Co-creation in health
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Dr. Twitter - Comunicare salute in 140 caratteri: i social network sbarcano nelle aziende sanitarie.

Asl e ospedali ai tempi di twitter.Analisi di 33 strutture e 14mila tweet - Il privato seguito quattro volte di più.
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Co-creation in health
E-citizens, e-patients, communities in shaping e-health, health literacy.
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Why Physicians Need ‘Right Compassion’

Why Physicians Need ‘Right Compassion’ | Co-creation in health | Scoop.it
To be effective in relieving suffering, doctors must strike a balance between paucity and excess of empathy.


As a young doctor working in the E.R. my capacity for compassion, and that of my colleagues, was often stretched; this was particularly the case when my patients could be said to have brought misfortune on themselves. I saw drug addicts suffering overdose, teenagers retching after self-poisoning, thieves injured through being arrested, all treated more brusquely than other theoretically more blameless patients.


I tried hard to maintain empathy, reflecting that the overdosed, self-poisoned and criminal may no more have brought their problems on themselves than those with skiing or horse-riding injuries or heart palpitations through overwork.


But it’s complicated: I’ve stitched up many slashed wrists cut not through willfulness but as a release from intense anguish; I’ve attended alcoholics for whom alcohol was clearly a substitute for love.


I may not have always succeeded, but I always hoped that my humanity, or my professional duty to provide a high standard of care, would step in when my compassion was running low.



By GAVIN FRANCIS
NY Time  Opinion Pages
 

image

http://bit.ly/dP1O76


Via Edwin Rutsch
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Educating Clinicians About Cultural Competence and Disparities in Health and Healt Care

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FDA May Establish “Office of Patient Affairs” to Capture Patient Perspectives

FDA May Establish “Office of Patient Affairs” to Capture Patient Perspectives | Co-creation in health | Scoop.it

As part of efforts to better capture patients' perspectives, the US Food and Drug Administration (FDA) on Monday said it is considering establishing an "Office of Patient Affairs," to be tasked with supporting and coordinating patient engagement across the agency.

 

The move to create the office would be part of the agency’s efforts to offer “a single, central entry point to the Agency for the patient community,” as well as “triage and navigation services for inbound inquiries from patient stakeholders.”

 

The office would likely host and maintain data management systems to incorporate and formalize knowledge shared with FDA by patient stakeholders and FDA's relationships with patient communities, and the office would be part of efforts to develop a scalable and forward-looking platform for communicating with patient stakeholders, particularly online.

 

Further Reading:


Via Pharma Guy
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Pharma Guy's curator insight, March 15, 11:55 AM

I wonder who would head up this office?

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Les défis et les talents des personnes multipotentielles

Les défis et les talents des personnes multipotentielles | Co-creation in health | Scoop.it

Elles font partie de ces personnes très réactives dès qu'on les enferme dans une définition, et qui pourtant ne peuvent s'empêcher de se reconnaître à la lecture des articles et témoignages sur la multipotentialité.

Parfois surdouées et hyperactives, souvent très orientées "cerveau droit", elles aiment créer, explorer, expérimenter dans des contextes toujours nouveaux, et surtout garder toujours ouvert l'espace infini des possibles.

Toujours conscient de ma subjectivité, et avec les schématisations auxquelles m'obligent l'écriture d'un article lisible, j'aborderai quelques défis et talents de ces personnes touchantes, étranges, passionnées et passionnantes que sont les multipotentialistes.

 


Via Lionel Reichardt / le Pharmageek, Pharmacomptoir / Corinne Thuderoz
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Early screening for lung cancer by using web searches - iMedicalApps

Early screening for lung cancer by using web searches - iMedicalApps | Co-creation in health | Scoop.it

A new feasibility study from Microsoft released in JAMA Oncology by Ryen White et al shows that it could be possible to screen for early signs of lung cancer by the web searches individuals perform.

Utilizing research data from Bing, researchers found that careful analysis of a patient’s search history could be used as a pre-screening tool for lung cancer.

 

Anonymous searches on Bing were scanned for indicators of a recent lung cancer diagnosis: searches for symptoms, first-person phrases, and more. For example: Their example is “I was just diagnosed with lung cancer,” and follow-up searches for treatment. They also reviewed demographics, location, and red flags like searches for smoking cessation products. The researchers then looked at what that individual searched for over the previous year, specifically looking for queries of symptoms like chest pain, cough, bronchitis and found that these queries correlated with an increased chance of lung cancer diagnosis.

