ALS,MND A story that needs telling
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Rescooped by Chuck Hummer from #ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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Mayo Clinic researcher gets Dept. of Defense grant for research into Lou Gehrig's disease

Mayo Clinic researcher gets Dept. of Defense grant for research into Lou Gehrig's disease | ALS,MND A story that needs telling | Scoop.it

Leonard Petrucelli, chair of the department of Neuroscience at the Mayo Clinic in Jacksonville, has received a 2013 Amyotrophic Lateral Sclerosis Research Program’s investigator-initiated award, which focuses on the discovery and validation of ALS biomarkers.

ALS (amyotrophic lateral sclerosis), also known as Lou Gehrig’s disease, is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Eventually, people with ALS lose the ability to initiate and control muscle movement, which often leads to total paralysis and death within two to five years of diagnosis. There is no cure and no life-prolonging treatments for the disease.

The Amyotrophic Lateral Sclerosis Research Program is a............


Via TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
Chuck Hummer's insight:

This great news.

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Rescooped by Chuck Hummer from #ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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Medicare Coverage for Speech Generating Devices - Effective April 2014

Medicare Coverage for Speech Generating Devices - Effective April 2014 | ALS,MND A story that needs telling | Scoop.it
Medicare Coverage for Speech Generating Devices

Via TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
Chuck Hummer's insight:

Now this screwy move is worth pissing and moaning about. Contact your Congressional representatives to pressure to gut this outrageous action.

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Rescooped by Chuck Hummer from #ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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Hilary Swank's ALS Film 'You're Not You' Coming to U.S. Theatres 2014

Hilary Swank's ALS Film 'You're Not You' Coming to U.S. Theatres 2014 | ALS,MND A story that needs telling | Scoop.it

It’s been a while since Hilary Swank has graced the American cinema screen with her strong jawline and even stronger performances. But that’s all about to change with You’re Not You, Hilary Swank’s ASL drama, which just got a U.S. distribution. Co-starring Emmy Rossum and Josh Duhamel, the film centers around the relationship between a woman who has immobilizing ALS (Lou Gehrig’s disease), and the young.............


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Chuck Hummer's insight:

We need all the media awareness that can be corralled.

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Angela Renee's comment, April 10, 2014 1:39 PM
ALS* not asl... typo?
Angela Renee's comment, April 10, 2014 1:39 PM
Cant wait until this comes out. . No release date?
Shawn Stinnett's curator insight, May 8, 2014 6:40 PM

a must see!!!

Rescooped by Chuck Hummer from #ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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Social Media - Making Connections Through Technology - The ALS Association

Social Media - Making Connections Through Technology - The ALS Association | ALS,MND A story that needs telling | Scoop.it

We are a society that is now connected through Facebook, Twitter and other media sites, which can be accessed through phones, computers, tablets, and other devices. It’s a part of our world, and many people with ALS want to remain connected and may want to share their journey with others and find other people with this diagnosis for friendship and support...........


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Jade Nicole Burman's curator insight, November 8, 2014 9:21 PM

This is completely true. Social media is an amazing tool not only for raising money and awareness, but to provide support and share your struggles so other people can relate and not feel so alone. There are cases actually where people with diseases met over social media and one day came together because of the make a wish foundation. That's just another great example of the wonderful effects social media does have in our world today.

Rescooped by Chuck Hummer from #ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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Georgia men undergo risky surgery in battle against ALS

Georgia men undergo risky surgery in battle against ALS | ALS,MND A story that needs telling | Scoop.it
Two Georgia men are among those willing to risk everything to try to stop ALS.

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Rescooped by Chuck Hummer from #ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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ALS Nuedexta Study Seeks 60 Participants

ALS Nuedexta Study Seeks 60 Participants | ALS,MND A story that needs telling | Scoop.it
ALS Nuedexta Study Seeks 60 Participants

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Rescooped by Chuck Hummer from #ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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Living with ALS and Social Media

Living with ALS and Social Media | ALS,MND A story that needs telling | Scoop.it
Living with ALS and using social media to communicate

 

Video Link: 

http://www.tv3winchester.com/news/headlines/Living-with-ALS-and-Social-Media-229620421.html  ;

 

 

 Winchester, VA - Sandi Waugerman has been living with ALS also known as Lou Gehrig's disease.

 

"She needs constant care, she can not do one thing for herself but blink her eyes," said June Weatheholtz Sandi's nurse.

 

Lou Gehrig's disease effects the total body making it impossible to talk, walk, and even swallow by yourself. Sandi doesn't let that stop her from having a voice. She uses social media such as Facebook, Twitter, and Skype to communicate with her family.

