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Keep the MADNESS ALIVE! Chris Cate & T.E.A.M. Mike Lopez | Ski to Defeat ALS Slide into Overall 3rd Place!

Keep the  MADNESS ALIVE! Chris Cate & T.E.A.M. Mike Lopez | Ski to Defeat ALS Slide into Overall 3rd Place! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Keep the MADNESS ALIVE!

Congrats to Chris Cate & T.E.A.M. Mike Lopez | Ski to Defeat ALS TEAM have now moved into Overall 3rd Place for Fundraising and Chris Cate for Individual Fundraiser! WOW! How AWESOME is That!!

We are overwhelmed and so very gracious to everyone and the businesses that have helped make this happen in Mikes Memory!
We know "Magic Mike" is smiling from above with tremendous GRATITUDE to you all!

You Can Continue to Donate to T.E.A.M. Mike Lopez:
http://webor.alsa.org/site/TR/Events/OregonandSWWashington?team_id=237843&pg=team&fr_id=8760

 

T.E.A.M.-Together Everyone Accomplishes More! Go T.E.A.M. Mike Lopez!

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#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
Raising ALS | Lou Gehrigs Disease & Parkinsons Disease AWARENESS to the NEXT LEVEL!
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Michael Lopez Jr. Celebration Of Life - Saying Good By to All American "Magic Mike" RIP: 1/13/2013

★ Final Farewell To Mike Lopez Jr.★

It is hard to imagine anyone who followed football in Oregon in the 1980′s not remembering his name. It struck fear into many an opponent and his #19 was called and shouted often at Oregon State where he did some legendary things. He was one of the greatest athletes to every come out of Oregon and was an All American and named Gatorade Player Of The Year. The 1981 Graduate of Aloha was truly special in every way and was known by those closest to him as “Magic Mike”! ♥

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Inspirational & Unique | One of a Kind | Sterling Silver Jewelry | Hand Stamped-Made in Oregon | USA

Inspirational & Unique | One of a Kind | Sterling Silver Jewelry | Hand Stamped-Made in Oregon | USA | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

*Our Unique & Inspirational Jewelry can be customized especially for you or as a gift*

Be CREATIVE! Design your own Unique Piece of Inspiration|Each Piece is Handcrafted In Oregon|Sent to you with Hope-Inspiration-Strength-Courage.

Help TEAM UP for A CURE!

To Order, Visit: www.TEAMCureALSfundraiser.com 

 #TEAMMikeLopez #TEAMUp4ACure

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Researchers propose link between gluten and ALS

Researchers propose link between gluten and ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
(Reuters Health) - Could sensitivity to gluten cause a syndrome that looks like ALS? Researchers from Israel think it might be possible.But, cautioned senior researcher Dr. Vivian E. Drory in an email,
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Run LOCO for ALS in One Month at 9th Annual FIESTA 5k/15k Challenge

Run LOCO for ALS in One Month at 9th Annual FIESTA 5k/15k Challenge | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Via Cure for ALS
TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS's insight:
VIA: Cure for ALS's insight:

There is a lot of important information here so please make sure you read all the way through. At the top of the news is that entry fees will increase on Friday, April 17. Also, if you want to guarantee you’ll receive a t-shirt in the size you want you, make sure you are registered before April 17.

 

Race day is Saturday, May 2, 2015 at the Forsyth Conference Center at Lanier Tech in Cumming. Important details will be posted on the main website and registration page so be sure to check them often for any announcements.

 

REGISTRATION: https://runsignup.com/Race/GA/Cumming/FIESTA5k15kChallenge ;

 

MAIN WEBSITE: www.FiestaRunGA.com 

 

CAN'T JOIN US THIS YEAR? MAKE A DONATION AT https://www.crowdrise.com/2015fiesta5k15kALS

 

THINGS TO REMEMBEREntry fees increase for the 15k and 5k on April 17.You must be registered by April 16 to guarantee a race t-shirt. Chip timing for the 15k and 5k races.The FIESTA 5k course is a certified Peachtree Road Race qualifying course.START TIMES: FIESTA 15k starts at 7:45am. FIESTA 5k starts at 8:05am. **Ronald Reagan Blvd. will close at7:30am so make sure to arrive for all races before road closure**

Awards for 15k:

Top 3 Overall Male/Female will receive a TIMEX Ironman watchAdditional awards presented to: Overall Male/Female, Overall Masters Male/Female, and Top 3 in Age Groups of 5 year incrementsAll 15k finishers receive a Custom Finisher Medal

Awards for 5k:

Overall Male/Female, Overall Masters Male/Female, and Top 3 in Age Groups of 5 year increments.

