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Raising ALS|Lou Gehrigs Disease|Parkinsons AWARENESS to the NEXT LEVEL!
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Patient-derived stem cells could improve drug research for Parkinsons

Patient-derived stem cells could improve drug research for Parkinsons | #ALSAWARENESS #PARKINSONS | Scoop.it
Researchers have taken a step toward personalized medicine for Parkinson' s disease, by investigating signs of the disease in patient-derived cells and testing how the cells respond to drug treatments.
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Michael Lopez Jr. Celebration Of Life - Saying Good By to All American "Magic Mike"

*Final Farewell To Mike Lopez Jr.* it is hard to imagine anyone who followed football in Oregon in the 1980′s not remembering his name. It struck fear into many an opponent and his #19 was called and shouted often at Oregon State where he did some legendary things. He was one of the greatest athletes to every come out of Oregon and was an All American and named Gatorade Player Of The Year. The 1981 Graduate of Aloha was truly special in every way and was known by those closest to him as “Magic Mike”!

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Piecing Together the Parkinsons Puzzle - Sanjay Gupta - Everyday Health

Piecing Together the Parkinsons Puzzle - Sanjay Gupta - Everyday Health | #ALSAWARENESS #PARKINSONS | Scoop.it
Researchers are making strides in understanding the disease, its causes, and treatment. Heres a look at some of the latest scientific findings.
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Maryland Stem Cell Research Commission Funds 31 New Research Proposals in FY 2013 - Will focus on ALS

Maryland Stem Cell Research Commission Funds 31 New Research Proposals in FY 2013 - Will focus on ALS | #ALSAWARENESS #PARKINSONS | Scoop.it
/PRNewswire/ -- The Maryland Stem Cell Research Commission (Commission) has completed its review of the 171 applications received in response to its FY 2013 Requests for Applications (RFAs).

 

10 Post-Doctoral Fellowship awards – These grants provide up to $55,000 per year, for up to two years, including direct and indirect costs and fringe benefits, and are designed to train post-doctoral fellows who wish to conduct human stem cell research in Maryland. These grants will focus on ALS (Lou Gehrig's disease), sickle cell disease, diabetes, colon cancer, and stroke, among other topics.....................

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Stem cell breakthrough from Oregon! |Click the Title to View the Video from CNN

Stem cell breakthrough from Oregon! |Click the Title to View the Video from CNN | #ALSAWARENESS #PARKINSONS | Scoop.it

CNN's Elizabeth Cohen on cloned stem cells that could develop into muscle or nerve cells.

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Tobii unveils the Tobii I-Series

Tobii unveils the Tobii I-Series | #ALSAWARENESS #PARKINSONS | Scoop.it
BIG NEWS! Today we unveiled the new Tobii I-Series, the most advanced purpose-built speech generating device for those with communications challenges.

Harnessing the speed, power and accuracy of Gaze Interaction, these individuals can communicate effectively, both in person and online. The Tobii I-Series empowers users with greater independence, a sense of inclusion and greater emotional health.

Learn more at: www.tobii.com/i-series

Get in contact with a local Tobii ATI rep: http://www.tobii.com/en/assistive-technology/north-america/Contact/north-america/
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First Look: 'The Michael J. Fox Show' Airs on NBC Thursday Nights this Fall [VIDEO]

The Michael J. Fox Show, coming Thursdays this fall to NBC. Subscribe now to The Michael J. Fox Show: http://bit.ly/MichaelJFoxShow Get more The Michael J. Fox Foundation | https://www.michaeljfox.org/foundation/michael-story.html

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From TEAM Cure ALS Foundation to All the truly Special & Inspirational Mothers.....Happy Mothers Day!

From TEAM Cure ALS Foundation to All the truly Special & Inspirational Mothers.....Happy Mothers Day! | #ALSAWARENESS #PARKINSONS | Scoop.it

Happy Mother's Day!

Wishing You all a Blessed and Treasured Day!

