#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
Raising ALS | Lou Gehrigs Disease & Parkinsons Disease AWARENESS to the NEXT LEVEL!
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The Brigance Brigade Foundation is hosting a 5.7K in the Canton section of Baltimore on April 5, 2014!

The Brigance Brigade Foundation is hosting a 5.7K in the Canton section of Baltimore on April 5, 2014! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

For those interested in registering as a team:

You are required to register for a race as an individual; once registered, you will be brought to a fundraising page where you are able to enter as an individual or team. 


The Race

- The race will be held in Canton in Baltimore, Md. the morning of April 5, 2014.
- In honor of former Baltimore Ravens player O.J. Brigance's jersey number (57), the event will feature:
-Timed 5.7K Run ($40)
-1 Mile Run/Walk ($20)
-Kids' Fun Run ($10)

 

Registration Info: http://www.brigancebrigade.org/how-you-can-help/events ;

 

 

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An Open Letter to Kevin Turner | Climb for Kevin | rachelbaribeau.com

An Open Letter to Kevin Turner | Climb for Kevin | rachelbaribeau.com | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Dear Kevin,

I felt the need to pen my thoughts, so to speak, as I prepare to climb a mountain for you....................................

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ALS Assistive Technology: PALS Joh Imber and Message Banking

ALS Assistive Technology: PALS Joh Imber and Message Banking | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
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Judge rejects, for now, NFL concussion settlement

Judge rejects, for now, NFL concussion settlement | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

"The plan would offer as much as $5 million to each player who qualifies for top-level awards under a formula that would consider age, the number of seasons played and whether injuries after retirement might have contributed to their cognitive disorder.

Maximum awards of $5 million would go to players under 45 who played five or more seasons and required extensive treatment over their lifetimes for conditions such as Parkinson's disease or amyotrophic lateral sclerosis, better known as ALS or Lou Gehrig's disease."


Read more at http://www.philly.com/philly/news/breaking/20140115_Judge_rejects__for_now__NFL_concussion_settlement.html#Dd0E2kssc19ayi5h.99
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Researchers at Emory Univ. in the U.S. are hoping to extend the lives of patients diagnosed with the deadly neuro-degenerative disease, Amyotrophic lateral sclerosis (ALS).

Researchers at Emory Univ. in the U.S. are hoping to extend the lives of patients diagnosed with the deadly neuro-degenerative disease, Amyotrophic lateral sclerosis (ALS). | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Video Story: http://my.news.yahoo.com/video/stem-cell-trial-seeks-longer-181048843.html

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Susan Spencer-Wendel's resolution: Happy new year … and happy NOW - Palm Beach Post

Susan Spencer-Wendel's resolution: Happy new year … and happy NOW - Palm Beach Post | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Susan Spencer-Wendel's resolution: Happy new year … and happy NOW
Palm Beach Post
Once in awhile, Wes will spit on me, throw things at me, or cover my computer screen with a blanket, disabling my primary form of communication.
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SpeakYourMind pioneers communication tool for those with degenerative neurological diseases & Brain Injuries

SpeakYourMind pioneers communication tool for those with degenerative neurological diseases & Brain Injuries | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
PROVIDENCE — Dan Bacher has an easy, gentle manner as he intently watches Cathy Hutchinson’s head and eye movements for the subtle responses she offers as they communicate. He has driven to the East Taunton,...
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'No white flags': Steve Gleason, New Orleanian of the Year 2013

'No white flags': Steve Gleason, New Orleanian of the Year 2013 | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
In 2012, the New Orleans Saints unveiled a bronze statue titled Rebirth — immortalizing former Saint Steve Gleason's 2006 punt block heard around the world.
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VIDEO Series: Living with ALS: Hollister Lindley

VIDEO Series: Living with ALS: Hollister Lindley | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Hollister Lindley of Richmond was diagnosed with Lou Gehrig's Disease, ALS, in 2011. She shares how the disease affects her in this first of a series that will follow Lindley in her battle against this fatal disease.
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ALS Patient Improves On NurOwn, New Stem Cell Therapy; Company Awaits FDA Decision For Phase II Trial

ALS Patient Improves On NurOwn, New Stem Cell Therapy; Company Awaits FDA Decision For Phase II Trial | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
An individual diagnosed with both ALS and MG showed improvements in cognitive and motor function following initial and repeat treatments with NurOwn, a new stem cell treatment.
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The Documentary Hope for Steve

A horrible disease, a meaningful love story.

 

In the summer of 2011, at the age of twenty-nine, Steve Dezember was diagnosed with ALS (Amyotrophic lateral sclerosis or Lou Gehrig's Disease). The doctors told Steve that he probably had two to five years to live.

