#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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Isaiah Invites you to GOLF or SPONSOR In Memory of Uncle Mike! | T.E.A.M. Cure ALS Foundation 7th Annual Memorial Golf Tournament

Isaiah Invites you to GOLF or SPONSOR In Memory of Uncle Mike! | T.E.A.M. Cure ALS Foundation 7th Annual Memorial Golf Tournament | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

--> Isaiah Invites You to GOLF * SPONSOR * DONATE in Memory of his Uncle Mike! <--

*T.E.A.M. Cure ALS Foundation 7th Annual Golf Tournament
August 17, 2013| Pumpkin Ridge Golf Course, North Plains, Oregon 

To Register: Call 503-649-7392
Or Register Online at: http://teamcurealsgolf2013.eventsbot.com/


‪#‎TEAMMikeLopez‬ ‪#‎MEbecomesWe‬ ‪#‎TEAMCureALS‬ ‪#‎LouGehrigsDisease‬ ‪#‎ALS‬ 

*T.E.A.M.- Together Everyone Accomplishes More!*

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#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
Raising ALS | Lou Gehrigs Disease & Parkinsons Disease AWARENESS to the NEXT LEVEL!
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Michael Lopez Jr. Celebration Of Life - Saying Good Bye to All American "Magic Mike" RIP: 1/13/2013 | In Loving Memory of Michael | Forever in Our Hearts #19

★ Final Farewell To Mike Lopez Jr.★

It is hard to imagine anyone who followed football in Oregon in the 1980′s not remembering his name. It struck fear into many an opponent and his #19 was called and shouted often at Oregon State where he did some legendary things. He was one of the greatest athletes to every come out of Oregon and was an All American and named Gatorade Player Of The Year. The 1981 Graduate of Aloha was truly special in every way and was known by those closest to him as “Magic Mike”! ♥

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Herantis Pharma receives orphan designation in USA for CDNF for treatment of ALS

Herantis Pharma receives orphan designation in USA for CDNF for treatment of ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

The United States Food and Drug Administration FDA has granted orphan designation for Herantis Pharma Plc’s (“Herantis”) CDNF for treatment of amyotrophic lateral sclerosis (ALS). Earlier this year the European Medicines Agency EMA issued a corresponding positive decision.

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ALS Patients May Safely Undergo Stem Cell Transplants, Study Reports - ALS News Today

ALS Patients May Safely Undergo Stem Cell Transplants, Study Reports - ALS News Today | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Transplanting human stem cells into the spinal cord of people with amyotrophic lateral sclerosis (ALS) may be safely accomplished, according to the results of a Phase 2 clinical trial. The study, led by researchers at the Emory University School of Medicine and the Nell Hodgson Woodruff School of Nursing in Atlanta, was not designed to …
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The ALS Association Care Services Survey- Deadline July 14th

The ALS Association Care Services Survey- Deadline July 14th | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
The ALS Association Care Services Survey.

 

ALSA SURVEY NOW OPEN TO EVERYONE IN ALS COMMUNITY - The ALS Association Care Services Survey is now available. Every member of the ALS community is urged to participate and provide their input to help prioritize our needs. The results will be shared with us at some point in the near future.

The deadline to provide your feedback is Thursday, July 14th.

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Is it possible for a machine to read your mind? Help for those with ALS/MND

Is it possible for a machine to read your mind? Help for those with ALS/MND | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS's insight:

Those suffering from motor neuron disease such as Lou Gehrig's struggle to turn thoughts into words. A scientist from University of California, Berkeley, aims to overcome this through advanced technology.

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The ALS Assoc. joins the Pharma Research and Manufacturers of America (PhRMA) in releasing new report

The ALS Assoc. joins the Pharma Research and Manufacturers of America (PhRMA) in releasing new report | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Today, The ALS Association joins the Pharmaceutical Research and Manufacturers of America (PhRMA) in releasing a new report, “Medicines in Development for Rare Diseases,” which finds that America’s biopharmaceutical research companies are currently developing more than 560 medicines for patients with rare diseases, including amyotrophic lateral sclerosis (ALS).

There are about 7,000 known...............

