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Using communication and collaboration tools to improve patient care and clinical workflow - HealthBlog - Site Home - MSDN Blogs

HealthBlog readers will find frequent references on this blog to the importance of communication and collaboration in patient care and clinical workflow. As a former practicing physician, and knowing what I know about modern communication and collaboration best practices, I’m often dumbfounded that so many of my clinical colleagues still resort to paper, phone and fax to do their work.
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Co-creation in health
E-citizens, e-patients, communities in shaping e-health, health literacy.
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EU logo for online sale of medicines - European Commission

EU logo for online sale of medicines - European Commission | Co-creation in health | Scoop.it

The common logo for legally operating online pharmacies/retailers in the EU Member States was introduced by Directive 2011/62/EU (the Falsified Medicines Directive) as one of the measures to fight against falsified medicines.

The Directive gave the Commission a legal basis to establish the design of a common logo as well as the technical, electronic and cryptographic requirements for verification of its authenticity. It is however up to the Member States to determine the specific conditions for the retail supply of medicinal products to the public. Member States may impose certain conditions and limitations, e.g. by not allowing online sale of prescription medicines.

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Costi e salute nella sanità italiana: non più un difficile connubio?

Costi e salute nella sanità italiana: non più un difficile connubio? | Co-creation in health | Scoop.it
Grazie alla disponibilità di dati e informazioni, alcune analisi sono state condotte sulle procedure e gli strumenti che consentono ai professionisti di prendere decisioni allocative di tipo "micro" in modo ottimale (le singole scelte terapeutiche per i singoli pazienti) in modo compatibile con i vincoli macroeconomici imposti dai decisori politici (tetti di spesa).
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Is Apple ResearchKit a "Powerful platform, dangerous playground"?

Is Apple ResearchKit a "Powerful platform, dangerous playground"? | Co-creation in health | Scoop.it
It’s hard to know where to start with this article as it’s peddling so many myths but a key thing to appreciate is that Apple’s ResearchKit endeavours are coming with ratings.

“This past April, Apple launched ResearchKit – a framework used to develop apps that allow patients to participate anonymously in medical research studies. While these apps have the potential to advance medical research, there are concerns about privacy and security. In addition, the accuracy and integrity of the data being provided by participants is being questioned”

I can’t understand why anyone thinks that a key feature of Researchkit is that medical research volunteers will want to be anonymous? I thought the opposite would be true eg. treat me like a statistic but if the efforts I go to help University College Hospital find the cure for cancer, or Oxford University understand depression so that thousands of lives aren’t lost to suicide every year I want my name in the history books thank you very much.

Via Alex Butler
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Why Should Health Systems Address Social Needs?

Why Should Health Systems Address Social Needs? | Co-creation in health | Scoop.it
Learning Objectives: At the end of this activity, you will be able to:
  • Discuss an example of how home environments impact health.
  • Identify one model for hospitals to improve care in the community.
Description: Medicine holds incredible power to save lives. But what happens when the risks to health are outside the scope of health care? In this video, Aswita Tan-McGrory, MBA, MSPH, Deputy Director of the Disparities Solutions Center at Massachusetts General Hospital, tells a powerful story of the impact of home environments on health. She describes “the limits of medicine” and challenges health systems to look outside their walls to improve health outcomes for their patients. 
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Jeremy Rifkin On Entering The Third Industrial Revolution

Economist Jeremy Rifkin is the author of "The Third Industrial Revolution". According to Rifkin, industrial revolutions occur when new energy regimes emerge ...

