#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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One woman's push to raise awareness of ALS

One woman's push to raise awareness of ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A South Burlington woman is pushing herself to the limits,
fighting to raise awareness for a rare and devastating disease that for her,
hits close to home.
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#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
Raising ALS | Lou Gehrigs Disease & Parkinsons Disease AWARENESS to the NEXT LEVEL!
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Michael Lopez Jr. Celebration Of Life - Saying Good Bye to All American "Magic Mike" RIP: 1/13/2013 - In Loving Memory of Michael - Forever in Our Hearts #19

★ Final Farewell To Mike Lopez Jr.★

It is hard to imagine anyone who followed football in Oregon in the 1980′s not remembering his name. It struck fear into many an opponent and his #19 was called and shouted often at Oregon State where he did some legendary things. He was one of the greatest athletes to every come out of Oregon and was an All American and named Gatorade Player Of The Year. The 1981 Graduate of Aloha was truly special in every way and was known by those closest to him as “Magic Mike”! ♥

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Microsoft app helps people with ALS speak using just their eyes

Microsoft app helps people with ALS speak using just their eyes | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A smartphone app called GazeSpeak uses eye movements to predict the words you want to say, allowing people with motor disabilities to communicate faster
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Eye tracking technology will change these 4 domains

Eye tracking technology will change these 4 domains | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Thanks to advances and breakthroughs in hardware, software and artificial intelligence, eye tracking technology has progressed immensely in the past year, and is now drawing the attention of tech industry’s biggest players. The acquisition of eye tracking companies EyeFluence and Eye Tribe by Google and Facebook respectively, as well as the move toward mobile eye …
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‘Joost, you’re a hero’: MND sufferer describes how visit from rugby legend helped him to keep fighting

‘Joost, you’re a hero’: MND sufferer describes how visit from rugby legend helped him to keep fighting | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
When Deon was diagnosed with MND in 2004, doctors told him that he may only have months to live – but he is still holding on.
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VocaliD - Tobii Dynavox

VocaliD - Tobii Dynavox | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
VocaliD is on a mission to humanize the voice within AAC devices. Founded by Dr. Rupal Patel in 2014, VocaliD leverages its Human Voicebank of over 15,000+ members from over 110 countries that together have contributed upwards of 6 million sentences and the company’s proprietary voice blending technology to create unique vocal persona for every AAC use
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Press Release - BrainStorm

Press Release - BrainStorm | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

HACKENSACK, N.J. and PETACH TIKVAH, Israel, Feb. 6, 2017 /PRNewswire/ -- BrainStorm Cell Therapeutics Inc. (NASDAQ: BCLI), a leading developer of adult stem cell technologies for neurodegenerative diseases, announced today that Chaim Lebovits, Chief Executive Officer, will provide a corporate overview at BIO CEO & Investor Conference, being held on February 13-14, 2017 at the Waldorf Astoria in New York City.

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Mark Zuckerberg's Research Hub Just Gave 47 Scientists $50 Million to Fight Diseases

Mark Zuckerberg's Research Hub Just Gave 47 Scientists $50 Million to Fight Diseases | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
The Chan Zuckerberg Biohub, launched by Facebook CEO Mark Zuckerberg and wife Priscilla Chan, has awarded $50 million to 47 scientists
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This Year’s 10 Biggest Advances in ALS Research

This Year’s 10 Biggest Advances in ALS Research | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
In 2016, a significant number of ALS research discoveries, advances in clinical trials, collaborations and strategic initiatives all accelerated the pace of discovery in finding treatments and a cure for ALS. We’ve pulled together what we think are 10 of 2016’s biggest advances in ALS research that gave us, and people living with ALS,…
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Controlling Alexa With eyegaze to speech

I have ALS so I am mostly paralyzed and use my eyes to communicate. I have a smart home and now can use my eyes to type commands through my Microsof
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A Dying Man's Wish with ALS to Save Others Hits Hospital Ethics Hurdle | care continuum, leadership, legal, management, policy, quality.

A Dying Man's Wish with ALS to Save Others Hits Hospital Ethics Hurdle | care continuum, leadership, legal, management, policy, quality. | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
An ALS patient wanted to donate his organs when he died. He asked to be admitted to the hospital specifically to end his life. And despite the planning, his request made some people uncomfortable.
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Realtors raise $17K to aid ALS patients

Realtors raise $17K to aid ALS patients | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Santa Fe Realtors were busy over the last few months hosting events to enhance the community while devoting many volunteer hours to raise funds for charity. In October, the Santa Fe Association of Realtors' Community Services Committee hosted the Third Annual Richard Jay ALS Research Benefit, raising more than $17,000. Melissa Pippin-Carson, Richard Jay Golf Tournament Committee co-chair and SFAR president-elect, noted that this year’s funds will go directly to the ALS New Mexico Chapter to purchase iPads and amplifiers to help patients with breathing, swallowing, and the ability to speak. The event was named in honor of Richard Jay, a local Realtor diagnosed with ALS (also known as Lou Gehrig’s disease) who passed away in the fall of 2014.

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Center for Medicare Advocacy Launches Home Health Access Initiative ​To Open Doors to Home Health Care

Center for Medicare Advocacy Launches Home Health Access Initiative ​To Open Doors to Home Health Care | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Help open doors to necessary home health care.