 

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La réalité virtuelle : entre fantasme et technologie

La réalité virtuelle : entre fantasme et technologie | Co-creation in health | Scoop.it
En santé, il ne s’agit pas simplement de reconstituer de façon réaliste La leçon d’anatomie du Dr Tulp, mais de concevoir un corps en 3D virtuel, ce qui pourrait un jour remplacer la dissection traditionnelle en universités de médecine. La réalité virtuelle en 3 D, avec le Hololens de Microsoft, sert à apprendre l’anatomie aux étudiants et à rendre plus précis le geste du chirurgien, pouvant planifier à l’avance sa stratégie opératoire.
Via Philippe Marchal
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 What Health Care Can Learn from Walmart and Amazon

 What Health Care Can Learn from Walmart and Amazon | Co-creation in health | Scoop.it

At a Harvard Business School panel discussion on health care management, experts looked to the retail industry as a possible model for delivering medical services more effectively.

In order to get its financial and management woes under control, the health care industry might want to peek at the playbooks of retail giants like Walmart, Google, and Amazon.com.

This was a key conversation point at "Perspectives on Health Care as a Management Challenge," a March 31 panel discussion held at Harvard Business School, where several experts talked about how to treat the troubled industry at a time when the year-old Health Care and Education Reconciliation Act of 2010 is still in its relative infancy.

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Administrative spending in OECD health care systems: Where is the fat and can it be trimmed? | OECD 

Administrative spending in OECD health care systems: Where is the fat and can it be trimmed? | OECD  | Co-creation in health | Scoop.it

Administrative tasks are essential at all levels of the health care system, from

ministries and insurers to health providers. Many tasks are vital to ensure access,

equity and quality of health care provision. Other activities may be of limited use,

adding no value for patients.

This chapter looks into differences in administrative costs at the level of the health

care system, for both health care facilities and individual health workers. Some

differences are related to the way health care is financed. Many countries see the

need to tackle inefficiencies in health care administration. The most promising

strategies to increase efficiency are centred on simplifying procedures – partly by

making better use of ICT – and optimising the size of administrative bodies to

generate economies of scale. Additionally, regulatory changes can have an

enormous and immediate effect on administrative costs and the administrative

workload of health providers.

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More Than 80 Percent of Patient Groups Accept Drug Industry Funds, Study Shows

More Than 80 Percent of Patient Groups Accept Drug Industry Funds, Study Shows | Co-creation in health | Scoop.it

The nation’s largest patient advocacy groups are on the front lines of some of the biggest health care debates, from the soaring costs of prescription drugs to whether new medicines are being approved quickly enough.

But while their voices carry weight because they represent the interests of sick patients, a new study has found that more than 80 percent of them accept funding from drug and medical-device companies. For some groups, the donations from industry accounted for more than half of their annual income, and in nearly 40 percent of cases, industry executives sit on governing boards, according to the study, which is published in The New England Journal of Medicine.

 

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Public Health England Strategic Plan - GOV.UK

Public Health England Strategic Plan - GOV.UK | Co-creation in health | Scoop.it

The Public Health England (PHE) Strategic Plan sets out how the organisation intends to protect and improve the public’s health and reduce inequalities over the next 4 years. It also outlines actions PHE will take over the next year to achieve these aims and deliver its core functions.

It builds on the Department of Health’s Shared Delivery Plan, the NHS 5 Year Forward View, and From Evidence into Action. It confirms the role that PHE will continue to play in the health and care system, building on evidence, prioritising prevention and supporting local government and the NHS.

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This So-Called Natural Cure Can Cause Heart Attacks

This So-Called Natural Cure Can Cause Heart Attacks | Co-creation in health | Scoop.it

Drinking high-concentration hydrogen peroxide is a tactic sometimes promoted in alternative medicine circles as a so-called "natural cure," but nearly 300 people have been poisoned and five have died after trying it, according to a new paperpublished this week in the Annals of Emergency Medicine.

Dr. Benjamin Hatten, assistant professor of emergency medicine at the University of Colorado School of Medicine, used data from the National Poison Data System collected between 2001 and 2011 and looked specifically at poisonings from hydrogen peroxide solutions of 10% or more, with most cases involving concentrations of 30% to 40%. These formulas aren’t usually sold in drug stores, and are generally marketed for industrial or commercial purposes. But they’re also sold by some alternative health retailers and promoted as an ingredient in what’s sometimes referred to as “super water.”