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Frates’ No. 3 Jersey to be Retired at Fifth Annual ALS Awareness Game

Frates’ No. 3 Jersey to be Retired at Fifth Annual ALS Awareness Game | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Frates’ No. 3 Jersey to be Retired at Fifth Annual ALS Awareness Game
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Rescooped by TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS from ALS Awareness
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FIESTA 5K/15K CHALLENGE RAISES $36,000 FOR EMORY ALS CENTER

FIESTA 5K/15K CHALLENGE RAISES $36,000 FOR EMORY ALS CENTER | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Cumming, GA - 10th Annual Race for ALS Featured the Big Creek Greenway

Via Cure for ALS
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Center for Medicare Advocacy Access Project

Center for Medicare Advocacy Access Project | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Free Registration is Required for All Informational Webinars

The Center for Medicare Advocacy, Inc., established in 1986, is a national nonprofit, nonpartisan organization that provides education, advocacy and legal assistance to help older people and people with disabilities obtain fair access to Medicare and necessary health care. The Center is headquartered in Connecticut and Washington, DC with offices throughout the country.

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ALS Dodgeball Tournament - All Saints Episcopal School- May 7, 2016 - Benefiting Jennifer Corbett

ALS Dodgeball Tournament - All Saints Episcopal School- May 7, 2016 - Benefiting Jennifer Corbett | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

2015 Dodgeball Tourrnament was a GREAT Success, raising over $10,000. Help make 2016 Tournament another GREAT Success!

 

Registration: ALSDodgeballTournament@gmail.com

Questions Contact: Turner Corbett 871-888-2301

Donations can be made by sending a email to ALSDodgeballTournament@gmail.com

 

 

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Tom Watson leaves a final Masters tribute to his caddie who died of ALS

Tom Watson leaves a final Masters tribute to his caddie who died of ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
In his last Masters, Tom Watson pays tribute to his longtime caddie on the 12th anniversary of his death.
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Borges: Football a fatal attraction for Kevin Turner | "Words don’t mean too much this morning, but a few do. “Goodbye” is one of them. “Wake up” are two others".

Borges: Football a fatal attraction for Kevin Turner | "Words don’t mean too much this morning, but a few do. “Goodbye” is one of them. “Wake up” are two others". | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Words don’t mean too much this morning, but a few do. “Goodbye” is one of them. “Wake up” are two others.
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University of Oregon lands $10 million from Tim Boyle for zebrafish facility

University of Oregon lands $10 million from Tim Boyle for zebrafish facility | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Tim Boyle, Columbia Sportswear's chief executive, said Friday he would give $10 million to the University of Oregon's pioneering zebrafish facility.
TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS's insight:

"Zebrafish are vertebrates and during the embryo stage, they're transparent, making them ideal subjects to observe and manipulate. Their embryonic development is "remarkably similar" to humans, according to the school's website, presenting many research opportunities."

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Ice Bucket Challenge leads to gene discovery - GET YOUR CHALLENGE PLANS STARTED!

Ice Bucket Challenge leads to gene discovery - GET YOUR CHALLENGE PLANS STARTED! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

The campaign that encouraged millions of people to dump buckets of ice-cold water over their heads raised enough money to help make an important research breakthrough, the ALS Association announced Monday

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Ex-NFLer Steve Gleason on ALS Battle as First-Time Dad, 'Gleason' Documentary opens Friday!

Ex-NFLer Steve Gleason on ALS Battle as First-Time Dad, 'Gleason' Documentary opens Friday! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Steve Gleason made it his mission to record hundreds of videos for their unborn son, sharing life lessons he had learned along the way, while Gleason could still speak.
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Inspirational & Unique | One of a Kind | Sterling Silver Jewelry | Hand Stamped-Made in Oregon | USA

Inspirational & Unique | One of a Kind | Sterling Silver Jewelry | Hand Stamped-Made in Oregon | USA | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

*Our Unique & Inspirational Jewelry can be customized especially for you or as a gift*

Be CREATIVE! Design your own Unique Piece of Inspiration|Each Piece is Handcrafted In Oregon|Sent to you with Hope-Inspiration-Strength-Courage.

