#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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TEAM Cure ALS Foundation|6th Annual Golf Tournament | Oregon|Thank You!

TEAM Cure ALS Foundation|6th Annual Golf Tournament | Oregon|Thank You! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Thank You to EVERYONE that helped make our 6th Annual TEAM Cure ALS Foundation Golf Tournament a AWESOME SUCCESS!!

 

Each year our Annual TEAM Cure ALS Foundation Golf Tournament hosted by former Oregon State Football player Mike Lopez Jr. brings together past and present Oregon State Beavers and University of Oregon Ducks. They may be rivals on the playing field but when it comes time to help Mike "Stay Committed to a CURE" for ALS they rally and MAKE IT HAPPEN! 

 

We are truly blessed to be surrounded by so many Friends,Family,Fans and total strangers that have become a part of our TEAM & Family in this FIGHT to find a CURE for ALS.

 

Your Hardwork, Donations, Love & Support helped us once again Accomplish our Mission which is: To Help ALS Patients & their families by offering hope through raising funds for research, patient services and educational ALS Awareness.

 

We could not do this without ALL of YOU! "ME Becomes WE"

~T.E.A.M.-Together Everyone Accomplishes More!~ We are Eternally Grateful

www.TeamCureALS.com Or www.TeamCureALSFundraiser.com

 

 

 

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#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
Raising ALS | Lou Gehrigs Disease & Parkinsons Disease AWARENESS to the NEXT LEVEL!
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Michael Lopez Jr. Celebration Of Life - Saying Good Bye to All American "Magic Mike" RIP: 1/13/2013 - In Loving Memory of Michael - Forever in Our Hearts #19

★ Final Farewell To Mike Lopez Jr.★

It is hard to imagine anyone who followed football in Oregon in the 1980′s not remembering his name. It struck fear into many an opponent and his #19 was called and shouted often at Oregon State where he did some legendary things. He was one of the greatest athletes to every come out of Oregon and was an All American and named Gatorade Player Of The Year. The 1981 Graduate of Aloha was truly special in every way and was known by those closest to him as “Magic Mike”! ♥

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Realtors raise $17K to aid ALS patients

Realtors raise $17K to aid ALS patients | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Santa Fe Realtors were busy over the last few months hosting events to enhance the community while devoting many volunteer hours to raise funds for charity. In October, the Santa Fe Association of Realtors' Community Services Committee hosted the Third Annual Richard Jay ALS Research Benefit, raising more than $17,000. Melissa Pippin-Carson, Richard Jay Golf Tournament Committee co-chair and SFAR president-elect, noted that this year’s funds will go directly to the ALS New Mexico Chapter to purchase iPads and amplifiers to help patients with breathing, swallowing, and the ability to speak. The event was named in honor of Richard Jay, a local Realtor diagnosed with ALS (also known as Lou Gehrig’s disease) who passed away in the fall of 2014.

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Center for Medicare Advocacy Launches Home Health Access Initiative ​To Open Doors to Home Health Care

Center for Medicare Advocacy Launches Home Health Access Initiative ​To Open Doors to Home Health Care | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Help open doors to necessary home health care.

As we have reported, the Center has been hearing more and more about people who meet Medicare criteria but cannot obtain, or retain, necessary home health care ordered by their physicians. In particular, people living with long-term and debilitating conditions such as ALS, MS, paralysis and Parkinson’s disease find themselves without necessary home care. For example, patients have been told that Medicare will only cover 1 to 5 hours per week of home health aide care, or only one bath per week, or that they must first decline before therapy can commence (or recommence). Individuals and their families are struggling as a result of these inappropriate limitations with too little care, or no care at all. 

To respond to this crisis, the Center is building a coalition to support a Home Health Access Initiative.  The Initiative will oppose inappropriate restrictions on Medicare to open doors to Medicare-covered, necessary home care...............

 

  • The Center for Medicare Advocacy, Inc., established in 1986, is a national nonprofit, nonpartisan law organization that provides education, advocacy and legal assistance to help older people and people with disabilities obtain fair access to Medicare and quality health care. The Center is headquartered in Connecticut and Washington, DC with offices throughout the country.
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Our friend Ted Harada Passed Away this Week

Our friend Ted Harada Passed Away this Week | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Our friend Ted Harada passed away this week. Many of you may have known him. Ted was first diagnosed with ALS in August 2010 and immediately became a tireless advocate, volunteer, and voice of the ALS community. He had served on The ALS Association Board of Trustees and on the board of directors for the…
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ALS Family Study-Why Study Children and Youth as Caregivers?

