebrities and increasingly for corporations, including pharma.


German-based private firm Boehringer Ingelheim was one of the first big pharma companies to join the medium back in 2007 when Twitter was just getting started, with its main US account now boasting nearly 38,000 followers. But those firms looking to be pioneers of the medium have found themselves left in the dark over what it can, and cannot say.


But whilst companies such as Boehringer have signed up to these new media whole-heartedly, other pharma firms have intentionally sat back, and are not convinced of how their strategies align with the new digital landscape.


Johanna Mercier, general manager of Bristol-Myers Squibb (BMS) in the UK and Ireland, tells Pharmafile that she is not sure about the return on investment for her company – in the EU at least – for using social media.


Mercier, a Canadian who has worked for BMS there, in the US and in Europe, says: “My opinion stems from my last role [working for BMS in Europe]. So BMS as a company has Twitter feeds, Facebook and so on, so there is certainly digital activity.


“But in light of the regulations [barring DTC advertising in the EU], this means that we are very careful, because the guidance around social media is not crystal clear to say the least, and I’m not always sure about the return on it.”


She goes on: “As we all know, these feeds definitely aren’t going straight to patients. But I think if you were talking to me in the US, that’d be a different thing, and we are doing a lot of social media in the US as there are very different regulations there.


“But even there we have to be very careful because if there is a side effect that comes through to us via social media then it has to be reported, and you have to find a way of doing that in the right way. People like the anonymity but at the same time, the companies out there don’t because they are responsible for reporting this information.”


Mercier explains that by using platforms such as Twitter, companies are opening themselves up to potentially millions of people, ‘and that’s a big job’. She says: “For me, the role in the UK is more of a ‘listening role’ to social media. “It’s more about being aware of what’s going on because you can get a lot of insights out of that.”


Via Pharma Guy
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Pharma Guy's curator insight, September 22, 5:19 PM


But surely, you've noticed that pharmaceutical companies are routinely using social media for communicating and engaging with consumers, patients, physicians, and news media? 

IMHO, Pharma is getting very comfy with Facebook, YouTube, blogs, Twitter, and even Tumblr to reach its many and diverse audiences. 

Read: Pharma and Social Media - Comfy Bedfellows

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Autocontrol fotográfico mediante smartphones para mejorar el diagnóstico precoz del melanoma. Sergio vañó Galván en Actas Dermosifiliográficas 2014

Autocontrol fotográfico mediante smartphones para mejorar el diagnóstico precoz del melanoma 

 

Sergio Vañó Galván en Actas Dermosifiliográficas 2014

 

S. Vanó-Galván ˜ ∗, J. Paoli, L. Ríos-Buceta y P. Jaén 
Servicio de Dermatología, Hospital Ramón y Cajal, Madrid, 
Espana˜ 

 

descargar en  en http://dx.doi.org/10.1016/j.ad.2014.05.009

 

 


Via Ignacio Fernández Alberti
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Ignacio Fernández Alberti's curator insight, September 3, 6:16 PM

realmente interesante...

 

una publicación sobre esalud en la prestigiosa revista de la sociedad científica nacional de dermatologia: Actas Dermosifiliograficas, revista oficial de la Academia Española de Dermatología y Venereologia.


las cosas están cambiando...


muy rápido!



mi enhorabuena al Dr. Sergio Vañó Galván


una estupenda noticia para uno de los BUENOS de la esalud nacional

ChemaCepeda's curator insight, September 4, 10:08 AM

Una aplicación móvil para realizar un seguimiento de las lesiones cutáneas y fomentar el autocontrol por parte del paciente

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Navigating the pitfalls of social media in the Pharma Industry

Navigating the pitfalls of social media in the Pharma Industry | Co-creation in health | Scoop.it


The following article is based on the CIPR Social Media Panel c-suite Podcast that I produced a couple of months ago, which can still be listened to here.

