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4th edition of the European Patient Group Directory

4th edition of the European Patient Group Directory | Co-creation in health | Scoop.it
This 4th edition of the European Patient Group Directory was compiled by PatientView and published by Burson-Marsteller. European Health Forum Gastein is the media partner for this publication.
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Co-creation in health
E-citizens, e-patients, communities in shaping e-health, health literacy.
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Take a peek at the world's most exquisite libraries - CNN.com

Take a peek at the world's most exquisite libraries - CNN.com | Co-creation in health | Scoop.it
Take a peek at the world's most exquisite libraries

Via Nikos Papaioannou, Giuseppe Fattori
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Art Jones's curator insight, May 28, 8:58 AM

Simply Beautiful!

Classical Architecture, Frescos and so many Books

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What Happens in Your Body When You Exercise?

What Happens in Your Body When You Exercise? | Co-creation in health | Scoop.it
A Huffington Post article highlights different biological effects that occur, from head to toe, when you exercise.

Via RobKellerMD
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An Apple a day keeps the doctor away? - David Kerr - BMJ

An Apple a day keeps the doctor away? - David Kerr - BMJ | Co-creation in health | Scoop.it
It might be cool, but will it make a difference to health? This is still the unanswered question after the launch of the latest must-have device from Apple, 30 years after the launch of the original Mackintosh computer in the same building in California.
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New report: Patient groups and their impact on access to medicines

New report: Patient groups and their impact on access to medicines | Co-creation in health | Scoop.it

During May-June 2014, PatientView undertook a survey of 1,000 patient groups worldwide, aiming to benchmark their proficiency as health campaigning organisations (a repeat of a similar PatientView exercise in 2012). Patient  groups participating in the study were asked to comment on their organisation’s ability to gain access to medicines, for example by influencing the health technology assessment (HTA) process. This September 2014 Access to Medicines report maps their responses to that question for 11 different therapeutic areas, and 12 countries/regions. The results are also compared with those of 2012. Below are some of the key findings for 2014.

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Baby Boomers’ Adoption of Consumer Health Technologies: Survey on Readiness and Barriers

Baby Boomers’ Adoption of Consumer Health Technologies: Survey on Readiness and Barriers | Co-creation in health | Scoop.it

Baby boomers have commonalities with and distinctions from both younger and older adults in their readiness to adopt specific consumer health technologies and the barriers they experience to adoption. Baby boomers’ nuances regarding readiness to adopt and the barriers associated with the various forms of consumer health technology should be taken into account by those interested in promoting consumer health technologies use among baby boomers when developing applications, choosing technologies, preparing users for use, and in promotional tactics.



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ChemaCepeda's curator insight, September 11, 7:54 AM

Resulta fundamental conocer las características de cada grupo de edad en el uso de tecnologías, para ofrecerle lo que necesita y por los canales más adecuados

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Noam Chomsky (2014) "Internet and Activism"

Chomsky answers the question "Can the Internet help in Activism?"


Via jean lievens
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Trends in healthcare professional social media usage

Trends in healthcare professional social media usage | Co-creation in health | Scoop.it

One of the trends in HCP social media usage over the last few years has been healthcare professionals (HCPs) realising the benefits of using social media for professional purposes. More and more doctors, nurses and physicians are using social media as a channel to engage, collaborate, share opinion with and get real time advice from their colleagues all over the world. Consequently pharma have started to realise how listening to their customers online can provide them with some invaluable insights to help with their HCP marketing strategy on or offline.


Via Plus91
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Words or numbers? Communicating risk of adverse effects in written consumer health information: a systematic review and meta-analysis

Various types of framing can influence risk perceptions, which may have an impact on treatment decisions and adherence. One way of framing is the use of verbal terms in communicating the probabilities of treatment effects. We systematically reviewed the comparative effects of words versus numbers in communicating the probability of adverse effects to consumers in written health information.
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Is Wikipedia’s medical content really 90% wrong? | The Cochrane Collaboration

Is Wikipedia’s medical content really 90% wrong? | The Cochrane Collaboration | Co-creation in health | Scoop.it

The journal article by Hasty et al. published on 1 May 2014 claims that most Wikipedia articles on important medical topics contain a large number of errors. The claim is based on a study of ten articles as they appeared on 25 April 2012. In nine of these the authors noted differences from a peer-reviewed source. The popular press, including the UK’s Daily Mail andBBC News, and the US-based Advisory Board, fueled by interviews with Hasty, has taken this to mean that as much as 90% of Wikipedia's medical content is wrong. However, we found that Hasty et al. used an unvalidated test of content quality and applied it to Wikipedia alone. Additionally, there were significant errors in study design and data analysis, and the authors' conclusions are not supported by the results.

