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#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
Raising ALS | Lou Gehrigs Disease & Parkinsons Disease AWARENESS to the NEXT LEVEL!
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Connecticut K-9 Police Sgt.Runs Chicago Marathon In Memory of Mom-Keator-O'Neil & TEAM Cure ALS - Lopez Families

Connecticut K-9 Police Sgt.Runs Chicago Marathon In Memory of Mom-Keator-O'Neil & TEAM Cure ALS - Lopez Families | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
The ALS Association Greater Chicago Chapter’s Run to Defeat ALS

 

I am running in the 2013 Chicago Marathon in memory of my mother, Donna McNeice, my friend John Keator, and a family friend Bob O'Neil who all recently lost their battles to ALS.  I am also running in memory of Michael Lopez (Team Cure ALS), who lead an inspirational battle with ALS and in the process has raised ALS awareness and was a source of hope to so many people.  I want to help all those who are currently battling ALS.  It is my goal to raise ALS Awareness and help find a cure for this dreaded disease.

 

If you would like to make a donation and help David "Stay Commited to a CURE for ALS please visit this link: 

 

http://webchicago.alsa.org/site/TR/Runs/Chicago?px=2987735&pg=personal&fr_id=9110#.UZKWDfT6BxE.facebook

 

T.E.A.M.-Together Everyone Accomplishes More!

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TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS's comment, May 24, 2013 8:33 PM
David- We are beyond grateful and honored to have you running in Memory of Micheal Lopez Jr. & TEAM Cure ALS. We would like you to know that friends and support from individuals like you continues to bring our family extreme comfort and peace with our healing and loss of Michael after his battle with this horrendous disease ALS the last 17 years. We are family, brought together by such a horrendous disease, but yet for so many valuable and important reasons in our lives. The loss never leaves, the hurt never ceases but we have each other in our continued fight for our loved ones, friends and and all others that continue to FIGHT and hold HOPE for a Cure! Michael is so PROUD to have you represent him! Thank You will never be enough!
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Rock Steady Boxing| Improves the quality of life for those battling Parkinsons Disease

Rock Steady Boxing| Improves the quality of life for those battling Parkinsons Disease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Rock Steady Boxing, the first and only boxing program of its kind in the country, was founded in 2006 by former Marion County Prosecutor, Scott C. Newman, who is living with Parkinson’s.

 

The seed for what would eventually become Rock Steady Boxing was planted when Newman began intense, one-on-one, boxing training just a few years after he was diagnosed with early-onset Parkinson’s at the age of 40. Newman witnessed the dramatic improvement in his physical health, agility and daily functioning through the.........................

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A domestic system to assist people with Parkinson's & "Freezing Gait"

A domestic system to assist people with Parkinson's  & "Freezing Gait" | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A new home tracking system based on a Microsoft Kinect sensor will help patients with the symptom of ‘freezing of gait.’
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New source for regenerative stem cells? Your fat, study suggests........

New source for regenerative stem cells? Your fat, study suggests........ | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Researchers based at the University of California, Los Angeles announced today that they’ve found an abundant, cheap, easy-to-obtain source of stem cells that could prove to be ideal for regenerating all the basic tissue types of the human body.
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RESOURCE: Medicare Coverage of Speech Generating Devices | via ALS Association

RESOURCE: Medicare Coverage of Speech Generating Devices | via ALS Association | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Medicare Coverage of Speech Generating Devices (SGD)Medicare will cover the cost of a SGD if you have Medicare Part B services.

 

1. You must live in your family home or an assisted living facility

 

2. Medicare will not cover the cost of a SGD if you are in a hospital, skilled nursing facility, or on hospice.

 

*Medicare will cover 80% of the allowable cost of the device.  Secondary insurance should pay the remaining 20% but that is not always the case.  If you do not have secondary insurance, you will be responsible for the 20% co-pay.  There are funds available from charitable organizations that may help pay for any deductible or co-pay that insurance does not cover.

 

*Medicare classifies SGD’s as “durable medical equipment” (DME) and will cover the device under this classification.

 

*An assessment by a speech-language pathologist is required to document that this device is needed to meet your daily functional communication needs.  80% of the cost of the assessment is covered by Medicare.  The remaining charge can be billed to secondary insurance (if applicable) or will be billed to the client.

 

*A doctors prescription is required.

 

*Once the assessment has been completed, appropriate paperwork will be submitted to the vendor of the device.  This process usually takes approximately one to two months.

 

*If the vendor feels all the paperwork is in order, they will ship the device directly to you. 

 

Training on your device can be provided by:

 

 > Vendor—many vendors offer training sessions at no cost.

 

> Facility—the facility where you received your device can provide training. The cost of the training session is covered by Medicare.

 

> Chapter—the ALS Association may have resources available for training.

