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The Empowered E-Patient, patient engagement, patients and social media, healthcare and social media, #HITsm

The Empowered E-Patient, patient engagement, patients and social media, healthcare and social media, #HITsm | Co-creation in health | Scoop.it
"E-Patient" is a term used to describe individuals who use the Internet and other tools to seek out, share and sometimes create information about health and wellness. Common words used to describe E-Patients: 1.e-patient, 2.

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bacigalupe's curator insight, July 2, 2013 11:27 AM

As EHR implementation and adoption becomes more commonplace across the health care environment, providers are beginning to focus more on maximizing the value from their investment. Stakeholder engagement is a critical success factor for the effective use of EHRs and other health IT and patients are one of the last, and most important, groups to get involved in this process.  While EHRs continue to evolve and technologies like patient portals become more common, providers have the opportunity to drive improvements in quality by encouraging patients to become an active participant in their own care.

Co-creation in health
E-citizens, e-patients, communities in shaping e-health, health literacy.
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Take a peek at the world's most exquisite libraries - CNN.com

Take a peek at the world's most exquisite libraries - CNN.com | Co-creation in health | Scoop.it
Take a peek at the world's most exquisite libraries

Via Nikos Papaioannou, Giuseppe Fattori
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Art Jones's curator insight, May 28, 11:58 AM

Simply Beautiful!

Classical Architecture, Frescos and so many Books

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Disparities In Access To Palliative Care

Disparities In Access To Palliative Care | Co-creation in health | Scoop.it

Racial and ethnic disparities in health care have been well documented among minority groups with respect to access to care, receipt of care, and quality of care. As a result of these disparities, minority populations are often diagnosed with late stage illness and have inferior outcomes likely leading toincreased suffering.

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Food and the Dying Patient

Food and the Dying Patient | Co-creation in health | Scoop.it
The medicalization of food deprives the dying of some of the last remnants of the human experience: taste, smell, touch and connection to loved ones.
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Le journalisme au risque du clic ? - InaGlobal.fr

Le journalisme au risque du clic ? - InaGlobal.fr | Co-creation in health | Scoop.it
Le journalisme au risque du clic ?
InaGlobal.fr
Comment évalue-t-on la valeur d'un journaliste dans une rédaction web aujourd'hui ? Et comment lui-même évalue-t-il son propre travail ?

Via Gilles Le Page
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Gilles Le Page's curator insight, August 21, 12:39 PM

Extrait : "D'un côté, le journalisme est vu comme un bien public, avec des articles importants qui changent la compréhension de l'information. Et de l'autre, un journalisme comme commerce, avec une nécessité de revenus."

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General health checks don’t work

http://www.bmj.com/content/348/bmj.g3680?ijkey=7c427498ebce5775d86fc95f4c47f9d414a1f733&keytype2=tf_ipsecsha

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The Distracted Generation Infographic - e-Learning Infographics

The Distracted Generation Infographic - e-Learning Infographics | Co-creation in health | Scoop.it
The Distracted Generation Infographic: Tools and Tips to Get Children Refocused!

Via Susan Bainbridge, Joyce Valenza
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ManufacturingStories's curator insight, August 7, 6:34 PM

For more resources on STEM Education visit http://bit.ly/1640Tbl

Kent Lundgren's curator insight, August 20, 7:26 AM

Något nytt i denna artikel om det "nya" digitala samhället? #digiskol

Vanessa Camilleri's curator insight, August 21, 2:22 PM

People always seem to be complaining about this... our children are distracted... who wants to read when they can play games, but in effect children tend to copy their parents. By instilling a passion for reading from a young age we can try to balance out the claim that the young children do not like books or reading. One story a day... just like the apple, helps develop the creativity in children. It doesn't hurt by having the children making up their own stories and writing them together with their parents! 

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I want my sex life back! TMI, or gold for online communities and their managers?

I want my sex life back! TMI, or gold for online communities and their managers? | Co-creation in health | Scoop.it
By Colleen Young (@colleen_young) "I want my sex life back! Before my breast cancer diagnosis, my husband and I used to..." posted by Susy (forum nickname) Wait! Stop reading before this goes any f...
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'The Age of No Retirement?' at The OXO Tower, London

'The Age of No Retirement?'  at The OXO Tower, London | Co-creation in health | Scoop.it
Britain's first ever national debate & exhibition to discover the value in society in which people are living and working longer.
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Comparing Gamification, Serious Games and Simulations

Comparing Gamification, Serious Games and Simulations | Co-creation in health | Scoop.it
Read about the similarities and differences between Gamification, Serious Games and Simulations. - Designing Digitally, Inc.