Awards are not presented in the Fun Run but those registered do receive a t-shirt with their entry.

Lots of parking, great post-race party, music, refreshments, and FUN!

100% of the proceeds benefit the Emory ALS Center. www.als.emory.edu 

 

COMING SOON: Be on the lookout for an announcement for a 21 Day Fitness Challenge for you to 1) make sure you are ready for your best FiestaRun ever, and 2) keep fit and healthy beyond the Fiesta 5k/15k Challenge.

 

PACKET PICK UP TIMES:

Friday, May 1 from 11am to 7pm at Totally Running - 405 Peachtree Pkwy, Suite 105, Cumming, GA 30041. Registration also available.Saturday, May 2 beginning at 6:45am at the Forsyth Conference Center. Race day registration available.EET'S NACHO ORDINARY RUN!Celebrate Life...Imagine a Cure. Run LOCO to stop ALS!
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Cure for ALS's curator insight, April 2, 10:27 AM

There is a lot of important information here so please make sure you read all the way through. At the top of the news is that entry fees will increase on Friday, April 17. Also, if you want to guarantee you’ll receive a t-shirt in the size you want you, make sure you are registered before April 17.

 

Race day is Saturday, May 2, 2015 at the Forsyth Conference Center at Lanier Tech in Cumming. Important details will be posted on the main website and registration page so be sure to check them often for any announcements.

 

REGISTRATION: https://runsignup.com/Race/GA/Cumming/FIESTA5k15kChallenge ;

 

MAIN WEBSITE: www.FiestaRunGA.com 

 

CAN'T JOIN US THIS YEAR? MAKE A DONATION AT https://www.crowdrise.com/2015fiesta5k15kALS

 

THINGS TO REMEMBEREntry fees increase for the 15k and 5k on April 17.You must be registered by April 16 to guarantee a race t-shirt. Chip timing for the 15k and 5k races.The FIESTA 5k course is a certified Peachtree Road Race qualifying course.START TIMES: FIESTA 15k starts at 7:45am. FIESTA 5k starts at 8:05am. **Ronald Reagan Blvd. will close at7:30am so make sure to arrive for all races before road closure**

Awards for 15k:

Top 3 Overall Male/Female will receive a TIMEX Ironman watchAdditional awards presented to: Overall Male/Female, Overall Masters Male/Female, and Top 3 in Age Groups of 5 year incrementsAll 15k finishers receive a Custom Finisher Medal

Awards for 5k:

Overall Male/Female, Overall Masters Male/Female, and Top 3 in Age Groups of 5 year increments.

Awards are not presented in the Fun Run but those registered do receive a t-shirt with their entry.

Lots of parking, great post-race party, music, refreshments, and FUN!

100% of the proceeds benefit the Emory ALS Center. www.als.emory.edu 

 

COMING SOON: Be on the lookout for an announcement for a 21 Day Fitness Challenge for you to 1) make sure you are ready for your best FiestaRun ever, and 2) keep fit and healthy beyond the Fiesta 5k/15k Challenge.

 

PACKET PICK UP TIMES:

Friday, May 1 from 11am to 7pm at Totally Running - 405 Peachtree Pkwy, Suite 105, Cumming, GA 30041. Registration also available.Saturday, May 2 beginning at 6:45am at the Forsyth Conference Center. Race day registration available.EET'S NACHO ORDINARY RUN!Celebrate Life...Imagine a Cure. Run LOCO to stop ALS!
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I Have ALS. Support Me Please. Sign by April 24, 2015. [Video]

I Have ALS. Support Me Please. Sign by April 24, 2015. [Video] | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Please take a minute to sign both Petitions. White House Petition wh.gov/iWMcT ... Change.Org Petition  www.change.org/p/fda-grant-accelerated-approval-fo...  To my kids, I am superman. To my wife, I am a rock. To my…
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Ann Romney's new book to fund neurological research

Ann Romney's new book to fund neurological research | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
SALT LAKE CITY (Good4Utah) - Ann Romney has written a new book of tips directed to college graduates, but the good will from the book does not end there. Proceeds will help Mrs. Romney cure neurological diseases.
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To everyone who cares, you should not be "okay" , do something. Real life. Real facts. Real me - ALS : Beth Popa Castelvetere