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The Lancet announces publication of evidence-based Midwifery Series – a new global approach to midwifery care | The Cochrane Collaboration

The Lancet announces publication of evidence-based Midwifery Series – a new global approach to midwifery care | The Cochrane Collaboration | Co-creation in health | Scoop.it

The Lancet Midwifery Series, first published in June 2014, is a comprehensive examination of the midwifery landscape across the world – current practice, the state of research evidence, and gaps in both practice and research that may require attention or resources. Taking a global perspective and considering a range of regional variations in practice, the Series aims to re-focus the conversation around midwifery with the needs of mothers and babies at its centre.

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When a Doctor is the ePatient, Sharing at Stanford Medicine X

When a Doctor is the ePatient, Sharing at Stanford Medicine X | Co-creation in health | Scoop.it
The Power of Conferences
Throughout my medical career, I have enjoyed attending medical conferences. Conferences are a great way to meet thought leaders, entertain new ideas, and get up-to-date on the latest advances in medical technology.

Via Emmanuel Capitaine , Lionel Reichardt / le Pharmageek
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It's Time to Retire Our Definition of Retirement

It's Time to Retire Our Definition of Retirement | Co-creation in health | Scoop.it
Tomorrow in San Diego I'm speaking on "Thriving After 50" at the AARP's annual Ideas@50+ conference, which has me thinking about what retirement means in our culture today.To withdraw, to go away, to
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What’s really driving health inequalities

What’s really driving health inequalities | Co-creation in health | Scoop.it
The U.S. and other wealthy nations have practically eliminated all of the infectious diseases that seemed to account for the unequal burden of death in poor households and neighborhoods in earlier ...
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Navigating the pitfalls of social media in the Pharma Industry

Navigating the pitfalls of social media in the Pharma Industry | Co-creation in health | Scoop.it


The following article is based on the CIPR Social Media Panel c-suite Podcast that I produced a couple of months ago, which can still be listened to here.

Social media can prove a minefield for pharma companies trying to find the best path through industry rules and regulations, but integrating new, relevant marketing strategies is a must to reach increasingly digital-savvy patients


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Medicalization of global health 1: has the global health agenda become too medicalized? - Clark - Global Health Action

Medicalization of global health 1: has the global health agenda become too medicalized? - Clark - Global Health Action | Co-creation in health | Scoop.it
Universal health coverage (UHC) has emerged as the leading and recommended overarching health goal on the post-2015 development agenda, and is promoted with fervour. UHC has the backing of major medical and health institutions, and is designed to provide patients with universal access to needed health services without financial hardship, but is also projected to have ‘a transformative effect on poverty, hunger, and disease’. Multiple reports and resolutions support UHC and few offer critical analyses; but among these are concerns with imprecise definitions and the ability to implement UHC at the country level. A medicalization lens enriches these early critiques and identifies concerns that the UHC campaign contributes to the medicalization of global health. UHC conflates health with health care, thus assigning undue importance to (biomedical) health services and downgrading the social and structural determinants of health. There is poor evidence that UHC or health care alone improves population health outcomes, and in fact health care may worsen inequities. UHC is reductionistic because it focuses on preventative and curative actions delivered at the individual level, and ignores the social and political determinants of health and right to health that have been supported by decades of international work and commitments. UHC risks commodifying health care, which threatens the underlying principles of UHC of equity in access and of health care as a collective good.
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MedX: Patients, Conferences, And The Return On Investment

MedX: Patients, Conferences, And The Return On Investment | Co-creation in health | Scoop.it

One of the sessions I attended at MedX on Saturday September 6th, 2014 was on the topic of Social Media, Games, and Wearables.The first presentation was by Thomas M. Lee (@tmlfox) from Symplur (http://www.symplur.com/).

Thomas’s story was about the value of patient participation in medical conferences. He started at a high level with analyzing close to 2000 medical conferences. From there he was able to review conferences that had 1000 or more tweets, and reduce that number down to about 100 conferences.

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François Lamoureux on Twitter: "Première carte mentale réalisée par la classe ! Cc @alex_xye http://t.co/JoeBh2fY76"

François Lamoureux on Twitter: "Première carte mentale réalisée par la classe ! Cc @alex_xye http://t.co/JoeBh2fY76" | Co-creation in health | Scoop.it
RT @francoislmrx: Première carte mentale réalisée par la classe ! http://t.co/vbe4BVRufq #mindmap

Via Louis Levy
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Cancer: un patient sur deux se renseigne sur Internet, et c'est tant mieux

Cancer: un patient sur deux se renseigne sur Internet, et c'est tant mieux | Co-creation in health | Scoop.it
Le Baromètre cancer 2014 de l'Institut Curie se penche pour la première fois sur l'impact d'Internet dans les rapports entre les médecins et des patients toujours plus informés. Eclairage avec l'oncologue Alain Livartowski.

