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U.S. News Best Hospitals: Neurology & Neurosurgery

U.S. News Best Hospitals: Neurology & Neurosurgery | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
See US News hospital ratings in neurology & neurosurgery, including epilepsy center, reputation, patient safety, and nurse staffing.
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#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
Raising ALS | Lou Gehrigs Disease & Parkinsons Disease AWARENESS to the NEXT LEVEL!
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Michael Lopez Jr. Celebration Of Life - Saying Good By to All American "Magic Mike" RIP: 1/13/2013

★ Final Farewell To Mike Lopez Jr.★

It is hard to imagine anyone who followed football in Oregon in the 1980′s not remembering his name. It struck fear into many an opponent and his #19 was called and shouted often at Oregon State where he did some legendary things. He was one of the greatest athletes to every come out of Oregon and was an All American and named Gatorade Player Of The Year. The 1981 Graduate of Aloha was truly special in every way and was known by those closest to him as “Magic Mike”! ♥

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Stephen Hawking congratulates Eddie Redmayne in touching Facebook message

Stephen Hawking congratulates Eddie Redmayne in touching Facebook message | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
He wasn't at the Oscars on Sunday in Los Angeles, but Stephen Hawking let the world know Monday morning how proud he was of Eddie Redmayne.
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New ALS gene, signaling pathways identified

New ALS gene, signaling pathways identified | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Using advanced DNA sequencing methods, researchers have identified a new gene that is associated with sporadic amyotrophic lateral sclerosis (ALS), or Lou Gehrig's disease.
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Kessler Institute for Rehabilitation offers tips to help caregivers cope with challenges

Kessler Institute for Rehabilitation offers tips to help caregivers cope with challenges | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Husbands and wives, parents and children, siblings and others are taking on the role of caregiver for family members who are unable to care for themselves due to disabilities, chronic health conditions or the challenges related to aging. In fact, more than 90 million caregivers – two out of five adults – are now providing that daily care, an increase of 30% since 2010.
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23andMe: Quest for Parkinson's cure opens door to genetic data mining

23andMe: Quest for Parkinson's cure opens door to genetic data mining | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
It's a new Silicon Valley frontier: Just as marketing companies are mining your Internet browsing habits to design the killer ad, new technologies are allowing pharmaceutical companies like Genentech to mine our DNA to create the next generation of drugs.
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Social media has disrupted traditional philanthropy: Nancy Frates | Co-Founder of ALS Ice Bucket Challenge

Social media has disrupted traditional philanthropy: Nancy Frates | Co-Founder of ALS Ice Bucket Challenge | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Nancy Frates, co-founder of the ALS Ice Bucket Challenge, was in Mumbai to address the Nasscom Leadership Forum 2015, an annual summit, on ‘making ideas go viral’
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ALS Patient Marries Longtime Girlfriend in Special Ceremony at SoCal Nursing Facility

ALS Patient Marries Longtime Girlfriend in Special Ceremony at SoCal Nursing Facility | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A man stricken with ALS married his longtime girlfriend Friday in a special ceremony that was held at the San Diego-area nursing home where he is a patient. The staff at the Villa Pomerado facility...
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Why The Ice Bucket Challenge Isn't Over | By John And Nancy Frates

Why The Ice Bucket Challenge Isn't Over | By John And Nancy Frates | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
The parents of ALS Ice Bucket Challenge pioneer Peter Frates admire their son's legacy.
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Tim Shaw Living with ALS-Former NFL Linebacker

Tim Shaw Living with ALS-Former NFL Linebacker | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Former linebacker Tim Shaw's courageous battle with ALS.
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Prize4Life - Prize Model - ALS Treatment Prize

Prize4Life - Prize Model - ALS Treatment Prize | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Join the fight against Amyotrophic Lateral Sclerosis (ALS).
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Dying for tech toys? Chip boom reflected in rising ALS rates

Dying for tech toys? Chip boom reflected in rising ALS rates | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
When Daniel Berry pulled a muscle in his back it was the beginning of the end. But his death led to a discovery that may affect the health and future of everyone living around Portland.


