Breast cancer survivorship
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Electro-Acupuncture May Improve Sleep In Breast Cancer Patients

Electro-Acupuncture May Improve Sleep In Breast Cancer Patients | Breast cancer survivorship | Scoop.it
Electro-acupuncture may be an effective method in improving sleep quality in patients suffering from breast cancer, a study has shown.
Deborah Fenlon's insight:
Electro-acupuncture may help hot flushes and night sweats, thus improving sleep.
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Standard versus prosocial online support groups for distressed breast cancer survivors: a randomized controlled trial

The Internet can increase access to psychosocial care for breast cancer survivors through online support groups. This study will test a novel prosocial online group that emphasizes both opportunities for getting and giving help. Based on the helper therapy principle, it is hypothesized that the addition of structured helping opportunities and coaching on how to help others online will increase the psychological benefits of a standard online group.


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The Patient Patient: Self-Management Support: Everyone's responsibility but no-one's job?

The Patient Patient: Self-Management Support: Everyone's responsibility but no-one's job? | Breast cancer survivorship | Scoop.it
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The Patient Patient: The biopsychosocial model of disease

The Patient Patient: The biopsychosocial model of disease | Breast cancer survivorship | Scoop.it
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Statins could be new treatment option in women with oestrogen receptor positive breast cancer

Researchers have called for clinical trials into the effects of statins in women with recurrent breast cancer, after finding that these cancers can make a molecule from cholesterol that mimics oestrogen.

As many as 40 000 women in the United Kingdom have oestrogen receptor (ER) positive breast cancer diagnosed each year, and many are treated after surgery with tamoxifen or aromatase inhibitors to block the effects of oestrogen and to reduce the risk of recurrent disease. But, even after endocrine treatment, around 12 000 women with ER positive breast cancer have a recurrence.

In a study reported in the journal …
Deborah Fenlon's insight:
This is an amazing new development. 
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Deborah Fenlon's comment, June 3, 7:13 AM
Just in case you missed this about statins and breast cancer!
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Voices of Look Good Feel Better

Look Good Feel Better is the only international charity that specifically helps women and teenagers combat the visible side effects of their cance
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Breast Cancer Prevention May Start In Your Teens, With Lots Of Fruit

Breast Cancer Prevention May Start In Your Teens, With Lots Of Fruit | Breast cancer survivorship | Scoop.it
Consuming higher amounts of fruit during adolescence was associated with a decreased risk of developing breast cancer in women, a new study found.
Deborah Fenlon's insight:
We need to start thinking about health promotion in young women
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Tattoo Artists Cover Breast Cancer Survivors’ Scars With Beautiful Tattoos

Tattoo Artists Cover Breast Cancer Survivors’ Scars With Beautiful Tattoos | Breast cancer survivorship | Scoop.it
Mastectomies, or surgical removals of all or part of a breast, can be life-saving procedures for people suffering from or at risk of developing breast cancer,
Deborah Fenlon's insight:
We need to give much more attention to altered body image
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American Cancer Society/American Society of Clinical Oncology Breast Cancer Survivorship Care Guideline | ASCO Institute For Quality

American Cancer Society/American Society of Clinical Oncology Breast Cancer Survivorship Care Guideline | ASCO Institute For Quality | Breast cancer survivorship | Scoop.it
Published online before print December 7, 2015, doi 10.1200/JCO.2015.64.3809 Carolyn D. Runowicz, Corinne R. Leach, N. Lynn Henry, Karen S. Henry, Heather T. Mackey, Rebecca L. Cowens-Alvarado, Rachel S. Cannady, Mandi L. Pratt-Chapman, Stephen B. Edge, Linda A. Jacobs, Arti Hurria, Lawrence B. Marks, Samuel J. LaMonte, Ellen Warner, Gary H. Lyman, and Patricia A. Ganz
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ASCO survivorship guidelines

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Living with secondary breast cancer | Breast Cancer Care

Living with secondary breast cancer | Breast Cancer Care | Breast cancer survivorship | Scoop.it
Share experiences and tips in regular meet-ups with other people in your situation. Also features sessions with experts.
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Thank you Breast Cancer Care - we need more of these through the country. 

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Stress Management Improved QoL for Breast Cancer Patients | Cancer Network

Stress Management Improved QoL for Breast Cancer Patients | Cancer Network | Breast cancer survivorship | Scoop.it
Women who received cognitive behavioral stress management after surgery for early breast cancer reported better quality of life and lower symptoms of depression.
Deborah Fenlon's insight:

CBT has many benefits for women after breast cancer. Should we be teaching breast care nurses this skill?

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Study Suggests Link Between Diabetes, More Advanced-Stage Breast Cancer

Study Suggests Link Between Diabetes, More Advanced-Stage Breast Cancer | Breast cancer survivorship | Scoop.it
Deborah Fenlon's insight:

Need more work to explore the link between breast cancer and diabetes.

