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Clinical Research & Social Media
Social Media and Social Network for Drug Research, Clinical Trials & Safety Surveillance.
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Wearing it well: the potential of wearable technology in healthcare

Wearing it well: the potential of wearable technology in healthcare | Clinical Research & Social Media | Scoop.it
For the pharmaceutical industry, the possibilities presented by wearable technology are clearly enormous
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Survey: 75 percent of patients want digital health services

Survey: 75 percent of patients want digital health services | Clinical Research & Social Media | Scoop.it
According to a survey of thousands of patients in Germany, Singapore, and the United Kingdom, the adoption of digital healthcare services remains low because existing services are either low quality or not meeting patients’ needs.
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Study Shows Wikipedia Rx Drug Pages Often Outdated, Inaccurate - iHealthBeat

Study Shows Wikipedia Rx Drug Pages Often Outdated, Inaccurate - iHealthBeat | Clinical Research & Social Media | Scoop.it
A study detailed in a New England Journal of Medicine Perspective finds that less than half of Wikipedia pages on prescription drugs are updated to reflect FDA safety warnings within two weeks of the agency issuing those communications and that more than one-third of those pages do not reflect the warnings within one year of FDA's notices. HealthDay, NEJM.
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Abrams Talks Social Media at DIA

Abrams Talks Social Media at DIA | Clinical Research & Social Media | Scoop.it
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#dia2014 slides, presentations

#dia2014 slides, presentations | Clinical Research & Social Media | Scoop.it
Presentation about Strategies and Tactics to Leverage Social and Digital Media in *Clinical Research http://t.co/P22A7wEDO7 #dia2014
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8 takeaways from the FDA’s draft guidance on social media | mobihealthnews

8 takeaways from the FDA’s draft guidance on social media | mobihealthnews | Clinical Research & Social Media | Scoop.it
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FDA Releases Social Media Draft Guidances

FDA Releases Social Media Draft Guidances | Clinical Research & Social Media | Scoop.it
Ethical GmbH's insight:

Social Media more & more involved ...!

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Selexipag meets primary endpoint in pivotal Phase III GRIPHON outcome study in patients with pulmonary arterial hypertension

Selexipag meets primary endpoint in pivotal Phase III GRIPHON outcome study in patients with pulmonary arterial hypertension | Clinical Research & Social Media | Scoop.it
Actelion is a global, independent biopharmaceutical company discovering, developing and marketing innovative drugs for high unmet medical needs. Find here the latest news & events.
Ethical GmbH's insight:

"....All morbidity and mortality events reported by the investigators were adjudicated by an independent Critical Event Committee blinded to the study treatment..."  

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Pfizer: How Facebook can 'unblind' a clinical trial - OutSourcing-Pharma.com

Pfizer: How Facebook can 'unblind' a clinical trial - OutSourcing-Pharma.com | Clinical Research & Social Media | Scoop.it
OutSourcing-Pharma.com
Pfizer: How Facebook can 'unblind' a clinical trial
OutSourcing-Pharma.com
Related topics: Clinical Development.
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Why Apple’s HealthKit launch is important for digital health

Why Apple’s HealthKit launch is important for digital health | Clinical Research & Social Media | Scoop.it
At its World Wide Developers Conference yesterday, Apple announced two new health tools: a health data tracking platform for developers called HealthKit and a dashboard app for consumers simply called Health.
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The growing influence of social media in healthcare

The growing influence of social media in healthcare | Clinical Research & Social Media | Scoop.it

Social media has established itself as a powerful channel for voices in the NHS, whether it is to create professional networks, raise safety concerns or seek support in self-management of conditions. Participation is no longer optional, writes Claire Read

A recent episode of the BBC documentary series Business Boomers focused on the amazing growth of Amazon, tracking its development from garage-based small business to multinational giant.

It was filled with an array of interesting tidbits but arguably the most memorable was a clip from a 1994 episode ofTomorrow’s World.

In it, the earnest presenter - surrounded by a collection of very bulky and very beige computers - explained how “something called the internet” was set to revolutionise the availability of information.

It was a stark reminder of just how far digital communication has come in a short time; a reminder that is particularly important within healthcare.

A digital age

Those the NHS is recruiting today - the leaders of tomorrow - will never have known a world without the internet.

Paediatric and young adult patients will fall into the same category. And soon enough we will have a generation not only of “digital natives” but of social media natives.

‘Online networks seem likely to offer solutions to many of the current communication challenges the health service is facing’

It all means healthcare practitioners and organisations are likely to have no choice but to engage with social media. It is where their patients and colleagues will expect to have conversations, and so not to be there would simply not be sustainable.

The growing influence of social media in healthcare is associated with the sustainability of the NHS in a much broader sense, however.

Online networks seem likely to offer solutions to many of the current communication challenges the health service is facing, and provide an extremely positive reason for the growing influence of social media in healthcare.

Take sharing concerns. In the aftermath of the Francis report, much attention has been focused on ensuring staff can speak out without fear and safe in the knowledge that their worries will be suitably investigated.

