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Surviving and Thriving With Cancer Using a Web-Based Health Behavior Change Intervention: Randomized Controlled Trial

Surviving and Thriving With Cancer Using a Web-Based Health Behavior Change Intervention: Randomized Controlled Trial | Cancer survivorship | Scoop.it

The purpose of this study was to test the effectiveness of a six-week Web-based multiple health behavior change program for adult survivors.


Via Marie Ennis-O'Connor
Deborah Fenlon's insight:

We based intervention can improve sleep and exercise in cancer survivors, but may not affect dietary behaviour.

 

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Teresa Levitch's curator insight, February 27, 3:17 PM

Results: In total, 303 survivors completed the follow-up survey (six months after completion of the baseline survey) and participants in the Web-based intervention condition had significantly greater reductions in insomnia and greater increases in minutes per week of vigorous exercise and stretching compared to controls. There were no significant changes in fruit and vegetable consumption or other outcomes.

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PEC

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Useful way to help cancer survivors to think through what information and support they need 

 

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NCIN 2014 Link between cancer patient experience and other outcomes.pdf

NCIN 2014 Link between cancer patient experience and other outcomes.pdf | Cancer survivorship | Scoop.it
Shared with Dropbox
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A framework to understand the link between patient experience and other long term outcomes. 

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Report shows that cancer survivors use 60 per cent more Accident & Emergency (A&E) attendances, 97 per cent more emergency admissions, four times as many outpatient attendances and nearly six times...

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How online patient communities are changing the face of cancer care

How online patient communities are changing the face of cancer care | Cancer survivorship | Scoop.it

Marie Ennis-O’Connor (@JBBC ) writes:

 

"There is a revolution occurring in healthcare, perhaps most noticeably in oncology; the rapid pace of new discoveries, advent of genomics, targeted therapies, telemedicine, and personalised medicine, alongside growing access to internet-based educational and support resources is creating a new era in medicine.

 

The Information Age is collapsing the boundary fences around previously closed information domains such as medicine.  Patients can now gain access to citations of more than 12 million medical articles online, allowing them to build a base of information that wasn’t previously possible."


Via Andrew Spong
Deborah Fenlon's insight:

Time for health professionals to wake up to the new Information Age!

 

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Rescooped by Deborah Fenlon from Cancer survivor
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ASCO Launches New Survivorship Guidelines

ASCO Launches New Survivorship Guidelines | Cancer survivorship | Scoop.it
ASCO has launched the first 3 guidelines as part of a series that will cover all aspects of cancer survivorship.

Via Teresa Levitch
Deborah Fenlon's insight:

Will have to log in to ASCO to see this, but interesting to see what the American perspective is.

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Teresa Levitch's curator insight, April 25, 6:41 PM

New guidelines for cancer survivors

 

Rescooped by Deborah Fenlon from Health Care Social Media Monitor
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Infographic: Cancer patients use of the internet for medical information

Infographic: Cancer patients use of the internet for medical information | Cancer survivorship | Scoop.it
Infographic: #Cancer patient us of the internet for medical information

Via Ash Rishi, Dinesh Chindarkar, Marie Ennis-O'Connor
Deborah Fenlon's insight:

Plenty of older people on the net!

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ASCO Releases Adapted Guideline on Screening, Assessment, and Management of Fatigue in Adult Survivors of Cancer

ASCO Releases Adapted Guideline on Screening, Assessment, and Management of Fatigue in Adult Survivors of Cancer | Cancer survivorship | Scoop.it

A majority of cancer patients experience some level of fatigue during their course of treatment, and approximately 30% contend with persistent fatigue for years after treatment. Fatigue is among the most common and distressing long-term effects of cancer treatment and significantly affects patient quality of life. ASCO has adapted a pan-Canadian guideline on screening, assessment, and care of cancer-related fatigue in adults with cancer, the National Comprehensive Cancer Network (NCCN) Guideline for Cancer-Related Fatigue, and the NCCN Guidelines for Survivorship for use in the screening, assessment, and management of fatigue in adult survivors of cancer.


Via Marie Ennis-O'Connor
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Teresa Levitch's curator insight, April 15, 1:38 PM

 Fatigue is among the most common and distressing long-term effects of cancer treatment and significantly affects patient quality of life.

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9284-TSO-2900701-PROMS-1.pdf

Deborah Fenlon's insight:

I think this will turn out to be a seminal document as NHS England reports on Patient Reported Outcome Measures followign cancer treatment for breast, colorectal and prostate cancer and non-Hodgkin's lymphoma.

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Tweet from @ONS

Tweet from @ONS | Cancer survivorship | Scoop.it
Deborah Fenlon's insight:
Fab info graphic from the office of national statistics regarding the nations wellbeing
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Lorem ipsum dolor sit er elit lamet, consectetaur cillium adipisicing pecu, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Ut enim ad minim veniam, quis nostrud exercitation ull...

Lorem ipsum dolor sit er elit lamet, consectetaur cillium adipisicing pecu, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Ut enim ad minim veniam, quis nostrud exercitation ull... | Cancer survivorship | Scoop.it
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Deborah Fenlon's comment, March 18, 2:25 PM
a useful guide to helping people understand risk
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Lorem ipsum dolor sit er elit lamet, consectetaur cillium adipisicing pecu, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Ut enim ad minim veniam, quis nostrud exercitation ull...