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Howard Mason's curator insight, July 17, 2013 10:53 PM

We just bought some medical equipment last week for my grandfather. It is very important to him since, he easily get sick. The good thing that I like about this home medical equipment is, they are easy to use. 

TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS's comment, August 5, 2013 6:34 PM
Thank you Howard for your input! What device did you purchase?
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New animal model provides insight into early stages of Parkinson's disease

New animal model provides insight into early stages of Parkinson's disease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
At the present, no cure exists for Parkinson's disease, although symptomatic intervention, including treatment with dopamine agonists, can alleviate patients' motor impairment.
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Stem-cell breakthrough questioned as publication errors noted l OHSU

Stem-cell breakthrough questioned as publication errors noted l OHSU | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A recent stem-cell breakthrough reported by Oregon researchers has sparked an anonymous critique questioning images used in the paper, and the authors plan to issue a correction, according to a scientific journal.The study published by Shoukhrat...
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Mutated gene tie to motor neurone disease › News in Science (ABC Science)

Mutated gene tie to motor neurone disease › News in Science (ABC Science) | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
New insights into the cause of motor neurone disease have been uncovered with a study showing mutations in a specific gene lead to the death of the nerve cells responsible for powering our muscles.
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Stanford researchers identify genetic suspects in sporadic Lou Gehrig's disease

Stanford researchers identify genetic suspects in sporadic Lou Gehrig's disease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Researchers at the Stanford University School of Medicine have identified mutations in several new genes that might be associated with the development of spontaneously occurring cases of the neurodegenerative disease known as amyotrophic lateral...
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Piecing Together the Parkinsons Puzzle - Sanjay Gupta - Everyday Health

Piecing Together the Parkinsons Puzzle - Sanjay Gupta - Everyday Health | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Researchers are making strides in understanding the disease, its causes, and treatment. Heres a look at some of the latest scientific findings.
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Maryland Stem Cell Research Commission Funds 31 New Research Proposals in FY 2013 - Will focus on ALS

Maryland Stem Cell Research Commission Funds 31 New Research Proposals in FY 2013 - Will focus on ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
/PRNewswire/ -- The Maryland Stem Cell Research Commission (Commission) has completed its review of the 171 applications received in response to its FY 2013 Requests for Applications (RFAs).

 

10 Post-Doctoral Fellowship awards – These grants provide up to $55,000 per year, for up to two years, including direct and indirect costs and fringe benefits, and are designed to train post-doctoral fellows who wish to conduct human stem cell research in Maryland. These grants will focus on ALS (Lou Gehrig's disease), sickle cell disease, diabetes, colon cancer, and stroke, among other topics.....................

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Stem cell breakthrough from Oregon! |Click the Title to View the Video from CNN

Stem cell breakthrough from Oregon! |Click the Title to View the Video from CNN | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

CNN's Elizabeth Cohen on cloned stem cells that could develop into muscle or nerve cells.

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Craft Brewers Nationwide Join the 'Ales for ALS' Campaign to Battle Lou Gehrig's Disease

Craft Brewers Nationwide Join the 'Ales for ALS' Campaign to Battle Lou Gehrig's Disease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

BRAVO to all the Participating BREWERIES!!

 

Oregon Locations & Availability:

 

Full Sail Brewing Co.
506 Columbia Street
Hood River, OR 97301
http://www.fullsailbrewing.com/
Brew Name: Ales for ALS Pacific Northwest Wit
Availability: June 1


Deschutes Brewery Public House
901 SW Simpson Avenue
Bend, OR 97702
http://www.deschutesbrewery.com
Brew Name: Check Website for Details
Availability:   Check Website for Details


 

Ales for ALS craft brewers (by location) include:

California: Beachwood BBQ, Bear Republic Brewing, Brewery at Abigaile, Coronado Brewing Co., Drakes Brewing Co., Faction Brewing Co., Iron Springs Pub & Brewery, Pizza Port Brewing Co., Russian River Brewing Co., Sierra Nevada Brewing Co., Stone Brewing, Third Street Ale Works, Triple Rock Brewing Co.Colorado: New Belgium, Odell BrewingConnecticut: Willimantic Brewing Co.Delaware: Dogfish Head Brewing Co.Georgia: 5 Seasons Brewing Co.Massachusetts: Boston Beer Co. (Samuel Adams), Cambridge Brewing Co., Harpoon Brewery, Wormtown BreweryMissouri: Mother's Brewing Co.Nevada: Great Basin BrewingNew Mexico: La Cumbre Brewing Co., Marble BreweryNew York: Brooklyn Brewery, Captain Lawrence Brewing Co.North Carolina: Front Street BreweryOhio: Fat Head's Brewing Co., Great Lakes Brewing Co.Oregon: Deschutes Brewery Public House, Full Sail Brewing Co.Utah: Uinta Brewing Co.Washington: Bale Breaker Brewing Co., E9 Brewing, Fremont Brewing Co., Two Beers Brewing Co.
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Parkinson's disease may be linked to increased blood iron levels