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Breast Cancer: A Looming Epidemic In The Developing World

Breast Cancer: A Looming Epidemic In The Developing World | Breast cancer survivorship | Scoop.it
Almost 70 percent of all breast cancer deaths now occur in low-income countries. In the first part of our series “The Shifting Burden,” we look at ho
Deborah Fenlon's insight:
Almost 70 percent of all breast cancer deaths now occur in low-income countries.
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Twitter Social Media is an Effective Tool for Breast Cancer Patient Education and Support: Patient-Reported Outcomes by Survey

Journal of Medical Internet Research - International Scientific Journal for Medical Research, Information and Communication on the Internet

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The Cancer Experience Map: An Approach to Including the Patient Voice in Supportive Care Solutions

The Cancer Experience Map: An Approach to Including the Patient Voice in Supportive Care Solutions | Breast cancer survivorship | Scoop.it
ABSTRACT

The perspective of the patient, also called the “patient voice”, is an essential element in materials created for cancer supportive care. Identifying that voice, however, can be a challenge for researchers and developers. A multidisciplinary team at a health information company tasked with addressing this issue created a representational model they call the “cancer experience map”. This map, designed as a tool for content developers, offers a window into the complex perspectives inside the cancer experience. Informed by actual patient quotes, the map shows common overall themes for cancer patients, concerns at key treatment points, strategies for patient engagement, and targeted behavioral goals. In this article, the team members share the process by which they created the map as well as its first use as a resource for cancer support videos. The article also addresses the broader policy implications of including the patient voice in supportive cancer content, particularly with regard to mHealth apps.

J Med Internet Res 2015;17(5):e132)

doi:10.2196/jmir.3652


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Abstract P5-15-20: What we know and what we must do: A metastatic breast cancer alliance quality of life landscape analysis

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We are beginning to realise that people with secondary cancer need better support, but do we know how to do it? 
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Past Webinars - BreaCan

Past Webinars - BreaCan | Breast cancer survivorship | Scoop.it
Some of our information sessions are also offered as webinars.
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Good set of teaching seminars for metastatic breast cancer
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Breast Cancer In The Developing World: Rising Rates, Shrouded In Silence

Breast Cancer In The Developing World: Rising Rates, Shrouded In Silence | Breast cancer survivorship | Scoop.it
Women are afraid their husbands will walk out. They think, I'll die anyway, so what's the point of seeing a doctor. Or there may be no treatment within reach.

Via Susan Zager, Heather Swift
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Susan Zager's curator insight, October 23, 2015 11:45 AM

This is an Intersting perspective about breast cancer outside the US and within. 

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Is Mindfulness Safe?

Is Mindfulness Safe? | Breast cancer survivorship | Scoop.it
The practice of mindfulness has many benefits, but there may be risks as well. Here we explore the three key dimensions of a safe mindfulness practice.
The post Is Mindfulness Safe? appeared first on Mindful.
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Really useful discussion of the benefits and potential harms of mindfulness
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Defective ‘breast cancer’ genes aren’t just dangerous for women. They’re also linked to aggressive cancer in men.

Defective ‘breast cancer’ genes aren’t just dangerous for women. They’re also linked to aggressive cancer in men. | Breast cancer survivorship | Scoop.it
Mutations in BRCA1 and BRCA2 have well-established links to women's diseases -- breast and ovarian cancer. But they also elevate men's health risks, especially for prostate cancer.
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Early Stage Breast Cancer Needs Treatment: Study

Early Stage Breast Cancer Needs Treatment: Study | Breast cancer survivorship | Scoop.it
Experts say surgery, not observation, is best for cancer confined to milk ducts
Deborah Fenlon's insight:
Do we still know enough about this? Is local recurrence a predictor of cancer mortality and are we over treating people giving them such aggressive surgery?
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We’re proud of our mastectomy scars

We’re proud of our mastectomy scars | Breast cancer survivorship | Scoop.it
Eight breast cancer sufferers support the #showyourscar campaign
Deborah Fenlon's insight:

Eight beautiful women show their mastectomy scars.

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10 Myths About Breast Cancer Survivorship: Johns Hopkins Breast Center

10 Myths About Breast Cancer Survivorship: Johns Hopkins Breast Center | Breast cancer survivorship | Scoop.it

"10 Myths About Breast Cancer Survivorship

 MYTH: Eating soy products after having hormone receptor positive breast cancer increases my chance of a recurrence.

FACT: Research on soy has been conflicting over the years. It has the capacity to mimic as well as block certain estrogens. Overall, natural dietary soy in the form of soy milk, soy bean sprouts, tofu or tempeh appears to be safe and may provide significant health benefits when it replaces animal sources of milk and protein. However, soy in concentrated forms such as pills, powders and supplements has the strongest potential for estrogenic activity and probably should be avoided by anyone who has been diagnosed with hormonal receptive breast cancer. 

MYTH: If I tested positive for the BRCA1 or BRCA2 gene mutation, I must have a bilateral mastectomy.

FACT: Women with a BRCA mutation do have an increased risk of having a second breast cancer and many do choose to have bilateral mastectomies as a preventive measure. However having a BRCA mutation does NOT mean that you have to get a mastectomy. Women with a BRCA mutation are still good candidates for breast-conserving therapy and many choose this for their breast cancer treatment. Women with a BRCA mutation and any residual breast tissue need to be followed closely and are advised to have enhanced breast cancer screenings.

MYTH: My deodorant contributed to my getting breast cancer.

 


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Susan Zager's curator insight, January 20, 2014 8:50 PM

Well worth reading the whole article. 

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An Internet Tool for Creation of Cancer Survivorship Care Plans for Survivors and Health Care Providers: Design, Implementation, Use and User Satisfaction - SnapBuzz

An Internet Tool for Creation of Cancer Survivorship Care Plans for Survivors and Health Care Providers: Design, Implementation, Use and User Satisfaction - SnapBuzz | Breast cancer survivorship | Scoop.it
An Internet Tool for Creation of Cancer Survivorship Care Plans for Survivors and Health Care Providers: ... - http://t.co/epkhomK0CQ
Deborah Fenlon's insight:

Update on Oncolife, the cancer survivorship care planning tool. 

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