Co-creation in health
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What types of interventions generate inequalities? Evidence from systematic reviews

Giuseppe Fattori's insight:

Conclusion Our findings are consistent with the idea that ‘downstream’ preventive interventions are more likely to increase health inequalities than ‘upstream’ interventions. More consistent reporting of differential intervention effectiveness is required to help build the evidence base on IGIs.

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Co-creation in health
E-citizens, e-patients, communities in shaping e-health, health literacy.
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Why Physicians Need ‘Right Compassion’

Why Physicians Need ‘Right Compassion’ | Co-creation in health | Scoop.it
To be effective in relieving suffering, doctors must strike a balance between paucity and excess of empathy.


As a young doctor working in the E.R. my capacity for compassion, and that of my colleagues, was often stretched; this was particularly the case when my patients could be said to have brought misfortune on themselves. I saw drug addicts suffering overdose, teenagers retching after self-poisoning, thieves injured through being arrested, all treated more brusquely than other theoretically more blameless patients.


I tried hard to maintain empathy, reflecting that the overdosed, self-poisoned and criminal may no more have brought their problems on themselves than those with skiing or horse-riding injuries or heart palpitations through overwork.


But it’s complicated: I’ve stitched up many slashed wrists cut not through willfulness but as a release from intense anguish; I’ve attended alcoholics for whom alcohol was clearly a substitute for love.


I may not have always succeeded, but I always hoped that my humanity, or my professional duty to provide a high standard of care, would step in when my compassion was running low.



By GAVIN FRANCIS
NY Time  Opinion Pages
 

image

http://bit.ly/dP1O76


Via Edwin Rutsch
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Patient engagement tools bring consumer vibes to healthcare

Patient engagement tools bring consumer vibes to healthcare | Co-creation in health | Scoop.it
Technologies like CRM and telemedicine are among the patient engagement tools that bring healthcare and its consumers closer together.
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Real-World Use and Self-Reported Health Outcomes of a Patient-Designed Do-it-Yourself Mobile Technology System for Diabetes: Lessons for Mobile Health

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La experiencia del paciente y el diseño: el movimiento Maker.

La experiencia del paciente y el diseño: el movimiento Maker. | Co-creation in health | Scoop.it
Entre las actividades de la Escuela para Radicales Sanitarios del NHS, se llevan a cabo cada mes unas charlas bajo el lema #EdgeTalks. Hay una que nos ha llamado poderosamente la atención, ya que habla de epacientes, del movimiento maker y del diseño basado en el paciente. Su título es "The Maker Movement: a model for healthcare transformation?"y al final podéis ver la presentación completa.
 
La ponente de la sesión es Joyce Lee, pediatra, investigadora y diseñadora, y además autora del blog Doctor as designer. Un buen ejemplo de su actividad es este artículo, publicado en la web co.design, bajo el título "Why is healthcare design so terrible", en el que critica abiertamente el pésimo diseño de muchos productos sanitarios, con una utilidad muy alejada de las necesidades reales de los pacientes. 

 

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La réputation des laboratoires pharmaceutiques en chute libre

La réputation des laboratoires pharmaceutiques en chute libre | Co-creation in health | Scoop.it
Les associations de patients jugent sévèrement la réputation des industriels de la pharma. Selon, Patient View, qui effectue son enquête annuelle auprès de 1 463 groupes de patients dans 105 pays, …

Via Robert Courbé, Sandra Boyer, Lionel Reichardt / le Pharmageek
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How to perform the Heimlich manoeuvre on yourself (and yes, it's just as effective)

How to perform the Heimlich manoeuvre on yourself (and yes, it's just as effective) | Co-creation in health | Scoop.it

The  Heimlich manoeuvre, a short sharp burst of pressure to the abdomen to clear a blockage in the throat,  is just as effective when performed by the person who is choking, experts have found.

Doctors from the Royal Brompton Hospital in London warned that too often people were embarrassed when they started choking and sought privacy, often where nobody could help.