Via jean lievens
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The Emotional Impulses That Poison Healthy Teams

The Emotional Impulses That Poison Healthy Teams | Co-creation in health | Scoop.it
Is anyone really an individual contributor at work anymore? I think not. Pretty much everything we do is done with others in groups. We’re tasked with planning and completing projects together. We negotiate roles and resources. We talk to one another—or text, tweet, email—and sometimes we listen, too. We’re dependent on and beholden to people above, around, and below us for collective success. We develop habits, over time, that dictate how we behave with one another. Add this up and you’ve got the definition of team: people who share a common purpose and goal, who have distinct roles and responsibilities, and who adhere to certain rules of interaction. Teams are everywhere at work. Sadly, though, most of them aren’t terribly effective—or fun.
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Etica in oncologia, arriva la Carta di Ragusa in tutti i reparti

Etica in oncologia, arriva la Carta di Ragusa in tutti i reparti | Co-creation in health | Scoop.it
Condivisione delle scelte terapeutiche, empatia nella relazione medico-paziente, equità di accesso alle cure innovative e valorizzazione della ricerca clinica. Sono questi i quattro principi su cui si basa la Carta di Ragusa sull'Etica in Oncologia, la prima mai realizzata in Italia dall'Associazione Italiana di Oncologia Medica al termine delle “Giornate dell'Etica”, promosse recentemente in Sicilia. Per due giorni sull'Isola un gruppo multidisciplinare ha discusso e individuato 16 punti per migliorare l'integrazione dell'etica nell'organizzazione del sistema sanitario che nei comportamenti dei singoli professionisti. 
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Talking With Your Health Care Team

Talking With Your Health Care Team | Co-creation in health | Scoop.it

There is a lot to learn about cancer and your treatment. There are many things to remember. And if you’re scared or confused, it can be even harder to take it all in. But, there are things you can do to make it easier to learn.

Express yourself clearly. Describe your problem or concern briefly.

Ask your doctor or nurse to write down the name and stage of your cancer. There are many different types of cancer. "Stage" refers to the size of the cancer tumor and how far it has spread in your body. Knowing the name and stage of your cancer will help you find out more about your cancer and help your doctor decide which treatment choices you have.


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Sesso&disabilità: ripartire dal progetto LoveGiver e da un disegno di legge

Sesso&disabilità: ripartire dal progetto LoveGiver e da un disegno di legge | Co-creation in health | Scoop.it
«C’è chi pensa che un disabile sia una sorta di angelo asessuato, o un eterno bambino, ma non è affatto così. Tutti gli esseri umani provano pulsioni, sentimenti, desideri». Fabiano Lioi, attore e musicista affetto da osteogenesi imperfetta, ha da poco lanciato su internet una petizione a Piero Grasso perché venga discusso ildisegno di legge 1442 , che vuole introdurre nel nostro Paese la figura dell’assistente sessuale. «Regolamentare questa attività significherebbe permettere a tante persone in condizioni di disabilità e emarginazione affettiva di ricevere un adeguato supporto», si legge nella lettera al presidente del Senato, che in pochi giorni ha raccolto quasi 14mila firme sulla piattaforma change.org. L’argomento “sesso e disabilità”, secondo Lioi, è ancora un tabù, tanto che spesso si confonde la figura del “love giver” con quella di un “sex worker”: «Sono anche favorevole alla legalizzazione della prostituzione - spiega - ma qui stiamo parlando di qualcosa di molto diverso. L’assistente sessuale può aiutare le persone con disabilità a vivere un’esperienza erotica, sensuale o sessuale, di conoscenza del proprio corpo. Io esco tutte le sere, credo di avere una vita sessuale e sentimentale come tanti, fatta di gioie e delusioni, ma conosco persone con patologie come la distrofia muscolare o la distrofia di Duchenne, la cui vita sociale è stata spezzata, costrette a casa, ma che non per questo sono insensibili a un odore, al tatto, non per questo non hanno voglie o fantasie».
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Do you want your company to know how fit you are?

Do you want your company to know how fit you are? | Co-creation in health | Scoop.it
Companies are increasingly using fitness trackers to encourage their employees to become more active and earn discounts on insurance. But are they ethical?

Via Peter Mellow
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Evidence based guidelines or collectively constructed “mindlines?” Ethnographic study of knowledge management in primary care

Objective To explore in depth how primary care clinicians (general practitioners and practice nurses) derive their individual and collective healthcare decisions.

