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ASCO Releases First Guidelines on Survivorship Care

ASCO Releases First Guidelines on Survivorship Care | Cancer Survivorship | Scoop.it

"The American Society of Clinical Oncology has released three new evidence-based clinical practice guidelines on the prevention and management of symptoms that affect cancer survivors: neuropathy, fatigue and depression, and anxiety. The Society notes that these are the first three in a planned series of guidelines on survivorship care, and all are now available online ahead of print in the Journal of Clinical Oncology (specific citations below).

 

The topics came from a comprehensive list of many topics in cancer survivorship care, which was developed by the ASCO Survivorship Guideline Advisory Group, Gary Lyman, MD, MPH, FASCO, FRCP(Edin), Co-Chair of that committee, explained via email. The topics were then ranked in terms of importance and need in a survey, which included experts on the Guideline Advisory Committee and others.

 

“These three topics were at the top of the list and were considered a good starting point for developing what will become a large ASCO portfolio of survivorship guidelines,” he said, adding that he was not able to say when future guidelines would be released, but they are in the works. Lyman also serves as Co-Director of the Hutchinson Institute for Cancer Outcomes Research in the Public Health Sciences and Clinical Research Divisions at Fred Hutchinson Cancer Research Center, as well as Professor of Medicine and Medical Oncology at the University of Washington School of Medicine."

           

 


Via Susan Zager
Tambre Leighn's insight:

So many resources continue to go to studies...and several of these seem to study a study.  Recommendations are great and guidelines are necessary but so are the resources and processes to implement.  

 

Survivors need guidelines translated into action that impacts their quality of life now.

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Grant helps expand childhood cancer follow-up care at clinic

Grant helps expand childhood cancer follow-up care at clinic | Cancer Survivorship | Scoop.it
The Children’s Specialty Center provides treatment to children with blood disorders and cancer regardless of their ability to pay for services. A recent grant from the nonprofit St. Baldrick’s Foundation awarded $245,000 to the center to expand its Long-Term Follow-Up Clinic, which provides follow-up care for childhood cancer survivors up to age 40.
Tambre Leighn's insight:

Survivorship issues are gaining momentum and a much needed place in the spotlight. Saving lives, extending lives...so very important but it's not the complete picture. Whole lives of survivors and addressing quality of life issues must also be on the table and part of the plan.

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13 Ways I Live My Life With Purpose After Cancer

13 Ways I Live My Life With Purpose After Cancer | Cancer Survivorship | Scoop.it
Although I didn't always feel empowered or plan on becoming a cancer advocate, I found strength in following a few simple life rules I learned along the way. In honor of my cancerversary, I want to share with you 13 ways I now live my life with purpo...
Tambre Leighn's insight:

Inspiring words and insights from the amazing Tamika Felder. Great information for cancer survivors...check it out.

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Beth A. Williams's curator insight, December 20, 12:54 PM

Words of wisdom and inspiration to pay attention to -- each one is worth savoring for a full, abundant life. 

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eUpdate Article for Cancer Survivors, Cancer Caregivers and Cancer Medical Professionals

eUpdate Article for Cancer Survivors, Cancer Caregivers and Cancer Medical Professionals | Cancer Survivorship | Scoop.it
Coping with Cancer provides resources for cancer survivors, cancer caregivers, and cancer medical professionals. Articles and stories are presented in a warm and friendly, easy-to-use format, and provides information by specific cancer type, general knowledge about living with cancer, and wellness and inspirational topics. The resource guides are the most complete listings found anywhere. The Coping media team is constantly adding relevant articles and trustworthy resources.
Tambre Leighn's insight:

It's DEFINITELY not one size fits all. Great article on some of the considerations unique to senior survivors.

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Can A Health Savings Account Pay Your Cancer Bills? | cancerhawk

Can A Health Savings Account Pay Your Cancer Bills? | cancerhawk | Cancer Survivorship | Scoop.it
http://insights.schwab.com/portfolio-management/surprising-advantage-your-hsa Cancer, like any chronic illness, can cause financial distress and even
Tambre Leighn's insight:

Get educated. Make informed decisions. Thanks to @cancerhawk for passing this along.

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Becoming Your Best Cancer Care Advocate: 5 Steps Could Make All the Difference

Becoming Your Best Cancer Care Advocate: 5 Steps Could Make All the Difference | Cancer Survivorship | Scoop.it
The steps taken just after diagnosis can have a huge impact on the quality of care we receive, as we try to both understand a disease as complex as cancer, and make smart decisions in navigating our complicated healthcare system....
Tambre Leighn's insight:

Fantastic tips for cancer survivors. Self-advocacy is SO important and such a big part of your wellbeing. What if you had a Care Plan that helped you reduce your stress so you had more energy to invest in advocating for you? What might be different?