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TeamCureALS.com

TeamCureALSfundraiser.com

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Gleason family leans on strength of matriarch Michel

Gleason family leans on strength of matriarch Michel | #ALSAWARENESS #PARKINSONS | Scoop.it
NEW ORLEANS — Michel Gleason’s shoulders may appear small. In reality, they’re very, very broad. Broad enough to be the primary caregiver for her husband, …
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Pittsburgh Couple's Everlasting Love Perseveres With Fighting Spirit

Steve Dezember's voice may be soft, but his will is strong. Even though ALS is slowly claiming his body, it can't steal his spirit. He and his wife continue to inspire through their never-ending dedication of love to one another.
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UCLA stem cell researchers move toward treatment for rare genetic nerve disease / UCLA Newsroom

UCLA stem cell researchers move toward treatment for rare genetic nerve disease / UCLA Newsroom | #ALSAWARENESS #PARKINSONS | Scoop.it
UCLA stem cell researchers move toward treatment for rare genetic nerve disease / UCLA Newsroom
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They did it - again! Man pushes wife with ALS through N.J. Marathon

They did it - again! Man pushes wife with ALS through N.J. Marathon | #ALSAWARENESS #PARKINSONS | Scoop.it
Jersey Shore native Denise DiMarzo was diagnosed with ALS in 2010, just six months after marrying Chris Benyo. On Sunday, Benyo pushed her through the New Jersey Marathon for a second time.
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The Quaz Q&A: Adrian Dessi's ALS Diagnosis & Life- By Jeff Pearlman

The Quaz Q&A: Adrian Dessi's ALS Diagnosis & Life- By Jeff Pearlman | #ALSAWARENESS #PARKINSONS | Scoop.it

This week, for the historic-only-to-me 100th Quaz, I wanted someone special. I’ve fielded countless suggestions, but never one that truly moved me. Then, a few weeks ago, I thought about my boyhood on the mean streets of Mahopac, N.Y. Specifically, I thought of a man who seemed to somehow have this life thing figured out, even from the heartbreaking nest of a wheelchair.

 

I grew up with Mark and Chris Dessi, and consider both to be good friends. Four years ago their father, Adrian Dessi, was first hit with the idea that he might—might—have ALS. The initial symptoms of Lou Gehrig’s Disease can be vague and misleading, so it’s difficult to diagnose. Yet, ultimately, Adrian’s symptoms could not be dismissed. He was experiencing, among other things, muscle twitches and fatigue...........

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Mom Slammed by Hurricane Sandy, Then ALS Diagnosis

Mom Slammed by Hurricane Sandy, Then ALS Diagnosis | #ALSAWARENESS #PARKINSONS | Scoop.it

Just six months ago, Hurricane Sandy slammed into Devorah Schochet's Long Island home, flooding the basement and crumbling the foundation. But in February, a grim diagnosis was even more destructive: She was told she had ALS and only a few years to live.

Now, the 39-year-old mother of four is battling not only her insurance company, but the quick physical decline that accompanies amyotrophic lateral sclerosis, often referred to as Lou Gehrig's disease. The progressive neurodegenerative disease causes the death of nerve cells in the brain and spinal cord, which control the muscles throughout the body.

Her mother died of ALS at the age of 59 but, at first, Schochet, who worked in finance before she........................

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Stem cell research could offer relief for Lou Gehrig's disease | Listen to Interview with Dr. Eva Feldman

Stem cell research could offer relief for Lou Gehrig's disease | Listen to Interview with Dr. Eva Feldman | #ALSAWARENESS #PARKINSONS | Scoop.it
Of all the medical diagnoses a physician can make, the diagnosis of ALS--amyotrophic lateral sclerosis--is one of the most devastating. Commonly known as
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Join NIH Officials to Discuss the BRAIN Initiative! | Parkinson's Action Network

Join NIH Officials to Discuss the BRAIN Initiative! | Parkinson's Action Network | #ALSAWARENESS #PARKINSONS | Scoop.it

The National Institutes of Health (NIH) has announced a series of four public meetings to discuss the Brain Research through Advancing Innovative Neurotechnologies (BRAIN) Initiative.  The Parkinson's Action Network (PAN) believes the Initiative could represent a breakthrough in the ways collaborative science can be harnessed and deployed to find new ways to treat, cure, and prevent many diseases of the brain.  While PAN is supportive of the Initiative, we want