To everyone who cares, you should not be "okay" , do something. Real life. Real facts. Real me - ALS : Beth Popa Castelvetere | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Beth Popa Castelvetere :  Forgive me if I offend anyone in any way. The outpouring of love and support I have received since my Trickett shed her earthly shell has been nothing short of amazing. Honestly, I am not "okay." I am not at "peace." Every second of every day I am reminded of my beautiful friend not being here. I have no distraction, I have no "go on." I am living every second with what took her away. A horrifying, gruesome hell. I won't be ”okay " I won't be at "peace." Complete bullshit. No one with a heart should be "okay" with any of this. PEOPLE THIS IS THE TIME TO DO SOMETHING. Now look at my picture.... Trickett Fewell Wendler, myself and another beautiful mother (who I am honored to call my friend) Jodi Oliver. I created an ALS moms private group last February. It is here I found the bond of true motherhood. Jodi is a part of this bond. Jodi is now coming to the end of her ALS journey. My heart has never known so much pain. My pain pales in comparison to the pain each of their children is facing, six children left without their mothers. This picture was less than a year ago. Now really I'm supposed to be "okay?" Unf**king acceptable. I think this picture speaks for itself. Jodi, I love you my thoughts are with you and your family. To everyone who cares, you should not be "okay" , do something. Real life. Real facts. Real me.


Pictured: L to R: Trickett Fewell Wendler, Beth Popa Castelvetere, Jodi Oliver
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GM604 - We the People: Your Voice in Our Government- Sign the Petition- ALS needs the POTUS's Attention NOW!

GM604 - We the People: Your Voice in Our Government- Sign the Petition- ALS needs the POTUS's Attention NOW! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
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Mommy Minute: Raising a family while fighting Young-Onset Parkinson's Disease

Mommy Minute: Raising a family while fighting Young-Onset Parkinson's Disease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
MIDDLEBURY - The signs were slight at first. "I would be standing at the sink doing dishes and my toe would just twitch and twitch," says Jennifer Bona, a Middlebury mom, whose strange symptoms inc...

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Pacific Cove's curator insight, March 24, 8:15 PM

Bona had to figure out how to get by each day, taking care of her four growing sons, while dealing with the devastating effects of this neurological condition. #Parkinsons #Tremors #HealthCare #Caregiving #Caregivers 

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Connecticut Police Officer Running Boston Marathon to Raise Money for ALS Association

Connecticut Police Officer Running Boston Marathon to Raise Money for ALS Association | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

(Image Courtesy: MGN Online)(WGGB) -- After months of grueling training and pounding the pavement, one month from today, tens of thousands of runners will lace up their sneakers and hit the pavement to run the Boston Marathon. Athletes from all.......................


  • David is Running the Boston Marathon in Memory of:

Donna McNeice, John Keator, Michael Lopez Jr. , Paul Dowd, Bob O'Neil, and Mary Lupo Ciotto.


David says: " I have met some of the most amazing people from across the United States all because of this dreaded disease and we are all united by one common goal and that is to find a cure and help those in need"!


  • Thank You for your Dedication and Constant Commitment to ALS David!



TO Donate, Click Here:  https://www.crowdrise.com/alsboston2015/fundraiser/davidmcneice

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Exome Sequencing Study Links Rare Genetic Variants to Sporadic ALS

Exome Sequencing Study Links Rare Genetic Variants to Sporadic ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Through a parent-offspring trio exome sequencing study, University of Sydney researchers found 28 recessive and 17 de novo variants associated with amyotrophic lateral sclerosis.
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Longtime Musician-Toto Bassist Mike Porcaro Dies at 59 from ALS/Lou Gehrigs Disease

Longtime Musician-Toto Bassist Mike Porcaro Dies at 59 from ALS/Lou Gehrigs Disease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Longtime musician succumbs to Lou Gehrig's Disease
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Quicker Access to Experimental Drugs - NYTimes.com

Quicker Access to Experimental Drugs - NYTimes.com | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

The Food and Drug Administration has proposed a greatly simplified process for doctors to obtain experimental drugs for patients who are suffering from serious or life-threatening illnesses and have no other alternative. In a breathtaking reduction of red tape, the simplification should reduce the time it takes a doctor to apply for..............

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IMG Enters Original Content Space With ALS Sports Documentary (Exclusive)

IMG Enters Original Content Space With ALS Sports Documentary (Exclusive) | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Seven months after hiring former ESPN programming executive Mark Shapiro as chief content officer, IMG has made its first move into the original content space, The Hollywood Reporter has exclusively learned.
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FDA Statement Update Genervon’s-GM604

FDA Statement Update Genervon’s-GM604 | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

FDA recognizes the critical unmet medical need for new, effective treatments for amyotrophic lateral sclerosis (ALS). We are committed to working with drug companies and...................