  • UPDATE: 2/11/2015

Fed-hazmat-watchdog-OHA-reviewing-KATU-report-on-ALS-deaths-among-Intel Workers

http://www.katu.com/news/investigators/Fed-hazmat-watchdog-OHA-reviewing-KATU-report-on-ALS-deaths-among-Intel-workers291445611.html

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* STEM CELL NEWS *- Gordie Howe making dramatic recovery after stem cell therapy

* STEM CELL NEWS *- Gordie Howe making dramatic recovery after stem cell therapy | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Detroit Red Wings legend Gordie Howe has made such a dramatic recovery after having stem cell therapy in December in Tijuana, Mexico, that he's heading to Saskatchewan this weekend for a fund-raiser.
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Robert Kraft invites Pete Frates to Super Bowl, logistics keeping ALS patient away

Robert Kraft invites Pete Frates to Super Bowl, logistics keeping ALS patient away | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
New England Patriots owner Robert Kraft personally invited Pete Frates and his wife to be his guests at the Super Bowl in Arizona, however they cannot attend.
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How Stephen Hawking, diagnosed with ALS decades ago, is still alive

How Stephen Hawking, diagnosed with ALS decades ago, is still alive | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Doctors who expected him to die five decades ago were way off.
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Duke Announces Major Breakthrough in ALS Research

Duke Announces Major Breakthrough in ALS Research | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

DURHAM -- Duke University announced Thursday a major medical breakthrough in the fight against ALS.

Doctors across the country have discovered one of many genes causing the.......................................

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Inspirational & Unique | One of a Kind | Sterling Silver Jewelry | Hand Stamped-Made in Oregon | USA

Inspirational & Unique | One of a Kind | Sterling Silver Jewelry | Hand Stamped-Made in Oregon | USA | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

*Our Unique & Inspirational Jewelry can be customized especially for you or as a gift*

Be CREATIVE! Design your own Unique Piece of Inspiration|Each Piece is Handcrafted In Oregon|Sent to you with Hope-Inspiration-Strength-Courage.

Help TEAM UP for A CURE!

To Order, Visit: www.TEAMCureALSfundraiser.com 

 #TEAMMikeLopez #TEAMUp4ACure

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Finding points to possible mechanism underpinning Alzheimer's and Parkinson's diseases

Finding points to possible mechanism underpinning Alzheimer's and Parkinson's diseases | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Scientists from the Florida campus of The Scripps Research Institute have for the first time discovered a killing mechanism that could underpin a range of the most intractable neurodegenerative diseases such as Alzheimer's, Parkinson's and ALS. The new study revealed the mechanism of toxicity of a misfolded form of the protein that underlies prion diseases, such as bovine spongiform encephalopathy ('mad cow disease') and its human equivalent, Creutzfeldt-Jakob disease.
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Jumping for PALS | 5th Annual Skydive Fundraiser - Skydive Nawlins | April 18,2015

Jumping for PALS | 5th Annual Skydive Fundraiser - Skydive Nawlins | April 18,2015 | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

5th Annual Skydive Fundraiser for ALS (Lou Gehrigs Disease), Saturday April 18, 2015.


  • All Jumps are tandem. Cost to jump is $190.00. Extra fee for photos and video.
  • Must be 18 years old and weight limit is 225lbs.
  • Anyone interested in jumping will need to Contact Brenda Grafton [228-623-0130] to book your jump and secure a deposit.

We will be scheduling jumps in 2 phases - 8 a.m. or 1 p.m.

When you call Brenda at Skydive Nawlins please let you know what time slot you request.Thanks!

  • We are asking that each jumper raise $200 (does not include cost of jump)


This years event will be held in Memory of the "Godfather" of the ALS Skydive fundraisers, Derek Walton who won his battle with ALS on Jan. 15, 2015 and in memory of our dear friend Pegi Hodges who won her battles with ALS on Monday, December 8 2014.
ALS can strike anyone, anywhere, anytime and no one knows why. It is always fatal and there are currently no drugs to slow, stop, or end it. A cure has to found for this horrifice disease.


"One small jump 4 PALS, one giant leap towards a cure!!"