Design Ethnographic study using standard methods (non-participant observation, semistructured interviews, and documentary review) over two years to collect data, which were analysed thematically.

Setting Two general practices, one in the south of England and the other in the north of England.

Participants Nine doctors, three nurses, one phlebotomist, and associated medical staff in one practice provided the initial data; the emerging model was checked for transferability with general practitioners in the second practice.

Results Clinicians rarely accessed and used explicit evidence from research or other sources directly, but relied on “mindlines”—collectively reinforced, internalised, tacit guidelines. These were informed by brief reading but mainly by their own and their colleagues' experience, their interactions with each other and with opinion leaders, patients, and pharmaceutical representatives, and other sources of largely tacit knowledge. Mediated by organisational demands and constraints, mindlines were iteratively negotiated with a variety of key actors, often through a range of informal interactions in fluid “communities of practice,” resulting in socially constructed “knowledge in practice.”

Conclusions These findings highlight the potential advantage of exploiting existing formal and informal networking as a key to conveying evidence to clinicians.

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Collusion in doctor-patient communication about imminent death: an ethnographic study

Objective: To discover and explore the factors that result in “false optimism about recovery” observed in patients with small cell lung cancer.

Design: A qualitative observational (ethnographic) study in two stages over four years.

Setting: Lung diseases ward and outpatient clinic in university hospital in the Netherlands.

Participants: 35 patients with small cell lung cancer.

Results: “False optimism about recovery” usually developed during the (first) course of chemotherapy and was most prevalent when the cancer could no longer be seen in the x ray pictures. This optimism tended to vanish when the tumour recurred, but it could develop again, though to a lesser extent, during further courses of chemotherapy. Patients gradually found out the facts about their poor prognosis, partly because of physical deterioration and partly through contact with fellow patients who were in a more advanced stage of the illness and were dying. “False optimism about recovery” was the result an association between doctors' activism and patients' adherence to the treatment calendar and to the “recovery plot,” which allowed them not to acknowledge explicitly what they should and could know. The doctor did and did not want to pronounce a “death sentence” and the patient did and did not want to hear it.

Conclusion: Solutions to the problem of collusion between doctor and patient require an active, patient oriented approach from the doctor. Perhaps solutions have to be found outside the doctor-patient relationship itself —for example, by involving “treatment brokers.”

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Using Twitter as a data source: An overview of current social media research tools

Using Twitter as a data source: An overview of current social media research tools | Co-creation in health | Scoop.it

The popularity of social media sites and the ease at which its data is available means these platforms are increasingly becoming primary sources for social research. Wasim Ahmedpresents a quick look at some of the tools available to social scientists for analysing social media data and also reflects on the limitations of the platforms and the methods used for this type of research.

I have a social media research blog where I find and write about tools that can be used to capture and analyse data from social media platforms. My PhD looks at Twitter data for health, such as the Ebola outbreak in West Africa. I am increasingly asked why I am looking at Twitter, and what tools and methods there are of capturing and analysing data from other platforms such as Facebook, or even less traditional platforms such as Amazon book reviews.

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Nondrug Tx Best for Fibromyalgia: The Pain Medicine News Report

Nondrug Tx Best for Fibromyalgia: The Pain Medicine News Report | Co-creation in health | Scoop.it

Nonpharmacologic therapies may be most effective at treating fibromyalgia pain.

FDA requires non-aspirin prescription NSAID labels to include new information on heart attack and stroke risk.

More Americans are turning to yoga to manage pain and other symptoms, but dietary supplements still lead in alternative/complementary therapies.

An inpatient, pharmacy-directed pain management programdemonstrated significant cost avoidance, improvements in patient outcomes and increased patient satisfaction scores.

Researchers find moderate-quality evidence to support medical marijuana use for chronic pain. But will it have to go through the same FDA review process as other drugs?


