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The importance of sex in the midst of a cancer diagnosis

The importance of sex in the midst of a cancer diagnosis | Cancer Survivorship | Scoop.it
It occurs to me that I talk to my patients more about death and dying, than about sex.
Tambre Leighn's insight:

Beautifully written article about the importance of intimacy in survivorship.

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What Caught Our Eye This Week: Patient Empowerment in Discussing End-of-Life Care - National Coalition for Cancer Survivorship (NCCS)

What Caught Our Eye This Week: Patient Empowerment in Discussing End-of-Life Care - National Coalition for Cancer Survivorship (NCCS) | Cancer Survivorship | Scoop.it
Every cancer patient entering this last stage of survivorship deserves to have the option of having these end-of-life discussions.
Tambre Leighn's insight:

Conscious conversations lead to conscious choices.

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Breast cancer advocate dies after battle with illness

Breast cancer advocate dies after battle with illness | Cancer Survivorship | Scoop.it

"NORTH ANDOVER — An amazing laugh. Dynamic blue eyes. A smile that lit up the room. These are the things Fiona Maguire will remember about her husband Peter Devereaux, a well-liked Marine and male breast cancer advocate who died Thursday after a six year battle with the illness. He was 52.

“He really had a great, light personality. He liked everyone. He was probably the least judgmental person you’d ever meet in your life,” Maguire said. “He never looked at people for money they made, or how they looked,or anything like that.  He was really just a kind man.”

 

Devereaux became well known as an advocate for breast cancer patients through talks he gave at fundraisers in Greater Boston and beyond. Devereaux was part of the largest group of male breast cancer patients ever recorded: former Marines who were stationed at Camp Lejeune. At the North Carolina base, Marines and their families were exposed to toxic water from at least 1957 to 1987. Devereaux served four years with the Marines beginning when he was 18 and was stationed at Camp Lejeune for 16 months."


Via Susan Zager
Tambre Leighn's insight:

Exemplary model of courage - marine with breast cancer turned advocate passes. Honoring all survivors who take their experience and turn it to good to help others today. Thank you for giving during a time when you face what may be the greatest challenge of your life.

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Susan Zager's curator insight, August 25, 10:48 AM

Peter was pretty incredible.I was fortunate to meet him with other advocates at SABCS. Our prayers go out to all of his family and friends. 

Susan Zager's curator insight, August 25, 10:51 AM

Peter was pretty incredible.I was fortunate to meet him with other advocates at SABCS. Our prayers go out to all of his family and friends. 

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Why Most Breast Cancer Survivors Don't Get Boob Jobs Post Mastectomy

Why Most Breast Cancer Survivors Don't Get Boob Jobs Post Mastectomy | Cancer Survivorship | Scoop.it
Less than 42 percent of breast cancer patients choose breast reconstruction following their mastectomy.
Tambre Leighn's insight:

We must continue to provide education and information to all survivors about issues that impact quality of life. Of course, type of treatment, reconstruction, etc. all come down to personal choice. But people must have all the facts to be able to make an informed decision.  Studies continue to also show a disparity when it comes to minorities and cancer. Cancer doesn't discriminate - nor should cancer care.

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Tambre Leighn - From Hollywood to Healthcare | TheONC | A Gated Community for Oncology Nurses and Cancer Care Teams

Tambre Leighn - From Hollywood to Healthcare | TheONC | A Gated Community for Oncology Nurses and Cancer Care Teams | Cancer Survivorship | Scoop.it
Professional health coach Tambre Leighn shows us how coaching in oncology can benefit both patients and cancer care team members.
Tambre Leighn's insight:

Honored to now be blogging for TheOnc and educating on coaching as a resource for patients, caregivers and healthcare professionals!

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Medical Xpress: Patient navigation may aid in breast cancer treatment in high-risk populations


Via Heather Swift
Tambre Leighn's insight:

Oh, if only someone would study the amount of dollars put into studies to discover some of the most logical things.  Why wouldn't any woman benefit from having a knowledgable navigator walk her through what is most likely the most terrifying time in her life?  Why wouldn't women in high risk populations do better if they have the support and insights of a navigator?  Why aren't those research dollars invested, instead, in supplying the actual services needed instead of studying the need?