 

She also remains positive and uses her experience to help others with ALS giving them information and contacts all through social media. Sandi's family said that they try to focus on the positive especially since Sandi stays so positive about life. 


Via TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
Chuck Hummer's insight:

Sandi is a frequent poster to FB. She is getting the word out.

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Rescooped by Chuck Hummer from #ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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CIRM Stem Cell Research Updates: Thousands of California ...

CIRM Stem Cell Research Updates: Thousands of California ... | ALS,MND A story that needs telling | Scoop.it
“Fascinating,” “amazing”, “awesome”. Those were just some of the words that students used to describe learning about stem cells as part of Stem Cell Awareness Day. These particular comments came from students ...

Via TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
Chuck Hummer's insight:

California is setting the pace on stem cell research. Maybe this will find some hope for PALS.

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Rescooped by Chuck Hummer from ALS,MND A story that needs telling
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Diaphragm pacing systems improve quality of life for ALS patients - News-Medical.net

Diaphragm pacing systems improve quality of life for ALS patients - News-Medical.net | ALS,MND A story that needs telling | Scoop.it
Diaphragm pacing systems improve quality of life for ALS patients
News-Medical.net
Respiratory failure is one of the major complications associated with amyotrophic lateral sclerosis (ALS).
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People with ALS may benefit from University of Pittsburgh study - Allentown Morning Call

People with ALS may benefit from University of Pittsburgh study - Allentown Morning Call | ALS,MND A story that needs telling | Scoop.it
People with ALS may benefit from University of Pittsburgh study Allentown Morning Call Wang was at a symposium in Butler County hosted by the Western Pennsylvania Chapter of the ALS Association Saturday to talk about the brain computer interface...
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Google Calendar

Google Calendar | ALS,MND A story that needs telling | Scoop.it
Chuck Hummer's insight:

We are out of our home and in the motel until next Monday. We are beginning our one way migration to Enfield, NH, our new home with our son, Steve. Preparing for this move has fallen to my loving bride, Sandy. I'm not much help stuck speechless in my trusty powerchair.

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ALS Assoc.- Gehrig PSA Campaign| TIME Magazine Issued Release: 4.21.2014

ALS Assoc.- Gehrig PSA Campaign| TIME Magazine Issued Release: 4.21.2014 | ALS,MND A story that needs telling | Scoop.it

A PSA campaign developed by Red Deluxe Brand Development for the national ALS Association has its first pickup: the April 21 issue of TIME magazine. The new campaign recognizes 2014 as the 75-year anniversary of Lou Gehrig’s retirement from baseball due to ALS, and it calls attention to the ongoing fight against the disease that is often called simply “Lou Gehrig’s Disease.”

The national campaign remembers Gehrig’s emotional farewell speech in 1939 when he declared himself the “luckiest man on the face of the earth.”

In additional to PSA placements in.................

 
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Chuck Hummer's insight:

I welcome this proactive approach by the ALS Association.

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The Noble Spirit: Say Goodbye to Fred Noble at April 9 movie premiere

The Noble Spirit: Say Goodbye to Fred Noble at April 9 movie premiere | ALS,MND A story that needs telling | Scoop.it
Few people embody a true zest for life quite like Fred Noble, and even as he struggles with a disease that means an unrelenting and painful decline to death, he is reaching out to inspire others in the eternal quest to find meaning, purpose and happiness

 

Follow The Noble Spirit-Fred Noble on Facebook: https://www.facebook.com/frednoblespirit ;



Via TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
Chuck Hummer's insight:

Fred is telling the story of all living with this horrible disease. I also have ALS and am walking in Fred's footsteps.

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Rescooped by Chuck Hummer from #ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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University High coach Jim Tracy succumbs to ALS