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The Trouble With Evidence-Based Medicine, the 'Brand'

The Trouble With Evidence-Based Medicine, the 'Brand' | Co-creation in health | Scoop.it

It seems as though it's not enough to just advocate for an improvement to medical practice. People want to entirely "re-brand" medicine instead. As though one facet of practice can define the whole. In the case of evidence-based medicine -- "EBM" -- the claim of the brand has always been a bit overblown.

Don't get me wrong: I'm enthusiastic about evidence, and think strong evidence is invaluable for medicine. But the EBM movement and brand - that's more complicated.

Social movements can be valuable. Like-minded people establishing organizations and forming loose communities can really spread ideas and influence. I always seem to be in one or another. There are risks, though, even when the core idea is beneficial. Movements develop self-interests. It's hard to keep them from drifting into collision with the public interest. The EBM movement hasn't avoided that.


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Google Works With Mayo Clinic to Share Health Knowledge

Google Works With Mayo Clinic to Share Health Knowledge | Co-creation in health | Scoop.it

Can't remember who pitched the only perfect game of a World Series? Check Google. Can't name all the Spice Girls? Google can. Can't recall the number that starts with a one and is followed by 100 zeros? Google googol.

The Internet search engine is so widely used and so good at producing the information we're looking for that it long ago became part of our daily lives. There's no need to sift through mountains of data and endless links to find the few nuggets we need. So naturally, when people have health concerns, one of their first stops is Google. But anyone who has searched the Internet to self-diagnose knows the dizzying, and sometimes scary, array of results


Via COUCH Medcomms, Philippe Marchal/Pharma Hub
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Art Jones's curator insight, July 23, 1:27 PM

"To help give their users the best health information possible, Google now provides relevant medical facts upfront. For example, a search for arthritis will show, beside the resulting links, a few basic facts about arthritis and a definition. To ensure quality and accuracy, all of the gathered facts were confirmed by medical doctors from around the United States, which were then vetted by expert clinicians at Mayo Clinic."

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Digital divide, il mondo diviso tra chi ha Internet e chi no

Digital divide, il mondo diviso tra chi ha Internet e chi no | Co-creation in health | Scoop.it
Una mappa elaborata da studiosi inglesi rivela come la diffusione della rete proceda ancora a macchia di leopardo, soprattutto in Africa.
Se, invece che guardare le grandezze fisiche, la geografia tenesse conto dell’accesso a Internet dei vari continenti del mondo, le cose cambierebbero molto rispetto a ciò che si è abituati. L’Africa, ad esempio, sarebbe nella sua interezza grande come il Giappone. L’Australia come l’Olanda e la Russia otto volte più piccola della Cina.
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Debunking the ‘Myth of Social Media’ (and Doing It Right)

Debunking the ‘Myth of Social Media’ (and Doing It Right) | Co-creation in health | Scoop.it

Sometimes it helps to look back to see where you’re going.

One year ago this week, Gallup released a report titled, “The Myth of Social Media,” which featured a slew of statistics suggesting that even though the vast majority of Americans use social media, it has little or no influence on their buying decisions. Not surprisingly, it was a red flag for those bullish on social media marketing but a year later, it’s worth another look. Consider some of the report’s top-level findings:

When consumers were asked why they used social media:

  • 94% said to connect with friends and family
  • 29% said to follow trends or find product reviews and information
  • 20% said to comment on what’s hot or new or to write reviews
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Should Doctors And Drugmakers Keep Their Distance?

Should Doctors And Drugmakers Keep Their Distance? | Co-creation in health | Scoop.it

One doctor rethinks his hardline stance against contact with industry. 


Doctors are obsessed with time.

It comes down to simple math. If I have four hours to see a dozen patients, there simply isn't much time to stray from the main agenda: What ails you?

Frequently harried, I avoid drug company salespeople. Their job is to get face time with me and convince me quickly of the merits of their products.

To sweeten the path in, they bring food for the staff along with free samples of prescription drugs for us to give to our patients.

A typical office visit goes like this: The sales rep catches me in the hallway between patient rooms, or ducks her head in my cubby when I'm furiously typing to keep up on chart notes. She greets me so warmly that human instinct kicks in, and I simply find myself unable to cut her off.