 

Don't get me wrong.  I am not opposed to research studies.  Data is important.  There are many, many things that do need to be quantified, understood and examined.  And maybe it is because I know what a difference coaching makes to survivors - having someone help them work past the confusion, fear and overwhelm so they can create strategies, have clarity and be a strong self-advocate - that to study what is so obvious seems an added step and waste of resources that are getting harder and harder to come by that I get a little frustrated.

 

It is wonderful we now know, based on data, that navigators make this kind of difference.  Now...where is the intervention that provides access for all high-risk women to a navigator?  Implementation of a plan that provides the identified resource should, in my opinion, be a contingent part of any study like this.  Knowledge is all well and good but follow through and implementation is where we will make the difference for this population.

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Heather Swift's curator insight, August 5, 12:47 AM

"Patient navigation, or the linking of a newly diagnosed cancer patient with a professional trained in assisting patients though the complex journey of cancer diagnosis and treatment, may lead to better breast cancer care in high risk and minority women. The findings, recently published in the Journal of Clinical Oncology, is the first national study to show a relationship between navigators and the initiation of certain recommended treatments in breast cancer."

" Navigators are experts in helping patients overcome the numerous obstacles they face...and have become an integral part of the cancer care model. It has been known that minority and high risk patients, or those who may benefit most from these navigators, often have worse outcomes after diagnosed with cancer."

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Using the Body’s Own Immune System as a Cancer Therapy

Using the Body’s Own Immune System as a Cancer Therapy | Cancer Survivorship | Scoop.it
Increasingly, doctors are using their patients' own immune systems as valuable weapons against the disease.

Via Graham Player Ph.D.
Tambre Leighn's insight:

Breakthroughs like this are fantastic news...however, I would like to see just as much, if not more, emphasis on prevention.  There are many lifestyle choices that studies show impact the immune system as well as studies that indicate many medical professionals are not comfortable dealing with obesity and other issues that lead to chronic illness.  If people can experience greater quality of life and a much lower cost than going through chronic illness, we need to start giving medical professionals the training they need to communicate with their patients.  For more information, go to www.iPECwellbeing.com

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Graham Player Ph.D.'s curator insight, July 31, 11:21 AM

The focus of cancer research has been on exploring ways to treat the tumor. It is always enlightening to see research that focuses on treating the patient rather than only the tumor.

Scientists have long tried to understand how to get the immune system—the body’s natural defense mechanism—to recognize cancer cells as the enemy, and destroy them. This has led to the introduction of immunotherapy, which induces, enhances, or suppresses an immune system response to help treat the disease condition. Its focus is on using the body’s own immune system. In terms of cancer this is an interesting and growing area of study.

Cancer immunotherapy is used to provoke the immune system into attacking the tumor cells. Cancer cells have subtly different molecules on their surface that can be detected by the immune system. The focus of immunotherapy in treating cancer is based on cell-based therapies, antibody therapies, and cytokine therapies.

Oncologist Dr. David Maloney is one of the oncologists on the forefront of the next major advance in immunotherapy. He infuses lymphoma patients with their own T-cells, re-engineered to produce a chimeric antigen receptor (or CAR T-cells) that, once triggered, can eliminate cancer. Unlike antibodies, which are broken down by the body over time, CAR T-cells may continue to multiply, serving as a “living therapy” throughout a patient’s life— staying on guard for any subsequent relapses.

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Cancer Treatments Should be Aligned with Patient Priorities

Cancer Treatments Should be Aligned with Patient Priorities | Cancer Survivorship | Scoop.it

Via Graham Player Ph.D.
Tambre Leighn's insight:

Cancer patients deserve to be educated - or choose to have a health advocate such as a loved one or caregiver on their behalf - and to share their personal values and priorities as part of the treatment decision process.  That is where truly patient centered care begins.  Without the information being communicated between patient and physician, there is no true full choice available and no real partnership in creating the course that will deliver what the patient wants.

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Graham Player Ph.D.'s curator insight, July 22, 4:08 AM

If cancer patients better understood their disease stage and treatment options, they would make smarter—potentially less-expensive—choices, a panel of experts said during a discussion on cancer value and costs at the annual meeting of the Association of Community Cancer Centers.

