Cancer survivorship
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Global issues in cancer survivorship: a UK perspective on follow up care | Oncology News Australia | Australia's Specialist Oncology News Portal

Global issues in cancer survivorship: a UK perspective on follow up care | Oncology News Australia | Australia's Specialist Oncology News Portal | Cancer survivorship | Scoop.it
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Welsh Government | Cancer Delivery Plan for the NHS to 2020

The Delivery Plan sets out our vision for the population of Wales and what this means for NHS cancer services.
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Cancer survivors in the first year after treatment: the prevalence and correlates of unmet needs in different domains

Cancer survivors in the first year after treatment: the prevalence and correlates of unmet needs in different domains | Cancer survivorship | Scoop.it

To explore cancer survivors' unmet needs in the first year after primary treatment, and to investigate the relationship between demographic, disease-related, and psychosocial characteristics and the number of unmet needs in different domains.


Via Marie Ennis-O'Connor
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Lorem ipsum dolor sit er elit lamet, consectetaur cillium adipisicing pecu, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Ut enim ad minim veniam, quis nostrud exercitation ull...

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Deborah Fenlon's comment, May 24, 6:19 PM
rapid treatment of sepsis crucial for chemo patients
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The Cancer Experience Map: An Approach to Including the Patient Voice in Supportive Care Solutions

The Cancer Experience Map: An Approach to Including the Patient Voice in Supportive Care Solutions | Cancer survivorship | Scoop.it
ABSTRACT

The perspective of the patient, also called the “patient voice”, is an essential element in materials created for cancer supportive care. Identifying that voice, however, can be a challenge for researchers and developers. A multidisciplinary team at a health information company tasked with addressing this issue created a representational model they call the “cancer experience map”. This map, designed as a tool for content developers, offers a window into the complex perspectives inside the cancer experience. Informed by actual patient quotes, the map shows common overall themes for cancer patients, concerns at key treatment points, strategies for patient engagement, and targeted behavioral goals. In this article, the team members share the process by which they created the map as well as its first use as a resource for cancer support videos. The article also addresses the broader policy implications of including the patient voice in supportive cancer content, particularly with regard to mHealth apps.

J Med Internet Res 2015;17(5):e132)

doi:10.2196/jmir.3652


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Cancer survivors in the first year after treatment: the prevalence and correlates of unmet needs in different domains

Cancer survivors in the first year after treatment: the prevalence and correlates of unmet needs in different domains | Cancer survivorship | Scoop.it

To explore cancer survivors' unmet needs in the first year after primary treatment, and to investigate the relationship between demographic, disease-related, and psychosocial characteristics and the number of unmet needs in different domains.


Via Marie Ennis-O'Connor
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BBC Radio 4 - We British, The People's Shipping Forecast, The People's Shipping Forecast

BBC Radio 4 - We British, The People's Shipping Forecast, The People's Shipping Forecast | Cancer survivorship | Scoop.it
Murray Lachlan Young performs The People's Shipping Forecast on National Poetry Day.
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Every day life plus cancer!

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RESTORE: an exploratory trial of an online intervention to enhance self-efficacy to manage problems associated with cancer-related fatigue following primary cancer treatment: study protocol for a r...

RESTORE: an exploratory trial of an online intervention to enhance self-efficacy to manage problems associated with cancer-related fatigue following primary cancer treatment: study protocol for a r... | Cancer survivorship | Scoop.it
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Deborah Fenlon's insight:

An on line intervention to help people with cancer to cope with fatigue

 

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BritainAgainstCancer-CancerAcrossDomains-reportDec2013.pdf

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All Party Parliamentary Group on Cancer

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PEC

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Useful way to help cancer survivors to think through what information and support they need 

 

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NCIN 2014 Link between cancer patient experience and other outcomes.pdf

NCIN 2014 Link between cancer patient experience and other outcomes.pdf | Cancer survivorship | Scoop.it
Shared with Dropbox
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A framework to understand the link between patient experience and other long term outcomes. 