Social media can prove a minefield for pharma companies trying to find the best path through industry rules and regulations, but integrating new, relevant marketing strategies is a must to reach increasingly digital-savvy patients


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Medicalization of global health 1: has the global health agenda become too medicalized? - Clark - Global Health Action

Medicalization of global health 1: has the global health agenda become too medicalized? - Clark - Global Health Action | Co-creation in health | Scoop.it
Universal health coverage (UHC) has emerged as the leading and recommended overarching health goal on the post-2015 development agenda, and is promoted with fervour. UHC has the backing of major medical and health institutions, and is designed to provide patients with universal access to needed health services without financial hardship, but is also projected to have ‘a transformative effect on poverty, hunger, and disease’. Multiple reports and resolutions support UHC and few offer critical analyses; but among these are concerns with imprecise definitions and the ability to implement UHC at the country level. A medicalization lens enriches these early critiques and identifies concerns that the UHC campaign contributes to the medicalization of global health. UHC conflates health with health care, thus assigning undue importance to (biomedical) health services and downgrading the social and structural determinants of health. There is poor evidence that UHC or health care alone improves population health outcomes, and in fact health care may worsen inequities. UHC is reductionistic because it focuses on preventative and curative actions delivered at the individual level, and ignores the social and political determinants of health and right to health that have been supported by decades of international work and commitments. UHC risks commodifying health care, which threatens the underlying principles of UHC of equity in access and of health care as a collective good.
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MedX: Patients, Conferences, And The Return On Investment

MedX: Patients, Conferences, And The Return On Investment | Co-creation in health | Scoop.it

One of the sessions I attended at MedX on Saturday September 6th, 2014 was on the topic of Social Media, Games, and Wearables.The first presentation was by Thomas M. Lee (@tmlfox) from Symplur (http://www.symplur.com/).

Thomas’s story was about the value of patient participation in medical conferences. He started at a high level with analyzing close to 2000 medical conferences. From there he was able to review conferences that had 1000 or more tweets, and reduce that number down to about 100 conferences.

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François Lamoureux on Twitter: "Première carte mentale réalisée par la classe ! Cc @alex_xye http://t.co/JoeBh2fY76"

François Lamoureux on Twitter: "Première carte mentale réalisée par la classe ! Cc @alex_xye http://t.co/JoeBh2fY76" | Co-creation in health | Scoop.it
RT @francoislmrx: Première carte mentale réalisée par la classe ! http://t.co/vbe4BVRufq #mindmap

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Cancer: un patient sur deux se renseigne sur Internet, et c'est tant mieux

Cancer: un patient sur deux se renseigne sur Internet, et c'est tant mieux | Co-creation in health | Scoop.it
Le Baromètre cancer 2014 de l'Institut Curie se penche pour la première fois sur l'impact d'Internet dans les rapports entre les médecins et des patients toujours plus informés. Eclairage avec l'oncologue Alain Livartowski.

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Self publishing e case editrici tradizionali. Amici o nemici?

Self publishing e case editrici tradizionali. Amici o nemici? | Co-creation in health | Scoop.it
Editoria tradizionale e self publishing possono coesistere? Oppure uno dei due morirà? Come funzionano? Come affrontare i cambiamenti del mondo editoriale?
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Do Interventions Designed to Support Shared Decision-Making Reduce Health Inequalities? A Systematic Review and Meta-Analysis

Do Interventions Designed to Support Shared Decision-Making Reduce Health Inequalities? A Systematic Review and Meta-Analysis | Co-creation in health | Scoop.it
PLOS ONE: an inclusive, peer-reviewed, open-access resource from the PUBLIC LIBRARY OF SCIENCE. Reports of well-performed scientific studies from all disciplines freely available to the whole world.
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Prophylactic mastectomy for the prevention of breast cancer - The Cochrane Library

Mastectomie prophylactique pour la prévention du cancer du sein

Les femmes devraient être conscientes de leur risque réel de développer un cancer du sein et de l'insuffisance des preuves actuelles en matière de mastectomie prophylactique.

L'ablation chirurgicale des deux seins pour prévenir le cancer du sein (mastectomie bilatérale prophylactique (MBP)) pourrait réduire l'incidence du cancer du sein et améliorer la survie chez les femmes à haut risque, mais les études évaluées présentaient des limitations méthodologiques. Après une MBP, la plupart des femmes sont satisfaites de leur décision, mais moins satisfaites des résultats esthétiques et de leur image corporelle. De nombreuses procédures avaient exigé des chirurgies supplémentaires. L'inquiétude relative au cancer diminue chez la plupart des femmes. Toutefois, sachant qu'elles pourraient surestimer leur risque de cancer du sein, elles doivent bien comprendre le risque réel lorsqu'elles envisagent une MBP. Chez les femmes atteintes d'un cancer d'un seul sein (qui présentent donc un risque accru de développer un cancer primaire de l'autre sein), l'ablation de cet autre sein (mastectomie controlatérale prophylactique ou MCP) pourrait réduire l'incidence du cancer de ce sein, mais les preuves sont insuffisantes concernant l'amélioration de la survie.