But Dr Nick Hopkinson said he and colleagues had discovered that the Heimlich manoeuvre could be self-administered, either by pressing the abdomen sharply onto a chair, or by delivering a similar thrust with their hand.

 

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The role of ego in academic profile services: Comparing Google Scholar, ResearchGate, Mendeley, and ResearcherID

The role of ego in academic profile services: Comparing Google Scholar, ResearchGate, Mendeley, and ResearcherID | Co-creation in health | Scoop.it

Academic profiling services are a pervasive feature of scholarly life. Alberto Martín-MartínEnrique Orduna-Malea and Emilio Delgado López-Cózar discuss the advantages and disadvantages of major profile platforms and look at the role of ego in how these services are built and used. Scholars validate these services by using them and should be aware that the portraits shown in these platforms depend to a great extent on the characteristics of the “mirrors” themselves.

The model of scientific communication has recently undergone a major transformation: the shift from the “Gutenberg galaxy” to the “Web galaxy”. Following in the footsteps of this shift, we are now also witnessing a turning point in the way science is evaluated. The “Gutenberg paradigm” limited research products to the printed world (books, journals, conference proceedings…) published by scholarly publishers. This model for scientific dissemination has been challenged since the end of the twentieth century by a plethora of new communication channels that allow scientific information to be (self-)published, indexed, searched, located, read, and discussed entirely on the public Web, one more example of the network society we live in.

 


Via Pierre Levy
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Rescooped by Giuseppe Fattori from #web2salute
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E-santé : la maladie des influenceurs comme levier d'engagement

E-santé : la maladie des influenceurs comme levier d'engagement | Co-creation in health | Scoop.it
Le média social de l'agence digitale, RCA Factory, lance son premier Facebook Live, pour offrir une tribune d'audience de masse à des patient
Via catherine cerisey, Giuseppe Fattori
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Skin sensors provide wealth of patient data

Skin sensors provide wealth of patient data | Co-creation in health | Scoop.it
When her medications aren't working, Bernadette Mroz says, "my world goes into a spin cycle. I cannot function mentally, emotionally, or physically."
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My doctor says there’s a guideline for my treatment – but is it right for me?

My doctor says there’s a guideline for my treatment – but is it right for me? | Co-creation in health | Scoop.it

Health care guidelines are produced in ever-increasing numbers. The National Guideline Clearinghouse, a U.S.-based public website compiling summaries of “clinical practice” (health care) guidelines, has over 1,000 entries and is updated weekly. The National Institute for Health and Care Excellence in the U.K. has over 180 clinical guidelines.

Health care guidelines cover all aspects of medicine, from using aspirin to prevent heart attacks and colon cancer to managing earwax and caring for athletes with concussions.

Health care guidelines impact policy decisions and care for individuals. Recent research, though, suggests that the public has only a vague understanding of what guidelines are and how they are developed.

This is consistent with my own experience as a physician studying best practices for patient engagement in guideline development. Most of my patients and focus group participants are unfamiliar with how guidelines are developed. This can lead to uncertainty for patients and contributes to controversy, such as debates about mammography guidelines.

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Educating Clinicians About Cultural Competence and Disparities in Health and Healt Care

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FDA May Establish “Office of Patient Affairs” to Capture Patient Perspectives

FDA May Establish “Office of Patient Affairs” to Capture Patient Perspectives | Co-creation in health | Scoop.it

As part of efforts to better capture patients' perspectives, the US Food and Drug Administration (FDA) on Monday said it is considering establishing an "Office of Patient Affairs," to be tasked with supporting and coordinating patient engagement across the agency.

 

The move to create the office would be part of the agency’s efforts to offer “a single, central entry point to the Agency for the patient community,” as well as “triage and navigation services for inbound inquiries from patient stakeholders.”

 

The office would likely host and maintain data management systems to incorporate and formalize knowledge shared with FDA by patient stakeholders and FDA's relationships with patient communities, and the office would be part of efforts to develop a scalable and forward-looking platform for communicating with patient stakeholders, particularly online.

