#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
Raising ALS | Lou Gehrigs Disease & Parkinsons Disease AWARENESS to the NEXT LEVEL!
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Book About Ice Bucket Challenge Announced

Book About Ice Bucket Challenge Announced | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Pete Frates’ story, entitled Challenge, is due out in Fall, 2017.

 

Pete Frates and the Ice Bucket Challenge can now add another accomplishment to its ever-growing list.

With news rolling in about new breakthroughs in the fight against ALS and another year of challenges working its way through August, Frates’ story is set to become the topic of a new book, per an announcement on social media over the weekend.

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Heavy: Finding Meaning after a Terminal Diagnosis, A Young Family's First Year with ALS

Heavy: Finding Meaning after a Terminal Diagnosis, A Young Family's First Year with ALS

~ Kristin Neva (author) More about this product
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Heavy: Finding Meaning after a Terminal Diagnosis, A Young Family's First Year with ALS [Kristin Neva, Todd Neva] on Amazon.com. *FREE* shipping on qualifying offers. “There is pain and suffering in this world, but there is also joy, and not just suffering here and joy there
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Phil Timp's voice is weak but his smile can still brighten a room | Book: Moments That Took My Breath Away

Phil Timp's voice is weak but his smile can still brighten a room | Book: Moments That Took My Breath Away | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Two years after being diagnosed with Lou Gehrig's disease, it has robbed the use of Timp's legs, his right arm and now attacks his diaphragm and his ability to breathe, eat and speak.

 

With his voice fading, a new book - Moments That Took My Breath Away - speaks for him, telling others of his journey with this disease and episodes good and bad with daughter's Beth's Rett Syndrome, a severe neurological disorder of the brain.

"The book is something I started writing before I got my diagnosis and it was about our life with Beth. When I got the diagnosis, I had to reformat the whole story and add another huge mountain to climb," Timp said last week. "It's been very inspiring to many people who've already read it. I've gotten amazing responses from many people."

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Simi Valley couple write book about life with Lou Gehrig's disease | "One Blink at a Time"

Simi Valley couple write book about life with Lou Gehrig's disease | "One Blink at a Time" | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Sometimes it took two days to write one page of “One Blink at a Time,” a book about a Simi Valley man who has lived for 30 years with Lou Gehrig’s disease, according to Ismail and Cheryl Tsieprati, the authors who recently celebrated their 44th wedding anniversary.
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Peter Schrager On O.J. Brigance And His Book Strength of a Champion: Finding Faith and Fortitude Through Adversity

Peter Schrager On O.J. Brigance And His Book  Strength of a Champion: Finding Faith and Fortitude Through Adversity | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Peter Schrager joined Ed and Steve to talk about his book and O.J. Brigance.
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The Stars That Shine by Jodi O'Donnell-Ames, Author

The Stars That Shine

~ Jodi O'Donnell-Ames (author) More about this product
Price: $14.99

Sarah has a problem. Every year she and her father march in the Fourth of July Parade. This year is different. Sarah's daddy is sick and can no longer walk. To make matters worse, he relies on a wheelchair, an UGLY wheelchair. Sarah has to decide whether she will listen to her pride and break a father-daughter tradition or listen to her heart and embrace a new one. Through her compassion, Sarah learns not only to accept her father's new wheelchair, but his disability as well. The Stars That Shine is a lovely tribute to all children who live with a disabled or terminally ill parent. Enclosed are resources for ALS patients, their caregivers and children. Although this story is about ALS, the message resonates with all families who live with similar challenges. 

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