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Community Organizing and Community Building for Health and Welfare

Community Organizing and Community Building for Health and Welfare | Co-creation in health | Scoop.it
This is an important resource of great value for those studying public health, health education, and theory-based program planning. Minkler's new text offers insightful overviews, case examples, and a rich appendix of tools." 
—Rima Rudd, Harvard School of Public Health
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Co-creation in health
E-citizens, e-patients, communities in shaping e-health, health literacy.
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Il caso Ebola. I media e la percezione dei rischi - AIRESPSA - School - 2014

Dalla percezione alla gestione dei rischi
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Posttraumatic growth, dyadic adjustment, and quality of life in breast cancer survivors and their husbands

Abstract
PURPOSE:

The purpose of this study was to identify whether the couple perceived breast cancer as a traumatic event, to evaluate the association among posttraumatic growth, dyadic adjustment, and quality of life and to explore the predictors affecting quality of life of the couple.

METHODS:

A cross-sectional comparative survey design was utilized. Participants were 57 couples recruited from a national cancer center in Korea. Data were analyzed using paired t-test, McNemar test and independent t-test. On the basis of variables found to be significantly associated with quality of life, multiple regression was used to examine the simultaneous influence of multiple predictors.

RESULTS:

Breast cancers survivors and spouses perceived breast cancer as a traumatic event (43.9% and 24.6%, respectively). The global quality of life was explained by perception as trauma (β=-19.79) and posttraumatic growth (β=0.46) in survivors, and perception as trauma (β=-18.81) and dyadic adjustment (β=0.53) in spouses.

CONCLUSION:

Results suggest that future research should use qualitative methods to evaluate why contemplating reasons for cancercontributed to posttraumatic growth, examine other potential predictors of quality of life such as dyadic adjustment and intimacy, and identify links between posttraumatic growth and other psychological outcomes such as distress and well-being, using prospective analyses.

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The BMJ -Treating the patient and not the disease

The BMJ -Treating the patient and not the disease | Co-creation in health | Scoop.it
It was the biggest turnout for many a year. In our small coastal town in the north west of England, 5000 of us stood together bare headed for an hour on a magnificently clear but cold November morning. The Salvation Army brass band was muted but played beautifully, and there was pomp and circumstance aplenty.
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Concepts and definitions for "actively dying," "end of life," "terminally ill," "terminal care," and "transition of care": a systematic review.

One of 16, three of 134, three of 44, two of 93, and four of 17 articles defined or conceptualized actively dying, end of life, terminally ill, terminal care, and transition of care, respectively. Actively dying was defined as "hours or days of survival." We identified two key defining features for end of life, terminally ill, and terminal care: life-limiting disease with irreversible decline and expected survival in terms of months or less. Transition of care was discussed in relation to changes in 1) place of care (e.g., hospital to home), 2) level of professions providing the care (e.g., acute care to hospice), and 3) goals of care (e.g., curative to palliative). Definitions for these five terms were rarely found in dictionaries, textbooks, and organizational Web sites. However, when available, the definitions were generally consistent with the concepts discussed previously.
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Cancer, les patients ne bénéficient pas assez des soins de support

Cancer, les patients ne bénéficient pas assez des soins de support | Co-creation in health | Scoop.it
Il existe un décalage entre la perception des cancérologues sur les soins oncologiques de support (SOS) et celle des patients, selon le 2ème Baromètre réalisé auprès de plus de 700 médecins et 1 500 malades.

Via Stéphanie Chevrel
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BMJ - Richard Smith: Communicating with patients about ductal carcinoma in situ

Ductal carcinoma in situ (DCIS) is a condition we don’t understand. We don’t know its significance, how to describe it, and how to treat it. Worse, we may have created it. Its incidence in the US in 1975 was 1.87 per 100 000; now it’s 32.5. During that time there has been no drop in invasive cancers.
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Patients can be part of the solution, we just need to let them in - Health Foundation

Patients can be part of the solution, we just need to let them in - Health Foundation | Co-creation in health | Scoop.it
In health care, we’re continuing to (unwittingly) make ourselves and our patients dependent on a system we increasingly can’t afford to fund. Will we ever systematically let patients, carers and others in? asks Mark Duman.
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Cochrane Depression, Anxiety and Neurosis Group announces the establishment of a Suicide and Self-Harm Satellite | The Cochrane Collaboration

Cochrane Depression, Anxiety and Neurosis Group announces the establishment of a Suicide and Self-Harm Satellite | The Cochrane Collaboration | Co-creation in health | Scoop.it

It is with great pleasure that the Cochrane Depression, Anxiety and Neurosis Group (CCDAN) announces the formation of a Suicide and Self-Harm satellite based in Swansea, Wales.