Twitter provides a simple way to encourage this sort of open environment: a nurse tweeting his or her chief executive a concern seems far more transparent than other potential methods. It is no coincidence that Twitter has provided a natural home for the Nursing Times Speaking Out Safely campaign.

Online connections

There is also frequent talk of the importance of the NHS sharing knowledge and innovation more effectively. Here too social media networks are making a tremendous difference, allowing healthcare professionals to build connections both inside and outside their own organisations.

WeNurses is a tremendous example of this, bringing together nurses from across the world in Twitter conversations. Knowledge and views are being shared, and in some instances huge and valuable professional networks being built.

Let us not fall into the trap of thinking it is only healthcare professionals who are serving to increase the influence of social media in the NHS, however.

‘Patients have been the trailblazers, making electronic connections with fellow sufferers of a condition and coming together to raise concerns about standards of treatments’

In many ways, it is patients who have been the trailblazers (as our list of Social Media Pioneersdemonstrates). They began by making electronic connections with fellow sufferers of a condition, and continued by coming together to raise concerns about the standards of treatments at particular institutions.

Surely the next step will be for those working within the health service to fully employ social media to converse with service users?

This again will address many of the communication challenges currently being placed in front of health service managers: the question of how to build openness and a genuine dialogue with patients that is based on listening.

Twenty years ago, the internet was the new development. Few could now imagine our lives without it. It seems likely that, in 20 years time, we will be saying the same thing about social media. It has already influenced the health service - but it is only just getting started



Via Plus91, Lionel Reichardt / le Pharmageek
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Paul Deemer's curator insight, June 6, 4:41 AM

The social media movement continues to gather pace in the NHS 

Rescooped by Ethical GmbH from 2- HEALTHCARE SOCIAL MEDIA by PHARMAGEEK
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The growing influence of social media in healthcare

The growing influence of social media in healthcare | Clinical Research & Social Media | Scoop.it

Social media has established itself as a powerful channel for voices in the NHS, whether it is to create professional networks, raise safety concerns or seek support in self-management of conditions. Participation is no longer optional, writes Claire Read

A recent episode of the BBC documentary series Business Boomers focused on the amazing growth of Amazon, tracking its development from garage-based small business to multinational giant.

It was filled with an array of interesting tidbits but arguably the most memorable was a clip from a 1994 episode ofTomorrow’s World.

In it, the earnest presenter - surrounded by a collection of very bulky and very beige computers - explained how “something called the internet” was set to revolutionise the availability of information.

It was a stark reminder of just how far digital communication has come in a short time; a reminder that is particularly important within healthcare.

A digital age

Those the NHS is recruiting today - the leaders of tomorrow - will never have known a world without the internet.

Paediatric and young adult patients will fall into the same category. And soon enough we will have a generation not only of “digital natives” but of social media natives.

‘Online networks seem likely to offer solutions to many of the current communication challenges the health service is facing’

It all means healthcare practitioners and organisations are likely to have no choice but to engage with social media. It is where their patients and colleagues will expect to have conversations, and so not to be there would simply not be sustainable.

The growing influence of social media in healthcare is associated with the sustainability of the NHS in a much broader sense, however.

Online networks seem likely to offer solutions to many of the current communication challenges the health service is facing, and provide an extremely positive reason for the growing influence of social media in healthcare.

Take sharing concerns. In the aftermath of the Francis report, much attention has been focused on ensuring staff can speak out without fear and safe in the knowledge that their worries will be suitably investigated.

Twitter provides a simple way to encourage this sort of open environment: a nurse tweeting his or her chief executive a concern seems far more transparent than other potential methods. It is no coincidence that Twitter has provided a natural home for the Nursing Times Speaking Out Safely campaign.

Online connections

There is also frequent talk of the importance of the NHS sharing knowledge and innovation more effectively. Here too social media networks are making a tremendous difference, allowing healthcare professionals to build connections both inside and outside their own organisations.

WeNurses is a tremendous example of this, bringing together nurses from across the world in Twitter conversations. Knowledge and views are being shared, and in some instances huge and valuable professional networks being built.

Let us not fall into the trap of thinking it is only healthcare professionals who are serving to increase the influence of social media in the NHS, however.

‘Patients have been the trailblazers, making electronic connections with fellow sufferers of a condition and coming together to raise concerns about standards of treatments’

In many ways, it is patients who have been the trailblazers (as our list of Social Media Pioneersdemonstrates). They began by making electronic connections with fellow sufferers of a condition, and continued by coming together to raise concerns about the standards of treatments at particular institutions.

Surely the next step will be for those working within the health service to fully employ social media to converse with service users?

This again will address many of the communication challenges currently being placed in front of health service managers: the question of how to build openness and a genuine dialogue with patients that is based on listening.