“For people who follow these regimens, the instructions involve placing a dropper-full of high-concentration peroxide into a large quantity of water or another liquid, so it’s fairly diluted,” says Dr. Hatten. “People believe that it’s hyper-oxygenating, putting extra oxygen into your beverage, and that it somehow improves your health.”

 

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Cyberbullismo, si ricomincia dai minori

Cyberbullismo, si ricomincia dai minori | Co-creation in health | Scoop.it

Lo scorso 31 gennaio il Senato ha approvato il disegno di legge in materia di cyberbullismo.

Il testo segna, nella sostanza, un ritorno alle origini ovvero al disegno di legge originariamente proposto proprio in Senato – prima firmataria la Senatrice Elena Ferrara (PD) - esattamente due anni fa, il 27 gennaio 2014.

Si ritorna, opportunamente, ad un disegno di legge che mira a introdurre nell’Ordinamento un corpus di regole speciali che hanno l’ambizione di garantire – a prescindere da ogni valutazione sulla loro efficacia – una tutela rafforzata per i minori nella loro vita in digitale e ciò in particolare davanti ad un ventaglio, che per la verità resta amplissimo, di condotte suscettibili di ledere la loro identità e dignità personale.

Una scelta coraggiosa che impone il ritorno del disegno di legge alla Camera dei Deputati e che, dunque, considerata la fragilità della legislatura in corso, potrebbe condannare l’iniziativa al naufragio.

Ma si tratta di una scelta saggia, opportuna e doverosa che consente di fare tabula rasa dell’interminabile serie di emendamenti, ritocchi e correzione che, nel suo primo passaggio alla Camera dei Deputati, avevano snaturato profondamente il disegno di legge sino a trasformarlo in una sorta di legge marziale per i crimini online, uno zibaldone di idee e strumenti confusi, ambigui e poco efficaci.

Il Senato ha rimesso ordine nelle originarie buone intenzioni, ha rimesso in fila le vere priorità e segnato una via.

Non è il miglior disegno di legge possibile – benché scriverne uno in una materia tanto delicata e complessa è operazione estremamente complessa – ma è un’iniziativa legislativa che torna ad essere coerente, ferma, puntuale.

E onestà intellettuale impone di darne atto con la stessa convinzione e determinazione con la quale, in agosto, si è attaccato e criticato duramente il disegno di legge uscito dalla Camera dei Deputati.

I dubbi, almeno alcuni, restano.

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HCV e nuovi farmaci: no a screening di popolazione, sì a misure di prevenzione - di Alberto Donzelli

HCV e nuovi farmaci: no a screening di popolazione, sì a misure di prevenzione - di Alberto Donzelli | Co-creation in health | Scoop.it

Prevenzione e cure non farmacologiche
... Per finire, lasciar passare il messaggio che le uniche opzioni per gli infetti da HCV siano “attendere un peggioramento o pagare in proprio” (19) fa l’interesse degli oligopoli farmaceutici e ne rafforza il potere contrattuale, creando fortissime pressioni sui decisori per distorcere valutazioni più razionali di costo-opportunità. E crea allarmismo e disperazione tra i pazienti con epatopatie lievi, o semplici infettati in condizione non evolutiva, concentrati su uno solo degli strumenti disponibili, che scaricano la frustrazione svalutando il SSN, a favore di sbocchi assicurativi presentati come (illusorie) soluzioni. ....

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Who Brands Your Nonprofit? Who Tells Its Story and How?

Who Brands Your Nonprofit? Who Tells Its Story and How? | Co-creation in health | Scoop.it

This article by Carlo Cuesta is one of the best we have ever seen on the 21st-century intersection of engagement, dialogue with stakeholders, and brand.


Via Marie Ennis-O'Connor
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Mortality tale: Britain’s long-falling death rate has levelled out. A blip or something more? | The Economist

Mortality tale: Britain’s long-falling death rate has levelled out. A blip or something more? | The Economist | Co-creation in health | Scoop.it
IT HAS been an article of faith of post-war demography that better health care and improved living conditions would mean a continuing fall in mortality. Just in the decade to 2013, life expectancy in England rose by 3 years for men and 2.3 years for women.
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Why Smart People Make Stupid Decisions

We’ve all been there. We make what we think is a rational decision and seconds, minutes or days later we wonder “What was I thinking?” Discover how to stop making stupid decisions and start making smart ones by understanding our cognitive biases.
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Lifetime Trends in Biopharmaceutical Innovation Recent Evidence and Implications