The Satellite is based at the College of Medicine at Swansea University, and will work with the Bristol editorial team under the broad title of CCDAN Suicide and Self-Harm Satellite. Led by Professor Keith Lloyd and Associate Professor Ann John, the satellite will facilitate the synthesis, production, and dissemination of high-quality evidence on the effects of interventions and preventive strategies for suicide and self-harm. Core activities of the CCDAN Suicide and Self-Harm Satellite will include:

  • Development of author and editorial capacity.
  • Undertaking prioritisation exercises to identify high-priority reviews in suicide and self harm prevention and interventions.
  • Production and dissemination of high-priority reviews relevant to the field; and translation of this knowledge into policy.
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Sesame Enable : 1ère smartphone mains libres conçu pour les handicapées

Sesame Enable : 1ère smartphone mains libres conçu pour les handicapées | Co-creation in health | Scoop.it
Sesame Enable : 1ère smartphone mains libres conçu pour les handicapées
Elad Ratson
La start-up israélienne Sesame Enable a inventé un système permettant d’utiliser son téléphone sans les mains.

Via Emmanuel Capitaine
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Cost effectiveness has its place, but so does common sense

Cost effectiveness models are useful tools for equitable rationing of health budgets but should not be the only component of the decision making process. This is particularly true for vaccination of children for rare diseases, where crucial parameters are inherently uncertain. In this case, the uncertainty is evident; Christensen and colleagues’ paper is the third iteration of the model,1 with each leading to different conclusions …

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Elderly patients with diabetes receive online patient support

Elderly patients with diabetes receive online patient support | Co-creation in health | Scoop.it
Novo Nordisk and Novartis, Switzerland are conducting various tests to cater to the large number of the aging population that live in their 80s and beyond. It is estimated that people that are 60 years and older will be more than children below the age of give by the year 2020. This paper was published on Thursday in the Lancet medical journal.

Efforts are being made to ensure that the extended life span of the aging population is healthy and to stave problems such as dementia and diabetes.

Via Dominique Godefroy, Lionel Reichardt / le Pharmageek
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Today's Digital Patient (Infographic)

Today's Digital Patient (Infographic) | Co-creation in health | Scoop.it
Visit the post for more.

Via Plus91
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Global surveillance of cancer survival 1995–2009 ... in 67 countries : The Lancet

Background
Worldwide data for cancer survival are scarce. We aimed to initiate worldwide surveillance of cancer survival by central analysis of population-based registry data, as a metric of the effectiveness of health systems, and to inform global policy on cancer control.
Methods
Individual tumour records were submitted by 279 population-based cancer registries in 67 countries for 25·7 million adults (age 15—99 years) and 75 000 children (age 0—14 years) diagnosed with cancer during 1995—2009 and followed up to Dec 31, 2009, or later. We looked at cancers of the stomach, colon, rectum, liver, lung, breast (women), cervix, ovary, and prostate in adults, and adult and childhood leukaemia. Standardised quality control procedures were applied; errors were corrected by the registry concerned. We estimated 5-year net survival, adjusted for background mortality in every country or region by age (single year), sex, and calendar year, and by race or ethnic origin in some countries. Estimates were age-standardised with the International Cancer Survival Standard weights.


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A new dawn: The role of social media in diabetes education


Via Marie Ennis-O'Connor
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Psychologie du consommateur & paiement sur internet (infographie)

Psychologie du consommateur & paiement sur internet (infographie) | Co-creation in health | Scoop.it
Voici une infographie passionnante sur la psychologie des consommateurs sur les sites de e-commerce. Voyons quels sont les critères de confiance qu'un acheteur potentiel va prendre en compte pour p...