 

Further Reading:


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Pharma Guy's curator insight, March 15, 11:55 AM

I wonder who would head up this office?

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Les défis et les talents des personnes multipotentielles

Les défis et les talents des personnes multipotentielles | Co-creation in health | Scoop.it

Elles font partie de ces personnes très réactives dès qu'on les enferme dans une définition, et qui pourtant ne peuvent s'empêcher de se reconnaître à la lecture des articles et témoignages sur la multipotentialité.

Parfois surdouées et hyperactives, souvent très orientées "cerveau droit", elles aiment créer, explorer, expérimenter dans des contextes toujours nouveaux, et surtout garder toujours ouvert l'espace infini des possibles.

Toujours conscient de ma subjectivité, et avec les schématisations auxquelles m'obligent l'écriture d'un article lisible, j'aborderai quelques défis et talents de ces personnes touchantes, étranges, passionnées et passionnantes que sont les multipotentialistes.

 


Via Lionel Reichardt / le Pharmageek, Pharmacomptoir / Corinne Thuderoz
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Could Be the Thyroid; Could Be Ennui. Either Way, the Drug Isn’t Helping.

Could Be the Thyroid; Could Be Ennui. Either Way, the Drug Isn’t Helping. | Co-creation in health | Scoop.it

“During the past four weeks, have you been tired? Been exhausted? Had difficulty getting motivated to do anything at all?”

These questions — which a substantial chunk of the population probably could answer in the affirmative — appeared on a questionnaire used in a major European study published recently in The New England Journal of Medicine.

The authors were researching the effectiveness of a drug that is widely, if controversially, used to treat older adults with subclinical hypothyroidism, better known as a slightly underactive thyroid.

So many Americans take that medication — levothyroxine (brand name Synthroid, among others) — that it topped the list of prescription drugs dispensed in the United States in 2015, according to the research firm QuintilesIMS Institute.

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Social capital and health: Does egalitarianism matter? A literature review

Social capital and health: Does egalitarianism matter? A literature review | Co-creation in health | Scoop.it
The aim of the paper is to critically review the notion of social capital and review empirical literature on the association between social capital and health across countries. The methodology used for the review includes a systematic search on electronic databases for peer-reviewed published literature. We categorize studies according to level of analysis (single and multilevel) and examine whether studies reveal a significant health impact of individual and area level social capital. We compare the study conclusions according to the country's degrees of economic egalitarianism. Regardless of study design, our findings indicate that a positive association (fixed effect) exists between social capital and better health irrespective of countries degree of egalitarianism. However, we find that the between-area variance (random effect) in health tends to be lower in more egalitarian countries than in less egalitarian countries. Our tentative conclusion is that an association between social capital and health at the individual level is robust with respect to the degree of egalitarianism within a country. Area level or contextual social capital may be less salient in egalitarian countries in explaining health differences across places.
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A Patient-Designed Do-It-Yourself Mobile Technology System for Diabetes Promise and Challenges for a New Era in Medicine

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State of Population Health Analytics

State of Population Health Analytics | Co-creation in health | Scoop.it

The 2016 State of Population Health Analytics (SOPHA) study revealed that the healthcare industry is making progress, but at a slower pace than expected. This is due to the challenge of integrating multiple sources and types of data and a focus on the data and technology to the detriment of people, processes and leadership. Larger healthcare organizations are making more progress than smaller ones due to their greater access to resources.

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Yes, You Can Measure White Privilege

Yes, You Can Measure White Privilege | Co-creation in health | Scoop.it
Whenever anyone slips the words “white privilege” into a conversation, it immediately builds an impenetrable wall. For some white people, the words elicit an uneasy feeling because, for them, the term is accusatory without being specific. It is a nebulous concept that seemingly reduces the complex mishmash of history, racism and social phenomena to a nonspecific groupthink phrase.