As we have reported, the Center has been hearing more and more about people who meet Medicare criteria but cannot obtain, or retain, necessary home health care ordered by their physicians. In particular, people living with long-term and debilitating conditions such as ALS, MS, paralysis and Parkinson’s disease find themselves without necessary home care. For example, patients have been told that Medicare will only cover 1 to 5 hours per week of home health aide care, or only one bath per week, or that they must first decline before therapy can commence (or recommence). Individuals and their families are struggling as a result of these inappropriate limitations with too little care, or no care at all. 

To respond to this crisis, the Center is building a coalition to support a Home Health Access Initiative.  The Initiative will oppose inappropriate restrictions on Medicare to open doors to Medicare-covered, necessary home care...............

 

  • The Center for Medicare Advocacy, Inc., established in 1986, is a national nonprofit, nonpartisan law organization that provides education, advocacy and legal assistance to help older people and people with disabilities obtain fair access to Medicare and quality health care. The Center is headquartered in Connecticut and Washington, DC with offices throughout the country.
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Our friend Ted Harada Passed Away this Week

Our friend Ted Harada Passed Away this Week | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Our friend Ted Harada passed away this week. Many of you may have known him. Ted was first diagnosed with ALS in August 2010 and immediately became a tireless advocate, volunteer, and voice of the ALS community. He had served on The ALS Association Board of Trustees and on the board of directors for the…
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ALS is slowly robbing ex-linebacker Tim Shaw of his muscles. But he won't let that stop him from living.

ALS is slowly robbing ex-linebacker Tim Shaw of his muscles. But he won't let that stop him from living. | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Three years after being diagnosed with ALS, Shaw's goals are simple -- but even more meaningful, he says.
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Inspirational & Unique | One of a Kind | Sterling Silver Jewelry | Hand Stamped-Made in Oregon | USA

Inspirational & Unique | One of a Kind | Sterling Silver Jewelry | Hand Stamped-Made in Oregon | USA | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

*Our Unique & Inspirational Jewelry can be customized especially for you or as a gift*

Be CREATIVE! Design your own Unique Piece of Inspiration|Each Piece is Handcrafted In Oregon|Sent to you with Hope-Inspiration-Strength-Courage.

Help TEAM UP for A CURE!

To Order, Visit: www.TEAMCureALSfundraiser.com 

 #TEAMMikeLopez #TEAMUp4ACure

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Moulton introduces bill to speed benefits to those with ALS

Moulton introduces bill to speed benefits to those with ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
SALEM — Salem Congressman Seth Moulton has helped introduce a bipartisan bill to accelerate benefits for those diagnosed with amyotrophic lateral sclerosis, or ALS.
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Blood test might make Parkinson's diagnosis easier

Blood test might make Parkinson's diagnosis easier | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A blood test may be as accurate as a spinal fluid test for differentiating Parkinson's disease from atypical parkinsonism disorders, according to a new study.
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Creating Personal Voices For All-Voice Banking

Creating Personal Voices For All-Voice Banking | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

The ModelTalker System is a revolutionary speech synthesis software package developed by the Nemours Speech Research Laboratory and designed to benefit people who are losing or who have already lost their ability to speak. It allows people who use a Speech Generating Device (SGD) to communicate with a unique personal synthetic voice that is representative of their own voice.

To learn more, see the FAQ section under Help, or select an option under our Voices menu to get started right away!

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Michael Maloney, top ALS treatment advocate in WNY, dies at 65 - The Buffalo News

Michael Maloney, top ALS treatment advocate in WNY, dies at 65 - The Buffalo News | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
June 7, 1951 – Feb. 3, 2017 Michael J. Maloney, who worked closely with families as he helped lead some of the region’s top senior living communities, and who became known in recent years for his advocacy and fundraising for ALS research and treatment, died early Friday from a complication of the neurodegenerative condition, also known as Lou Gehrig’s disease. He…
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Parkinson’s disease: Hallan two key neuroprotection and natural increase of dopamine

Parkinson’s disease: Hallan two key neuroprotection and natural increase of dopamine | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Ramón Cacabelos, one of the best specialists in the world in the neuro-degenerative disorders and genomic medicine, and his team have completed preclinical and clinical studies with a nutraceutical…
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The man who beat Lou Gehrig’s disease

The man who beat Lou Gehrig’s disease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Ted Harada made medical history and brought hope to others who have been diagnosed with a terminal illness.
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IBM's Watson supercomputer discovers 5 new genes linked to ALS

IBM's Watson supercomputer discovers 5 new genes linked to ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
IBM Watson discovered five new genes linked to ALS, which means the supercomputer could make discoveries in research of other neurological diseases.
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Former Saints player Steve Gleason visits his old stomping grounds

Former Saints player Steve Gleason visits his old stomping grounds | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Steve Gleason revealed in 2011 that he has ALS; since then, he has promoted awareness for the disease and vowed to lead a life of purpose.
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Art is her respite from husband's Parkinson's disease

Art is her respite from husband's Parkinson's disease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Creating art has sustained Tari Eilbeck as she’s been the primary caregiver for Ed, her husband of 53 years, during his decline due to Parkinson’s disease.
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Bacteria Living in the Gut Could be Responsible for Parkinson's Disease

Bacteria Living in the Gut Could be Responsible for Parkinson's Disease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Researchers have identified a potential biological connection between gut microbiome and Parkinson's disease, suggesting that the incurable neurodegenerative disease may have originated in the gut and not only in the brain as had been previously thought.
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ALS Family Study-Why Study Children and Youth as Caregivers?

ALS Family Study-Why Study Children and Youth as Caregivers? | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
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