Help TEAM UP for A CURE!

To Order, Visit: www.TEAMCureALSfundraiser.com 

 #TEAMMikeLopez #TEAMUp4ACure

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Urgent – ALS Association CEO hosting virtual meeting TUESDAY to solicit input from the ALS community

Urgent – ALS Association CEO hosting virtual meeting TUESDAY to solicit input from the ALS community | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
I am asking every ALS patient, as well as their caretakers and loved ones, to speak up for our community this Tuesday. Barbara Newhouse and members of the National Board of Trustees are holding a live virtual listening event to allow us to voice our needs, thoughts and suggestions. It is scheduled for THIS TUESDAY, June 21st, 1pm ET or 10am PT. We’ve all been asking for this, and now we have been given the opportunity. Let’s make it count!!! Since it is a WebEx event, it is my assumption we will be able to provide our comments by either typing or verbally. It is two hours in duration, and you must register to attend. We are requested to REGISTER BY TOMORROW, Monday, June 20th. I’ve never seen such a long hyperlink, but here is where you register:

https://alsa.webex.com/mw3100/mywebex/default.do?service=1&siteurl=alsa&nomenu=true&main_url=%2Fmc3100%2Fe.do%3Fsiteurl%3Dalsa%26AT%3DMI%26EventID%3D337717847%26UID%3D479893903%26Host%3DQUhTSwAAAALjhCPYwpx-kzi8ThIHyf8Z5obCMvgZfDmdS3dpoQjxtbx5XD85GPzKPYNIsZWAP3D3fc0YYTWeReHXsDh11pwX0%26FrameSet%3D2%26MTID%3Dm268aed3b1055c6f5a3b1a954da674bed

Excerpt from ALS Association communication:

Global ALS Awareness Day is Tuesday, June 21, and we’re commemorating the special day with a virtual listening tour event! People living with ALS and their caregivers are invited to join ALS Association CEO, Barbara Newhouse, and members of the National Board of Trustees from 1-3 PM EDT to express their thoughts and ideas that will help advance our quest to treat ALS once and for all! Your participation is greatly appreciated.

Please RSVP by 5 PM EDT on Monday, June 20
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Woman with ALS turns 40, but she wasn't supposed to

Woman with ALS turns 40, but she wasn't supposed to | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Jenni was diagnosed with ALS seven years ago and wasn't supposed to live more than two years. Watch as she prepares for her 40th birthday party with 170 of her closest friends and family.
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"Drink one for Dane" at Dutch Bros. | KGW.com | Help Make a difference TODAY! $1.7 Million raised in 10 Years for ALS

"Drink one for Dane" at Dutch Bros. | KGW.com | Help Make a difference TODAY! $1.7 Million raised in 10 Years for ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

"Drink one for Dane" at Dutch Bros TODAY!

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VIRTUAL ADVOCACY DAY May 10th | Make Your Voice heard on Capital Hill!

VIRTUAL ADVOCACY DAY May 10th | Make Your Voice heard on Capital Hill! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Unable to make it to Washington D.C. to participate in National ALS Advocacy Day on May 10? That’s okay, you can make your voice heard on Capitol Hill no matter where you are!

Did you know? Nearly every single Member of Congress is active on Twitter. You can help amplify our message by tweeting your representatives on National ALS Advocacy Day!

 

Learn how you can help The ALS Association advance scientific research to find a cure for ALS, provide resources for people with ALS and their loved ones, heighten awareness of the nature of the disease, and encourage government leaders to expand their support of research and patient care.