Via Dr. Susan Bainbridge
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Koen Mattheeuws's curator insight, April 17, 3:32 AM
Meten is weten. Tenzij je niet wil weten. Of enkel meet in functie van wat jij al meent te weten. 
Rosemary Tyrrell, Ed.D.'s curator insight, April 17, 11:46 AM
Worth a read.
 
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The Big Kardia Review and the Evolution of Digital Health #hcsmeufr

The Big Kardia Review and the Evolution of Digital Health #hcsmeufr | Co-creation in health | Scoop.it
Kardia was the very first health sensor I have ever used, and I was fortunate enough to follow its evolution. Now, the company, AliveCor sent me their latest version of the Kardia Mobile heart health monitor. Check out my review below! The progress of a health sensor Alivecor has a special meaning to me, since …

Via Lionel Reichardt / le Pharmageek, Pharmacomptoir / Corinne Thuderoz
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Making Sense of DTC Ad Spending

Making Sense of DTC Ad Spending | Co-creation in health | Scoop.it

About this time every year, I get data from Kantar Media and Nielsen regarding how much money the U.S. pharmaceutical industry spends on direct-to-consumer (DTC) advertising.

The data I’m most interested in are the total spend for the year and what portion of that is digital versus TV. But it can be difficult to ferret out that information from the two different sources, which often report different numbers.

Let’s look at the total spend first.

 

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Clinical trial looks at targeted genetic therapies for lung cancer

Clinical trial looks at targeted genetic therapies for lung cancer | Co-creation in health | Scoop.it
Researchers at the University of Cincinnati (UC) College of Medicine are enrolling patients in a clinical trial looking at targeted gene therapies in patients with early stage lung cancer who have had surgery.
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Rescooped by Giuseppe Fattori from eLearning, Medical Education and Other Snippets
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The Comics Revealing Medical School's Hidden Flaws and Hard Lessons

The Comics Revealing Medical School's Hidden Flaws and Hard Lessons | Co-creation in health | Scoop.it
How “graphic medicine” is helping some students survive the bottom of the hospital pecking order

Via NLafferty
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NLafferty's curator insight, March 28, 12:31 PM
Revealing insights into the hidden curriculum via the medium of comics. 
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Who Brands Your Nonprofit? Who Tells Its Story and How?

Who Brands Your Nonprofit? Who Tells Its Story and How? | Co-creation in health | Scoop.it

This article by Carlo Cuesta is one of the best we have ever seen on the 21st-century intersection of engagement, dialogue with stakeholders, and brand.


Via Marie Ennis-O'Connor
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Mortality tale: Britain’s long-falling death rate has levelled out. A blip or something more? | The Economist

Mortality tale: Britain’s long-falling death rate has levelled out. A blip or something more? | The Economist | Co-creation in health | Scoop.it
IT HAS been an article of faith of post-war demography that better health care and improved living conditions would mean a continuing fall in mortality. Just in the decade to 2013, life expectancy in England rose by 3 years for men and 2.3 years for women.
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Why Smart People Make Stupid Decisions

We’ve all been there. We make what we think is a rational decision and seconds, minutes or days later we wonder “What was I thinking?” Discover how to stop making stupid decisions and start making smart ones by understanding our cognitive biases.
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Lifetime Trends in Biopharmaceutical Innovation Recent Evidence and Implications

Lifetime Trends in Biopharmaceutical Innovation Recent Evidence and Implications | Co-creation in health | Scoop.it
Over the past 20 years, over 700 new active substances (NASs) have successfully been discovered, developed and authorized by regulatory bodies for use with patients globally. This report profiles the NASs launched in the U.S. over the past 20 years and measures the length of a molecule’s lifetime from patent filing to launch and eventual patent expiry.  It also explores the significant variations in this lifetime when viewed by molecule characteristics such as therapy area, orphan drug status, and the type of companies involved in the development and marketing. These issues and trends highlight important implications for investors and manufacturers.
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