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#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
Raising ALS | Lou Gehrigs Disease & Parkinsons Disease AWARENESS to the NEXT LEVEL!
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FOX TRIAL FINDER : Parkinson's Disease Clinical Trials

FOX TRIAL FINDER : Parkinson's Disease Clinical Trials | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Fox Trail Finder is a user friendly matching tool that connects volunteers with the PD clinical trials that need them.
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Tobii unveils the Tobii I-Series

Tobii unveils the Tobii I-Series | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
BIG NEWS! Today we unveiled the new Tobii I-Series, the most advanced purpose-built speech generating device for those with communications challenges.

Harnessing the speed, power and accuracy of Gaze Interaction, these individuals can communicate effectively, both in person and online. The Tobii I-Series empowers users with greater independence, a sense of inclusion and greater emotional health.

Learn more at: www.tobii.com/i-series

Get in contact with a local Tobii ATI rep: http://www.tobii.com/en/assistive-technology/north-america/Contact/north-america/
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First Look: 'The Michael J. Fox Show' Airs on NBC Thursday Nights this Fall [VIDEO]

The Michael J. Fox Show, coming Thursdays this fall to NBC. Subscribe now to The Michael J. Fox Show: http://bit.ly/MichaelJFoxShow Get more The Michael J. Fox Foundation | https://www.michaeljfox.org/foundation/michael-story.html

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From TEAM Cure ALS Foundation to All the truly Special & Inspirational Mothers.....Happy Mothers Day!

From TEAM Cure ALS Foundation to All the truly Special & Inspirational Mothers.....Happy Mothers Day! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Happy Mother's Day!

Wishing You all a Blessed and Treasured Day!

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TeamCureALS.com

TeamCureALSfundraiser.com

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Potential treatment for Parkinson’s, Alzheimer’s, dementia discovered

Potential treatment for Parkinson’s, Alzheimer’s, dementia discovered | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A drug currently being used to treat leukemia has been found to help halt the production of toxic proteins in the brain linked to Alzheimer’s disease, Parkinson’s disease and various forms of dementia.
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PRO-ACT: Bigger & Better ALS Database Open for Mining - Bio-IT World

PRO-ACT: Bigger & Better ALS Database Open for Mining - Bio-IT World | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
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They did it - again! Man pushes wife with ALS through N.J. Marathon

They did it - again! Man pushes wife with ALS through N.J. Marathon | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Jersey Shore native Denise DiMarzo was diagnosed with ALS in 2010, just six months after marrying Chris Benyo. On Sunday, Benyo pushed her through the New Jersey Marathon for a second time.
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The Quaz Q&A: Adrian Dessi's ALS Diagnosis & Life- By Jeff Pearlman

The Quaz Q&A: Adrian Dessi's ALS Diagnosis & Life- By Jeff Pearlman | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

This week, for the historic-only-to-me 100th Quaz, I wanted someone special. I’ve fielded countless suggestions, but never one that truly moved me. Then, a few weeks ago, I thought about my boyhood on the mean streets of Mahopac, N.Y. Specifically, I thought of a man who seemed to somehow have this life thing figured out, even from the heartbreaking nest of a wheelchair.

 

I grew up with Mark and Chris Dessi, and consider both to be good friends. Four years ago their father, Adrian Dessi, was first hit with the idea that he might—might—have ALS. The initial symptoms of Lou Gehrig’s Disease can be vague and misleading, so it’s difficult to diagnose. Yet, ultimately, Adrian’s symptoms could not be dismissed. He was experiencing, among other things, muscle twitches and fatigue...........

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A Breath of Relief: Inhaled Formulation of Levodopa Reduces ‘Off’ Periods in People with Parkinson’s

A Breath of Relief: Inhaled Formulation of Levodopa Reduces ‘Off’ Periods in People with Parkinson’s | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Encouraging news today for Parkinson’s patients, and in particular, for those experiencing the often debilitating motor fluctuations associated with the disease.

 

Chelsea, Massachusetts-based biotech Civitas Therapeutics announced positive clinical trial results for their inhaled formulation of levodopa, called CVT-301. The Phase 2a study showed

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Evidence That Natural Toxin is Responsible for Triggering Parkinson’s

Evidence That Natural Toxin is Responsible for Triggering Parkinson’s | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Researchers have found evidence that a toxin produced by the brain is responsible for the series of cellular events that lead to Parkinson's disease. The study
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Do you know a stellar research advocate? Nominate them for the 2014 Research! America Advocacy Awards