  • I H8 ALS - For More info contact: Sharon Iles - LSUMSGIRL@yahoo.com 
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Raise a Glass to Kick ALS's A$$ Brings $4,000 to Emory ALS Center

Raise a Glass to Kick ALS's A$$ Brings $4,000 to Emory ALS Center | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Via Cure for ALS
TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS's insight:

Via CURE FOR ALS : Raise a Glass to Kick ALS’s Ass was a terrific party! Host Becky Kidd’s goal for the evening was to thank the Emory ALS Clinic team for their dedication to help her and others living with ALS manage the disease and appreciate every day. A crowd of 150 came out to the Famous Pub in Atlanta for the event. While fundraising wasn’t the main task of the evening, a raffle and donations resulted in nearly $4,000 being raised to benefit the Emory ALS Center.

 

Becky kicked off the evening by welcoming everyone and showing a thank you film that was a compilation of videos sent in by pALS (people with ALS) and friends. Comedian, James Rodatus was up next and had everyone laughing for the next 25 minutes. Also living with ALS, James quickly made all comfortable with realizing that humor plays a big part in life – even when life is hard. He is like many others I see living with ALS who keep a positive attitude and live life to the fullest each and every day.

 

When James completed his act, local band Secret Sauce took the stage for the first of three music sets. It didn’t take long for the dance floor to become full as the happy crowd got into the music from the 80’s, 90’s and today. Between sets, Dr. Jonathan Glass, Director of the Emory ALS Center, and Dr. Christina Fournier, Emory ALS Center Neurologist, drew the raffle winners and received well-deserved raised glass toasts from the attendees.

 

Becky shares, “We call ourselves team 5 Smooth Stones for the story of David & Goliath.  I met my Goliath when I was diagnosed with ALS in January 2012.   ALS is a part of my life, but I refuse to allow it become my life. Every day for all of us is a gift, an honor and opportunity to live with joy...ALS does not have to change that. We will live with Courage, Confidence, Preparation and Trust until Victory has been achieved."

 

Good friends of Becky’s are riding as Team 5 Smooth Stones in the Snake Gap Time Trials. The Snake Gap Time Trials is a time trial series event along the Pinhoti Trail through National Forest Lands in Dalton, GA. It takes place on January 3, February 3, and March 7, 2015. Team 5 Smooth Stones has been fundraising during the series in honor of Becky. With one more ride left in the series they are half way to their goal of raising $5,000 for the Emory ALS Center. If you would like to help them reach their goal, you can make a donation at www.crowdrise.com/5smoothstones. ;

 

To find out more about the Emory ALS Center visit www.als.emory.edu

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Cure for ALS's curator insight, February 10, 11:21 AM

 Raise a Glass to Kick ALS’s Ass was a terrific party! Host Becky Kidd’s goal for the evening was to thank the Emory ALS Clinic team for their dedication to help her and others living with ALS manage the disease and appreciate every day. A crowd of 150 came out to the Famous Pub in Atlanta for the event. While fundraising wasn’t the main task of the evening, a raffle and donations resulted in nearly $4,000 being raised to benefit the Emory ALS Center.

 

Becky kicked off the evening by welcoming everyone and showing a thank you film that was a compilation of videos sent in by pALS (people with ALS) and friends. Comedian, James Rodatus was up next and had everyone laughing for the next 25 minutes. Also living with ALS, James quickly made all comfortable with realizing that humor plays a big part in life – even when life is hard. He is like many others I see living with ALS who keep a positive attitude and live life to the fullest each and every day.

 

When James completed his act, local band Secret Sauce took the stage for the first of three music sets. It didn’t take long for the dance floor to become full as the happy crowd got into the music from the 80’s, 90’s and today. Between sets, Dr. Jonathan Glass, Director of the Emory ALS Center, and Dr. Christina Fournier, Emory ALS Center Neurologist, drew the raffle winners and received well-deserved raised glass toasts from the attendees.

 

Becky shares, “We call ourselves team 5 Smooth Stones for the story of David & Goliath.  I met my Goliath when I was diagnosed with ALS in January 2012.   ALS is a part of my life, but I refuse to allow it become my life. Every day for all of us is a gift, an honor and opportunity to live with joy...ALS does not have to change that. We will live with Courage, Confidence, Preparation and Trust until Victory has been achieved."