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Famed celebrity publicist Nanci Ryder addresses her personal battle with ALS - AOL.com

Famed celebrity publicist Nanci Ryder addresses her personal battle with ALS - AOL.com | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Former publicist to the stars Nanci Ryder was diagnosed with ALS in August of last year. Ryder co-founded BWR Public Relations more than 30 years a...
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Frates' dream of becoming big leaguer comes true

Frates' dream of becoming big leaguer comes true | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
BOSTON -- Once a standout Division I college baseball player, Pete Frates never got the chance to be a Major Leaguer. That changed on Monday, when the Red Sox signed the Beverly, Mass., native to a ceremonial contract before an Opening Day crowd of 37,203 at Fenway Park. Frates, a former team captain at nearby Boston College, was diagnosed with amyotrophic lateral sclerosis (ALS) in 2012. He has spent much of his time since working to raise awareness about the debilitating disease, which weakens muscles to the point where those who suffer from it cannot speak or walk.
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Special Pen Helps Parkinson's Patients Write Without Shaking [VIDEO]

Special Pen Helps Parkinson's Patients Write Without Shaking [VIDEO] | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Scientists have designed a special pen for Parkinson’s patients that would allow them to write normally, without cramping or shaking.
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The Michael J. Fox Foundation, Genetic Testing - Genentec and Therapeutic Group

The Michael J. Fox Foundation, Genetic Testing - Genentec and Therapeutic Group | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
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Steve Gleason Act of 2015 gets added to Senate budget

Steve Gleason Act of 2015 gets added to Senate budget | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
WASHINGTON -- The Senate approved by voice vote Friday an amendment to its budget bill that would help patients diagnosed with diseases such as Amyotrophic lateral sclerosis (ALS). The bill, sponsored by Sen. David Vitter, R-La., and a host of co-sponsors,...
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Murkowski Presses Military Officials on ALS Research Funding - YouTube

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Researchers: New Information In The Battle Against ALS

Researchers: New Information In The Battle Against ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
According to the researchers, TBK 1 encodes for a protein involved in inflammation and the clearing of debris in cells.
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ALS Rally in WASH. D.C. for Faster Drug Approval | 3.25.15 -12:00p.m.

ALS Rally in Washington D.C.

Wednesday, Mar 25, 2015, 12:00 PM

Upper Senate Park
Constitution Ave Washington, DC

33 PALS Attending

MEET at noon: Upper Senate Park across from the Russell Senate Building, corner of Constitution Ave NW and Delaware Ave NE KNOW BEFORE YOU GO! Please be prepared to answer media questions. Study the issues @ https://sites.google.com/site/aap4gm6/ www.change.org/ALSMedication https://www.facebook.com/gm604forals https://twitter.com/hashtag/FDAHope4A...

Check out this Meetup →

MEET at noon: Upper Senate Park across from the Russell Senate Building, corner of Constitution Ave NW and Delaware Ave NE
KNOW BEFORE YOU GO! Please be prepared to answer media questions. Study the i
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Neuralstem Announces Topline Results Of Phase II ALS Trial

Neuralstem Announces Topline Results Of Phase II ALS Trial | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
GERMANTOWN, Md., March 12, 2015 /PRNewswire/ -- Neuralstem, Inc. (NYSE MKT: CUR) announced top line data from the Phase II trial of NSI-566 spinal cord-derived neural stem cells under development for the treatment of amyotrophic lateral sclerosis (ALS). The maximum tolerated dose of 16 million transplanted cells and the surgery was well tolerated. Secondary efficacy endpoints at nine months post-surgery indicate a 47% response rate to the stem cell treatment, as measured by either near-zero slope of decline or positive slope of ALSFRS score in seven out of 15 patients and by either a near-zero decline, or positive strengthening, of grip strength in seven out of 15 patients. Grip strength is an indicator of direct muscle strength of the lower arm.
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Homeless woman with ALS, caregiver receiving help from grass roots group

Homeless woman with ALS, caregiver receiving help from grass roots group | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A grass roots group is working together to help a homeless man and woman, who has ALS and epilepsy, find a permanent home after the couple has been living in a car for five years.
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Stem Cell Investigator Awards

Stem Cell Investigator Awards | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
NYSCF is soliciting applications from early career investigators for Innovator awards to be used for exploring the basic biology and translational po...
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