Via Catherine Pascal
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Social Media and Oncology Patient Care

Social Media and Oncology Patient Care | Co-creation in health | Scoop.it
With the uptake of social media in recent years, the exchange of information through such outlets has been on the rise, including communication related to oncology patient care. Increasingly, patients turn to online sources, such as social media, for information on their cancer diagnoses, treatment options, and forming support communities.1

Via Philippe Marchal/Pharma Hub
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The power of information: Putting all of us in control of the health and care information we need

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Digital health: Co-creation, the key to the future | LeWeb Blog

Digital health: Co-creation, the key to the future | LeWeb Blog | Co-creation in health | Scoop.it
In this second post on LeWeb Blog, Lionel Reichardt explains why the future is bright for digital health startups
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The war against heart failure: the Lancet lecture : The Lancet

Heart failure is a global problem with an estimated prevalence of 38 million patients worldwide, a number that is increasing with the ageing of the population. It is the most common diagnosis in patients aged 65 years or older admitted to hospital and in high-income nations. Despite some progress, the prognosis of heart failure is worse than that of most cancers. Because of the seriousness of the condition, a declaration of war on five fronts has been proposed for heart failure. Efforts are underway to treat heart failure by enhancing myofilament sensitivity to Ca2+; transfer of the gene for SERCA2a, the protein that pumps calcium into the sarcoplasmic reticulum of the cardiomyocyte, seems promising in a phase 2 trial. Several other abnormal calcium-handling proteins in the failing heart are candidates for gene therapy; many short, non-coding RNAs—ie, microRNAs (miRNAs)—block gene expression and protein translation. These molecules are crucial to calcium cycling and ventricular hypertrophy. The actions of miRNAs can be blocked by a new class of drugs, antagomirs, some of which have been shown to improve cardiac function in animal models of heart failure; cell therapy, with autologous bone marrow derived mononuclear cells, or autogenous mesenchymal cells, which can be administered as cryopreserved off the shelf products, seem to be promising in both preclinical and early clinical heart failure trials; and long-term ventricular assistance devices are now used increasingly as a destination therapy in patients with advanced heart failure. In selected patients, left ventricular assistance can lead to myocardial recovery and explantation of the device. The approaches to the treatment of heart failure described, when used alone or in combination, could become important weapons in the war against heart failure.
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How We Look When We Look at a Painting - The New Yorker

How We Look When We Look at a Painting - The New Yorker | Co-creation in health | Scoop.it
The studies of solitary viewers of paintings in Frederick Wiseman’s “National Gallery” amount to a pictorial essay on self-forgetting.
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Essentials for Pharma Key Account Management

Essentials for Pharma Key Account Management | Co-creation in health | Scoop.it
Pharma companies must adapt to vast changes in health care by forming long-term strategic relationships founded on joint value creation with customers.
  • Few pharma companies have revised their customer models in light of the vast changes in health care that are transforming customers.
  • Effective key account management helps foster partnerships to create long-term mutual value and advantage.
  • To get key account management right, pharma companies must gain a deep understanding of their customers, focus on join value creation, forge enduring partnerships, create cross-functional integration, and cultivate an entrepreneurial mindset.
See Also the original blog for more information

Vast changes in the health care landscape worldwide are transforming customers. Treatment decision making is rapidly shifting from the individual physician to a diverse set of institutional customers, from hospitals to integrated care entities, and from payers to pharmacies and health-benefit-management companies. The pressure to deliver greater value is also driving this evolution. And while some customers are already more sophisticated than others, all are building experience and new capabilities to improve their economic performance and better manage patient outcomes.

The experience of hospitals offers a good example not only of how these market pressures are affecting institutions but also of the new ways in which institutional customers are responding to them. With health-care reimbursement levels shrinking, hospitals are consolidating, and they are building scale and expertise in the process. Most hospitals now employ a variety of analytical tools, such as benchmarks and studies, to evaluate price, cost effectiveness, and outcomes. They are also creating new positions in their management teams to bridge the traditionally segregated clinical and procurement domains. And they are launching or expanding efforts to assess medicines and procedures in their patient populations. Moreover, they are using the knowledge they gain through these efforts to improve formularies and treatment protocols.

The more sophisticated payers and integrated providers are also investing heavily in building capabilities. Increasingly, these customers are adopting a holistic approach to health care, partnering with pharmaceutical companies to improve outcomes, disease management, and compliance.