Twenty years ago, the internet was the new development. Few could now imagine our lives without it. It seems likely that, in 20 years time, we will be saying the same thing about social media. It has already influenced the health service - but it is only just getting started



Via Plus91, Lionel Reichardt / le Pharmageek
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Paul Deemer's curator insight, June 6, 4:41 AM

The social media movement continues to gather pace in the NHS 

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Stanford's Big Data Conference: How 1s and 0s are Advancing Medicine - HealthNewsDigest.com

Stanford's Big Data Conference: How 1s and 0s are Advancing Medicine - HealthNewsDigest.com | Clinical Research & Social Media | Scoop.it
Stanford's Big Data Conference: How 1s and 0s are Advancing Medicine HealthNewsDigest.com Minor challenged the audience to rise to the challenge of harnessing computer technology, biomedical informatics and social media - collectively known as big...
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"FDA Guidance Limits Flexibility in Social Media Promotional Communications" | JD Supra

Three recently issued draft guidance documents (Draft Guidances) from the U.S. Food and Drug Administration (FDA or Agency) are designed to assist manufacturers in product...
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Survey: 80 percent of smartphone users want to interact with doctors on mobile devices

Survey: 80 percent of smartphone users want to interact with doctors on mobile devices | Clinical Research & Social Media | Scoop.it
Eighty percent of smartphone users are interested in using their smartphones to interact with health care providers, according to a FICO survey of 2,239 adult smartphone users from the UK, Australia, Brazil, China, France, Germany, India, Italy,...
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How reliable is the drug info you find online?

How reliable is the drug info you find online? | Clinical Research & Social Media | Scoop.it
By Saarik Gupta, Special to CNN When people want to learn more about a new drug warning, they turn to the internet -- that’s no surprise. But is the information they find there accurate and up-to-date? Not always, according to a
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Key Actions To Take as a Result of FDA Social Media Draft Guidance | Common Sense

Key Actions To Take as a Result of FDA Social Media Draft Guidance | Common Sense | Clinical Research & Social Media | Scoop.it
In the five years since the open public meeting on social media, the FDA has occasionally shared their thinking via letters and draft guidance. They provided
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FDA Guidance Says Companies Have Broad Leeway to Correct Misinformation - Regulatory Focus

FDA Guidance Says Companies Have Broad Leeway to Correct Misinformation - Regulatory Focus | Clinical Research & Social Media | Scoop.it
Regulatory Focus FDA Guidance Says Companies Have Broad Leeway to Correct Misinformation Regulatory Focus The issuance of guidance on social media was required by the Food and Drug Administration Safety and Innovation Act (FDASIA), Section 1121 of...
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What is the role of social media in healthcare? |

What is the role of social media in healthcare? | | Clinical Research & Social Media | Scoop.it
In summary, social media use by patients in evolving as people evolve their use of social media.

Via Anneliz Hannan
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E-List Hunter's curator insight, July 1, 6:31 AM

Introducing a new drug in marketing organizers will deliver in different ways like advertising, Flex Promoting, banner cutting's. this was too expensive for organizers. hence they moved to social media promotion to get huge traffic and identity in online without investing and get positive response and revenue for the organization so that the marketer will keen for selecting social media over unnecessary wastage of money..

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FDA makes clear it won’t regulate apps like Apple’s HealthKit

FDA makes clear it won’t regulate apps like Apple’s HealthKit | Clinical Research & Social Media | Scoop.it
As MobiHealthNews noted last week in the introduction to our In-Depth report on Apple’s Health app feature set, the FDA made a rare move on Wednesday by adding a new description for a type of mobile medical app that it would not regulate as a...
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Pharma Marketing Blog: The British Pharmaceutical Industry Issues Social Media Guidance for Adverse Event Reporting

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Fitbit for Testosterone Junkies: Health-Tracking Gadgets Reach the Molecular Level

Fitbit for Testosterone Junkies: Health-Tracking Gadgets Reach the Molecular Level | Clinical Research & Social Media | Scoop.it
The Cue health-tracking device can measure testosterone, vitamin D, and inflammation, and diagnose the flu
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Researchers Lack Confidence In Social Media For Communication - Science 2.0

Science World Report Researchers Lack Confidence In Social Media For Communication Science 2.0 Social media is all the rage, and it is great for mobilizing protests against stupid yogurt companies, but for research it is a lost cause compared to...
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Transcript: Apple presents its new health tracking platform HealthKit

Transcript: Apple presents its new health tracking platform HealthKit | Clinical Research & Social Media | Scoop.it
Below is MobiHealthNews’ transcript of Apple Senior Vice President of Software Engineering Craig Federighi’s presentation about Apple’s new health tracking platform HealthKit and its companion app Health.
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Partnerships in Clinical Trials: What are some of the numbers ...

Partnerships in Clinical Trials: What are some of the numbers ... | Clinical Research & Social Media | Scoop.it
Posted by Jennifer at 9:30 AM. Labels: Clinical research, Patient centered clinical trials, Pharma patient engagement, Social media and clinical trials, Social use in clinical settings ...
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