MDA & ALS Association Fund Clinical Trial Of Diaphragm Pacing System for those with ALS......
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Raising ALS | Lou Gehrigs Disease| Parkinsons Disease AWARENESS to the NEXT LEVEL!
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Scooped by TEAM Cure ALS Foundation|www.TeamCureALS.com|Find us on Twitter:@TEAMCUREALS onto #ALSAWARENESS #PARKINSONS |
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*Final Farewell To Mike Lopez Jr.* it is hard to imagine anyone who followed football in Oregon in the 1980′s not remembering his name. It struck fear into many an opponent and his #19 was called and shouted often at Oregon State where he did some legendary things. He was one of the greatest athletes to every come out of Oregon and was an All American and named Gatorade Player Of The Year. The 1981 Graduate of Aloha was truly special in every way and was known by those closest to him as “Magic Mike”! Delete the scoop?
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Bob Deyan, a Grammy award-winning audiobook producer, received the devastating diagnosis of ALS earlier this year but even with his deteriorating physical condition, his spirit and faith remain high. Delete the scoop?
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One of the radio hosts fired for mocking a former NFL player with ALS admits the skit wasn't funny and has apologized. 
Marie Sweat Broxton's comment,
June 18, 7:09 PM
Marie Sweat Broxton Maybe he will get that awful disease and than he would know it's no joke ,It's something you wouldn't want your worse enemy to have ,maybe they all will get it ,I have a son with it and it's nothing to joke about .
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Committee Approves $7.5 Million for the ALSRP The House Appropriations Committee approved legislation to provide an additional $7.5 million in continued funding for the ALS Research Program (ALSRP) at the Department of Defense. If enacted, it would bring total funding for the program to nearly $50 million. Thank you to everyone who made the trip to Washington last month for National ALS Advocacy Day and also to those who participated in our online virtual Advocacy Day. Your outreach to Members of Congress in support of Delete the scoop?
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June 18th, 2013 2:00 - 3:00PM EST Robert Brown, MD, PhD, DPhilContact: alstrials@partners.org
Dr. Robert Brown (University of Massachusetts) will highlight ongoing genetic research in ALS and discuss implications for people living with ALS.
After his presentation, Dr. Brown will be available for questions.
Interested people can join the webinar on Tuesday June 18th at 2:00 PM Eastern Standard Time.
Please forward this information to those who may be interested. Sign Up to pariticpate...................
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The ALS Association Greater Chicago Chapter’s Run to Defeat ALS
I am running in the 2013 Chicago Marathon in memory of my mother, Donna McNeice, my friend John Keator, and a family friend Bob O'Neil who all recently lost their battles to ALS. I am also running in memory of Michael Lopez (Team Cure ALS), who lead an inspirational battle with ALS and in the process has raised ALS awareness and was a source of hope to so many people. I want to help all those who are currently battling ALS. It is my goal to raise ALS Awareness and help find a cure for this dreaded disease.
If you would like to make a donation and help David "Stay Commited to a CURE for ALS please visit this link:
T.E.A.M.-Together Everyone Accomplishes More! 
TEAM Cure ALS Foundation|www.TeamCureALS.com|Find us on Twitter:@TEAMCUREALS's comment,
May 24, 8:33 PM
David- We are beyond grateful and honored to have you running in Memory of Micheal Lopez Jr. & TEAM Cure ALS. We would like you to know that friends and support from individuals like you continues to bring our family extreme comfort and peace with our healing and loss of Michael after his battle with this horrendous disease ALS the last 17 years. We are family, brought together by such a horrendous disease, but yet for so many valuable and important reasons in our lives. The loss never leaves, the hurt never ceases but we have each other in our continued fight for our loved ones, friends and and all others that continue to FIGHT and hold HOPE for a Cure! Michael is so PROUD to have you represent him! Thank You will never be enough!
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Rock Steady Boxing, the first and only boxing program of its kind in the country, was founded in 2006 by former Marion County Prosecutor, Scott C. Newman, who is living with Parkinson’s.
The seed for what would eventually become Rock Steady Boxing was planted when Newman began intense, one-on-one, boxing training just a few years after he was diagnosed with early-onset Parkinson’s at the age of 40. Newman witnessed the dramatic improvement in his physical health, agility and daily functioning through the......................... Delete the scoop?
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*Our Unique & Inspirational Jewelry can be customized especially for you or as a gift* Be CREATIVE! Design your own Unique Piece of Inspiration|Each Piece is Handcrafted In Oregon|Sent to you with Hope|Inspiration|Strength|Courage To Order, Visit: www.TeamCureALSfundraiser.com Your Purchase is Tax Deductible [to the full extent of the law] [T.E.A.M.-Together Everyone Accomplishes More!] Delete the scoop?