ALS Family Study-Why Study Children and Youth as Caregivers? | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
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FDA Accepts New Drug Application for Potential ALS Treatment, Edaravone

FDA Accepts New Drug Application for Potential ALS Treatment, Edaravone | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Learn how you can help The ALS Association advance scientific research to find a cure for ALS, provide resources for people with ALS and their loved ones, heighten awareness of the nature of the disease, and encourage government leaders to expand their support of research and patient care.
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NFL Retired Players United :: Cookie Gilchist's Estate Files Appeal of NFL Concussion Settlement with U.S. Supreme Court

NFL Retired Players United :: Cookie Gilchist's Estate Files Appeal of NFL Concussion Settlement with U.S. Supreme Court | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
It’s been a long battle to get former NFL players treated and compensated for the severe brain injuries they incurred during thei
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Dr. Campbell: Raleigh sports figure Chris Combs contracts ALS- $1Million raised for Duke ALS Center

Dr. Campbell: Raleigh sports figure Chris Combs contracts ALS- $1Million raised for Duke ALS Center | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
ALS is a progressive neurologic disease that affects cells in the brain and spinal cord.
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Book About Ice Bucket Challenge Announced

Book About Ice Bucket Challenge Announced | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Pete Frates’ story, entitled Challenge, is due out in Fall, 2017.

 

Pete Frates and the Ice Bucket Challenge can now add another accomplishment to its ever-growing list.

With news rolling in about new breakthroughs in the fight against ALS and another year of challenges working its way through August, Frates’ story is set to become the topic of a new book, per an announcement on social media over the weekend.

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Tour players came out to support ALS at Travelers Championship - Packard Center at Johns Hopkins ALS Research

Tour players came out to support ALS at Travelers Championship - Packard Center at Johns Hopkins ALS Research | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Tour players come out to support ALS at Travelers championship in hartford, ct

 

“To have this kind of event held in Bruce’s honor, raising money that will help us treat and hopefully beat ALS, is inspiring,” Tom Watson said. “Bruce would be very proud of what we’ve been able to accomplish, coming together and putting the focus on finding a cure for such a terrible disease.”

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In Theaters TODAY! Find a location near you NOW! The Gleason Movie- Courage*Love*Triumph*Inspiration*

In Theaters TODAY! Find a location near you NOW! The Gleason Movie- Courage*Love*Triumph*Inspiration* | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
At the age of 34, former New Orleans Saints defensive back Steve Gleason was diagnosed with ALS and given a life expectancy of two to five years. Weeks later, Gleason found out his wife, Michel, was expecting their first child. A video journal that began as a gift for his unborn son expands to chronicle Steve’s determination to get his relationships in order, build a foundation to provide other ALS patients with purpose, and adapt to his declining physical condition—utilizing medical technologies that offer the means to live as fully as possible. Gleason is not only about Steve’s resilience but also the complications of love between fathers and sons, and husbands and wives, in the face of a devastating illness. The film is bolstered by its subject’s unwavering candor and surprising humor. Told through the lens of an NFL icon, the film grapples with the nature of heroism as Steve recasts his legacy into something quite antithetical to—but no less inspirational than—his on-field shows of strength and dominance.

 

WATCH THE MOVIE TRAILER HERE: http://www.gleasontickets.com/microsite/3579#watch-trailer

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Herantis Pharma receives orphan designation in USA for CDNF for treatment of ALS

Herantis Pharma receives orphan designation in USA for CDNF for treatment of ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

The United States Food and Drug Administration FDA has granted orphan designation for Herantis Pharma Plc’s (“Herantis”) CDNF for treatment of amyotrophic lateral sclerosis (ALS). Earlier this year the European Medicines Agency EMA issued a corresponding positive decision.

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ALS Patients May Safely Undergo Stem Cell Transplants, Study Reports - ALS News Today

ALS Patients May Safely Undergo Stem Cell Transplants, Study Reports - ALS News Today | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Transplanting human stem cells into the spinal cord of people with amyotrophic lateral sclerosis (ALS) may be safely accomplished, according to the results of a Phase 2 clinical trial. The study, led by researchers at the Emory University School of Medicine and the Nell Hodgson Woodruff School of Nursing in Atlanta, was not designed to …
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Former Saints player Steve Gleason visits his old stomping grounds

Former Saints player Steve Gleason visits his old stomping grounds | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Steve Gleason revealed in 2011 that he has ALS; since then, he has promoted awareness for the disease and vowed to lead a life of purpose.
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Art is her respite from husband's Parkinson's disease

Art is her respite from husband's Parkinson's disease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Creating art has sustained Tari Eilbeck as she’s been the primary caregiver for Ed, her husband of 53 years, during his decline due to Parkinson’s disease.
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Bacteria Living in the Gut Could be Responsible for Parkinson's Disease

Bacteria Living in the Gut Could be Responsible for Parkinson's Disease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Researchers have identified a potential biological connection between gut microbiome and Parkinson's disease, suggesting that the incurable neurodegenerative disease may have originated in the gut and not only in the brain as had been previously thought.
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Inspirational & Unique | One of a Kind | Sterling Silver Jewelry | Hand Stamped-Made in Oregon | USA

Inspirational & Unique | One of a Kind | Sterling Silver Jewelry | Hand Stamped-Made in Oregon | USA | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

*Our Unique & Inspirational Jewelry can be customized especially for you or as a gift*

Be CREATIVE! Design your own Unique Piece of Inspiration|Each Piece is Handcrafted In Oregon|Sent to you with Hope-Inspiration-Strength-Courage.