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Tambre Leighn - Tambre's Tips on Engaging Patients | TheONC | A Gated Community for Oncology Nurses and Cancer Care Teams

Tambre Leighn - Tambre's Tips on Engaging Patients | TheONC | A Gated Community for Oncology Nurses and Cancer Care Teams | Cancer Survivorship | Scoop.it
Certified life coach Tambre Leighn offers guidance on how to engage patients to help improve patient care.
Tambre Leighn's insight:

Check out my latest post for oncology nurses along with other great blog posts by oncology professionals available on this site.

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Rescooped by Tambre Leighn from brain tumor survivors
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Mean girls and scared boys: The real life Australian The Fault in Our Stars ... - NEWS.com.au

Mean girls and scared boys: The real life Australian The Fault in Our Stars ... - NEWS.com.au | Cancer Survivorship | Scoop.it
THERE’S a lot to worry about when you’re 14 and told you’re going to die.

Via Beth A. Williams
Tambre Leighn's insight:

Exactly why organizations like Young Survival Coalition (http://www.youngsurvival.org/) and Stupid Cancer (http://stupidcancer.org/) are SO important. Registration is open for YSC Conference for young women dealing with breast cancer, March 2015 in Houston and CancerCon hits Denver in April 2015. Both events give young survivors a chance to get connected, educated, inspired, and have some fun in a judgment free environment. Please pass it on.

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Beth A. Williams's curator insight, November 18, 2:40 PM

The issues teenagers with cancer face differ from those that both children and adults face. A place to share with others in similar situations can provide respite and a sense of community, and help to overcome isolation. 

 

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New Study Suggests Meditation Can Actually Alter Your Body On A Cellular Level | IFLScience

New Study Suggests Meditation Can Actually Alter Your Body On A Cellular Level | IFLScience | Cancer Survivorship | Scoop.it
Scientists aren’t quite sure how the placebo effect works. This phenomenon occurs when a patient believes they are getting treatment and their condition begins to improve, despite not actually receiving medication with an active ingredient.

Via Beth A. Williams
Tambre Leighn's insight:

Since most people are well aware, thanks to coloring each month of the year in a different hue, how about moving, instead to actionable steps - like Meditation Month - where everyone commits to meditating daily in an experiment to see how it changes their lives - 30 days to a new healthy habit. Let's move awareness to action and improving lifestyle choices. Time to stop talking about health and instead BE health!

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Beth A. Williams's curator insight, November 11, 1:27 PM

This study provides some confirmation of my belief that mindfulness, meditation, yoga and similar activities can significantly improve both the quality of life and length of life. Looking forward to more science looking at the health benefits of these activities.

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Click here to support IV Pediatric Backpack for KidsWithCancer by Kelly Simonds

Click here to support IV Pediatric Backpack for KidsWithCancer by Kelly Simonds | Cancer Survivorship | Scoop.it
The Doctors tv show Kylie on MSNBC NewsNation with Tamron Hall. Sept. 22, 2014 Thank you msg from Kylie. All donations in excess of my goal will go towards the manufacturing of the FIRST usable IV backpacks. EVERY PENNY! Kylie NEEDS funding to create a WORKING Prototype! Kylie is 11 yrs old...
Tambre Leighn's insight:

Can you help Kylie? This amazing pediatric cancer survivor has a great invention to help other kids with cancer. Healthcare professionals, she is looking for specific information about IV pumps and other ambulatory pumps/take home pumps being used in children's hospitals around the country. Please pass it on and help either with a donation as little as $5 or with information.

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24 Straightforward Rules from Patients to Doctors - WhatNext

24 Straightforward Rules from Patients to Doctors - WhatNext | Cancer Survivorship | Scoop.it
If patients could make the rules, what would they tell their doctors? Here are 24 rules from WhatNexters to their doctors.
Tambre Leighn's insight:

Not just for cancer survivors...this list applies to all who are under the care of a physician or medical team. Sometimes what creates patient engagement and satisfaction is very, very simple.

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Rescooped by Tambre Leighn from Cancer Research You can Trust
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A Youthful Approach to Breast Cancer Prevention

A Youthful Approach to Breast Cancer Prevention | Cancer Survivorship | Scoop.it
Breast cancer prevention should begin during childhood and adolescence, targeting lifestyle factors.