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Large evidence base, small effects: motivational interviewing for alcohol misuse in young adults - The Cochrane Library

Large evidence base, small effects: motivational interviewing for alcohol misuse in young adults - The Cochrane Library | Co-creation in health | Scoop.it

Motivational interviewing (MI) was initially described by Miller in 1983, developed from his experience in the treatment of problem drinkers, and subsequently introduced by Miller and Rollnick in clinical practice to treat other psychological disorders.[1,2] MI is a counselling technique based on a collaborative conversation and represents a "person-centered form of guiding to elicit and strengthen motivation for change" by exploring and resolving ambivalence.[3] MI is also evocative and seeks to call forth the person's own motivation and commitment.

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Article: The Role of Social Media in Managing Chronic Diseases

Article: The Role of Social Media in Managing Chronic Diseases | Co-creation in health | Scoop.it
On the one hand, there's the physician who's looking for 'evidence' that diabetes is being managed. On the other hand is the patient argument that 'emotional support' is also a key benefit. One could argue that BOTH sides have merit.


In a blog post titled "Open letter to NPR about Diabetes Social Media piece," Kerri Morrone Sparling of Six Until Me, attempted to refute a claim made by Jason Bronner, a doctor at the University of California San Diego Medical Center, who said "There's no proof in diabetes that social networking is helpful." 

Sparling says "initial evidence suggests that the benefits of social media to people living with chronic illness are real, even though large scale studies have not shown precisely who benefits and how much." 

OK. What we have here is a failure to communicate. On the one hand, there's the physician who's looking for "evidence" that diabetes is being managed. That in-volves numbers such as HbA1c (a lab test that shows the average level of blood sugar over the previous three months; It shows how well patients are controlling their diabetes).

On the other hand is the patient argument that "emotional support" is also a key benefit.

One could argue that BOTH sides have merit.

Topics include:

Benefits of Social Media for PatientsSocial Media and SupportSocial Media & Preventive Health BehaviorsSocial Media and Knowledge SkillsSocial Media as it was Way Back When


Read this article now. It's FREE...

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Promising results for cancer-fighting cocktail in advanced cervical cancer patients

Promising results for cancer-fighting cocktail in advanced cervical cancer patients | Co-creation in health | Scoop.it
Combining a standard chemotherapy drug with a second drug that stops cells from dividing improves both the survival and response rates for those with advanced cervical cancer, a new study by UT...

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Heather Swift's curator insight, September 22, 5:29 PM

Promising results for cancer-fighting cocktail in advanced cervical cancer patients
Combining a standard chemotherapy drug with a second drug that stops cells from dividing improves both the survival and response rates for those with advanced cervical cancer

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La difficulté d'annoncer un diagnostic de cancer à ses proches

La difficulté d'annoncer un diagnostic de cancer à ses proches | Co-creation in health | Scoop.it
La difficulté d'annoncer un diagnostic de cancer à ses proches

Via Giovanna Marsico
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Europe approves Gilead's cancer drug Zydelig amid challenging pricing environment

Europe approves Gilead's cancer drug Zydelig amid challenging pricing environment | Co-creation in health | Scoop.it
The approval puts Gilead well on track to meet analyst expectations that Zydelig (idelalisib) will be hauling in $1.2 billion in annual sales by 2020, though there's little doubt Gilead will face pressure from European health agencies to keep a lid...

Via Pharmacomptoir / Corinne Thuderoz
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What Happens in Your Body When You Exercise?

What Happens in Your Body When You Exercise? | Co-creation in health | Scoop.it
A Huffington Post article highlights different biological effects that occur, from head to toe, when you exercise.