In determining value for patients, physicians need to think about clinical benefits, toxicity of treatment and costs, said Paul Celano, MD, a medical oncologist at Greater Baltimore Medical Center.

The oncology community needs “to ensure [that] patients understand what their treatment options are, and that the care meets their personal goals and preferences, especially in the metastatic setting,” said John Fox, MD, the associate vice president of medical affairs at Priority Health, a health plan in Michigan. He cited a 2012 study showing that 81% of patients receiving chemotherapy for metastatic colorectal cancer and 69% of patients receiving chemotherapy for metastatic lung cancer thought they were getting curative treatment.

Often, he added, patients get chemotherapy because that’s what their doctor told them they should do, “when, in fact, they might have been perfectly happy with other alternatives that were less expensive and less toxic.” Treatments should be aligned with patients’ priorities and preferences, he said. “If we’re investing $100,000 to prolong somebody’s life by two months, but that’s not what the patient wanted—if the trade-offs of life prolongation were offset by side effects and hospital time—then that’s a waste.”

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Get Grounded, Get Real: Guided Visualization As a Key to Becoming Centered

Get Grounded, Get Real: Guided Visualization As a Key to Becoming Centered | Cancer Survivorship | Scoop.it

As a trained bodyworker, Reiki Master and hypnotherapist, I learned some easy, quick tools to help when life has you spinning or stressed.

Tambre Leighn's insight:

A big part of my personal success formula is being as centered and present as possible. Here are some easy tips to bring more Ohm into your day.

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What Caught Our Eye This Week in Cancer Policy

What Caught Our Eye This Week in Cancer Policy | Cancer Survivorship | Scoop.it
A PBS Newshour segment discusses the late effects and potential secondary cancers that survivors of pediatric cancers face.
Tambre Leighn's insight:

"Narrowing" can potentially be yet another burden for cancer survivors seeking treatment.  Insurers should not be able to dictate quality of care like this and survivors need access to the best care of their choice.  Being forced into having access only to lowest cost care and making higher quality care out of network is not acceptable.

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16 questions to ask when choosing a hospice

16 questions to ask when choosing a hospice | Cancer Survivorship | Scoop.it
How do you find the most appropriate hospice? Here are 16 questions to ask before choosing.
Tambre Leighn's insight:

Excellent list of questions to ask.  Bringing a resource like this to conversations around very tough topics like hospice care can help reduce the stress and create more informed choices.

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A change of plans

A change of plans | Cancer Survivorship | Scoop.it

"For my sweet wife.  Noreen is extremely tired this week and had to cancel her trip to Washington, D.C.  She is depressed and sad.

We are trying to figure out why this sudden loss of positive attitude.

I think it's the fact that she is so tired, she canceled the trip, and it is a personal defeat.

Noreen's determination to live a quality life with her cancer is central in keeping ahead of the game, since she contracted breast cancer almost 14 years ago.

Cancelling her D.C. trip, a total of 11 hours in the air, plus the wear and tear of two full days of meetings, is a personal defeat for Noreen.  

My job?  Go home and stay close to this whirlwind woman.  Get her laughing.  I love you, Nor."


Via Susan Zager
Tambre Leighn's insight:

Sometimes it feels to survivors like cancer has the upper hand...especially when it impacts their ability to engage in life and doing things they love.  Going through cancer for more than a decade can, understandably, take a toll.  Noreen will be getting support and encouragement from her clearly dedicated and loving husband - which is amazing.  However this is a perfect example of the difference coaching for survivors can make.

 

Cancer survivorship coaches work with their clients to be able to make this kind of decision in a way that they feel empowered vs. feeling like cancer took something away from them...they learn the power of choice in decisions vs. have tos or shoulds.  While the outcome may not be different - the trip may need to be postponed or cancelled, often the coach can help the survivor identify the qualities of the experience the survivor was looking forward to and brainstorm a different way to experience those qualities without, for example, getting on a plane if that isn't something they can do right now.

 

When survivors learn that while they may not be able to change certain circumstances but they can change how they respond to them so that their response supports, not detracts from their quality of life they feel more empowered.

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Susan Zager's curator insight, June 24, 7:07 PM

We are hoping that Noreen is doing better. She is an incredible inspiration to so many women. 