Via Heather Swift
Tambre Leighn's insight:

Prevention - from childhood - can be the first line of defense for a large percentage of contributing factors.

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MacMullan: Schilling not hiding his scars

After bankruptcy and battle with cancer, Curt Schilling is not hiding his scars.
Tambre Leighn's insight:

Do not dip...just don't.

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Rescooped by Tambre Leighn from Breast Cancer News
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Anne Loeser: Reverse trends about breast cancer

Anne Loeser: Reverse trends about breast cancer | Cancer Survivorship | Scoop.it

"Imagine that you have an acquaintance in Springfield, Massachusetts, a city best known as the birthplace of basketball and home of the Basketball Hall of Fame. The fourth largest city in New England, Springfield boasts 155,000 residents of various ethnicities and religious beliefs.

Now envision that over the next five years, 120,900 (78 percent) of Springfield’s citizens pass away, and only 3,100 (2 percent) survive a normal life span.

In the event of such a situation, you’d expect considerable media coverage and public outrage. But the deaths continue mostly unnoticed.

If you believe such a circumstance to be unthinkable, think again.

Including myself, an estimated 155,000 Americans — the population of Springfield, — are living with metastatic breast cancer (MBC). MBC is cancer that has traveled from the breast and underarm lymph nodes to other parts of the body. Although we're in the midst of October's Breast Cancer Awareness Month (BCAM), you may not be aware that:

• 98 percent of people with MBC will die of it, and 78 percent will perish within five years of diagnosis.

• Average survival with MBC is three years.

• The number of women dying annually hasn’t varied since the mid-1980s when BCAM was initiated. In 1988, approximately 40,000 women perished and in 2011, 40,931 women died of MBC.

• Each year, roughly 220,097 women and 2,078 men are diagnosed with breast cancer, with no improvement in 10 years."


Via Susan Zager
Tambre Leighn's insight:

Realities far beyond the pink...

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Susan Zager's curator insight, October 20, 3:01 PM

This article really shows the true facts about metastatic breast cancer. 

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Tambre Leighn - Managing Holiday Stress for Patients, Caregivers & Healthcare Providers | TheONC | A Gated Community for Oncology Nurses and Cancer Care Teams

Tambre Leighn - Managing Holiday Stress for Patients, Caregivers & Healthcare Providers | TheONC | A Gated Community for Oncology Nurses and Cancer Care Teams | Cancer Survivorship | Scoop.it
Professional life coach Tambre Leighn offers some tips on how we can help minimize stress and sadness during the holiday season.
Tambre Leighn's insight:

It's an honor to be blogging for theONC, an incredible resource for the oncology community. For all you do for those needing your care, thank you and may this holiday season be full of peace and wellbeing for you and your loved ones.

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Rescooped by Tambre Leighn from Social Media and Healthcare
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Social media for pharma – an expert’s view

Social media for pharma – an expert’s view | Cancer Survivorship | Scoop.it
Even with risks and regulations, pharma needs to engage with patients and learn more about them

Via Plus91
Tambre Leighn's insight:

As we say in coaching....meet them where they are. Most patients and caregivers are using social media to get educated and get support with healthcare challenges. Time for pharma to harness the power and use it for good with patient centered support services.

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How Social Media Helps Young People With Cancer - US News

How Social Media Helps Young People With Cancer - US News | Cancer Survivorship | Scoop.it
The online world empowers and connects people in their darkest hour.
Tambre Leighn's insight:

Support and connection help to overcome isolation for many cancer survivors. Stupid Cancer is one of the leading non-profit organizations for young adult cancer survivors providing incredible services and an amazing community.

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eUpdate Article for Cancer Survivors, Cancer Caregivers and Cancer Medical Professionals

eUpdate Article for Cancer Survivors, Cancer Caregivers and Cancer Medical Professionals | Cancer Survivorship | Scoop.it
Coping with Cancer provides resources for cancer survivors, cancer caregivers, and cancer medical professionals. Articles and stories are presented in a warm and friendly, easy-to-use format, and provides information by specific cancer type, general knowledge about living with cancer, and wellness and inspirational topics. The resource guides are the most complete listings found anywhere. The Coping media team is constantly adding relevant articles and trustworthy resources.
Tambre Leighn's insight:

I absolutely agree that one size does NOT fit all when it comes to cancer, treatment choices, and the impact and outcomes. Individualized approaches make sense - which means patients need to become strong self-advocates and be sure they speak about their specific needs and priorities. 

