BIO and Sen. Kay Hagan (D-NC) are working on draft legislation that would clear a shortcut through clinical trials straight through to the FDA for developers engaged in rare disease drug work, Read more...
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Latest research news about ALS (Lou Gehrig's Disease) from around the world
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"RNL Opens the World's Largest Stem Cell Medical Center in Beijing. The grand opening ceremony was held on November 10, 2011." Delete the scoop?
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These presentations were made at the Walter Washington Convention Center in Washington, DC. There were 32,506 people at the conference by the end of the day on Monday. Delete the scoop?
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A biotech company that after much turmoil and huge expense launched the first human embryonic stem cell clinical trial in the United States is getting out of the stem cell business. Delete the scoop?
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"In the short space of three months, a second gene has been published linking MND to the protein recycling system in our cells. Leading this research was Prof Teepu Siddique, eminent MND researcher from North Western University in Chicago USA. Not only was he the founder of the first MND causing gene SOD1, but he also led the group that identified faults in the UBQLN2 gene in MND in August 2011." Delete the scoop?
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PHILADELPHIA - Amyotrophic lateral sclerosis (ALS), or Lou Gehrig's disease, is a universally fatal neurodegenerative disease. Mutations in two related proteins, TDP-43 and FUS, cause some forms of ALS. Specifically, these two proteins are RNA-binding proteins that connect to RNA to regulate the translation of proteins and other cellular functions such as RNA splicing and editing. In a new study, researchers at the Perelman School of Medicine at the University of Pennsylvania discovered additional human genes with properties similar to TDP-43 and FUS that might also contribute to ALS. Delete the scoop?
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Could you be next? Someone you know? A loved one? Why is there a greater risk of ALS with military service? What is ALS? It is absolutely critical that we understands that ALS continues to strike our veteran heroes from across the country and that we must act to ensure that veterans with ALS receive the benefits and the help they deserve and have earned. Delete the scoop?
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"On Monday, lawyers for Gloria Taylor, 63, will be in B.C. Supreme Court to argue against laws that make it a criminal offence to help seriously ill people end their lives." Delete the scoop?
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Local artist Tom Green has been painting since 1965, but will soon lose control of his motor skills. Green has Lou Gehrig's disease but continues to paint. Delete the scoop?
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"BrainStorm Cell Therapeutics Inc., a developer of innovative adult stem cell technologies for debilitating neurodegenerative disorders, today announced that BrainStorm’s Phase I/II clinical trial for amyotrophic lateral sclerosis (ALS) at the Hadassah Medical Center, was featured on the Israeli Radio popular Morning News." Delete the scoop?
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In the wake of the European Court of Justice’s ruling last month to ban all patenting of procedures that utilize human embryonic stem cells (ES cells), I spoke with Oliver Brüstle, Director of the Institute of Reconstructive Neurobiology at the University of Bonn. Delete the scoop?
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"Amorfix Life Sciences, a product development company focused on diagnostics and therapeutics for misfolded protein diseases, today announced that the Company is developing a blood test to be used as a diagnostic tool for amyotrophic lateral sclerosis (ALS)." Delete the scoop?
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"California Stem Cell, Inc. (CSC) announced today that despite recent financial setbacks at Geron Corp., CSC's own stem cell therapeutic programs remain financially viable and are progressing on schedule. The announcement was prompted by recent news that Geron Corp. is ceasing development of its treatment for spinal cord injury currently in phase 1 clinical trials." Delete the scoop?
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Notes from Motor Neuron Disease Mechanisms III (Sunday November 13, 2011) at 41st SFN in Washington, DC Delete the scoop?
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Saturday’s session of the 41st annual meeting of the Society of Neuroscience included a nanosymposium on potential molecular mechanisms related to motor neuron disease. The session was chaired by Jordi Magrane, Ph.D. from the Weill Cornell Medical College in New York. Delete the scoop?
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Two proteins conspire to promote a lethal neurological disease, according to a study published online this week in the Journal of Experimental Medicine Delete the scoop?
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New Disease Pathway Identified for ALS. Packard scientists discover that blocking a key molecule of inflammatory pathway may one day lead to better treatments. Delete the scoop?
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(Medical Xpress) -- Stanford University researchers are enrolling participants in a pioneering study investigating the feasibility of people with paralysis using a technology that interfaces directly with the brain to control computer cursors cursors, robotic arms and other assistive devices. Delete the scoop?
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BrainStorm Cell Therapeutics Inc., an innovative developer of adult stem cell technologies and CNS therapeutics, today announced that patients from across the globe are demanding to be included in the pioneering clinical study started earlier this year at Jerusalem's Hadassah University Medical Center. Delete the scoop?
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Steve Gleason, the Washington State standout linebacker of the late 1990s now afflicted with Lou Gehrig's disease, addressed the WSU football team in the hours before its game here Saturday night with Arizona State, then hoisted the school flag in a pregame ceremony. Delete the scoop?
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In March 2011, the ALS Therapy Development Institute entered into collaboration with the Muscular Dystrophy Association, the Alzheimer's Drug Discovery Foundation, and the Association for Frontotemporal Degeneration to fund the characterization of a new model of neurodegeneration called the TDP-43 mouse. This is a 12-month project with each partner providing substantial funding and expertise throughout. Delete the scoop?
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"Since the approval of riluzole for the treatment of amyotrophic lateral sclerosis (ALS) 17 years ago, more than 30 large clinical trials have been conducted, but none has proved successful. The failure to translate positive preclinical results into the clinical setting raises questions about the validity of the rodent model that is used to study ALS, and about the quality of both preclinical and clinical studies." Delete the scoop?
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Somebody at Apple took the challenges of the disabled seriously enough to write a complete, elegant and thoughtful feature that takes down most of the physical barriers to using an app phone. Delete the scoop?
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