Via catherine cerisey
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Self publishing e case editrici tradizionali. Amici o nemici?

Self publishing e case editrici tradizionali. Amici o nemici? | Co-creation in health | Scoop.it
Editoria tradizionale e self publishing possono coesistere? Oppure uno dei due morirà? Come funzionano? Come affrontare i cambiamenti del mondo editoriale?
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Do Interventions Designed to Support Shared Decision-Making Reduce Health Inequalities? A Systematic Review and Meta-Analysis

Do Interventions Designed to Support Shared Decision-Making Reduce Health Inequalities? A Systematic Review and Meta-Analysis | Co-creation in health | Scoop.it
PLOS ONE: an inclusive, peer-reviewed, open-access resource from the PUBLIC LIBRARY OF SCIENCE. Reports of well-performed scientific studies from all disciplines freely available to the whole world.
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Prophylactic mastectomy for the prevention of breast cancer - The Cochrane Library

Mastectomie prophylactique pour la prévention du cancer du sein

Les femmes devraient être conscientes de leur risque réel de développer un cancer du sein et de l'insuffisance des preuves actuelles en matière de mastectomie prophylactique.

L'ablation chirurgicale des deux seins pour prévenir le cancer du sein (mastectomie bilatérale prophylactique (MBP)) pourrait réduire l'incidence du cancer du sein et améliorer la survie chez les femmes à haut risque, mais les études évaluées présentaient des limitations méthodologiques. Après une MBP, la plupart des femmes sont satisfaites de leur décision, mais moins satisfaites des résultats esthétiques et de leur image corporelle. De nombreuses procédures avaient exigé des chirurgies supplémentaires. L'inquiétude relative au cancer diminue chez la plupart des femmes. Toutefois, sachant qu'elles pourraient surestimer leur risque de cancer du sein, elles doivent bien comprendre le risque réel lorsqu'elles envisagent une MBP. Chez les femmes atteintes d'un cancer d'un seul sein (qui présentent donc un risque accru de développer un cancer primaire de l'autre sein), l'ablation de cet autre sein (mastectomie controlatérale prophylactique ou MCP) pourrait réduire l'incidence du cancer de ce sein, mais les preuves sont insuffisantes concernant l'amélioration de la survie.

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Large evidence base, small effects: motivational interviewing for alcohol misuse in young adults - The Cochrane Library

Large evidence base, small effects: motivational interviewing for alcohol misuse in young adults - The Cochrane Library | Co-creation in health | Scoop.it

Motivational interviewing (MI) was initially described by Miller in 1983, developed from his experience in the treatment of problem drinkers, and subsequently introduced by Miller and Rollnick in clinical practice to treat other psychological disorders.[1,2] MI is a counselling technique based on a collaborative conversation and represents a "person-centered form of guiding to elicit and strengthen motivation for change" by exploring and resolving ambivalence.[3] MI is also evocative and seeks to call forth the person's own motivation and commitment.

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Using Twitter to study pharmaceutical drug side effects

Using Twitter to study pharmaceutical drug side effects | Co-creation in health | Scoop.it

Recent data from the CDC has indicated that 50% of Americans are taking one prescription drug, and 10% are on 4 or more prescribed medications as well. Taking into consideration the aging population and the movement towards primary prevention with medications, it is likely a larger shift will occur in the next decade.



Via Pharma Guy, EVELYNE PIERRON
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Pharma Guy's curator insight, September 9, 9:19 AM


When FDA announced the 2009 public hearing about regulating the pharma industry use of social media for promoting drugs, the agency asked for specific feedback regarding the use of social media for monitoring drug side effects.


Pharma Marketing News published survey results to see if and how the industry was using social media to monitor adverse events. The chart above shows some results. For more details read Social Media Adverse Event Reporting Safe Harbors, which  includes a detailed summary of responses to the survey "FDA Regulation of Drug & Device Promotion via the Internet & Social Media" regarding social media adverse event monitoring, processing, challenges, and uncertainties.

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Social media and palliative medicine: a retrospective 2-year analysis of global twitter data to evaluate the use of technology to communicate about issues at the end of life

A lot of discussion about palliative care is taking place on Twitter, and the majority of this is positive. Social media presents a novel opportunity for engagement and ongoing dialogue with public and professional groups.

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How using Twitter can benefit researchers

How using Twitter can benefit researchers | Co-creation in health | Scoop.it
For researchers still on the fence about using social media tools to engage with colleagues and the public, a recent post on Active Scientist offers a short
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What is the incidence of patients with palliative care needs presenting to the Emergency Department? A critical review

Conclusion: There is an absence of evidence regarding the incidence of patients with palliative care needs presenting to the Emergency Department. Further research needs to be undertaken in this area to ensure both clinicians and policymakers have sufficient information for service provision.

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