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FOX TRIAL FINDER : Parkinson's Disease Clinical Trials

FOX TRIAL FINDER : Parkinson's Disease Clinical Trials | #ALSAWARENESS #PARKINSONS | Scoop.it
Fox Trail Finder is a user friendly matching tool that connects volunteers with the PD clinical trials that need them.
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A Human Stem Cell Has Been Cloned For the First Time | Shoukhrat Mitalipov of Ore. Health & Science University

A Human Stem Cell Has Been Cloned For the First Time | Shoukhrat Mitalipov of Ore. Health & Science University | #ALSAWARENESS #PARKINSONS | Scoop.it
Almost two decades ago, scientists succeeded in cloning Dolly the sheep. Now, the same process has been allowed scientists to clone embryonic stem cells from fetal human skin cells for the very first time.
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Craft Brewers Nationwide Join the 'Ales for ALS' Campaign to Battle Lou Gehrig's Disease

Craft Brewers Nationwide Join the 'Ales for ALS' Campaign to Battle Lou Gehrig's Disease | #ALSAWARENESS #PARKINSONS | Scoop.it

BRAVO to all the Participating BREWERIES!!

 

Oregon Locations & Availability:

 

Full Sail Brewing Co.
506 Columbia Street
Hood River, OR 97301
http://www.fullsailbrewing.com/
Brew Name: Ales for ALS Pacific Northwest Wit
Availability: June 1


Deschutes Brewery Public House
901 SW Simpson Avenue
Bend, OR 97702
http://www.deschutesbrewery.com
Brew Name: Check Website for Details
Availability:   Check Website for Details


 

Ales for ALS craft brewers (by location) include:

California: Beachwood BBQ, Bear Republic Brewing, Brewery at Abigaile, Coronado Brewing Co., Drakes Brewing Co., Faction Brewing Co., Iron Springs Pub & Brewery, Pizza Port Brewing Co., Russian River Brewing Co., Sierra Nevada Brewing Co., Stone Brewing, Third Street Ale Works, Triple Rock Brewing Co.Colorado: New Belgium, Odell BrewingConnecticut: Willimantic Brewing Co.Delaware: Dogfish Head Brewing Co.Georgia: 5 Seasons Brewing Co.Massachusetts: Boston Beer Co. (Samuel Adams), Cambridge Brewing Co., Harpoon Brewery, Wormtown BreweryMissouri: Mother's Brewing Co.Nevada: Great Basin BrewingNew Mexico: La Cumbre Brewing Co., Marble BreweryNew York: Brooklyn Brewery, Captain Lawrence Brewing Co.North Carolina: Front Street BreweryOhio: Fat Head's Brewing Co., Great Lakes Brewing Co.Oregon: Deschutes Brewery Public House, Full Sail Brewing Co.Utah: Uinta Brewing Co.Washington: Bale Breaker Brewing Co., E9 Brewing, Fremont Brewing Co., Two Beers Brewing Co.
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In Memoriam: Barbara A. Brenner, 1951-2013

In Memoriam: Barbara A. Brenner, 1951-2013 | #ALSAWARENESS #PARKINSONS | Scoop.it

Even after ALS had silenced her vocal chords, Barbara Brenner’s powerful voice continued to send tremors into the medical establishment.

With the assistance of a text-to-speech computer program, Brenner, the former executive director of Breast Cancer Action, sent stinging missives to the head of the ALS clinical trials program and Food and Drug Administration officials, and continued her less public work

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Kona Inspired 2013 for ALS | Vote for April Hartsook

Kona Inspired 2013 for ALS | Vote for April Hartsook | #ALSAWARENESS #PARKINSONS | Scoop.it
Kona Inspired showing that “Anything Is Possible” http://konainspired.com
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Potential treatment for Parkinson’s, Alzheimer’s, dementia discovered