Do you know a stellar research advocate? Nominate them for the 2014 Research! America Advocacy Awards | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Every year, Research!America honors outstanding biomedical and health research advocates from a variety of fields. We are currently accepting nominations for our 25th Anniversary Advocacy Awards. T...
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Nell Hardy: My dogs help me to live with ALS

Nell Hardy: My dogs help me to live with ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
It's difficult to miss me and my wheelchair. It weighs 375 pounds and sports a boggling array of wires, coils and sharp metal angles. What you don't see is my team: the people, places and things that make my life possible.
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Researchers bypass the blood-brain barrier, widening treatment options for neurodegenerative and central nervous system disease

Researchers bypass the blood-brain barrier, widening treatment options for neurodegenerative and central nervous system disease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Sagittal MRI of a patient following endoscopic reconstruction of a skull base defect using a nasal mucosa graft (dotted white line; arrow denotes the proposed
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Stem cell breakthrough from Oregon! |Click the Title to View the Video from CNN

Stem cell breakthrough from Oregon! |Click the Title to View the Video from CNN | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

CNN's Elizabeth Cohen on cloned stem cells that could develop into muscle or nerve cells.

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Craft Brewers Nationwide Join the 'Ales for ALS' Campaign to Battle Lou Gehrig's Disease

Craft Brewers Nationwide Join the 'Ales for ALS' Campaign to Battle Lou Gehrig's Disease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

BRAVO to all the Participating BREWERIES!!

 

Oregon Locations & Availability:

 

Full Sail Brewing Co.
506 Columbia Street
Hood River, OR 97301
http://www.fullsailbrewing.com/
Brew Name: Ales for ALS Pacific Northwest Wit
Availability: June 1


Deschutes Brewery Public House
901 SW Simpson Avenue
Bend, OR 97702
http://www.deschutesbrewery.com
Brew Name: Check Website for Details
Availability:   Check Website for Details


 

Ales for ALS craft brewers (by location) include:

California: Beachwood BBQ, Bear Republic Brewing, Brewery at Abigaile, Coronado Brewing Co., Drakes Brewing Co., Faction Brewing Co., Iron Springs Pub & Brewery, Pizza Port Brewing Co., Russian River Brewing Co., Sierra Nevada Brewing Co., Stone Brewing, Third Street Ale Works, Triple Rock Brewing Co.Colorado: New Belgium, Odell BrewingConnecticut: Willimantic Brewing Co.Delaware: Dogfish Head Brewing Co.Georgia: 5 Seasons Brewing Co.Massachusetts: Boston Beer Co. (Samuel Adams), Cambridge Brewing Co., Harpoon Brewery, Wormtown BreweryMissouri: Mother's Brewing Co.Nevada: Great Basin BrewingNew Mexico: La Cumbre Brewing Co., Marble BreweryNew York: Brooklyn Brewery, Captain Lawrence Brewing Co.North Carolina: Front Street BreweryOhio: Fat Head's Brewing Co., Great Lakes Brewing Co.Oregon: Deschutes Brewery Public House, Full Sail Brewing Co.Utah: Uinta Brewing Co.Washington: Bale Breaker Brewing Co., E9 Brewing, Fremont Brewing Co., Two Beers Brewing Co.
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In Memoriam: Barbara A. Brenner, 1951-2013

In Memoriam: Barbara A. Brenner, 1951-2013 | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Even after ALS had silenced her vocal chords, Barbara Brenner’s powerful voice continued to send tremors into the medical establishment.

With the assistance of a text-to-speech computer program, Brenner, the former executive director of Breast Cancer Action, sent stinging missives to the head of the ALS clinical trials program and Food and Drug Administration officials, and continued her less public work

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Gleason family leans on strength of matriarch Michel

Gleason family leans on strength of matriarch Michel | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
NEW ORLEANS — Michel Gleason’s shoulders may appear small. In reality, they’re very, very broad. Broad enough to be the primary caregiver for her husband, …
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Pittsburgh Couple's Everlasting Love Perseveres With Fighting Spirit

Steve Dezember's voice may be soft, but his will is strong. Even though ALS is slowly claiming his body, it can't steal his spirit. He and his wife continue to inspire through their never-ending dedication of love to one another.
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UCLA stem cell researchers move toward treatment for rare genetic nerve disease / UCLA Newsroom

UCLA stem cell researchers move toward treatment for rare genetic nerve disease / UCLA Newsroom | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
UCLA stem cell researchers move toward treatment for rare genetic nerve disease / UCLA Newsroom
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Sean Brazel's curator insight, April 5, 2014 11:16 PM

Provides evidence that if stem cell research is used ethically by scientist's, results of this research can find cures to disease's or improve a person's health.