Lifetime Trends in Biopharmaceutical Innovation Recent Evidence and Implications | Co-creation in health | Scoop.it
Over the past 20 years, over 700 new active substances (NASs) have successfully been discovered, developed and authorized by regulatory bodies for use with patients globally. This report profiles the NASs launched in the U.S. over the past 20 years and measures the length of a molecule’s lifetime from patent filing to launch and eventual patent expiry.  It also explores the significant variations in this lifetime when viewed by molecule characteristics such as therapy area, orphan drug status, and the type of companies involved in the development and marketing. These issues and trends highlight important implications for investors and manufacturers.
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Show drugs work before selling them

Show drugs work before selling them | Co-creation in health | Scoop.it
Regulation makes economic sense, argue Douglas Sipp, Christopher McCabe and John E. J. Rasko.

Under US President Donald Trump, defunct economic arguments about prescription drugs are coming to the fore. His advisers contend that today's system is a bad deal. They want to undo regulations that require companies to show that a medical product actually works before it is sold. The advisers argue that removing the burden of large, lengthy clinical trials will cut costs and reduce delays, and that the marketplace can be trusted to sort good drugs from bad ones.

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Fin de vie : une campagne pour des directives anticipées - France 3 Provence-Alpes-Côte d'Azur

Fin de vie : une campagne pour des directives anticipées - France 3 Provence-Alpes-Côte d'Azur | Co-creation in health | Scoop.it
Le Ministère de la Santé et  le Centre national des soins palliatifs et de la fin de vie lancent  une campagne nationale , un an après l'adoption d'une loi portée par le député PS Alain Claeys et Jean Leonetti, député-maire d'Antibes.

Via Centre national des soins palliatifs et de la fin de vie, catherine cerisey
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A Good Thing Happens When Doctors Start Talking to Their Patients

A Good Thing Happens When Doctors Start Talking to Their Patients | Co-creation in health | Scoop.it

Visiting the doctor can sometimes feel like being slammed down on an assembly line: Make co-pay. Check vitals. Diagnose the problem. Get a prescription. Next!

The fee-for-service model of American medicine doesn’t put much value on long doctor’s visits, which aren’t as profitable for providers as performing costly medical procedures. And that’s a problem, argues Senior Fellow Robert S. Kaplan, the Marvin Bower Professor of Leadership Development, Emeritus, at Harvard Business School.

“If doctors can’t charge for doing certain things, they tend not to do them even when they can make the patient better off,” he says. “On the other hand, sometimes doctors do things they shouldn’t, just because they can charge for them. It’s a very dysfunctional system.”

 


Via Richard Meyer, Lionel Reichardt / le Pharmageek
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Tackling Wasteful Spending
on Health - OECD 2017

Following a brief pause after the economic crisis, health expenditure is rising again in most OECD countries. Yet, a considerable part of this health expenditure makes little or no contribution to improving people's health. In some cases, it even results in worse health outcomes. Countries could potentially spend significantly less on health care with no impact on health system performance, or on health outcomes. This report systematically reviews strategies put in place by countries to limit ineffective spending and waste. On the clinical front, preventable errors and low-value care are discussed. The operational waste discussion reviews strategies to obtain lower prices for medical goods and to better target the use of expensive inputs. Finally, the report reviews countries experiences in containing administrative costs and integrity violations in health.

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Susan Cain’s ‘Quiet’ - The Power of Introverts In a World That Can’t Stop Talking.

Susan Cain’s ‘Quiet’ - The Power of Introverts In a World That Can’t Stop Talking. | Co-creation in health | Scoop.it

The introverts who are the subject of Susan Cain’s new book, “Quiet,” don’t experience their inwardness in quite so self-congratulatory a way.

They and others view their tendency toward solitary activity, quiet reflection and reserve as “a second-class personality trait, somewhere between a disappointment and a pathology,” Cain writes. Too often denigrated and frequently overlooked in a society that’s held in thrall to an “Extrovert Ideal — the omnipresent belief that the ideal self is gregarious, alpha and comfortable in the spotlight,” Cain’s introverts are overwhelmed by the social demands thrust upon them. They’re also underwhelmed by the example set by the voluble, socially successful go-getters in their midst who “speak without thinking,” in the words of a Chinese software engineer whom Cain encounters in Cupertino, Calif., the majority Asian-American enclave that she suggests is the introversion capital of the United States.

