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Caring for people living with and beyond, cancer: GP survey in England. e761.full.pdf

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Guidelines International Network, Patient & Public Involvement in Guidelines toolkit-2015

Cancer Voices SA's insight:

Concise tips for consumer involvement in healthcare.

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Moving from integrated care to integrated population health systems | The King's Fund

Moving from integrated care to integrated population health systems | The King's Fund | cancer advocacy | Scoop.it
While integrating care services is part of the journey to a transformed health system, it is not the destination. Efforts to integrate care have rarely encompassed the broader health of local populations and the impact of the wider determinants of health. While integrating care services is part of the journey to a transformed health system, it is not the destination. Efforts to integrate care have rarely encompassed the broader health of local populations and the impact of the wider determinants of health.
Cancer Voices SA's insight:

What we measure, and what we do .... thinking about 'social determinants of health' measures integrated into health outcomes.  

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Health Information Technology: A Guide to Study Design For the Perplexed | THCB

Health Information Technology: A Guide to Study Design For the Perplexed | THCB | cancer advocacy | Scoop.it
Cancer Voices SA's insight:

Worth a read, for anyone with interest in clinical trial study design.

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improving-experiences-of-care.pdf

Cancer Voices SA's insight:

8 tips for good experience of care - (page 11)
- involve as an active partner in my care
-treat me as an individual - my needs, values and preferences respected
-care is coordinated so I know where to go next and where to turn if I have a problem
-respect my knowledge, skills and expertise about my own condition 

-Communication is tailored to me 

-access to information enabling me to make decisions

-access to support I need

-the health care environment is clean, comfortable, & supports dignity

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deeble_issues_brief: consumer expectations_and_healthcare_in_australia.pdf

Cancer Voices SA's insight:

"community expectations have risen in regard to being communicated and involved with their care and a common refrain in relation to rising healthcare costs, alongside population ageing, increased burden of chronic illness, and higher-cost medical technologies"

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Cancer-Related News from the CDC: Medical Costs and Producti... : Oncology Times

An abstract is unavailable.
Cancer Voices SA's insight:

This analysis reiterates the need for 

"national estimates of the burden of cancer, examining the financial impact of cancer on survivors and their families, and patterns of employment." ....in the US, and we need that for Australia too!

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accountable-care-measures-for-high-cost-specialty2014-final.pdf

Cancer Voices SA's insight:

Interesting analysis proposing new ways of monitoring  prevalent and costly conditions (eg breast cancer, diabetes, stoke..) using outcome measures meaningful to patients & providers, cross cutting and patient-reported measures.  

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obesity, cancer, risks & recurrence. ASCO position statement

Cancer Voices SA's insight:

obesity, cancer, risks & recurrence.  ASCO position statement says oncologists should develop basic skills in talking to cancer patients and survivors about ... weight status, and the role of healthy eating and exercise on reducing fatigue, improving body image, and lowering incidence of comorbidity.   Obesity is a complex problem - but can't continue to ignore

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Lymphedema Conference Stresses Better Education and Medicare... : Oncology Times

An abstract is unavailable.
Cancer Voices SA's insight:
A study of 916 surveys from 229 women who had either a unilateral or bilateral mastectomy found no difference in breast cancer-related lymphedema, based on an analysis of 355 mastectomies, between those who had one breast removed and those who had two breasts removed..... There were also no significant differences in mean arm function score and quality of life.  “Since all of us are seeing more and more bilateral mastectomies, this kind of information is very important to have.”
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Dying well | Grattan Institute

Dying well | Grattan Institute | cancer advocacy | Scoop.it
Seventy percent of Australians want to die at home yet most die in hospital and aged care. New policies could help many more people to die comfortably at home.
Cancer Voices SA's insight:

'Dying well' - a good concise report combining data & insights.  You only get one chance at 'dying well', so worth a bit more effort for society-wide response?

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Cancer & Benefits of Exercise during & after treatment ends

Cancer & Benefits of Exercise during & after treatment ends | cancer advocacy | Scoop.it
Cancer Voices SA's insight:

Benefits of Exercise during cancer treatment http://www.cancersupportcommunity.org/MainMenu/About-Cancer/Living-Healthy-with-Cancer/Exercise-During-Treatment/Benefits-of-Exercise-4.html ;

 

Exercise and Survivorship http://www.cancersupportcommunity.org/MainMenu/About-Cancer/Cancer-Survivorship/Exercise-for-Wellness/Benefits-of-Exercise-for-Survivors.html ;

 

 and treatment effects on strength and balance http://defeatcancer.info/wp-content/uploads/2012/09/Strength-and-Balance1.pdf ;

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Breast cancer in young women: key facts about breast cancer in women in their 20s and 30s (AIHW)

Breast cancer in young women: key facts about breast cancer in women in their 20s and 30s (AIHW) | cancer advocacy | Scoop.it
Breast cancer in young women is the first national report presenting key data specific to breast cancer in women in their 20s and 30s. This report provides an overview of breast cancer, risk factors for young women, breast cancer detection and diagnosis methods, and key summary measures including incidence, hospitalisations, survival and mortality.
Cancer Voices SA's insight:

Facts with a survivors insights.