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An Apple a day keeps the doctor away? - David Kerr - BMJ

An Apple a day keeps the doctor away? - David Kerr - BMJ | Co-creation in health | Scoop.it
It might be cool, but will it make a difference to health? This is still the unanswered question after the launch of the latest must-have device from Apple, 30 years after the launch of the original Mackintosh computer in the same building in California.
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New report: Patient groups and their impact on access to medicines

New report: Patient groups and their impact on access to medicines | Co-creation in health | Scoop.it

During May-June 2014, PatientView undertook a survey of 1,000 patient groups worldwide, aiming to benchmark their proficiency as health campaigning organisations (a repeat of a similar PatientView exercise in 2012). Patient  groups participating in the study were asked to comment on their organisation’s ability to gain access to medicines, for example by influencing the health technology assessment (HTA) process. This September 2014 Access to Medicines report maps their responses to that question for 11 different therapeutic areas, and 12 countries/regions. The results are also compared with those of 2012. Below are some of the key findings for 2014.

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Baby Boomers’ Adoption of Consumer Health Technologies: Survey on Readiness and Barriers

Baby Boomers’ Adoption of Consumer Health Technologies: Survey on Readiness and Barriers | Co-creation in health | Scoop.it

Baby boomers have commonalities with and distinctions from both younger and older adults in their readiness to adopt specific consumer health technologies and the barriers they experience to adoption. Baby boomers’ nuances regarding readiness to adopt and the barriers associated with the various forms of consumer health technology should be taken into account by those interested in promoting consumer health technologies use among baby boomers when developing applications, choosing technologies, preparing users for use, and in promotional tactics.



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ChemaCepeda's curator insight, September 11, 10:54 AM

Resulta fundamental conocer las características de cada grupo de edad en el uso de tecnologías, para ofrecerle lo que necesita y por los canales más adecuados

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Noam Chomsky (2014) "Internet and Activism"

Chomsky answers the question "Can the Internet help in Activism?"


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Trends in healthcare professional social media usage

Trends in healthcare professional social media usage | Co-creation in health | Scoop.it

One of the trends in HCP social media usage over the last few years has been healthcare professionals (HCPs) realising the benefits of using social media for professional purposes. More and more doctors, nurses and physicians are using social media as a channel to engage, collaborate, share opinion with and get real time advice from their colleagues all over the world. Consequently pharma have started to realise how listening to their customers online can provide them with some invaluable insights to help with their HCP marketing strategy on or offline.


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Words or numbers? Communicating risk of adverse effects in written consumer health information: a systematic review and meta-analysis

Various types of framing can influence risk perceptions, which may have an impact on treatment decisions and adherence. One way of framing is the use of verbal terms in communicating the probabilities of treatment effects. We systematically reviewed the comparative effects of words versus numbers in communicating the probability of adverse effects to consumers in written health information.
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Is Wikipedia’s medical content really 90% wrong? | The Cochrane Collaboration

Is Wikipedia’s medical content really 90% wrong? | The Cochrane Collaboration | Co-creation in health | Scoop.it

The journal article by Hasty et al. published on 1 May 2014 claims that most Wikipedia articles on important medical topics contain a large number of errors. The claim is based on a study of ten articles as they appeared on 25 April 2012. In nine of these the authors noted differences from a peer-reviewed source. The popular press, including the UK’s Daily Mail andBBC News, and the US-based Advisory Board, fueled by interviews with Hasty, has taken this to mean that as much as 90% of Wikipedia's medical content is wrong. However, we found that Hasty et al. used an unvalidated test of content quality and applied it to Wikipedia alone. Additionally, there were significant errors in study design and data analysis, and the authors' conclusions are not supported by the results.

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The Lancet announces publication of evidence-based Midwifery Series – a new global approach to midwifery care | The Cochrane Collaboration

The Lancet announces publication of evidence-based Midwifery Series – a new global approach to midwifery care | The Cochrane Collaboration | Co-creation in health | Scoop.it

The Lancet Midwifery Series, first published in June 2014, is a comprehensive examination of the midwifery landscape across the world – current practice, the state of research evidence, and gaps in both practice and research that may require attention or resources. Taking a global perspective and considering a range of regional variations in practice, the Series aims to re-focus the conversation around midwifery with the needs of mothers and babies at its centre.

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