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Improving Diabetes Management With a Patient Portal: Qualitative Study of a Diabetes Self-Management Portal

Improving Diabetes Management With a Patient Portal: Qualitative Study of a Diabetes Self-Management Portal | Co-creation in health | Scoop.it

Conclusions: This qualitative study shows that online chronic disease management portals increase patient access to information and engagement in their health care, but improvements in the portal itself may improve usability and reduce attrition. Furthermore, this study identifies a grey area that exists in the roles that GPs and AHPs should play in the facilitation of online disease management.

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Co-creation in health
E-citizens, e-patients, communities in shaping e-health, health literacy.
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Marketing sociale e Comunicazione per la salute - Gennaio 2015 -Newsletter 129 - #Socialmarketing

Marketing sociale e Comunicazione per la salute - Gennaio 2015 -Newsletter 129 - #Socialmarketing | Co-creation in health | Scoop.it
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Junk Science Week: Vaccinating the 'herd'

Junk Science Week: Vaccinating the 'herd' | Co-creation in health | Scoop.it

“This ‘herd immunity’ protects the most vulnerable, including those who can’t be vaccinated for medical reasons, infants too young to get vaccinated and people on whom the vaccine doesn’t work. But herd immunity works only when nearly the whole herd joins in. When some refuse vaccinations and seek a free ride, immunity breaks down and everyone is more vulnerable.”

The concept of “herd immunity” first materialized in the 1930s, when Johns Hopkins University’s Arthur Hedrich discovered that, after 55% of Baltimore’s population acquired measles (and thus immunity to measles), the rest of the population, or “herd,” became protected. This concept provides today’s rationale for insisting that everyone be vaccinated.

Measles outbreaks occur even when the vaccinated population exceeds 95%


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Life expectancy: poverty kills

Life expectancy: poverty kills | Co-creation in health | Scoop.it
That rising economic tides do not lift all boats is well recognised. Research presented at the Economic and Social Research Institute (ESRI) conference “Socio-economic inequalities in mortality in Ireland over time and place” showed a significant increase in life expectancy in the Republic during the most recent economic boom. But this “longevity bonus” was not shared equally across social groups: while death rates among male professionals, managers and the self -employed decreased by 27 per cent between the 1990s and 2000s, mortality among working class males increased by 4 per cent.
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The FDA is finally embracing health tech -- that's both good and bad news

The FDA is finally embracing health tech -- that's both good and bad news | Co-creation in health | Scoop.it
23andMe was built on the idea that consumers are smart enough to handle their own health-care information and guide their own care. Now, apparently, the FDA is starting to agree.

Via Alex Butler
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How pharmaceutical companies engage nurses online

How pharmaceutical companies engage nurses online | Co-creation in health | Scoop.it
With nurses being among the most digitally engaged healthcare professionals on social media, pharmaceutical companies are planning ways in which to engage with them better online. Here are two case st...

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ChemaCepeda's curator insight, March 4, 7:10 AM

Nuevos canales de participación de las farmacéuticas para aportar valor a profesionales de enfermería y pacientes

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New Pharma Digital Marketing Benchmarks Show that Online Pharmaceutical Marketing Continues to Drive Brand Awareness, Favorability and Conversions

New Pharma Digital Marketing Benchmarks Show that Online Pharmaceutical Marketing Continues to Drive Brand Awareness, Favorability and Conversions | Co-creation in health | Scoop.it
comScore, Inc. (NASDAQ: SCOR), a leader in measuring the digital world, today released results from its eighth annual Online Marketing Effectiveness Benchmarks for the Pharmaceutical Industry, conducted in partnership with marketing innovation consultancy Evolution Road LLC.

Via Lionel Reichardt / le Pharmageek, Bettina Gifford
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Global, regional, and national age–sex specific all-cause and cause-specific mortality for 240 causes of death, 1990–2013: a systematic analysis for the Global Burden of Disease Study 2013 - The La...

Global, regional, and national age–sex specific all-cause and cause-specific mortality for 240 causes of death, 1990–2013: a systematic analysis for the Global Burden of Disease Study 2013 - The La... | Co-creation in health | Scoop.it

For most countries, the general pattern of reductions in age-sex specific mortality has been associated with a progressive shift towards a larger share of the remaining deaths caused by non-communicable disease and injuries. Assessing epidemiological convergence across countries depends on whether an absolute or relative measure of inequality is used. Nevertheless, age-standardised death rates for seven substantial causes are increasing, suggesting the potential for reversals in some countries. Important gaps exist in the empirical data for cause of death estimates for some countries; for example, no national data for India are available for the past decade.