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lifestyle_risk_factors_and_the_primary_prevention_of_cancer

Cancer Voices SA's insight:

Know your 'actionable' cancer risk factors! 

http://canceraustralia.gov.au/sites/default/files/position-statements/lifestyle_risk_factors_and_the_primary_prevention_of_cancer.pdf ;

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What can we learn from liquid biopsies? - Cutting-Edge - September-October-2015 Issue 68 - Cancer World - Shaping the future of cancer care

What can we learn from liquid biopsies? - Cutting-Edge - September-October-2015 Issue 68 - Cancer World - Shaping the future of cancer care | cancer advocacy | Scoop.it
Early detection, disease prognosis, a guide to treatment, a key to unlock the secrets of how cancers evolve. Researchers have high hopes for what they can learn from the biological detritus shed by pr
Cancer Voices SA's insight:

Good overview of this emerging technology which can add clues to inform prognosis, monitor effectiveness of treatment aimed to eradicate cancer, and monitor changes which pre-empt treatment resistance.

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work-and-wellbeing-in-the-nhs.pdf :why staff health matters to patient care

Cancer Voices SA's insight:

A business case for the link between quality of patient care and health and wellbeing of healthcare staff. 

"The report states that good staff health, wellbeing and engagement can reap significant benefits for patient safety including reduced MRSA* infection rates and lower patient mortality rates."

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Throwing light on the consequences of cancer and its treatment

Cancer Voices SA's insight:

For many, cancer 'cure' comes with a heavy & often unexpected cost in the consequences of the cancer &/or treatment. It is vital to 'throw light' on the scale of this problem.  Govt, health services  & even health professionals underestimate the long-term challenges for survivors.

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People in control of their own health and care

People in control of their own health and care | cancer advocacy | Scoop.it
The idea that people should have a stronger voice in decisions about their health and care, and that services should better reflect their needs and preferences, has been a policy goal of politicians and senior policy-makers in health for at least 20 years. Patients want it, and the evidence shows that when they are involved, decisions are better, health and health outcomes improve, and resources are allocated more efficiently.
Cancer Voices SA's insight:

'transforming health' from a consumer perspective

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Health-Literacy-National-Statement.pdf

Cancer Voices SA's insight:

'Health literacy made simple' in this important little document with table of achievable actions for everyone: consumers, healthcare providers, organisations, government.

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Australian Cancer Surgery WaitingTimes 2012-13 Report

Cancer Voices SA's insight:

Surgery for malignant cancer bowel, breast and lung cancer is usually categorised as urgent and needs surgery within 30 days. .... More than half those whose surgery was delayed beyond 45 days were bowel cancer patients (216), the report shows. 

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Cancer-Related News from the CDC: Medical Costs and Producti... : Oncology Times

An abstract is unavailable.
Cancer Voices SA's insight:

The results of this analysis indicate that overall, cancer survivors had total annual medical expenditures estimated at $4,187 more for males and $3,293 more for females, compared with those of persons without a cancer history. ....Approximately 30 percent of survivors are disabled and not able to return to work or have decreased ability to work because of limitations in cognitive, mental, and physical functioning and psychological distress.10 These survivors are more likely to incur higher productivity losses than persons without a cancer history. These challenges, particularly those related to employment, might differ for men and women, as presented in this report. ....A 2013 IOM publication, “Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis,” highlighted the importance of information about cancer costs and of quantifying the economic issues encountered by cancer survivors and their families.

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Working Beyond Cancer l Cancer Council NSW

Working Beyond Cancer l Cancer Council NSW | cancer advocacy | Scoop.it
Cancer Council's Working Beyond Cancer workshops cover a variety of topics and workplace-related issues. Call 1300 200 558 for upcoming program dates
Cancer Voices SA's insight:

Cancer, Work & You - valuable info in a recent series of webinars by Cancer Council NSW eg How will returning to work affect me, Legal issues in the workplace, How will I manage financially ....with Work life balance 'on the menu'.

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