Carcinoid Cancer
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Trials for New Cancer Treatments Reach Only a Fraction of Patients

Trials for New Cancer Treatments Reach Only a Fraction of Patients | Carcinoid Cancer | Scoop.it
Clinical trials, which give perilously ill patients a chance to live, often go unfilled in a disconnect that hurts patients and researchers alike.
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Rescooped by Sharon Larsen from Acromegaly News
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Ipsen Announces FDA Approval of a New Delivery Device for Somatuline® Depot® (lanreotide) Injection | Business Wire

Ipsen Announces FDA Approval of a New Delivery Device for Somatuline® Depot® (lanreotide) Injection | Business Wire | Carcinoid Cancer | Scoop.it
Ipsen Biopharmaceuticals, Inc., an affiliate of Ipsen (Euronext: IPN; ADR: IPSEY), today announced that the U.S. Food and Drug Administration (FDA) ha

Via Gabriela Avram
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Welcome to the Carcinoid Awareness Network

Welcome to the Carcinoid Awareness Network | Carcinoid Cancer | Scoop.it
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One of the best websites and organization for Neuroendocrine/Carcinoid info.

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Predicting SIR-Spheres® microspheres Treatment Outcomes for Metastatic Colorectal Cancer - University of New Mexico Cancer Center

Predicting SIR-Spheres® microspheres Treatment Outcomes for Metastatic Colorectal Cancer - University of New Mexico Cancer Center | Carcinoid Cancer | Scoop.it
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Stephen Blackwood: ObamaCare and My Mother's Cancer Medicine ...

Stephen Blackwood: ObamaCare and My Mother's Cancer Medicine ... | Carcinoid Cancer | Scoop.it
Carcinoid, a form of neuroendocrine cancer, is a terminal disease but generally responds well to treatment by Sandostatin, a drug that slows tumor growth and reduces (but does not eliminate) the symptoms of fatigue, nausea ...
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Discerning infection from inflammation: A new PET/CT technique

Discerning infection from inflammation: A new PET/CT technique | Carcinoid Cancer | Scoop.it
Antimicrobial peptide PET/CT imaging with gallium-68 appears to break through previous roadblocks in differentiating infections and sterile inflammatory processes, according to a study published Jan. 16 in the Journal of Nuclear Medicine.
Sharon Larsen's insight:

The more uses they find for this the better for us all!

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68Ga-DOTATATE PET Scan Imaging in Patients With ... - TrialX

68Ga-DOTATATE PET Scan Imaging in Patients With ... - TrialX | Carcinoid Cancer | Scoop.it
Neuroendocrine cancer is an unusual disease and often goes undetected by routine imaging. The 68Ga-DOTATATE PET Scan is a novel scanning method that may have improved sensitivity and resolution specifically for ...
Sharon Larsen's insight:

I'm trying to get into this trial but with the NIH.  Best scan for NETs.

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Long Term Survival Analysis of Hepatectomy for Neuroendocrine ...

Long Term Survival Analysis of Hepatectomy for Neuroendocrine ... | Carcinoid Cancer | Scoop.it
Liver is the commonest site for metastasis in patients with neuroendocrine tumour (NET). A vast majority of treatment strategies including liver directed nonsurgical therapy, liver directed surgical therapy, and nonliver directed ...
Sharon Larsen's insight:

After reading this article, I realized I am lucky I found a surgeon who would do the liver resection on me.  With multiple tumors scatterered throughout my liver, it was not done with curative intent.  I also learned a new term.  NELM.

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Exciting New Research | Carcinoid and Pancreatic Neuroendocrine Cancer Research | CFCF

Exciting New Research | Carcinoid and Pancreatic Neuroendocrine Cancer Research | CFCF | Carcinoid Cancer | Scoop.it
Funding cancer research for Carcinoid, Pancreatic Neuroendocrine and other related related Neuroendocrine cancers, dedicated to discovering a cure.
Sharon Larsen's insight:

A little better detail on the article from Nature Genetics.  

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Welcome to Cancerland

Welcome to Cancerland | Carcinoid Cancer | Scoop.it
A place where chemo drips freely. Hair is a rare sight to be seen. Tubes, treatment, and trials are common occurrences. Hospital bands are shackles bound to the arms of warriors. And cancer is everywhere.
Sharon Larsen's insight:

Great blog post!  

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F-18 FDOPA poised for primary neuroendocrine tumor imaging ...