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Medical Costs and Productivity Losses of Cancer Survivors — United States, 2008–2011


Via Krishan Maggon
Tambre Leighn's insight:

The impacts of cancer are far-reaching.  More evidence survivors need holistic support - meaning a way to create and implement strategies around life challenges such as finances, career and more.

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Krishan Maggon 's curator insight, June 13, 1:44 AM

Cancer survivors in the US face mounting costs associated with treatment, surgery, radiation, regular check ups, laboratory, diagnostic, screening/imaging, high priced drugs, high risk of second cancer and side effects.  

Teresa Levitch's curator insight, June 17, 8:08 AM

While this is not what I want to read, it validates my experience .

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How mobile became mighty in healthcare

How mobile became mighty in healthcare | Cancer Survivorship | Scoop.it
Chris Duffey and Katie Erbs report on ten powerful trends emerging in mobile health for patients, professionals and providers (How mobile became mighty in healthcare http://t.co/sbmbItm1UC)...
Tambre Leighn's insight:

Mobile is a great way to increase patient engagement...but it must be patient-driven...identifying the ways they want to use mobile health apps to improve their wellbeing and their healthcare experience.

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Rescooped by Tambre Leighn from Pharma Biotech Industry Review (Krishan Maggon)
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Fighting The Heavy Burden Of Cancer

Fighting The Heavy Burden Of Cancer | Cancer Survivorship | Scoop.it
Cancer is a heavy burden for patients as well as the economy. Find out how research is helping.

Via Krishan Maggon
Tambre Leighn's insight:

The ripple effect of cancer is far-reaching and goes well beyond the individual's experience on out in the community and our country, at large. Prevention is key in reducing the burden on individuals, their families, and our economy. Each person has the capability of making a positive change through healthy lifestyle behaviors - we all have a responsibility to move to a more healthy nation.

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Welcome to Well Beyond Ordinary | Life Coaching by Tambre Leighn

Welcome to Well Beyond Ordinary | Life Coaching by Tambre Leighn | Cancer Survivorship | Scoop.it

How well are you thriving through your experience with cancer?

What if you had a cancer survivorship plan and key strategies in place to help you navigate the unknowns of cancer survivorship and build that life where you feel you’re not just surviving your cancer but you are truly thriving?

 
Tambre Leighn's insight:

Valuable information on thriving as a survivor and the importance of survivorship care plans.  Free resources for survivors to help them get educated on advocating for their care plan from medical providers.

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Scream If You Have To … | Coaching Excellence

Scream If You Have To … | Coaching Excellence | Cancer Survivorship | Scoop.it
These days, it takes a lot to make me angry but the story of Maggie Kudirka, an extremely talented ballerina with the prestigious Joffrey Ballet, and her
Tambre Leighn's insight:

It is critical to be your own self-advocate...check out three key tips for taking charge of your wellbeing.

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'A Plan of Attack' for Juggling Cancer and Career

'A Plan of Attack' for Juggling Cancer and Career | Cancer Survivorship | Scoop.it
Millions of Americans face the challenges of remaining productive in the workplace after a cancer diagnosis.
Tambre Leighn's insight:

Thank you, Tami Boehmer, for sharing so much of your experience for this article.  We must continue to build awareness that a plan for treatment is not enough.  Survivors need plans and strategies, short and long term, for living through, with and beyond cancer.

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At 23, Bald Ballerina fights advanced breast cancer

At 23, Bald Ballerina fights advanced breast cancer | Cancer Survivorship | Scoop.it

"A dancer since the age of 4, Maggie Kudirka knows the grit, discipline and focus required to become a professional ballerina.

Now the same drive that kept her dancing may be what keeps her alive: at 23 years old, Maggie, who trains and performs at the prestigious Joffrey Ballet School, was diagnosed with Stage 4 breast cancer.

As she takes the biggest leap of her life—a leap of faith that an aggressive treatment will attack her cancer—Maggie has launched a social media campaign. What started with the Bald Ballerina Facebook page to inform friends and family of her health situation has turned into a platform for Maggie to raise awareness about breast cancer in young women and raise money to help pay for her medical expenses.