Lorem ipsum dolor sit er elit lamet, consectetaur cillium adipisicing pecu, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Ut enim ad minim veniam, quis nostrud exercitation ull... | Cancer survivorship | Scoop.it
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Powerful stories | healthtalkonline.org

Powerful stories | healthtalkonline.org | Cancer survivorship | Scoop.it
Deborah Fenlon's insight:

Nurses need to understand that patients are very vulnerable. 

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Whattodoaftertreatment.pdf

Deborah Fenlon's insight:

This booklet has been produced to help people with cancer know what to do once treatment has finished and how to get support from the health care system.

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ResearchGate

ResearchGate | Cancer survivorship | Scoop.it
ResearchGate is a network dedicated to science and research. Connect, collaborate and discover scientific publications, jobs and conferences. All for free.
Deborah Fenlon's insight:
New research published by our group about cancer survivors self efficacy to manage problems in the first year after cancer.
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Use of Health & Social Care – Cancer Patients | The Nuffield Trust

Use of Health & Social Care – Cancer Patients | The Nuffield Trust | Cancer survivorship | Scoop.it
Read our report, which is the first study linking data from primary, secondary and social care to data held by cancer registries.
Deborah Fenlon's insight:

Cancer survivors have massive increased use of health care resources but a modest increase in use of social care resources in the year following diagnosis. However, the use of independent and charitable resources was not captured by this report.

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Could everyone develop a hidden cancer?

Could everyone develop a hidden cancer? | Cancer survivorship | Scoop.it
Around one in three of us will be diagnosed with cancer during our lifetime. But research over the last couple of decades has led some researchers to the uncomfortable conclusion that as we age per...
Deborah Fenlon's insight:

If it is the case that we all develop cancers that don't affect us in out life time, then this has massive implications for screening! 

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Membership & Official Launch: Canadian Cancer Survivorship Research Consortium Website - Survivornet.ca

We are very excited to announce the launch of the official Canadian Cancer Survivorship Research Consortium (CCSRC website) and to open it up to membership!



Membership Invite

Now that we have officially launched, we would like to formally invite you…
Deborah Fenlon's insight:

Good news for Canada! recent announcement of the launch of the official Canadian Cancer Survivorship Research Consortium 

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Tweet from @MicroPicx

Tweet from @MicroPicx | Cancer survivorship | Scoop.it
“RT @MicroPicx: What is Breast Cancer? Electron micrograph of a single breast cancer c ~> http://t.co/nPDlgjO4qB”;
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Rescooped by Deborah Fenlon from Journeying Beyond Breast Cancer
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Driving Patient Centered Medicine

Driving Patient Centered Medicine | Cancer survivorship | Scoop.it

Today's guest post is written by Byran Litton, Senior Director, U.S. Oncology Business Unit at Eli Lilly and Company. He shares his thoughts on the recent Eye for Pharma Oncology USA Summit in Cambridge, Massachusetts.


Via Marie Ennis-O'Connor
Deborah Fenlon's insight:

Patient centred care is the new buzz word, but let's make sure we all know what we mean by patient centred care!

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Marie Ennis-O'Connor's curator insight, April 14, 7:18 PM

Each person with cancer has a unique experience, and  every perspective provides valuable insight into how we can make our health system more patient-centered.

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Fear of cancer recurrence in adult cancer su... [J Cancer Surviv. 2013] - PubMed - NCBI

PubMed comprises more than 23 million citations for biomedical literature from MEDLINE, life science journals, and online books. Citations may include links to full-text content from PubMed Central and publisher web sites.
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Latest publication by the Humphris group looking at fear of cancer recurrence
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Tweet from @ONS

Tweet from @ONS | Cancer survivorship | Scoop.it
Deborah Fenlon's insight:
Fab info graphic from the office of national statistics regarding the nations wellbeing
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Tweet from @ONS

Tweet from @ONS | Cancer survivorship | Scoop.it
Deborah Fenlon's insight:
Fab info graphic from the office of national statistics regarding the nations wellbeing
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Early palliative care improved quality of life in patients with advanced-stage cancers | Hematology Oncology

Early palliative care improved quality of life in patients with advanced-stage cancers | Hematology Oncology | Cancer survivorship | Scoop.it
Hematology Oncology | Individuals with advanced-stage cancers who received early palliative care demonstrated improved quality of life and patient satisfaction compared with those who received standard oncology care, according to results of a...
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Commissioning and funding general practice | The King's Fund

Commissioning and funding general practice | The King's Fund | Cancer survivorship | Scoop.it
Deborah Fenlon's insight:

Making the case for family care networks. Cancer survivorship is one of many comorbidities for our older population and we need to build services that take this into account. 

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Consequences_of_Treatment_June2013.pdf

Deborah Fenlon's insight:

'Cured: but at what cost' A Macmillan document which highlights some of the long term consequences for being treated with cancer and what we should be doing to help people after cancer treatment.

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