F-18 labeled fluorodihydroxyphenylalanine (F-18 FDOPA) appears to find more cancer for patients with neuroendocrine tumors who have had negative conventional and somatostatin receptor scintigraphy, according to a ...
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Biological bad luck blamed in two-thirds of cancer cases

Biological bad luck blamed in two-thirds of cancer cases | Carcinoid Cancer | Scoop.it
Plain old bad luck plays a major role in determining who gets cancer and who does not, according to researchers who found that two-thirds of cancer incidence of various types can be blamed on random mutations and not heredity or risky habits like smoking.
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Charlotte conference on the cancer that killed Steve Jobs

Charlotte conference on the cancer that killed Steve Jobs | Carcinoid Cancer | Scoop.it
Most people think Apple founder Steve Jobs died of pancreatic cancer. But Maryann Wahmann wants everyone to know he really died of neuroendocrine cancer of the pancreas.
Sharon Larsen's insight:

Good article that explains NET Cancer well.

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No access to cancer relief drug Lutate

No access to cancer relief drug Lutate | Carcinoid Cancer | Scoop.it
ROB MacGregor is fighting to get government funding for a drug called Lutate to be subsidised for NSW residents.
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Azusa cheerleader diagnosed w/ lung cancer

Azusa cheerleader diagnosed w/ lung cancer | Carcinoid Cancer | Scoop.it
A 16-year-old Azusa High School cheerleader has been diagnosed with a rare form of lung cancer.
Sharon Larsen's insight:

I almost hope she has carcinoid and not adenocarcinom! Remember, all you need is lungs to get lung cancer!

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Medivizor

Medivizor | Carcinoid Cancer | Scoop.it
Medivizor provides people with serious or chronic medical conditions all the cutting edge information they need know - personalized just for them.
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Poking Holes in Cancer — One Electric Current at a Time - yourcancer.info

Cancer researchers constantly strive to expand the arsenal of weapons to treat the disease, particularly for people with tumors that aren’t responsive to conventional treatments.
Sharon Larsen's insight:

Sounds very promising! 

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It Could Be Worse.... My Life with Carcinoid Cancer

It Could Be Worse.... My Life with Carcinoid Cancer | Carcinoid Cancer | Scoop.it
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My blog....

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Oakland Running Festival

Oakland Running Festival | Carcinoid Cancer | Scoop.it
Community for those living with or supporting those with Neuroendocrine Cancer (Calling Bay Area runners!
Sharon Larsen's insight:

For anyone in the bay area!

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share those moments

share those moments | Carcinoid Cancer | Scoop.it

I am looking for people willing to share their stories for compilation and use as basis of research for a book on the sexual challenges (and triumphs) faced by patients &/or partners of breast/gynecological cancers.  This is open to people of any age and to those who are beyond active treatment, living with disease or still in active treatment.

A detailed explanation of the project is outlined on the WHAT page in the above banner.

Information about those behind this endeavor may be found on the WHO WE ARE page.


Via Susan Zager
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Susan Zager's curator insight, January 24, 2014 2:54 PM

AnneMarie is doing research for a book compiling stories to use for research about "sexual challenges (and triumphs) faced by patients &/or partners of breast/gynecological cancers."  You can do this anonymously if you prefer. 

Please take a look and also do the survey at: https://www.surveymonkey.com/s/KXQ7ZBG


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Somatic mutation of CDKN1B in small intestine neuroendocrine tumors : Nature Genetics : Nature Publishing Group

Somatic mutation of CDKN1B in small intestine neuroendocrine tumors : Nature Genetics : Nature Publishing Group | Carcinoid Cancer | Scoop.it
Matthew Meyerson and colleagues report whole-exome and whole-genome sequencing of 55 small intestine neuroendocrine tumors. They identify recurrent somatic mutations in CDKN1B, implicating cell cycle dysregulation in the pathogenesis of these tumors.
Sharon Larsen's insight:

Fantastic article to help small intestine neurondocrine cancer patients like myself!   

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Chemotherapy combination shows promise as second-line therapy for neuroendocrine tumors | Hematology Oncology

Chemotherapy combination shows promise as second-line therapy for neuroendocrine tumors | Hematology Oncology | Carcinoid Cancer | Scoop.it
Hematology Oncology | The combination of capecitabine plus temozolomide demonstrated efficacy in patients with well- to moderately differentiated neuroendocrine tumors resistant to octreotide, according to phase 2 study results presented at the...
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