Via Alain Hirsch, Lionel Reichardt / le Pharmageek
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Ethical issues related to health checks

It is not just the lack of benefit or the harm to patients—who are frightened by their “high risk” and will never think of themselves as healthy again.

It is the waste of resources as governments encourage, and sometimes pay, clinicians to screen healthy patients for cardiovascular risk, producing tonnes of paper with guidelines, recommendations, and rainbow coloured risk charts.

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Intelligent People All Have One Thing In Common: They Stay Up Later Than You

Intelligent People All Have One Thing In Common: They Stay Up Later Than You | Co-creation in health | Scoop.it
There’s an electricity in the moon. A pulse, a magic, an energy. A bewitching entrancement unlike that of the sun.

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An important moment in our movement (JoPM article): The evolving language of patient engagement | e-Patients.net

An important moment in our movement (JoPM article): The evolving language of patient engagement | e-Patients.net | Co-creation in health | Scoop.it
Figure 4: Thematic Map of how concepts expressed are shifting through the years. Click to enlarge; see article for (fairly technical) discussion. Figure 5:
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Effect of Pay-for-Performance Incentives on Quality of Care in Small Practices With Electronic Health Records

Effect of Pay-for-Performance Incentives on Quality of Care in Small Practices With Electronic Health Records | Co-creation in health | Scoop.it
We found that a P4P program in EHR-enabled small practices led to modest improvements in cardiovascular processes and outcomes. This provides evidence that, in the context of increasing uptake of EHRs with robust clinical management tools, small practices may be able to improve their quality performance in response to an incentive.
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Always Hungry? Here's the Real Reason Why | RAND

Always Hungry? Here's the Real Reason Why | RAND | Co-creation in health | Scoop.it
The problem of obesity cannot be attributed to a single dietary or physiological factor, like too much sugar, too much fat, or even factors like viruses, bacteria, and endocrine disrupters. The real problem is that Americans now live in a food swamp and there is just too much food easily available.
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How much are you willing to pay to live an extra year? « Healthcare Economist

How much are you willing to pay to live an extra year? « Healthcare Economist | Co-creation in health | Scoop.it

Health Economists often use the cost per quality-adjusted life year (QALY) metric to answer this question.  QALYs are used to measure not only the additional years of life from a treatment, but also the quality of life.  For instance, you may prefer to live 1 year in perfect health to two years in a coma.  A QALY of 0.5 can indicate that the patient lived for 6 months in perfect health or for 1 year at a 50% health level.

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Including Patient Satisfaction in the Quality Equation - HITECH Answers

Including Patient Satisfaction in the Quality Equation - HITECH Answers | Co-creation in health | Scoop.it
One question that enlivened the online conversation was: To what extent should patient satisfaction be part of the quality calculation?

Via NY HealthScape
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The price of innovation: new estimates of drug development costs

Abstract

The research and development costs of 68 randomly selected new drugs were obtained from a survey of 10 pharmaceutical firms. These data were used to estimate the average pre-tax cost of new drug development. The costs of compounds abandoned during testing were linked to the costs of compounds that obtained marketing approval. The estimated average out-of-pocket cost per new drug is US$ 403 million (2000 dollars). Capitalizing out-of-pocket costs to the point of marketing approval at a real discount rate of 11% yields a total pre-approval cost estimate of US$ 802 million (2000 dollars). When compared to the results of an earlier study with a similar methodology, total capitalized costs were shown to have increased at an annual rate of 7.4% above general price inflation.

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Five Ways to Influence Donors with Brain Science

Five Ways to Influence Donors with Brain Science | Co-creation in health | Scoop.it
As social media platforms seem to keep changing at an exponential rate, there is one thing that you can count on to remain the same for at least the next thousand years: People will always make decisions based on emotion and justify those decisions with reason. As an example, let's take the hipster with the…

Via Marie Ennis-O'Connor
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Différence entre Ontologie, Thesaurus et Taxonomie sur le web de données

Différence entre Ontologie, Thesaurus et Taxonomie sur le web de données | Co-creation in health | Scoop.it

Trois espèces d’animaux différentes se rencontrent principalement dans les steppes des langages de représentation des connaissances du web de données. Les ontologies, les thesaurus et les taxonomies, si elles partagent l’organisation hiérarchiques de concepts entre eux, n’ont pas les mêmes usages, ni les mêmes objectifs. L’ontologie est faite pour décrire le monde tel qu’il est; le thesaurus est fait pour faciliter l’accès à des contenus; la taxonomie est fait pour classer des ressources dans des dossiers, des catégories. Les systèmes d’accès aux contenus, aux données ou aux connaissances, combinent et articulent ces 3 systèmes d’organisation pour décrire le monde, indexer, et catégoriser les contenus.