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Addictions

Addictions | Co-creation in health | Scoop.it
View on TED website:     View on TED website:   PharmaGossip - Nov 5, 2014: "Watch to the end please" Note: full version of this video is not longer available on YouTube (sorry). &nb...
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The Science Of Branding: 20 Proven Ways To Make Better Branding Decisions - FREE on Kindle today

The Science Of Branding: 20 Proven Ways To Make Better Branding Decisions eBook: Mark Prus: Amazon.ca: Kindle Store

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Claude Emond's curator insight, February 24, 2:18 PM

Everyone needs branding. A good introduction to it.

Claude Emond's curator insight, February 24, 2:19 PM

Everyone needs branding. A good introduction to it.

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Patient commentary: social media provides patients with support, information, and friendship

Patient commentary: social media provides patients with support, information, and friendship | Co-creation in health | Scoop.it

When I was diagnosed with systemic lupus erythematosus 32 years ago, aged 15, social media did not exist. After months of diagnostic tests, I was happy to find out that my condition had a name. Six months after diagnosis, I attended my first lupus support group, where the topic for discussion was funeral planning. Questions posed included “what prayers and flowers do you want?”


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Tiziano Galli's curator insight, February 22, 9:18 AM

Ricordando l'articolo di focus, trito e ritrito, sull'uso della rete da parte dei medici, ecco invece la risposta perfetta a quello che intendevo nella mia critica, di quello che oggi la "medicina sul web" ha bisogno... L'articolo è tratto da bmj.com ed è in inglese, ma è una bella testimonianza del vissuto di una paziente affetta da Lupus. All'inizio della sua "carriera", in epoca pre-social ha incontrato un medico e un gruppo di incontro che non l'hanno soddisfatta. Anni dopo twitter le ha dato la possibilità di incontrare altri pazienti e di sviluppare con loro, rapporti stretti traendone reciproco e grande beneficio.

Stiamo quindi parlando di community e la chiusa dell'articolo e della testimonianza è la risposta a cio' che il giornalismo dovrebbe oggi fare.

Comprendere la realtà e favorire il cambiamento che sta avvenedno attraverso i social.

L'ultimo paragrafo dice questo: "Gli studi di molti medici sono oberati di lavoro,  con personale insufficiente e considerano i social media come un fastidio (libera traduzione di "Distraction"). Se solo loro realizzassero il beneficio che offre un "portale per pazienti" o il postare mensilmente su un blog. Fornire informazioni in rete potrebbe significare migliorare la salute dei loro pazienti e  ridurre il carico di lavoro in studio."

Va sottolineato che il commento fa riferimento ad un attitudine del medico verso i propri pazienti e non ad informazioni generali fornite sul web/portale ufficiale dalla Società Nazionale "di categoria". Il paziente vuole e cerca un contatto diretto con il proprio medico in rete, anche e specie se in aggiunta a quello che puo' avere nella realtà. Cio' dovrebbe convincere piu' e piu' medici ad aumentre la propria presenza attiva e digitale, destinando piu' spazio della propria attività ai social o a essere social.

La soluzione e la differenza per il "Medico digitale vincente" è il controllo dei canali di comunicazione e la differenziazione del proprio servizio rispetto alla concorrenza.

Termini da venditore forse ma, checchè se ne dica la salute è un prodotto come un altro e il medico, specie quello privato, partecipa a pieno titolo al gioco della domanda e dell'offerta.

Google è una rete da pesca e come tale si comporta nell'intercettare i pazienti. Il mondo sta cambiando ed è sempre piu' l'integrazione di canali reali e virtuali (con il virtuale in grande crescita, soprattutto in prima battuta, perchè prima valuto sul web cio' che compro in negozio). I pazienti stanno cambiando e trovano sul web, con facilità,  molte piu' informazioni e comunità di quelle che ottengono e incontrano nel mondo reale..

Quanti operatori sanitari, con che velocità e con quali proposte e impegno essi cercano di posizionarsi in rete?

Quanti hanno capito l'opportunità di spendere un po' del proprio lavoro per parlare nella maniera giusta attraverso il web e i social?

 

Accostando l'orecchio a quel canale di comunicazione potrebbero  sentire la domanda dei molti pazienti in rete che altrimenti non vedono sbracciare ...EHI GUARDAMI...C'È NESSUNO? SONO QUÌ...MI SENTI?

 

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Can patients use test results effectively if they have direct access?