After the diagnosis was confirmed by a second opinion, Steve took his girlfriend of six months to their "spot" on the Chattahoochee riverbank just north of Atlanta. Small box in pocket, he took her by the hand and told her, "Look, I

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Christmas challenges former Santa suffering from ALS and his wife

Christmas challenges former Santa suffering from ALS and his wife | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
At Christmas time in 2009, Jennifer and Todd Keevern took their daughter, Sophia, to visit Santa Claus at Northwoods Mall, and they instantly
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Bloomington woman refuses to let ALS define her | SF Chronicle

Bloomington woman refuses to let ALS define her | SF Chronicle | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Bloomington woman refuses to let ALS define her
San Francisco Chronicle
BLOOMINGTON, Ind. (AP) — Vera Nicholson can no longer speak, gets her nourishment through a feeding tube, and stuffs a tissue in her cheek to control drooling.
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Congress Funds ALS Research, Increases Funding by 11% For National ALS Registry

Congress Funds ALS Research, Increases Funding by 11% For National ALS Registry | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

We are excited to let you know that last night, Congress passed legislation that included an additional $7.5 million for the ALS Research program at the Department of Defense and an additional $6.5 million for the National ALS Registry. The funding for the Registry is an 11% increase over last year! The legislation now heads to President Obama who is...............................................

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Jade Nicole Burman's curator insight, October 16, 2014 8:28 PM

This is a great article to let the sponsors and the people concerned of the issue of ALS know how the progress is progressing. People like feedback on how their donation is contributing and this is the perfect way to make them feel good about themselves.

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ALS Fundraiser - Quinn for the Win @ Rory Dolans

Sunday December 1st, 2013 Quinn for the Win ALS Fundraiser at Rory Dolans Yonkers, NY Thanks to everyone who was involved and donated! WWW.QUINN4THEWIN.COM Twitter…
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Putative brain iron content indicates changes related to Parkinson’s

Putative brain iron content indicates changes related to Parkinson’s | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Changes related to Parkinson’s disease (PD) were found in putative iron content over two years, according to a study published in the January 2014 issue of Academic Radiology.
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New technology can help an ALS patient breathe easier

New technology can help an ALS patient breathe easier | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
This month marks the third year since Bruce Kramer of Minneapolis received a medical diagnosis that changed his life in an instant.
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Have you Registerd? | National ALS Registry | Info Graphic

Have you Registerd? | National ALS Registry | Info Graphic | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

The National ALS Registry enables persons with ALS to fight back and help defeat ALS(Lou Gehrigs Disease) By signing up, being counted,and answering brief questions about your disease, you can help researchers find answers to critical questions.

 

 

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Rep.Scott Rigell Shares Ron Miller's Inspiring ALS Story On The House Floor - YouTube

Rep. Rigell (VA-02) speaks from the House floor about Ron Miller's recent graduation from Excelsior College. Ron -- now 46 - has been living with ALS for the...
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Medicare to Expand Telemedicine Use

Medicare to Expand Telemedicine Use | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
WASHINGTON -- Medicare officials and members of Congress are taking steps to expand the use of telemedicine services by dropping -- or proposing to drop -- restrictions on their use.
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Fuel the Fight | Support the Cause:Parkinsons | Rock Steady Boxing

Fuel the Fight | Support the Cause:Parkinsons | Rock Steady Boxing | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Help fuel the fight against Parkinson's disease! Support our innovative and intense exercise program that slows and reverses symptoms. Donate today!

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Communicating With ALS

Communicating With ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Current developments in wearable technology promise to allow sufferers of ALS and other debilitating diseases much greater freedom to communicate and control their environment.
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*Remembering Michael Today and Every Day* #19 Forever in Our Hearts

*Remembering Michael Today and Every Day* #19 Forever in Our Hearts | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

*Remembering Michael Today and Every Day* #19 Forever in Our Hearts

We continue Michael's Mission and Dedication to a ALS Cure!

 

We Invite you to Continue the Fight right along with us for Cure in 2014!

 

 

*TEAM Cure ALS Jewelry : www.teamcurealsfundraiser.com
*Donate: www.teamcureals.com
*Facebook: https://www.facebook.com/TEAMCureALSFoundation
*Pinterest: http://pinterest.com/teamcureals/
*Twitter: @TEAMCUREALS
*Scoopit|ALS News|Research News|Events:  http://www.scoop.it/t/alsawareness - Curated By: TEAM Cure ALS Foundation 

 

T.E.A.M.- Together Everyone Accomplishes More!

 

#MeBecomesWe #TEAMMikeLopez #TEAMCureALS 

 

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Social Networks as an Emotional Outlet: How an Opportunity to Talk can Improve the Patient Experience

Social Networks as an Emotional Outlet: How an Opportunity to Talk can Improve the Patient Experience | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

People are definitely interested in their health and social is allowing them to share personal experiences and consume the know-how and insight of others.  However, not everyone is comfortable sharing in a public forum.  It can be challenging to find the person who is “just like you” in a way that does not compromise your privacy or create societal stigma.  In addition, there is a constant focus on trust and feeling safe in a social environment, especially as it relates to health.  So is social really having the greatest impact helping patients remain compliant with their treatment for an illness?

What if you could be social about your health while remaining anonymous? 

- See more at: http://social.eyeforpharma.com/patients/social-networks-emotional-outlet-how-opportunity-talk-can-improve-patient-experience#sthash.c8boadad.dpuf

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New wearable technology offers some a measure of independence

New wearable technology offers some a measure of independence | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
For the disabled, the rise of Google Glass and other such devices may make previously difficult tasks easier.
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Richard Platt's curator insight, December 21, 2013 1:10 PM

This is what we've been hoping that Wearable tech can do for oh so many people