This is an incredible article that provides a "How-To" for many patients out there.
Based on this article, once researchers have the genetic map of your disease, they can possibly do amazing things. We shouldn't accept our health care providers making decisions in the blind, without fully understanding the possible genetic drivers of our disease. The costs of genetic sequencing are being driven lower by improved technologies, while the costs of drugs continue to climb. I don't understand why practitioners are choosing expensive drugs without first recommending gene sequencing for difficult to treat diseases such as cancer.
This article demonstrates the possiblities when a patient has access to science and a motivated team of researchers driven to support them. This should be the standard of care today and in the future.