Patients increasingly have direct access to medical records and test results. This increased patient engagement may contribute to better decision making and care. Evidence indicates that patients value access to test results, particularly those with chronic disease. Having direct access may improve the doctor-patient relationship and increase satisfaction with care. Traditionally, patients access test results through the requesting clinician, who provides an interpretation and puts the results in the context of the patient’s overall health condition. This model presents problems, however, in particular delays in communicating results to patients. Evidence from several studies has highlighted failure to inform patients of abnormal results in a substantial proportion of cases and also clinicians overlooking results that should have been acted on.1 2

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Study: Interactive, tailored web content may improve patient health, knowledge

Study: Interactive, tailored web content may improve patient health, knowledge | Co-creation in health | Scoop.it
Offering interactive web-based content that is personalized for a patient may increase the patient’s knowledge of their condition and reduce their incidence of negative effects, according to a study conducted by researchers in the Department of Medical Psychology at Germany-based University Medical Center Hamburg-Eppendorf.

Via Philippe Marchal/Pharma Hub
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Let's Tweet Over : Interview with John MACK @pharmaguy at Social Media for Pharma conference #hcsmeu #hcsmeufr #hcsm

Une chaîne dédiée à la E santé... d'expériences vécues comme la Silicon Valley aux émissions de J'IRAI TWEETER CHEZ VOUS #JTCV en passant par de beaux événem...

Via Lionel Reichardt / le Pharmageek, Pharma Guy
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Community organizing and community health: piloting an innovative approach to community engagement applied to an early intervention project in south London

Community organizing and community health: piloting an innovative approach to community engagement applied to an early intervention project in south London | Co-creation in health | Scoop.it

Background The importance of community engagement in health is widely recognized, and key themes in UK National Institute for Health and Clinical Excellence (NICE) recommendations for enhancing community engagement are co-production and community control. This study reports an innovative approach to community engagement using the community-organizing methodology, applied in an intervention of social support to increase social capital, reduce stress and improve well-being in mothers who were pregnant and/or with infants aged 0–2 years.

Methods Professional community organizers in Citizens-UK worked with local member civic institutions in south London to facilitate social support to a group of 15 new mothers. Acceptability of the programme, adherence to principles of co-production and community control, and changes in the outcomes of interest were assessed quantitatively in a quasi-experimental design.

Results The programme was found to be feasible and acceptable to participating mothers, and perceived by them to involve co-production and community control. There were no detected changes in subjective well-being, but there were important reductions in distress on a standard self-report measure (GHQ-12). There were increases in social capital of a circumscribed kind associated with the project.

Conclusions Community organizing provides a promising model and method of facilitating community engagement in health.

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The Google-Mayo Clinic deal is a tactic. What delivers true patient empowerment via the web?

The Google-Mayo Clinic deal is a tactic. What delivers true patient empowerment via the web? | Co-creation in health | Scoop.it
Today it is almost routine for patients to tell their doctor that they searched for their own symptoms on Google and – before their appointment – already found a myriad...

Via Celine Sportisse
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The Healthcare Revolution

The Healthcare Revolution | Co-creation in health | Scoop.it
How Health Information Exchange Models Impact Data Analytics #healthit #healthcare #tech #innovation

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Lava Prasad Kafle's curator insight, Today, 12:03 AM

@deerwalkinc we too are in healthcare revolution woow #BigDataAnalyticsinHealthcare

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Effect of increasing active travel in urban England and Wales on costs to the National Health Service. - PubMed - NCBI

Increased walking and cycling in urban areas and reduced use of private cars could have positive effects on many health outcomes. We estimated the potential effect of increased walking and cycling in urban England and Wales on costs to the National Health Service (NHS) for seven diseases--namely, type 2 diabetes, dementia, cerebrovascular disease, breast cancer, colorectal cancer, depression, and ischaemic heart disease--that are associated with physical inactivity. Within 20 years, reductions in the prevalences of type 2 diabetes, dementia, ischaemic heart disease, cerebrovascular disease, and cancer because of increased physical activity would lead to savings of roughly UK£17 billion (in 2010 prices) for the NHS, after adjustment for an increased risk of road traffic injuries. Further costs would be averted after 20 years. Sensitivity analyses show that results are invariably positive but sensitive to assumptions about time lag between the increase in active travel and changes in health outcomes. Increasing the amount of walking and cycling in urban settings could reduce costs to the NHS, permitting decreased government expenditure on health or releasing resources to fund additional health care.


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Disparities in breast cancer care linked to net worth

Disparities in breast cancer care linked to net worth | Co-creation in health | Scoop.it
Household net worth is a major and overlooked factor in adherence to hormonal therapy among breast cancer patients and partially explains racial disparities in quality of care. Several studies have shown that disparities in income contribute to disparities in health care between racial and ethnic groups, but no one had specifically analyzed the effect of household net worth on quality of care in breast cancer patients until now.
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Health system innovation: time to measure impact and system outcomes

Health system innovation: time to measure impact and system outcomes | Co-creation in health | Scoop.it

From insulin to the pacemaker, Canada has proven itself a global leader in invention.  Yet, we rank in the bottom quartile of OECD countries for innovation – a stark contrast to our record on invention. Why?  Perhaps it is the challenge of defining innovation, and then measuring its impact so that Canadian health systems can achieve transformational change and sustainability.  You know the old adage…you can’t manage what you can’t measure

Organizations, institutions, and companies in Canada never hesitate to advertise their products and services as “innovative” – but do we fully understand what this means, or is “innovation” just another buzzword that cannot be meaningfully measured?