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SEATTLE - Former University of Washington women’s basketball player Melissa Erickson died Wednesday after a long battle with ALS, also known as Lou Gehrig’s disease. Erickson was 34. Delete the scoop?
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2013 Oregon Ride to Defeat ALS: Marcy Helm - Ride to Defeat ALS®| Honoring Sister Shelley & In Memory of Mike Lopez Jr.
*Marcy Helm is currently in 1st Place for Overall Fundraising and 2nd Place for Overall TEAM Fundraiser!
T.E.A.M. Cure ALS Foundation & Mike Lopez Jr. are truly honored to have Marcy Pontier Helm dedicate herself to helping Stay Committed to a Cure for ALS!
Thank You Marcy with tremendous GRATITUDE!
If you would like to Donate to Marcy & her Ride to Defeat ALS please follow this link: http://web.alsa.org/site/TR/Rides/OregonandSWWashington?px=3401796&pg=personal&fr_id=9090
T.E.A.M.-Together Everyone Accomplishes More! Delete the scoop?
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To honor and recognize wonderful caregivers who care for their friends and family in need, Chanda Brigance, co-founder of the Brigance Brigade Foundation, pr... Delete the scoop?
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Some members of the morning fired for mocking a former ex-NFL star battling ALS admit they went too far. Delete the scoop?
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Documentary feature about Kathryn Calder of The New Pornographers. Driven by adversity, inspired by family. Delete the scoop?
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Hours after an Atlanta radio station suspended three radio hosts for a tasteless skit about Steve Gleason, the trio has been terminated. Delete the scoop?
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Organic food advocate, Colle Farmers Market, responds to a Medical Daily article outlining how patients with Parkinson’s disease may benefit from eating food grown without pesticides. Delete the scoop?
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Prof. Molly Shoichet (photo courtesy of Shoichet Lab) One of the challenges facing stem cell researchers is how to ensure that cells delivered to patients don't die after transplantation to the point of care. 
Wayne Channon's curator insight,
June 18, 12:16 PM
A possible way of keeping stem cells at the point of insertion or even keeping them alive following transplant. Delete the scoop?
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He’s back. Last autumn, Hisashi Moriguchi stunned the world of stem-cell science by claiming he had become the first person to transfer induced pluripotent stem cells into patients. In a now-infamous front-page spread in the Yomiuri Shimbun — which has the largest number of subscribers of any newspaper in the world — Moriguchi said he created a type of iPS cells, differentiated..... Delete the scoop?
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Argeo Paul Cellucci, a Hudson native who rose from a smalltown selectman to become governor of Massachusetts and later US ambassador to Canada, died at home this afternoon after a five-year battle with Lou Gehrig’s disease. Delete the scoop?
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Increased iron levels may be causally associated with a decreased risk of developing Parkinson's disease, researchers in Italy say. Delete the scoop?
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From the familiar steps of "West Side Story" to as-yet unseen professional dance choreography, a group of enthusiastic dancers joined professional dancers David Leventhal and Lesley Garrison today for a dance for Parkinson's disease. Delete the scoop?
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A new home tracking system based on a Microsoft Kinect sensor will help patients with the symptom of ‘freezing of gait.’ Delete the scoop?
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Media Alert
Kona Inspired showing that “Anything Is Possible” http://konainspired.com
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Researchers based at the University of California, Los Angeles announced today that they’ve found an abundant, cheap, easy-to-obtain source of stem cells that could prove to be ideal for regenerating all the basic tissue types of the human body. Delete the scoop?
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Medicare Coverage of Speech Generating Devices (SGD)Medicare will cover the cost of a SGD if you have Medicare Part B services.
1. You must live in your family home or an assisted living facility
2. Medicare will not cover the cost of a SGD if you are in a hospital, skilled nursing facility, or on hospice.
*Medicare will cover 80% of the allowable cost of the device. Secondary insurance should pay the remaining 20% but that is not always the case. If you do not have secondary insurance, you will be responsible for the 20% co-pay. There are funds available from charitable organizations that may help pay for any deductible or co-pay that insurance does not cover.
*Medicare classifies SGD’s as “durable medical equipment” (DME) and will cover the device under this classification.
*An assessment by a speech-language pathologist is required to document that this device is needed to meet your daily functional communication needs. 80% of the cost of the assessment is covered by Medicare. The remaining charge can be billed to secondary insurance (if applicable) or will be billed to the client.
*A doctors prescription is required.
*Once the assessment has been completed, appropriate paperwork will be submitted to the vendor of the device. This process usually takes approximately one to two months.
*If the vendor feels all the paperwork is in order, they will ship the device directly to you.
Training on your device can be provided by:
> Vendor—many vendors offer training sessions at no cost.
> Facility—the facility where you received your device can provide training. The cost of the training session is covered by Medicare.
> Chapter—the ALS Association may have resources available for training. Delete the scoop?
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