Despite these dramatic developments in the customer landscape, however, many pharma companies have yet to adapt their customer models. When key account management in the pharmaceutical industry is compared with that of other industries, including consumer goods and industrial products, it’s clear that most pharma companies are still lagging. Here’s why:

  • Pharma companies don’t fully recognize the range of customers’ business drivers and needs. A one-size-fits-all-approach, even when designed for the most important customers, no longer works.
  • Companies think transactionally instead of strategically. Pharma companies often put short-term concerns ahead of long-term considerations—for example, focusing on getting the highest possible price or the greatest revenues right away instead of weighing customers’ economic situations and evolving needs.
  • Companies overcomplicate their customer management models. In an effort to keep pace with the growing complexities of customer requirements, pharma companies often end up tailoring individual customer relationships to an unsustainable degree. The result is reduced quality, unnecessary complexity, and inefficiencies that erode the profit potential of key accounts.
  • Customer management is hampered by conflicting roles and responsibilities. Customer-facing functions, from account management and medical affairs to business units and support departments, often end up tripping all over each other—and the customer. The resulting redundancies and confusion can do more to erode value than to create it.
  • Key account managers (KAMs) often lack the right competencies, and companies don’t seek or cultivate these skills. The best sales-line managers and sales representatives don’t necessarily make the best KAMs. Unfortunately, many pharma companies still struggle to recruite and promote people who have the skill sets that key account management requires. So far, few organizations have embedded the development of those skills in their hiring, training, and promotion processes.
These weaknesses limit pharma companies’ ability to serve their largest, most complex customers effectively. Pharma companies are already losing out on opportunities to create value through partnerships with health care systems and the broader community of health care stakeholders, largely because such relationships require cross-functional capabilities.

Effective key account management, in our view, depends on cross-functional integration to deliver value. Many pharma companies do practice some form of key account management, but gaps exist in even the best-managed companies.


Via rob halkes
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rob halkes's curator insight, October 16, 11:13 AM

Key Account Management is for pharma the most difficult service to develop! It needs an internal collaboration between siloed departments that one hasn't exercised for the last 10 to 20 years.

Yet, there's no way out outherwise than to give your customers the right attention to get partnerships. A partnership that goes further than just drug promotion and delivery...

Alexandre Gultzgoff's curator insight, November 25, 3:34 AM

BCG's vision about KAM. a dream?

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Le plus grand mathématicien du XXe siècle est mort

Le plus grand mathématicien du XXe siècle est mort | Co-creation in health | Scoop.it
Alexandre Grothendieck a bouleversé la manière de faire des mathématiques avec sa nouvelle vision de la géométrie.

Via Muriel, Andry, Carlos
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Muriel, Andry, Carlos's curator insight, November 15, 9:44 AM

Alexandre Grothendieck fait partie des grands mathématiciens du XXe siècle. Il est décédé à l’âge de 86 ans dans l’Ariège, près du village où il avait décidé de vivre retiré, loin de la communauté scientifique, “brouillé avec ses proches, sa famille, avec la science et le monde entier”. Repéré très vite par le milieu de la recherche pour son incroyable capacité de travail et ses intuitions, il s’est consacré très jeune à l’analyse fonctionnelle pour s’intéresser ensuite à la géométrie. Ses travaux ont révolutionné la pratique des mathématiques. Le Monde retrace son parcours.

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Scattate fotografie orribili senza saperlo. Vi stanno ingannando...

Scattate fotografie orribili senza saperlo. Vi stanno ingannando... | Co-creation in health | Scoop.it
Sta accadendo qualcosa di impressionante, ma nessuno se ne rende conto. Sta accadendo che tutti hanno scambiato le fotocamere dei loro cellulari in macchine fotografiche vere. Con abili campagne pu...
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Too Late To Start? Quarter Life Crisis and Late Bloomers

Too Late To Start? Quarter Life Crisis and Late Bloomers | Co-creation in health | Scoop.it
This interactive graphic shows at what age famous CEOs and founders started their companies. Was it before of after the quarter life crisis?
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It's time to stop ignoring lung cancer

It's time to stop ignoring lung cancer | Co-creation in health | Scoop.it
Thirty percent of people with lung cancer will die within 90 days of being diagnosed – how can that prognosis be improved and is it time for a national screening programme?
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