 

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Inteligencia Colectiva para Educadores. Conferencia de Pierre Lévy

http://www.ibertic.org Tenemos que comprender que la inteligencia colectiva existe desde siempre y la especie humana es un ejemplo maravilloso de ello. Per

Via Pierre Levy
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Cancer On Facebook, A Patient's Perspective

Cancer On Facebook, A Patient's Perspective | Co-creation in health | Scoop.it

You can’t be sick, you’re fat. You don’t look like your dying. You still have hair. Oh come on, you’ve been dying for years. It can’t be that bad, it’s not like you’re dying tomorrow. At least you have a few years. Stop complaining. Others have it worse. At least you’ve lived your life.”

This is the crap crowding my (Facebook) news feed. Watching my friends hear well meaning people say insensitive things because they lack the knowledge of what they go through.

So, I ask you, are there different degrees of terminal diagnosis? Is one person who manages to live four years into a diagnosis less allowed to be afraid than someone who doesn’t get diagnosed before their cancer has metastasized to their bones, brain, liver, kidneys or another organ? Are my friends supposed to be less afraid because they managed to have positive results with certain cocktails of drugs, while others have stopped responding?

I wonder if you truly know what it’s like to suddenly feel as if your friends or family have become numb to your plight, and the fears you face on a daily basis. Has society really become so desensitized that we view cancer patients that have fought for years as lucky, and they should stop voicing their fears? Is the woman of 30 with young children at home, who has stage four metastatic breast cancer more a tragedy then the 50, or even 70 year old woman with the same diagnosis? And are we truly compassionate if we are distinguishing them that way?

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Patient education, nudge, and manipulation: defining the ethical conditions of the person-centered model of care

Patient education, nudge, and manipulation: defining the ethical conditions of the person-centered model of care | Co-creation in health | Scoop.it
Abstract: Patient education (PE) is expected to help patients with a chronic disease to manage their lives and give them the possibility of adopting, in an appropriate manner, beneficial changes in health behaviors that are prescribed by their physicians. It is aimed at delineating, agreeing on, and implementing a patient’s personal action plan and is therefore an essential constituent of the person-centered model of care. The aim of this article is to examine the idea that PE may sometimes be a manipulation that is organized for the good of patients in a paternalistic framework. Theoretically, PE differs from manipulation by addressing the reflective intelligence of patients in full light and helping them make autonomous choices. In this article, we examined some analogies between PE and nudge (ie, techniques used to push people to make good choices by organizing their environment). This analysis suggests that PE is not always as transparent and reflective as it is supposed to be and that unmasking these issues may be useful for improving the ethical quality of educational practice that must be performed in a framework of a trusting patient–doctor relationship. Under this condition, PE may sometimes represent a form of persuasion without being accused of patient deception and manipulation: trust is therefore the core of the person-centered model of care.

Via VAB Traductions
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Jeff French's curator insight, March 7, 4:27 AM
Patient education V manipulation, good look at some of the key issues
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Internet Health Information Seeking and the Patient-Physician Relationship: A Systematic Review

Internet Health Information Seeking and the Patient-Physician Relationship: A Systematic Review | Co-creation in health | Scoop.it

Background: With online health information becoming increasingly popular among patients, concerns have been raised about the impact of patients’ Internet health information-seeking behavior on their relationship with physicians. Therefore, it is pertinent to understand the influence of online health information on the patient-physician relationship.

Objective: Our objective was to systematically review existing research on patients’ Internet health information seeking and its influence on the patient-physician relationship.

Methods: We systematically searched PubMed and key medical informatics, information systems, and communication science journals covering the period of 2000 to 2015. Empirical articles that were in English were included. We analyzed the content covering themes in 2 broad categories: factors affecting patients’ discussion of online findings during consultations and implications for the patient-physician relationship.

Results: We identified 18 articles that met the inclusion criteria and the quality requirement for the review. The articles revealed barriers, facilitators, and demographic factors that influence patients’ disclosure of online health information during consultations and the different mechanisms patients use to reveal these findings. Our review also showed the mechanisms in which online information could influence patients’ relationship with their physicians.

Conclusions: Results of this review contribute to the understanding of the patient-physician relationship of Internet-informed patients. Our main findings show that Internet health information seeking can improve the patient-physician relationship depending on whether the patient discusses the information with the physician and on their prior relationship. As patients have better access to health information through the Internet and expect to be more engaged in health decision making, traditional models of the patient-provider relationship and communication strategies must be revisited to adapt to this changing demographic.

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