Potential treatment for Parkinson’s, Alzheimer’s, dementia discovered | #ALSAWARENESS #PARKINSONS | Scoop.it
A drug currently being used to treat leukemia has been found to help halt the production of toxic proteins in the brain linked to Alzheimer’s disease, Parkinson’s disease and various forms of dementia.
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PRO-ACT: Bigger & Better ALS Database Open for Mining - Bio-IT World

PRO-ACT: Bigger & Better ALS Database Open for Mining - Bio-IT World | #ALSAWARENESS #PARKINSONS | Scoop.it
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Please Join a Worldwide Weekend of Prayer for ALS | MND

Please Join a Worldwide Weekend of Prayer for ALS | MND | #ALSAWARENESS #PARKINSONS | Scoop.it
We Have A Prayer
for strength for those with ALS,
for comfort for those grieving,
for insight for those searching
for the cure.

Regardless of what they call this disease in your part of the world, please take a moment in May and pray in your own way for those dealing with ALS.Join with others around the globe to pray for those afflicted,affected and lost to ALS. Most importantly, join us in praying for an end to it all.  May 10th thru May 12th.

https://www.facebook.com/events/169246466573619/?notif_t=plan_user_joined 

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Soggy FIESTA 15k/5k Raises $23,000 for ALS Research

Soggy FIESTA 15k/5k Raises $23,000 for ALS Research | #ALSAWARENESS #PARKINSONS | Scoop.it
TEAM Cure ALS Foundation|www.TeamCureALS.com|Find us on Twitter:@TEAMCUREALS's insight:

Congrats @Cure_ALS ,  another AWESOME Event! You ROCK Karen!

Cure for ALS's curator insight, May 7, 11:21 AM

Heavy rain and gusting winds didn’t keep runners and walkers from supporting the Emory ALS Center on Saturday at the 7th Annual FIESTA 15k & 5k Challenge. 400 participants, nearly 2/3 of the total registered showed up at the Forsyth Conference Center at Lanier Tech with ponchos, rain jackets, and smiling faces to run for those who no longer can.  

 

FIESTA 15k runners took off in a heavy downpour while the FIESTA 5k race started about ten minutes later. Steve Wilcox and Susan Seibert crossed the finish line of the 15k race first, while Noah Schaich and Savannah Carnahan were the overall winners in the 5k event. A soggy Fun Run was held at 9:00am as happy children ran through puddles around the Lanier Tech campus.

 

“I really thought I would be the only person who showed up this morning,” shared Dr. Jonathan Glass, Director of the Emory ALS Center. He and the race organizers were humbled at the turnout, and proud of the amount raised for ALS research. The annual event raised $23,000 which benefits the Emory ALS Center.

 

One of the volunteers working on the race course, Amy Spivia, said, “being wet and cold for a few hours is nothing compared to what ALS patients go through.” 16 teams of fundraisers united to honor loved ones living with or who have died from the disease. Runners and walkers passed by rows of team signs as they started the course.

 

The event begins ALS Awareness Month each year on the first Saturday in May, and is hosted by Cure for ALS, a nonprofit organization whose mission is to support advocacy and awareness for ALS.

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Tag Days in Lake Zurich and Wauconda Honor Man with ALS (Lou Gehrig’s Disease)

Tag Days in Lake Zurich and Wauconda Honor Man with ALS (Lou Gehrig’s Disease) | #ALSAWARENESS #PARKINSONS | Scoop.it
On May 11 and 12, volunteers wearing yellow aprons and holding collection canisters will be stationed in front of stores throughout Wauconda and Lake Zurich as part of the Les Turner ALS Foundation’s Tag Days drives.
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A Breath of Relief: Inhaled Formulation of Levodopa Reduces ‘Off’ Periods in People with Parkinson’s

A Breath of Relief: Inhaled Formulation of Levodopa Reduces ‘Off’ Periods in People with Parkinson’s | #ALSAWARENESS #PARKINSONS | Scoop.it

Encouraging news today for Parkinson’s patients, and in particular, for those experiencing the often debilitating motor fluctuations associated with the disease.

 

Chelsea, Massachusetts-based biotech Civitas Therapeutics announced positive clinical trial results for their inhaled formulation of levodopa, called CVT-301. The Phase 2a study showed

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