#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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Tell ALS Association: Improve home care for ALS patients | Sign The Petition Today!

Tell ALS Association: Improve home care for ALS patients | Sign The Petition Today! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
ALS patients desperately need the ALS Association to ACT IMMEDIATELY to address and correct home care issues.  There is miscommunication, as well as a knowledge deficit, of the home health services options available through insurance programs, including Medicare.  There is also a great disparity between...
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#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
Raising ALS | Lou Gehrigs Disease & Parkinsons Disease AWARENESS to the NEXT LEVEL!
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Michael Lopez Jr. Celebration Of Life - Saying Good Bye to All American "Magic Mike" RIP: 1/13/2013 | In Loving Memory of Michael | Forever in Our Hearts #19

★ Final Farewell To Mike Lopez Jr.★

It is hard to imagine anyone who followed football in Oregon in the 1980′s not remembering his name. It struck fear into many an opponent and his #19 was called and shouted often at Oregon State where he did some legendary things. He was one of the greatest athletes to every come out of Oregon and was an All American and named Gatorade Player Of The Year. The 1981 Graduate of Aloha was truly special in every way and was known by those closest to him as “Magic Mike”! ♥

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The ALS Assoc. joins the Pharma Research and Manufacturers of America (PhRMA) in releasing new report

The ALS Assoc. joins the Pharma Research and Manufacturers of America (PhRMA) in releasing new report | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Today, The ALS Association joins the Pharmaceutical Research and Manufacturers of America (PhRMA) in releasing a new report, “Medicines in Development for Rare Diseases,” which finds that America’s biopharmaceutical research companies are currently developing more than 560 medicines for patients with rare diseases, including amyotrophic lateral sclerosis (ALS).

There are about 7,000 known...............

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Frates’ No. 3 Jersey to be Retired at Fifth Annual ALS Awareness Game

Frates’ No. 3 Jersey to be Retired at Fifth Annual ALS Awareness Game | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Frates’ No. 3 Jersey to be Retired at Fifth Annual ALS Awareness Game
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FIESTA 5K/15K CHALLENGE RAISES $36,000 FOR EMORY ALS CENTER

FIESTA 5K/15K CHALLENGE RAISES $36,000 FOR EMORY ALS CENTER | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Cumming, GA - 10th Annual Race for ALS Featured the Big Creek Greenway

Via Cure for ALS
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2016 Fiesta 5k/15k Challenge Proceeds benefit  ALS Center at Emory University

2016 Fiesta 5k/15k Challenge Proceeds benefit  ALS Center at Emory University | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

All fundraising and donation proceeds will benefit the ALS Center at Emory University. Amyotrophic Lateral Sclerosis (ALS) can strike anyone; in fact it happens to 15 people each day in the U.S. The average life expectancy is only 2-5 years from the time of diagnosis. ALS slowly takes away the ability to move, speak, swallow, and ultimately breathe. There is no cure for ALS so there are no survivors to tell their stories. For the 10th year the Emory ALS Center is the beneficiary of 100% of the proceeds from the FIESTA 5k/15k Challenge. The Emory ALS Center is one of the largest clinical centers for ALS in the United States. The Center provides true multidisciplinary care for patients and families with ALS and related disorders. Emorys physician-scientists continue to perform groundbreaking research, including developing surgical methods for delivery of therapeutics to the spinal cord. They search tirelessly for a cure for this devastating disease, focusing on basic mechanisms of motor neuron degeneration, genetics of ALS, and new experimental treatments. As the name suggests, the FIESTA 15k/5k Challenge is not your ordinary race. With two distances, we draw causal runners and walkers for the 5k and endurance runners for the 15k. The FIESTA 15k/5k Challenge brings entire families out for a morning of health & fitness, awareness for ALS, community outreach, and a celebration of life. Thank you for your generous support and for joining us to Celebrate Life...Imagine a Cure If you would like to volunteer or register for the FIESTA 5k/15k Challenge visit FiestaRunGA.com .

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Medicare webinars for ALS patients to begin this week. Thank You Catherine Scott!

Medicare webinars for ALS patients to begin this week. Thank You Catherine Scott! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Register for one of the three webinars being held over the next few weeks to learn how to access your Medicare home care benefits (aka home health services).

As a result of our successful petition and advocacy efforts, the ALS Association has partnered with the Center for Medicare Advocacy to create and host educational webinars. The first one is scheduled to be held this Thursday, and you must register in advance to participate. I have provided the email I received from the ALS Association today, which contains the details. Please spread the word!!! Let's get the ALS community the information and resources needed to access their Medicare home care benefits already in place...