After her June 19 diagnosis, Maggie says her world took a surreal turn. A schedule of six hours a day of ballet training with fellow Joffrey dancers in New York abruptly ended, as Maggie moved back home to live with her parents in Ellicott City, Maryland, and begin treatment.


Via Susan Zager
Tambre Leighn's insight:

Every individual MUST be their own best and strongest advocate.  Trust your body and ask for, insist, demand, and scream, if you have to so you get the answers you need when your intuition is telling you there is something that needs attention.

 

Healthcare organizations and providers MUST stop questioning, doubting, and ignoring the concerns of patients just because they don't fall into a "norm".  Props to Maggie, who ignore the complacent responses to her request for an appointment...

 

“I had trouble getting in to see a doctor because their gatekeepers did not think a lump in a 23-year-old woman was serious. They had openings for appointments several months later. They said, ‘Don’t worry, it’s probably nothing. You’re too young for breast cancer,’“ Maggie says. “How I wish they had been right.”


It is your body and your life.  Take charge and be sure to find a HC provider who listens and responds to you.  Thank you, Maggie, for using your experience and your profile as a magnificent dancer to raise awareness so other young women will have the courage to insist on getting the care they need and deserve in a timely manner.

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Susan Zager's curator insight, August 1, 6:09 PM

According to the article a 2013 study published in JAMA  found, "while it’s a relatively small number, metastatic breast cancer — disease that has spread to the bones or other organs — tripled among women younger than 40 between 1976 and 2006. And the incidence of advanced cancer has gone up fastest in younger women ages 25 to 34."

Heather Swift's curator insight, August 5, 1:11 PM
Susan Zager's insight: According to the article a 2013 study published in JAMA found, "while it’s a relatively small number, metastatic breast cancer — disease that has spread to the bones or other organs — tripled among women younger than 40 between 1976 and 2006. And the incidence of advanced cancer has gone up fastest in younger women ages 25 to 34."
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Ask Your US Representative to Support HR 1801 Today!

Ask Your US Representative to Support HR 1801 Today! | Cancer Survivorship | Scoop.it

"The Cancer Drug Coverage Parity Act has been reintroduced and now has over 80 bi-partisan co-sponsors! But the work is not done yet. The more bi-partisan co-sponsors we have, the more likely the House will move to vote on this critical legislation.

We need you to reach out to your US Representative to ask him or her to co-sponsor HR 1801. The bill will require oral anticancer treatments to be covered at the same rate as IV treatments. Many insurance plans treat patient-administered anticancer treatments, like oral pills, differently than other forms of treatment creating a financial barrier to care for many myeloma patients.

By entering your information below, you will be able to quickly and easily email your US Representative a prewritten letter.  After clicking next, take a moment to customize the letter with a personal story to increase your message's impact. You can share your story or click on the talking points to the right to add those into your message.

Thank you for your help ensuring cancer patients have fair and equal access to all types of treatments!"

 

 


Via Susan Zager
Tambre Leighn's insight:

Your voice counts...take action, create change.  Equal reimbursement for oral chemotherapy...it's the right thing to do.

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Susan Zager's curator insight, July 30, 4:32 PM

Please use the International Myeloma Association's prewritten letter to Congress and write to your representatives to support this important bipartisan legislation  (HR 1801)/  It will assure that all cancer patients can receive oral as well as IV anti-cancer treatments treated the same way so that the oral medications are not a financial burden. 

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5 Tips for PCPs: Caring for Childhood Cancer Survivors

5 Tips for PCPs: Caring for Childhood Cancer Survivors | Cancer Survivorship | Scoop.it
Pediatric oncologist Lisa Diller, MD, has guidance for primary care physicians who may not be up on the special needs of people -- including adults -- treated for cancer during childhood.

Via Heather Swift
Tambre Leighn's insight:

Identifying and addressing the unique needs of both pediatric and young adult cancer survivors speaks strongly to delivering quality of care.  Primary care providers must become educated and informed so as to be able to support and provide appropriate resources to these populations that are growing every day.