 

Good friends of Becky’s are riding as Team 5 Smooth Stones in the Snake Gap Time Trials. The Snake Gap Time Trials is a time trial series event along the Pinhoti Trail through National Forest Lands in Dalton, GA. It takes place on January 3, February 3, and March 7, 2015. Team 5 Smooth Stones has been fundraising during the series in honor of Becky. With one more ride left in the series they are half way to their goal of raising $5,000 for the Emory ALS Center. If you would like to help them reach their goal, you can make a donation at www.crowdrise.com/5smoothstones. ;

 

To find out more about the Emory ALS Center visit www.als.emory.edu.  

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Why Scientists Believe MicroNeurotrophins Are So Promising | ALS World Wide

Why Scientists Believe MicroNeurotrophins Are So Promising | ALS World Wide | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
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Ice Bucket Challenge: 6 months later | ALS Association

Ice Bucket Challenge: 6 months later | ALS Association | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
The Ice Bucket Challenge raised $115 million for the ALS Association last summer. A look at how those donations were used.
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An insurance Catch 22: Family fights for ALS benefits

An insurance Catch 22: Family fights for ALS benefits | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A Norfolk man says he has insurance coverage for his wife who has ALS but can't get the benefits he needs.
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Pitt Establishes Live Like Lou Center for ALS Research - YouTube

On Feb 5, 2015, the University of Pittsburgh announced the creation of the Live Like Lou Center for ALS Research. An O’Hara Township couple, Neil and Suzanne...
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Neurologists find movement tracking device helps assess severity of Parkinson's disease

Neurologists find movement tracking device helps assess severity of Parkinson's disease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A device that measures movement and balance can effectively help assess and track the progression of Parkinson's disease, even when medications are used to reduce Parkinson's symptoms, UT Southwestern Medical Center research found.

Via SustainOurEarth
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TEAM Gleason/Superbowl 2015 - YouTube

TEAM Gleason ● Superbowl 2015 ●
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Help Preserve Access to SGDs! Help Co-Sponsor the Steve Gleason Act! Contact your Senator TODAY!

Help Preserve Access to SGDs! Help Co-Sponsor the Steve Gleason Act! Contact your Senator TODAY! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Today Senator David Vitter (R-LA) introduced the Steve Gleason Act, legislation that will help preserve access to speech generating devices (SGDs) and eye tracking technology for people with ALS! U.S. Representative Cathy McMorris Rodgers (R-WA) will be introducing a companion bill in the House.  We urge you to contact your Senators and Representative and ask them to cosponsor the Steve Gleason Act! A sample email that you can personalize and send is available in our Advocacy Action Center here


Background:
As you know, the Centers for Medicare and Medicaid Services (CMS) have taken several different actions that deny people with ALS timely access to the SGDs. This legislation would reverse those actions and make sure that people have access to the SGDs they need, when and where they need them. Specifically, the bill would:
  • Eliminate the "capped rental" payment system for SGDs to once again enable people with ALS to purchase SGDs. This provision would allow people to keep their SGDs if they are admitted to a hospital, nursing facility or hospice. Importantly, it also would allow people to "unlock" their SGDs so they can access non-speech technologies such as email, the internet and environmental controls.
  • Ensure coverage for eye tracking and other technologies that enable people who have lost the use of their arms and hands the ability to access SGDs.
The bill does not address the "coverage reminder." This is the policy issued by Medicare's contractors that would have prohibited coverage for any SGD that included email, internet access even if those technologies were "locked." CMS has since rescinded the coverage reminder and is in the process of revising its SGD coverage policy so legislation is not needed at this time (click here to read The Association's comments submitted to CMS in December).

While CMS is in the process of revising their coverage policy, these other policies are impacting people with ALS today so it is absolutely critical to address these issues as soon as possible. People with ALS do not have time to wait. Therefore, please contact Congress today!

Thank you to everyone for all that you do to make a difference! Thank you especially to Steve Gleason whose relentless efforts have helped put a public spotlight on these issues and helped to move them forward.

Together, we are making a difference!
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