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Farmacie low cost, la Francia sale in cattedra - di @ErikaMallarini

Farmacie low cost, la Francia sale in cattedra - di @ErikaMallarini | Co-creation in health | Scoop.it

Fare concorrenza alla grande distribuzione con le stesse tecniche della grande distribuzione. In Italia è luogo comune consigliare i titolari dall’astenersi, perché si rischiano bagni di sangue. In Francia invece c’è un circuito di farmacie – il gruppo Lafayette, nessuna parentela con le note “Galeries” parigine – che pare riuscirci piuttosto bene. Con palese soddisfazione degli associati e un certo malessere degli altri titolari.
Il posizionamento dell’insegna è quello della cosiddetta farmacia “low cost”: in sintesi, margini risicati in cambio di volumi e ingressi elevati, ma anche di un’offerta che definire ampia è poco. A prestare fede ai numeri snocciolati dal Quotidien du 
Pharmacien
, infatti, in una farmacia Lafayette vengono commercializzate tra le 18 e le 30mila referenze soltanto nel parafarmaco e nell’Otc, a prezzi inferiori mediamente del 20-30% rispetto a quelli di mercato.

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Which Type of Leader Are You? A Look at 6 Distinct Leadership Styles

Which Type of Leader Are You? A Look at 6 Distinct Leadership Styles | Co-creation in health | Scoop.it

It can be a lot of pressure knowing that a team is looking to you to lead the way. When the burden of leadership starts to feel heavy, leaders can sometimes backslide into bad habits instead of consciously living the attitudes they'd like employees to emulate. But it doesn't have to be this way.

Simply becoming aware of what employees look for in a leader can help managers maintain a positive outlook and demonstrate the traits that foster a healthy and productive team.

The following infographic from Business-Management-Degree.net identifies six types of leaders: Authoritative, Affiliative, Democratic, Coaching, Pacesetting, and Coercive. The first four are good archetypes, and the latter two ... not as much. 


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Health benefits of wearable devices | HealthWorks Collective

Health benefits of wearable devices | HealthWorks Collective | Co-creation in health | Scoop.it
Are there tangible benefits for wearable health devices yet? Wearable health devices are looked at as the next big frontier in technology, where many of the new and most intriguing advances are expected to take place over the coming years. While some wearables might not be taking off like some thought they would, wearable health devices are a different matter. These devices continue to be some of the most popular new devices on the market, with the number predicted to grow to 170 million devices sold by 2017. 
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New Pacific trade deal—good for pharma, bad for public health?

In his last term in office the US president, Barack Obama, is hoping that the vast trade deal known as the Trans-Pacific Partnership (TPP), will be “the most positive trade deal in history.” But opponents say the deal, being negotiated behind closed doors and to be signed by the end of the year, will be a shameful sell out that favours corporations over individuals and poses a grave threat to public health.

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Evidence based medicine: what it is and what it isn't

It's about integrating individual clinical expertise and the best external evidence

Evidence based medicine, whose philosophical origins extend back to mid-19th century Paris and earlier, remains a hot topic for clinicians, public health practitioners, purchasers, planners, and the public. There are now frequent workshops in how to practice and teach it (one sponsored by the BMJ will be held in London on 24 April); undergraduate1 and postgraduate2 training programmes are incorporating it3 (or pondering how to do so); British centres for evidence based practice have been established or planned in adult medicine, child health, surgery, pathology, pharmacotherapy, nursing, general practice, and dentistry; the Cochrane Collaboration and Britain's Centre for Review and Dissemination in York are providing systematic reviews of the effects of health care; new evidence based practice journals are being launched; and it has become a common topic in the lay media. But enthusiasm has been mixed with some negative reaction.4 5 6 Criticism has ranged from evidence based medicine being old hat to it being a dangerous innovation, perpetrated by the arrogant to serve cost cutters and suppress clinical freedom. As evidence based medicine continues to evolve and adapt, now is a useful time to refine the discussion of what it is and what it is not.

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