Parkinson's disease may be linked to increased blood iron levels | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Increased iron levels may be causally associated with a decreased risk of developing Parkinson's disease, researchers in Italy say.
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Dance for Parkinson's leads to moves from 'West Side Story'

Dance for Parkinson's leads to moves from 'West Side Story' | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
From the familiar steps of "West Side Story" to as-yet unseen professional dance choreography, a group of enthusiastic dancers joined professional dancers David Leventhal and Lesley Garrison today for a dance for Parkinson's disease.
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Former Univ.Washington player Melissa Erickson dies after long battle with ALS

Former Univ.Washington player Melissa Erickson dies after long battle with ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
SEATTLE - Former University of Washington women’s basketball player Melissa Erickson died Wednesday after a long battle with ALS, also known as Lou Gehrig’s disease. Erickson was 34.
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How Do You Maintain A Sense of Humor While Dealing with ALS?

To honor and recognize wonderful caregivers who care for their friends and family in need, Chanda Brigance, co-founder of the Brigance Brigade Foundation, pr...
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Engineered stem cell advance points toward treatment for ALS

Engineered stem cell advance points toward treatment for ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

MADISON, Wis. — Transplantation of human stem cells in an experiment conducted at the University of Wisconsin-Madison improved survival and muscle function in rats used to model ALS, a nerve disease that destroys nerve control of muscles, causing death by respiratory failure.

ALS (amyotrophic lateral sclerosis) is sometimes called “Lou Gehrig’s disease." According to the ALS Association, the condition strikes about 5,600 Americans each year. Only about half of patients are alive three years after diagnosis. 

In work recently completed at the UW School of Veterinary Medicine, Masatoshi Suzuki, an assistant professor of ..........................

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Pesticides linked to increased risk of Parkinson’s disease

Pesticides linked to increased risk of Parkinson’s disease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Exposure to pesticides and other chemicals is linked to an increased risk of developing Parkinson’s disease, according to a fresh look at some past research.

Dr. James Bower, a neurologist from the Mayo Clinic in Rochester, Minn., said the finding is consistent with previous research, but the........

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Deciding to Live with ALS, Not Die From ALS.............

Deciding to Live with ALS, Not Die From ALS............. | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

It was September 1997. I had hoped the weakness in my leg would be treatable, but my doctor shook his head. The intravenous immunoglobulin treatments he'd been giving me for a possible motor neuropathy weren't working, leading him to conclude I had "probable ALS."

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Parkinson’s patients learning power of exercise

Parkinson’s patients learning power of exercise | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Parkinson’s compresses you, Bruce Wright says of the disease he’s lived with since 2005. It makes your life smaller, slower and more careful.
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Stem cell research could offer relief for Lou Gehrig's disease | Listen to Interview with Dr. Eva Feldman

Stem cell research could offer relief for Lou Gehrig's disease | Listen to Interview with Dr. Eva Feldman | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Of all the medical diagnoses a physician can make, the diagnosis of ALS--amyotrophic lateral sclerosis--is one of the most devastating. Commonly known as
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Join NIH Officials to Discuss the BRAIN Initiative! | Parkinson's Action Network

Join NIH Officials to Discuss the BRAIN Initiative! | Parkinson's Action Network | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

The National Institutes of Health (NIH) has announced a series of four public meetings to discuss the Brain Research through Advancing Innovative Neurotechnologies (BRAIN) Initiative.  The Parkinson's Action Network (PAN) believes the Initiative could represent a breakthrough in the ways collaborative science can be harnessed and deployed to find new ways to treat, cure, and prevent many diseases of the brain.  While PAN is supportive of the Initiative, we want

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FOX TRIAL FINDER : Parkinson's Disease Clinical Trials

FOX TRIAL FINDER : Parkinson's Disease Clinical Trials | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Fox Trail Finder is a user friendly matching tool that connects volunteers with the PD clinical trials that need them.
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Tobii unveils the Tobii I-Series

Tobii unveils the Tobii I-Series | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
BIG NEWS! Today we unveiled the new Tobii I-Series, the most advanced purpose-built speech generating device for those with communications challenges.

Harnessing the speed, power and accuracy of Gaze Interaction, these individuals can communicate effectively, both in person and online. The Tobii I-Series empowers users with greater independence, a sense of inclusion and greater emotional health.

Learn more at: www.tobii.com/i-series

Get in contact with a local Tobii ATI rep: http://www.tobii.com/en/assistive-technology/north-america/Contact/north-america/
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