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Soggy FIESTA 15k/5k Raises $23,000 for ALS Research

Soggy FIESTA 15k/5k Raises $23,000 for ALS Research | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Via Cure for ALS
TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS's insight:

Congrats @Cure_ALS ,  another AWESOME Event! You ROCK Karen!

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Cure for ALS's curator insight, May 7, 2013 11:21 AM

Heavy rain and gusting winds didn’t keep runners and walkers from supporting the Emory ALS Center on Saturday at the 7th Annual FIESTA 15k & 5k Challenge. 400 participants, nearly 2/3 of the total registered showed up at the Forsyth Conference Center at Lanier Tech with ponchos, rain jackets, and smiling faces to run for those who no longer can.  

 

FIESTA 15k runners took off in a heavy downpour while the FIESTA 5k race started about ten minutes later. Steve Wilcox and Susan Seibert crossed the finish line of the 15k race first, while Noah Schaich and Savannah Carnahan were the overall winners in the 5k event. A soggy Fun Run was held at 9:00am as happy children ran through puddles around the Lanier Tech campus.

 

“I really thought I would be the only person who showed up this morning,” shared Dr. Jonathan Glass, Director of the Emory ALS Center. He and the race organizers were humbled at the turnout, and proud of the amount raised for ALS research. The annual event raised $23,000 which benefits the Emory ALS Center.

 

One of the volunteers working on the race course, Amy Spivia, said, “being wet and cold for a few hours is nothing compared to what ALS patients go through.” 16 teams of fundraisers united to honor loved ones living with or who have died from the disease. Runners and walkers passed by rows of team signs as they started the course.

 

The event begins ALS Awareness Month each year on the first Saturday in May, and is hosted by Cure for ALS, a nonprofit organization whose mission is to support advocacy and awareness for ALS.

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Mom Slammed by Hurricane Sandy, Then ALS Diagnosis

Mom Slammed by Hurricane Sandy, Then ALS Diagnosis | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Just six months ago, Hurricane Sandy slammed into Devorah Schochet's Long Island home, flooding the basement and crumbling the foundation. But in February, a grim diagnosis was even more destructive: She was told she had ALS and only a few years to live.

Now, the 39-year-old mother of four is battling not only her insurance company, but the quick physical decline that accompanies amyotrophic lateral sclerosis, often referred to as Lou Gehrig's disease. The progressive neurodegenerative disease causes the death of nerve cells in the brain and spinal cord, which control the muscles throughout the body.

Her mother died of ALS at the age of 59 but, at first, Schochet, who worked in finance before she........................

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May is ALS | MND AWARENESS Month

May is ALS | MND AWARENESS Month | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

May has ARRIVED! Did You Know..........May is ALS Awareness!

 

*Knowledge is POWER, *Knowledge is AWARENESS, http://t.co/jRNU5T2FDH *Knowledge is ADVOCACY! Grasp the *KNOWLEDGE!*

 

--> DONATE to T.E.A.M. Cure ALS Foundation | www.TEAMCureALS.com
Your donations help fund ALS RESEARCH, ALS Patient & Family Services, & Educational ALS Awareness.

 

-->ALS Awareness Jewelry: www.TeamCureALSFundraiser.com
Handstamped | Handmade in Oregon| Unique & One of a Kind! 

 

*Your Donation is tax-deductible to the full extent of the law*

[T.E.A.M. Cure ALS Foundation is a 501 (c)(3) Organization]

 

T.E.A.M.- Together Everyone Accomplishes More!

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Jade Nicole Burman's curator insight, November 8, 2014 9:24 PM

I think it's pretty cool that they dedicated a whole month to ALS awareness. It really gives a lot of time for the issue to arise, and i feel that every May that passes now, the knowledge and awareness of the issue is just going to keep spreading, bringing us closer to a cure.

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Smell the Potential Parkinson's Disease Treatments

Smell the Potential Parkinson's Disease Treatments | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Sniffing medications (and uh, other things) up your nose is not new. Saline nasal sprays to unclog a stuffy nose have been around for a long time. There are now intranasal (in the nose) treatments for seizures, pain, congestion, and even vaccine administration. As gross as it may seem to squirt liquid up your snout, it’s actually pretty effective. The nostrils have a lot of blood vessels right near the surface so the medication can get into the bloodstream and........................

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Support helps Parkinson’s patients, caregivers to forge ahead

Support helps Parkinson’s patients, caregivers to forge ahead | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
“God, grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know
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Somerset Patriots to present ALS Awareness Day at TD Bank Ballpark

Somerset Patriots to present ALS Awareness Day at TD Bank Ballpark | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
In the U.S., approximately 5,600 people are diagnosed with ALS each year, with more than 30,000 Americans now living with the disease.
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