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Report shows that cancer survivors use 60 per cent more Accident & Emergency (A&E) attendances, 97 per cent more emergency admissions, four times as many outpatient attendances and nearly six times...

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Adjuvant bisphosphonates in early breast cancer: Consensus guidance for clinical practice from a European Panel — Italian Ministry of Health

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Press release: New guidance aims to fill gaps in health service research

The key leadership body across the UK promoting the unique interests of University hospitals. Its role is to represent the unique tripartite, service, teaching and research, interests of UK University Hospital Trusts in partnership with other national bodies.
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commissioning « Menopause UK

commissioning « Menopause UK | Cancer survivorship | Scoop.it
Posts about commissioning written by Menopause UK
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Mapping menopause clinics in the UK - so few of them!
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Collateral Damage: How A Cancer Diagnosis Hurts Employment And Finances

Collateral Damage: How A Cancer Diagnosis Hurts Employment And Finances | Cancer survivorship | Scoop.it
“ Employment and money concerns haunt many people with all kinds of cancer, nation-wide, during and after treatment.”
Via Marie Ennis-O'Connor
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Heather Swift's curator insight, December 1, 2014 10:34 PM
[FINANCIAL TOXICITY] Employment and money concerns haunt many people with all kinds of cancer, nation-wide, during and after treatment.
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Living with Cancer: Am I a Warrior?

Living with Cancer: Am I a Warrior? | Cancer survivorship | Scoop.it
“ June 7 is National Cancer Survivors Day. We asked people living with cancer how they felt when they heard themselves described as “warriors” and “survivors.””
Via Marie Ennis-O'Connor
Deborah Fenlon's insight:
We need to challenge the language of cancer that uses metaphors of war!
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Living with Cancer: What I Wish They’d Told Me

Living with Cancer: What I Wish They’d Told Me | Cancer survivorship | Scoop.it
“ We asked several people who are living with cancer to tell us what they wish someone had told them before they started to receive treatment.”
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Tumblr: An Unexpected Cancer Support Group

Tumblr: An Unexpected Cancer Support Group | Cancer survivorship | Scoop.it
“ Bloggers using Tumblr to write about their cancer experiences find the community to be an unconventional source of support and genuine interaction.”
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Immunotherapy drugs show continued promise

A new immunotherapy drug has shown continued promise fortreating various types of cancer in a series of trials presented at a US conference.
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A cohort study of the recovery of health and wellbeing following colorectal cancer (CREW study): protocol paper.

A cohort study of the recovery of health and wellbeing following colorectal cancer (CREW study): protocol paper. | Cancer survivorship | Scoop.it
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Deborah Fenlon's insight:

This follow up study of people with colorectal cancer will help us understand how people recover health and wellbeing after cancer.

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A Competence Framework for Nurses: Caring for Patients Living With and Beyond Cancer.

A Competence Framework for Nurses: Caring for Patients Living With and Beyond Cancer. | Cancer survivorship | Scoop.it
It is estimated that more than 500,000 people in the UK are currently facing poor health or disability as a result of their cancer treatment.
Deborah Fenlon's insight:

This framework has been developed by CCAT: a group of senior nurses and allied health professionals experienced in working with cancer survivors. 

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ResearchGate

ResearchGate | Cancer survivorship | Scoop.it
ResearchGate is a network dedicated to science and research. Connect, collaborate and discover scientific publications, jobs and conferences. All for free.
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New research published by our group about cancer survivors self efficacy to manage problems in the first year after cancer.
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Use of Health & Social Care – Cancer Patients | The Nuffield Trust

Use of Health & Social Care – Cancer Patients | The Nuffield Trust | Cancer survivorship | Scoop.it
Read our report, which is the first study linking data from primary, secondary and social care to data held by cancer registries.
Deborah Fenlon's insight:

Cancer survivors have massive increased use of health care resources but a modest increase in use of social care resources in the year following diagnosis. However, the use of independent and charitable resources was not captured by this report.

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