I was recently packing up my bookshelf for a move and re-encountered many of the classic resources I find myself recommending to caregivers again and again. I have selected four of my favorites to share with you.
“The future is PGD – patient-generated data,” said Dr. Susan Woods, director of patient experience for connected health at the Veterans Health Administration. “The voice of the patients and the caregivers has never been louder.”
A welcome recognition of the value of family caregiving came in a recent report by the Congressional Budget Office (CBO), which estimated the economic value of caregiving for older persons in 2011 to be $234 billion.
For caregivers to make patient-centered care a reality for frail elders and those with advanced illness, they will need unprecedented education and assistance. In addition to supporting policies designed to reimburse caregivers for some of their services—proposals unlikely to be enacted, given the current political climate—the medical establishment needs to incorporate caregivers at every step of patient care. This will entail a fundamental shift from individual autonomy to family- and caregiver-centered care.
Some activities you can do to give your brain a good workout and increase your mental clarity. As an elder care provider, you can do some of these activities with your elderly adult, and encourage them to do some on their own.
What should you know about caregiving? How do you know if you can handle the responsibilities and time commitments of taking care of your mom and dad - while keeping your own sanity and protecting your other relationships?
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