ALS Association email:

Are you eligible for Medicare Home Health Benefits?
Do you have questions about Medicare Home Health Benefits?
Are you having problems accessing Medicare Home Health Benefits?
If you answered “yes” to any of these questions, you will find these webinars very valuable!

The ALS Association is working with the Center for Medicare Advocacy (CMA) to better help people living with ALS navigate the complexities of Medicare home health benefits. As part of this collaboration, the CMA will be presenting a webinar that will discuss topics including: an overview of the Medicare program with particular focus on the home health benefit, Medicare eligibility and enrollment, and Medicare payment rules and assistance.

This webinar will be presented on three separate dates with a 30 minute live Q&A following each session. For more information and to register for a session, click the links below.

Session 1: Thursday, April 28, 2016 (1:00-3:00 pm EDT)
Register at: http://bit.ly/240SapS

Session 2: Tuesday, May 3, 2016 (3:00-5:00 pm EDT)
Register at: http://bit.ly/22O32Fd

Session 3: Monday, May 16, 2016 (6:00-8:00 pm EDT)
Register at: http://bit.ly/1SZzK1a

Sincerely,
Kim Maginnis
Chief Care Services Officer
The ALS Association
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ALSUntangled review of GM604 is now available - ALS and Frontotemporal Degeneration

ALSUntangled review of GM604 is now available - ALS and Frontotemporal Degeneration | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
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How to navigate Medicare Home Health Services for ALS Patients.pdf

How to navigate Medicare Home Health Services for ALS Patients.pdf | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
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WSU researcher reveals ALS breakthrough

WSU researcher reveals ALS breakthrough | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Researchers at WSU Spokane's College of Pharmacy said they may have found a potential breakthrough in the battle against diseases such as ALS, Parkinson's, and Alzheimer's.
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PETITION UPDATE Please Read. Tell ALS Association: Improve home care for ALS patients

PETITION UPDATE Please Read. Tell ALS Association: Improve home care for ALS patients | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
ALS patients desperately need the ALS Association to ACT IMMEDIATELY to address and correct home care issues.  There is miscommunication, as well as a knowledge deficit, of the home health services options available through insurance programs, including Medicare.  There is also a great disparity between...
TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS's insight:

NOTE:

The Petition Update includes the most recent correspondence between  Catherine Scott/Petition Organizer and Barbara Newhouse/ALSA President & CEO.

*PLEASE READ*


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Former NFL Linebacker Tim Shaw Fights ALS With Purpose

Calling his battle with ALS “an opportunity, not a tragedy,” former NFL linebacker Tim Shaw hopes to inspire people as he learns to adjust his own expectatio...
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Tell ALS Association: Improve home care for ALS patients | Sign The Petition Today!

Tell ALS Association: Improve home care for ALS patients | Sign The Petition Today! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
ALS patients desperately need the ALS Association to ACT IMMEDIATELY to address and correct home care issues.  There is miscommunication, as well as a knowledge deficit, of the home health services options available through insurance programs, including Medicare.  There is also a great disparity between...
more...
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3rd Thursday Webinars on Parkinson's Disease | What Ever Happened to Stem Cells Thursday, Feb. 18 @ 12 p.m. ET / 9 a.m. PT

3rd Thursday Webinars on Parkinson's Disease | What Ever Happened to Stem Cells Thursday, Feb. 18 @ 12 p.m. ET / 9 a.m. PT | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
The Third Thursday interactive webinar series provides access to expert information in Parkinson’s disease (PD) for patients, family members, caregivers and healthcare providers.
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Woman with ALS turns 40, but she wasn't supposed to

Woman with ALS turns 40, but she wasn't supposed to | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Jenni was diagnosed with ALS seven years ago and wasn't supposed to live more than two years. Watch as she prepares for her 40th birthday party with 170 of her closest friends and family.
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"Drink one for Dane" at Dutch Bros. | KGW.com | Help Make a difference TODAY! $1.7 Million raised in 10 Years for ALS

"Drink one for Dane" at Dutch Bros. | KGW.com | Help Make a difference TODAY! $1.7 Million raised in 10 Years for ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

"Drink one for Dane" at Dutch Bros TODAY!

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VIRTUAL ADVOCACY DAY May 10th | Make Your Voice heard on Capital Hill!