Important article on considerations and implications for Senior Adults with cancer but it speaks to the bigger picture of shifting to a medical model where, as we do in coaching with our clients, the medical team meets the patient "where they are at." This requires active, and sometimes intuitive, listening skills for healthcare professionals and clear communication by patients.

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eUpdate Article for Cancer Survivors, Cancer Caregivers and Cancer Medical Professionals

eUpdate Article for Cancer Survivors, Cancer Caregivers and Cancer Medical Professionals | Cancer Survivorship | Scoop.it

"In 2005, the fine-dining aficionado got the chance to travel to New York and show off his skills on the first season of Food Network’s culinary competition The Next Food Network Star....However, the elation he felt from progressing so far in the nationally broadcast competition was short lived. Two weeks after the show’s finale, Hans got the worst news a foodie could pos­sibly hear: He had stomach cancer."

Tambre Leighn's insight:

Hans Rueffert is an amazing chef (I've had the tasty experience of his food at MD Anderson's Survivorship conference several years ago) and inspiring survivor. Check out this great article about his story and journey in the e-version of Coping With Cancer - a great resource for survivors and caregivers.

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REGISTRATION Opens for YSC Summit: The Only National Conference for Young Women Affected by Breast Cancer and Their Co-Survivors

REGISTRATION Opens for YSC Summit: The Only National Conference for Young Women Affected by Breast Cancer and Their Co-Survivors | Cancer Survivorship | Scoop.it
NEW YORK, Nov. 20, 2014 (GLOBE NEWSWIRE) -- Though breast cancer is less common in younger women, more than 250,000 women living in the U.S. today were diagnosed before their 41st birthday, and 13,000 more will be diagnosed this year. Young Survival Coalition (YSC) is bringing them together for the YSC Summit, March 6-8, 2015, in Houston, Texas.
Tambre Leighn's insight:

Registration is open - join hundreds of women in March 2015 and get educated, connected, inspired...and have a ton of fun. Incredible roster of expert speakers and session topics.

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Beth A. Williams's curator insight, November 22, 6:39 PM

A resource for education, support, and wellness, the YSC is offering a national conference for young women breast cancer survivors and their co-survivors.

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Bose grants reward risk

Bose grants reward risk | Cancer Survivorship | Scoop.it

I'tFive innovative, high-risk projects launch with support from Prof. Amar G. Bose Research Grants.

Tambre Leighn's insight:

When you purchase anything, you vote with your dollars. Here is a company you may want to consider supporting. Congratulations to the innovative cancer research projects funded and to Bose for making them possible!

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15 Influential ePatients and Patient Advocates to Follow

15 Influential ePatients and Patient Advocates to Follow | Cancer Survivorship | Scoop.it
Whether its public speaking, blogging, or tweeting, these empowered ePatient & patient advocates are changing the way we think about our role in healthcare.
Tambre Leighn's insight:

Great influencers and educators to be following in the arena of advocacy for chronic illness, ePatients, and giving patients a voice within medical care.

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Survivorship: How do you want it to be? - YouTube

Presented by Dr. Jennifer D. Irwin, Associate Professor in the School of Health Sciences at Western University.
Tambre Leighn's insight:

Excellent presentation by Dr. Irwin with some great insights and simple tips and her personal story on creating the experience you want so you can feel more empowered in survivorship.

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Survivors confront hurdles on job front

Survivors confront hurdles on job front | Cancer Survivorship | Scoop.it
Michelle Kierns lost her job as a director of admissions at a long-term-care center last winter, only a few weeks after doctors diagnosed her breast cancer.
Tambre Leighn's insight:

Great employment tips and strategies for cancer survivors.

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Living with Stage 4: The breast cancer no one understands

Living with Stage 4: The breast cancer no one understands | Cancer Survivorship | Scoop.it
In a culture focused on survivorship, those with metastatic breast cancer who will be in treatment for the rest of their lives can feel isolated and misunderstood.
Tambre Leighn's insight:

For the 40K lives lost each year to metastatic breast cancer and for Jody Shoger (@jodyms) and Diane Mapes (@Single_Shot), sharing this great article to help continue to raise awareness of the REAL story.

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The young survivors, fighting on

The young survivors, fighting on | Cancer Survivorship | Scoop.it
Tiffany Nardella was engaged to be married, living in South Philadelphia, and loving life when she was diagnosed with stage 3 breast cancer at 35 in 2010.
Tambre Leighn's insight:

Great story on how amazing non-profits like Young Survival Coalition can help create connections and support. For more information, go to:

http://www.youngsurvival.org/

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