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Internet.org reveló que solo 37,9% de la población mundial tiene acceso a internet | La República

Internet.org reveló que solo 37,9% de la población mundial tiene acceso a internet | La República | Co-creation in health | Scoop.it

Bogotá_La posibilidad de conectarse a internet en el siglo XXI parecería ser la regla, pero según el último informe de Internet.org, es la excepción, tanto así que solo 37,9% de la población mundial tiene acceso a este servicio al menos una vez al año.

Lo preocupante, no es solo que la penetración sea tan baja sino que esta acentuada por otras dos problemáticas. Según esta organización, la primera es que, hoy solo una minoría tiene acceso a la web y en el futuro la cifra tiene tendencia al alza, ya que en 2010 la tasa de adopción del internet era de 14,7% y para el año pasado, esta cifra decreció en más de 50%, deteniéndose en 6,6%.

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Snow Tweets: Emergency Information Dissemination in a US County During 2014 Winter Storms – PLOS Currents Disasters

Snow Tweets: Emergency Information Dissemination in a US County During 2014 Winter Storms – PLOS Currents Disasters | Co-creation in health | Scoop.it

Introduction: This paper describes how American federal, state, and local organizations created, sourced, and disseminated emergency information via social media in preparation for several winter storms in one county in the state of New Jersey (USA).

Methods: Postings submitted to Twitter for three winter storm periods were collected from selected organizations, along with a purposeful sample of select private local users. Storm-related posts were analyzed for stylistic features (hashtags, retweet mentions, embedded URLs). Sharing and re-tweeting patterns were also mapped using NodeXL.

Results: Results indicate emergency management entities were active in providing preparedness and response information during the selected winter weather events. A large number of posts, however, did not include unique Twitter features that maximize dissemination and discovery by users. Visual representations of interactions illustrate opportunities for developing stronger relationships among agencies.

Discussion: Whereas previous research predominantly focuses on large-scale national or international disaster contexts, the current study instead provides needed analysis in a small-scale context. With practice during localized events like extreme weather, effective information dissemination in large events can be enhanced.

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Cancer ‘the best way to die’? You couldn’t be more wrong if you tried

Cancer ‘the best way to die’? You couldn’t be more wrong if you tried | Co-creation in health | Scoop.it
Larry is 59 and has advanced pancreatic cancer. Here, he responds to a recent article claiming that cancer is ‘the best way to die’. As an oesophageal cancer survivor of 9 years – and now a terminal pancreatic cancer patient – I was deeply offended by Dr Richard Smith’s recent article in the BMJ in [...]
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BBC in Umbria & Le Marche | Italy Unpacked | Series 3 - 2. To the Centre of the Earth

BBC in  Umbria & Le Marche | Italy Unpacked | Series 3 - 2. To the Centre of the Earth | Co-creation in health | Scoop.it
The second leg of Andrew Graham-Dixon and Giorgio Locatelli's journey up the east coast takes them to the heart of Italy and the regions of Le Marche and Umbria. In the city of Urbino they visit the former palace of Federico da Montefeltro, a 15th-century scholar and commander of a private army who was one of the driving forces of the Italian Renaissance. In the Apennine Mountains, they explore the Grotte di Frassasone, one of the largest underground caves in the world, before heading to the Norcia Valley, where people have made delicious pork sausages and salamis for centuries.

Via Mariano Pallottini, Edible News
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Mobilisation of public support for policy actions to prevent obesity - The Lancet

Mobilisation of public support for policy actions to prevent obesity - The Lancet | Co-creation in health | Scoop.it

Public mobilisation is needed to enact obesity-prevention policies and to mitigate reaction against their implementation. However, approaches in public health focus mainly on dialogue between public health professionals and political leaders. Strategies to increase popular demand for obesity-prevention policies include refinement and streamlining of public information, identification of effective obesity frames for each population, strengthening of media advocacy, building of citizen protest and engagement, and development of a receptive political environment with change agents embedded across organisations and sectors. Long-term support and investment in collaboration between diverse stakeholders to create shared value is also important. Each actor in an expanded coalition for obesity prevention can make specific contributions to engaging, mobilising, and coalescing the public. The shift from a top-down to a combined and integrated bottom-up and top-down approach would need an overhaul of current strategies and reprioritisation of resources.

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