VIRTUAL ADVOCACY DAY May 10th | Make Your Voice heard on Capital Hill! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Unable to make it to Washington D.C. to participate in National ALS Advocacy Day on May 10? That’s okay, you can make your voice heard on Capitol Hill no matter where you are!

Did you know? Nearly every single Member of Congress is active on Twitter. You can help amplify our message by tweeting your representatives on National ALS Advocacy Day!

 

Learn how you can help The ALS Association advance scientific research to find a cure for ALS, provide resources for people with ALS and their loved ones, heighten awareness of the nature of the disease, and encourage government leaders to expand their support of research and patient care.

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Inspirational & Unique | One of a Kind | Sterling Silver Jewelry | Hand Stamped-Made in Oregon | USA

Inspirational & Unique | One of a Kind | Sterling Silver Jewelry | Hand Stamped-Made in Oregon | USA | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

*Our Unique & Inspirational Jewelry can be customized especially for you or as a gift*

Be CREATIVE! Design your own Unique Piece of Inspiration|Each Piece is Handcrafted In Oregon|Sent to you with Hope-Inspiration-Strength-Courage.

Help TEAM UP for A CURE!

To Order, Visit: www.TEAMCureALSfundraiser.com 

 #TEAMMikeLopez #TEAMUp4ACure

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Center for Medicare Advocacy Access Project

Center for Medicare Advocacy Access Project | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Free Registration is Required for All Informational Webinars

The Center for Medicare Advocacy, Inc., established in 1986, is a national nonprofit, nonpartisan organization that provides education, advocacy and legal assistance to help older people and people with disabilities obtain fair access to Medicare and necessary health care. The Center is headquartered in Connecticut and Washington, DC with offices throughout the country.

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ALS Dodgeball Tournament - All Saints Episcopal School- May 7, 2016 - Benefiting Jennifer Corbett

ALS Dodgeball Tournament - All Saints Episcopal School- May 7, 2016 - Benefiting Jennifer Corbett | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

2015 Dodgeball Tourrnament was a GREAT Success, raising over $10,000. Help make 2016 Tournament another GREAT Success!

 

Registration: ALSDodgeballTournament@gmail.com

Questions Contact: Turner Corbett 871-888-2301

Donations can be made by sending a email to ALSDodgeballTournament@gmail.com

 

 

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Tom Watson leaves a final Masters tribute to his caddie who died of ALS

Tom Watson leaves a final Masters tribute to his caddie who died of ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
In his last Masters, Tom Watson pays tribute to his longtime caddie on the 12th anniversary of his death.
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Borges: Football a fatal attraction for Kevin Turner | "Words don’t mean too much this morning, but a few do. “Goodbye” is one of them. “Wake up” are two others".

Borges: Football a fatal attraction for Kevin Turner | "Words don’t mean too much this morning, but a few do. “Goodbye” is one of them. “Wake up” are two others". | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Words don’t mean too much this morning, but a few do. “Goodbye” is one of them. “Wake up” are two others.
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University of Oregon lands $10 million from Tim Boyle for zebrafish facility

University of Oregon lands $10 million from Tim Boyle for zebrafish facility | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Tim Boyle, Columbia Sportswear's chief executive, said Friday he would give $10 million to the University of Oregon's pioneering zebrafish facility.
TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS's insight:

"Zebrafish are vertebrates and during the embryo stage, they're transparent, making them ideal subjects to observe and manipulate. Their embryonic development is "remarkably similar" to humans, according to the school's website, presenting many research opportunities."

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Raise a Glass to Kick ALS's A$$ - 2016 | "Celebrate Life, Imagine a Cure"

This video was shown to start the evening at the Famous Pub in Atlanta. It's a thank you to the Emory ALS Clinic team.
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Steve Landry, former Saints equipment man diagnosed with ALS, has died

Steve Landry, former Saints equipment man diagnosed with ALS, has died | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Former Saints player Steve Gleason announced the news on his Twitter account.
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Portable Wheelchair Ramps - Fit All Accessibility Needs - HandiRamp

Portable Wheelchair Ramps - Fit All Accessibility Needs - HandiRamp | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Portable Wheelchair Ramps for wheelchairs and scooters from the HandiRamp Since 1958. Lowest Price, Great Selection.
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Summary for ALS Patients about CuATSM and Clinical Trials - The Linus Pauling Institute,from LPI Researcher Joe Beckman

Summary for ALS Patients about CuATSM and Clinical Trials - The Linus Pauling Institute,from LPI Researcher Joe Beckman | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Learn more about the next steps for a copper compound shown to halt progression of ALS in mice.
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