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2016 Fiesta 5k/15k Challenge Proceeds benefit  ALS Center at Emory University

2016 Fiesta 5k/15k Challenge Proceeds benefit  ALS Center at Emory University | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

All fundraising and donation proceeds will benefit the ALS Center at Emory University. Amyotrophic Lateral Sclerosis (ALS) can strike anyone; in fact it happens to 15 people each day in the U.S. The average life expectancy is only 2-5 years from the time of diagnosis. ALS slowly takes away the ability to move, speak, swallow, and ultimately breathe. There is no cure for ALS so there are no survivors to tell their stories. For the 10th year the Emory ALS Center is the beneficiary of 100% of the proceeds from the FIESTA 5k/15k Challenge. The Emory ALS Center is one of the largest clinical centers for ALS in the United States. The Center provides true multidisciplinary care for patients and families with ALS and related disorders. Emorys physician-scientists continue to perform groundbreaking research, including developing surgical methods for delivery of therapeutics to the spinal cord. They search tirelessly for a cure for this devastating disease, focusing on basic mechanisms of motor neuron degeneration, genetics of ALS, and new experimental treatments. As the name suggests, the FIESTA 15k/5k Challenge is not your ordinary race. With two distances, we draw causal runners and walkers for the 5k and endurance runners for the 15k. The FIESTA 15k/5k Challenge brings entire families out for a morning of health & fitness, awareness for ALS, community outreach, and a celebration of life. Thank you for your generous support and for joining us to Celebrate Life...Imagine a Cure If you would like to volunteer or register for the FIESTA 5k/15k Challenge visit FiestaRunGA.com .

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Medicare webinars for ALS patients to begin this week. Thank You Catherine Scott!

Medicare webinars for ALS patients to begin this week. Thank You Catherine Scott! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Register for one of the three webinars being held over the next few weeks to learn how to access your Medicare home care benefits (aka home health services).

As a result of our successful petition and advocacy efforts, the ALS Association has partnered with the Center for Medicare Advocacy to create and host educational webinars. The first one is scheduled to be held this Thursday, and you must register in advance to participate. I have provided the email I received from the ALS Association today, which contains the details. Please spread the word!!! Let's get the ALS community the information and resources needed to access their Medicare home care benefits already in place...

ALS Association email:

Are you eligible for Medicare Home Health Benefits?
Do you have questions about Medicare Home Health Benefits?
Are you having problems accessing Medicare Home Health Benefits?
If you answered “yes” to any of these questions, you will find these webinars very valuable!

The ALS Association is working with the Center for Medicare Advocacy (CMA) to better help people living with ALS navigate the complexities of Medicare home health benefits. As part of this collaboration, the CMA will be presenting a webinar that will discuss topics including: an overview of the Medicare program with particular focus on the home health benefit, Medicare eligibility and enrollment, and Medicare payment rules and assistance.

This webinar will be presented on three separate dates with a 30 minute live Q&A following each session. For more information and to register for a session, click the links below.

Session 1: Thursday, April 28, 2016 (1:00-3:00 pm EDT)
Register at: http://bit.ly/240SapS

Session 2: Tuesday, May 3, 2016 (3:00-5:00 pm EDT)
Register at: http://bit.ly/22O32Fd

Session 3: Monday, May 16, 2016 (6:00-8:00 pm EDT)
Register at: http://bit.ly/1SZzK1a

Sincerely,
Kim Maginnis
Chief Care Services Officer
The ALS Association
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ALSUntangled review of GM604 is now available - ALS and Frontotemporal Degeneration

ALSUntangled review of GM604 is now available - ALS and Frontotemporal Degeneration | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
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How to navigate Medicare Home Health Services for ALS Patients.pdf

How to navigate Medicare Home Health Services for ALS Patients.pdf | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
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WSU researcher reveals ALS breakthrough

WSU researcher reveals ALS breakthrough | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Researchers at WSU Spokane's College of Pharmacy said they may have found a potential breakthrough in the battle against diseases such as ALS, Parkinson's, and Alzheimer's.
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PETITION UPDATE Please Read. Tell ALS Association: Improve home care for ALS patients

PETITION UPDATE Please Read. Tell ALS Association: Improve home care for ALS patients | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
ALS patients desperately need the ALS Association to ACT IMMEDIATELY to address and correct home care issues.  There is miscommunication, as well as a knowledge deficit, of the home health services options available through insurance programs, including Medicare.  There is also a great disparity between...
TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS's insight:

NOTE:

The Petition Update includes the most recent correspondence between  Catherine Scott/Petition Organizer and Barbara Newhouse/ALSA President & CEO.

*PLEASE READ*


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