Via ►Franck GAUTIER◄
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Gilles Le Page's curator insight, August 6, 6:39 AM

Ouille ! ... « une ontologie est la spécification formelle d’une conceptualisation partagée » ...euh ... ;-) 
Je rigole, mais en fait c'est utile de pouvoir mettre un concept derrière des mots qu'on rencontre assez souvent...

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HIV testing is needed in mental health settings

Rayment and colleagues recommend that HIV screening be considered for everyone registering in general practice and “all general medical admissions” in areas where prevalence is >2 per 1000.1 However, they do not comment on mental health settings. This omission is regrettable, particularly in view of current campaigns to tackle health inequalities in this group and move towards “parity of esteem.”2

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Half of Americans think expensive medical care is better. They're wrong.

Half of Americans think expensive medical care is better. They're wrong. | Co-creation in health | Scoop.it
Expensive televisions are usually better than cheap televisions. Expensive surgeries aren't any better than cheap ones.
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Les patients séropositifs atteints d'un cancer sont moins susceptibles d'obtenir un traitement

Les patients séropositifs atteints d'un cancer sont moins susceptibles d'obtenir un traitement | Co-creation in health | Scoop.it

Via Giovanna Marsico
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La salud y sus determinantes sociales. Desigualdades y exclusión en la sociedad del siglo XXI | Palomino Moral | Revista Internacional de Sociología

La salud y sus determinantes sociales. Desigualdades y exclusión en la sociedad del siglo XXI

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bacigalupe's curator insight, July 30, 5:19 PM
El concepto de salud ha experimentado un proceso de revisión constante. Desde mediados del siglo XX se ha producido un desplazamiento desde la búsqueda de las causas de la enfermedad centradas en el individuo a la aparición de los determinantes sociales, los principales moduladores del fenómeno salud y la enfermedad. Hoy sabemos que la salud y la calidad de vida son un resultado social directamente relacionado con las condiciones generales de la vida de las personas y con la forma de vivir; en este sentido se han hecho notables esfuerzos en las últimas décadas para comprender cómo interactúan los determinantes sociales y se producen los resultados en salud. Analizamos las aportaciones que han conseguido poner de manifiesto los principales factores generadores de las desigualdades sociales incluyendo un análisis de las desigualdades en salud de las mujeres, la vulnerabilidad y el riesgo de exclusión.
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Communicating the experience of illness in the digital age (with tweets) · SusannahFox

Communicating the experience of illness in the digital age (with tweets) · SusannahFox | Co-creation in health | Scoop.it
At 9am on Sunday, Sept. 7, 2014, Stanford Medicine X will host a discussion led by Pamela Ressler, Colleen Young, Susannah Fox, and Meredith Gould about the power and pitfalls of people sharing their health experiences online.
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The influence of gender equality policies on gender inequalities in health in Europe

Abstract

Few studies have addressed the effect of gender policies on women's health and gender inequalities in health. This study aims to analyse the relationship between the orientation of public gender equality policies and gender inequalities in health in European countries, and whether this relationship is mediated by gender equality at country level or by other individual social determinants of health.

A multilevel cross-sectional study was performed using individual-level data extracted from the European Social Survey 2010. The study sample consisted of 23,782 men and 28,655 women from 26 European countries. The dependent variable was self-perceived health. Individual independent variables were gender, age, immigrant status, educational level, partner status and employment status. The main contextual independent variable was a modification of Korpi's typology of family policy models (Dual-earner, Traditional-Central, Traditional-Southern, Market-oriented and Contradictory). Other contextual variables were the Gender Empowerment Measure (GEM), to measure country-level gender equality, and the Gross Domestic Product (GDP). For each country and country typology the prevalence of fair/poor health by gender was calculated and prevalence ratios (PR, women compared to men) and 95% confidence intervals (CI) were computed. Multilevel robust Poisson regression models were fitted.

Women had poorer self-perceived health than men in countries with traditional family policies (PR = 1.13, 95%CI: 1.07–1.21 in Traditional-Central and PR = 1.27, 95%CI: 1.19–1.35 in Traditional-Southern) and in Contradictory countries (PR = 1.08, 95%CI: 1.05–1.11). In multilevel models, only gender inequalities in Traditional-Southern countries were significantly higher than those in Dual-earner countries.

Gender inequalities in self-perceived health were higher, women reporting worse self-perceived health than men, in countries with family policies that were less oriented to gender equality (especially in the Traditional-Southern country-group). This was partially explained by gender inequalities in the individual social determinants of health but not by GEM or GDP.

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How Virtual Humans Can Build Better Leaders

How Virtual Humans Can Build Better Leaders | Co-creation in health | Scoop.it
Avatars are teaching social skills in simulations.
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