University High coach Jim Tracy succumbs to ALS | ALS,MND A story that needs telling | Scoop.it
Sure enough, the state's winningest cross-country coach delivered a rousing speech to inspire the boys' basketball team to victory against rival Lick-Wilmerding in their annual game at Oracle Arena. According to Ketcham, he died peacefully in his sleep. Tracy's fight and dedication to a sport and his runners gained national and worldwide attention after his top runner in the 2010 state finals, Holland Reynolds, fell 10 yards from the finish line, stricken with dehydration and hypothermia. The story reached the New York Times and ESPN, head coach Tom Coughlin used it to inspire the New York Giants to a 2012 Super Bowl win and Reynolds' mother, Robin Hauser Reynolds, a filmmaker, co-directed an award-winning documentary entitled "Running for Jim." Midvale arrived for its consolation Bishop Gorman Desert Classic Tournament game in Las Vegas 10 minutes before the opening pitch; otherwise Lowell coach John Donohue would have recorded his 700th win with an unceremonious forfeit. Heritage-Brentwood senior Frank Kurtz recorded the state's top 400 meters this season, winning in 47.58, Dublin sophomore Mecca McGlaston won the 100-meter hurdles in 14.03, third best in the state, and Tamalpais-Mill Valley pole-vaulter August Kiles (15-11 3/4) and Menlo 400 runner Madeline Price (55.22) recorded the state's fourth-best marks. Cal-bound Mitty shortstop Jazmyn Jackson was named the most valuable player of the 20th Livermore Stampede softball tournament Saturday after the Monarchs (13-0) defeated Elk Grove-Pleasant Grove 6-0 in the title game. Pleasant Grove defeated Livermore 1-0 in the other semifinal on an RBI single from Marissa Maligad. Johanna Grauer earned MVP honors and extended her streak to 86 1/3 innings without giving up an earned run as Amador Valley, ranked third nationally, defeated Los Alamitos 2-1 in the title game of the Michelle Carew Classic in Anaheim.

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Steve Gleason to be featured on NFL Network-11.26.2013

Steve Gleason to be featured on NFL Network-11.26.2013 | ALS,MND A story that needs telling | Scoop.it

Former New Orleans Saints special teams ace Steve Gleason will the subject of the NFL Network’s Emmy-nominated series “A Football Life” this week. 

 

The one-hour show airs at 8 p.m. Tuesday with an encore presentation at 11 p.m. Also, “A Football Life: Backstory,” a special half-hour in-studio show that will air at 9 p.m., will delve deeper into Gleason’s story.


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Rescooped by Chuck Hummer from #ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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My Name is Emily | By: Simon Fitzmaurice Irish Film-maker with MND | ALS

My Name is Emily | By: Simon Fitzmaurice Irish Film-maker with MND | ALS | ALS,MND A story that needs telling | Scoop.it
▶ MY NAME IS EMILY is a feature film by Simon Fitzmaurice, an award winning Irish film-maker with MND (ALS)

 

* You Can Donate Here: 

http://www.indiegogo.com/projects/my-name-is-emily

 

 

 

 


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Rescooped by Chuck Hummer from #ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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Different Disease Processes Caused by Different ALS Genes - The ALS Association

Different Disease Processes Caused by Different ALS Genes - The ALS Association | ALS,MND A story that needs telling | Scoop.it
The ALS Association encourages scientific research to find a cure for ALS, heightens awareness of the nature of the disease, stimulates volunteerism and activism, and increases awareness of government leaders to encourage support of research and...

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Chuck Hummer's insight:

Some iinteresting scoop on ALS.

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Rescooped by Chuck Hummer from #ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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From patient stem cells to potential treatment strategy in Lou Gehrig's disease

From patient stem cells to potential treatment strategy in Lou Gehrig's disease | ALS,MND A story that needs telling | Scoop.it
Although the technology has existed for just a few years, scientists increasingly use "disease in a dish" models to study genetic, molecular and cellular defects.

Via TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
Chuck Hummer's insight:

I'm  picking up many good reports on ALS research using Soop It. Yould sould try it. It's free.

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Tobii Prepares Cheap Eye Controller for PCs, May Ruin First-Person Shooters

Tobii Prepares Cheap Eye Controller for PCs, May Ruin First-Person Shooters | ALS,MND A story that needs telling | Scoop.it

The company's first mass market eye tracker could cost around $100. (Tobii prepares cheap ($99.00!!


Via TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
Chuck Hummer's insight:

This is placing eye gaze communication within many more of us. PALS eporting good about Tobii.

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Diaphragm pacing systems improve quality of life for ALS patients - News-Medical.net

Diaphragm pacing systems improve quality of life for ALS patients - News-Medical.net | ALS,MND A story that needs telling | Scoop.it
Diaphragm pacing systems improve quality of life for ALS patients
News-Medical.net
Respiratory failure is one of the major complications associated with amyotrophic lateral sclerosis (ALS).
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Walk in Poughkeepsie to Benefit ALS Patients - Hudson Valley Reporter

Walk in Poughkeepsie to Benefit ALS Patients - Hudson Valley Reporter | ALS,MND A story that needs telling | Scoop.it
Hudson Valley Reporter
Walk in Poughkeepsie to Benefit ALS Patients
Hudson Valley Reporter
POUGHKEEPSIE, N.Y. – In 1939, Lou Gehrig stood on the field of Yankee Stadium and spoke about his battle with ALS.
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