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Heather Swift's curator insight, July 25, 12:15 AM
Child Cancer Survivors: Tips for Primary Care   Pediatric oncologist Lisa Diller, MD, has guidance for primary care physicians who may not be up on the special needs of people -- including adults -- treated for cancer during childhood.
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Your Scoop.it Daily Summary - Woman Diagnoses Her Own Cancer Using the Internet After Doctors Insist on Antibiotics - tambre99@gmail.com - Gmail

Your Scoop.it Daily Summary - Woman Diagnoses Her Own Cancer Using the Internet After Doctors Insist on Antibiotics - tambre99@gmail.com - Gmail | Cancer Survivorship | Scoop.it
Tambre Leighn's insight:

Perfect example of being your own self-advocate and trusting your intuition.  It is your body and your life.  Speak up, ask questions, insist on answers and do not stop until YOU are satisfied.  Props to Caroline Greaves for taking the wheel!

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Concern at lack of teenage patients in cancer trials

Concern at lack of teenage patients in cancer trials | Cancer Survivorship | Scoop.it
Age limits on clinical trials need to be more flexible to allow more teenage cancer patients the chance to access new treatments, according to a report from the National Cancer Research Institute (NCRI), published in the Lancet Oncology today.
Tambre Leighn's insight:

Yes.

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Thriving Through Cancer

Thriving Through Cancer | Cancer Survivorship | Scoop.it
It is important to understand this is an ongoing process but one that is definitely doable. It's also important to understand there will be some situations in life you will have no control over. The only thing you can control is your reaction to th...
Tambre Leighn's insight:

Cancer survivor turned survivorship coach, Kathy Daniels, shares her powerful story of transformation and how the odds inspired her to take the lead in her own wellbeing.

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Calculating The Financial Pain Of Cancer


Via Krishan Maggon
Tambre Leighn's insight:

It is time to bring the art of the conversation back into healthcare. Using questions on a piece of paper or an electronic form seems counterintuitive for me as a coach if the intention is to open up dialogue around financial concerns.  

Perhaps a great follow up study would be to compare the paper evaluation with physicians being trained to use open ended questions.  Simply asking, "what, if any, kind of financial impact are you experiencing in your life as a result of going through cancer" will, no doubt, provide much greater detail than 11 checked boxes.  The bigger question for me is what is missing from medical school training that our physicians feel unprepared to speak to quality of life issues with their patient?  No wonder so many patients feel like they aren't receiving patient centered care. 

 

Being heard is an experience a questionnaire cannot provide.  Let's put away the paper and pens and, as so many mother's would say, "use your words," physicians.

 

For more information on how to bring coaching skills into your healthcare organization, go to www.ipecwellbeing.com or email tleighn@ipeccoaching.com

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Krishan Maggon 's curator insight, June 23, 6:31 AM

The cost of health care in the United States is rising faster than the gross domestic product. The cost of cancer care is rising faster than the cost of health care, and the cost of new cancer drugs is rising faster than the cost of overall cancer care.

Tambre Leighn's curator insight, June 23, 10:41 AM

It is time to bring the art of the conversation back into healthcare. Using questions on a piece of paper or an electronic form seems counterintuitive for me as a coach if the intention is to open up dialogue around financial concerns.  

Perhaps a great follow up study would be to compare the paper evaluation with physicians being trained to use open ended questions.  Simply asking, "what, if any, kind of financial impact are you experiencing in your life as a result of going through cancer" will, no doubt, provide much greater detail than 11 checked boxes.  The bigger question for me is what is missing from medical school training that our physicians feel unprepared to speak to quality of life issues with their patient?  No wonder so many patients feel like they aren't receiving patient centered care. 

 

Being heard is an experience a questionnaire cannot provide.  Let's put away the paper and pens and, as so many mother's would say, "use your words," physicians.

 

For more information on how to bring coaching skills into your healthcare organization, go to www.ipecwellbeing.com or email tleighn@ipeccoaching.com

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How To Improve The Doctor-Patient Relationship: An Open Letter To Future Physicians

How To Improve The Doctor-Patient Relationship: An Open Letter To Future Physicians | Cancer Survivorship | Scoop.it
No matter what type of physician you may be, and what type of news you are delivering, you become the single most important person in the world to your patients because you are there at the start of their journey, you are at the helm of their surviva...
Tambre Leighn's insight:

Cancer survivor and founder of IHadCancer, Mailet Lopez, leading the way toward compassionate future MDs. #advocacy #compassion

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