Help TEAM UP for A CURE!

To Order, Visit: www.TEAMCureALSfundraiser.com 

 #TEAMMikeLopez #TEAMUp4ACure

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David McNeice runs Chicago Marathon for ALS- Sunday October 9, 2016- GO DAVID!

David McNeice runs Chicago Marathon for ALS- Sunday October 9, 2016- GO DAVID! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

This Sunday David McNeice will  be running the Chicago Marathon for the ALS ASSOCIATION and for many pALS in the continued fight and in Memory of those that have lost their courageous fight. David is checked in and ready to hit the road for ALS tomorrow!

 

We are truly grateful and honored that David has included Michael Lopez Jr. in his mission and dedication. Thank You David from the Lopez Family for all you do for ALS and finding a Cure for ALS. Michael will be right along with you and cheering you on from above.

 

David is running in Memory of his own Courageous Mother that lost her battle with ALS as well at those that continue to inspire Davids Dedication in finding a cure for ALS:

Michael Lopez Jr.

Carey Hinkley

John Keator

Mary Lupo Ciotto

Doug Tremlett

Paul Dowd

Bob O'Neil


We must find a cure!!! Join the search:

Please consider making a donation to David's Chicago Marathon/ ALS Association-

https://secure2.convio.net/alsa/site/Donation2;jsessionid=89BC23D395CDAFC4765ACDBB522E22AB.app297b?idb=1243848441&df_id=36482&FR_ID=12161&mfc_pref=T&PROXY_ID=2987735&PROXY_TYPE=20&36482.donation=form1&s_subsrc=bfAphFbPfMsg&s_src=boundlessfundraising

 

Follow Davids Chicago Marathon Journey on Facebook at:

https://www.facebook.com/McNeiceMarathon4ALS/

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How Doctors Choose Parkinson's Medications/Reg. for Upcoming Webinar.

How Doctors Choose Parkinson's Medications/Reg. for Upcoming Webinar. | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

In this webinar, our panelists will discuss how doctors and patients work together to choose what medications to start, adjust or discontinue. We'll also answer common medication questions, including "When should one start levodopa?" and "What does prescribing off label mean?"

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Dr. Richard Bedlack 2016 Ice Bucket Challenge for ALS- "When we work together IMPOSSIBLE is nothing"

When we work together, impossible is nothing!
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Terminally ill woman holds party before ending her life

Terminally ill woman holds party before ending her life | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A 41-year-old artist with ALS, or Lou Gehrig's disease, held a 2-day gathering to say goodbye before becoming one of the first Californians to take a lethal dose of drugs under the state's new doctor-assisted suicide law for the terminally ill.
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Every Investigation - Dr. Bedlack's Story-Leading the fight to treat and cure ALS

Every Investigation - Dr. Bedlack's Story-Leading the fight to treat and cure ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support.
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Steve Gleason’s story is about much more than ALS

Steve Gleason’s story is about much more than ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
In “Gleason,” the documentary about the former NFL hero who has ALS, his wife, Michel Varisco, emerges as the star. “I just want to be a real person,” she says.
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Ice Bucket Challenge leads to gene discovery - GET YOUR CHALLENGE PLANS STARTED!

Ice Bucket Challenge leads to gene discovery - GET YOUR CHALLENGE PLANS STARTED! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

The campaign that encouraged millions of people to dump buckets of ice-cold water over their heads raised enough money to help make an important research breakthrough, the ALS Association announced Monday

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Ex-NFLer Steve Gleason on ALS Battle as First-Time Dad, 'Gleason' Documentary opens Friday!

Ex-NFLer Steve Gleason on ALS Battle as First-Time Dad, 'Gleason' Documentary opens Friday! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Steve Gleason made it his mission to record hundreds of videos for their unborn son, sharing life lessons he had learned along the way, while Gleason could still speak.
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The ALS Association Care Services Survey- Deadline July 14th

The ALS Association Care Services Survey- Deadline July 14th | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
The ALS Association Care Services Survey.

 

ALSA SURVEY NOW OPEN TO EVERYONE IN ALS COMMUNITY - The ALS Association Care Services Survey is now available. Every member of the ALS community is urged to participate and provide their input to help prioritize our needs. The results will be shared with us at some point in the near future.

The deadline to provide your feedback is Thursday, July 14th.

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