ALS Awareness
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ALS Awareness
Nonprofit/Advocacy and fundraising for ALS. Find us on Twitter: @cure_ALS
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FIESTA 5K/15K CHALLENGE RAISES $36,000 FOR EMORY ALS CENTER

FIESTA 5K/15K CHALLENGE RAISES $36,000 FOR EMORY ALS CENTER | ALS Awareness | Scoop.it
Cumming, GA - 10th Annual Race for ALS Featured the Big Creek Greenway
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10TH ANNUAL FIESTA 5K/15K RAISING FUNDS FOR ALS

10TH ANNUAL FIESTA 5K/15K RAISING FUNDS FOR ALS | ALS Awareness | Scoop.it
Cumming, GA - April 30th Event at Fowler Park Benefits Emory ALS Center
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A Decade of Running for ALS - 10th Annual FIESTA 5k/15k Challenge

A Decade of Running for ALS - 10th Annual FIESTA 5k/15k Challenge | ALS Awareness | Scoop.it
Cure for ALS's insight:
#runLOCO4ALS

10 years ago, the inaugural Blazeman Warrior 5k was held at South Forsyth High School. We've evolved over the past decade, had a few name changes, a few different venues and courses, and added a longer distance option. What hasn't changed is the mission to STOP ALS. Our passion for the cause hasn't waivered, nor our commitment to host a great race for you. Some of you have been there every year - thank you! Whether this is your tenth or first, we are excited about the 10th annual FIESTA 5k/15k Challenge.


Race day is Saturday, April 30, 2016. That is just a few months so make sure to register, start training, create a fundraising team, and spread the word. We need YOU to help STOP ALS.

As always, 100% of the proceeds benefits the Emory ALS Center. 


NEW VENUE: We've moved to Fowler Park in Cumming and the 15k and 5k courses will be on the beautiful Big Creek Greenway. Those of you who have dreaded, but persevered the hills of our previous course will be happy to know that the new course is much flatter!


Invite your running groups to this favorite spring race of north Georgia runners. Register at  https://runsignup.com/Race/GA/Cumming/FIESTA5k15kChallenge ;


BECOME A FUNDRAISER:
Add to your FIESTA experience by creating a fundraising team. Each year many people join us in raising money to support ALS research being done at the Emory ALS Center.

 

To create a fundraising team or make a donation visit:

https://www.crowdrise.com/2016Fiesta5k15k ;

 

Want to sponsor or volunteer? Visit www.FiestaRunGA.com .

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CONGRATULATIONS! 2016 NCAA Inspiration Award: O.J. Brigance

CONGRATULATIONS! 2016 NCAA Inspiration Award: O.J. Brigance | ALS Awareness | Scoop.it
Brigance’s battle is moving, but the people who knew him best when he was Rice’s star defensive player in the late 1980s say ALS didn’t make him an inspiration, it simply found its way into a man who already was one: Today, he is the same person who once wrung every drop of sweat from his teammates on the field and who was their conscience off of it.

Via TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
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#runLOCO4ALS

#runLOCO4ALS | ALS Awareness | Scoop.it
Cure for ALS's insight:
We know you can’t believe it but we are just 6 months away from the 10th annual FIESTA 5k/15k Challenge!

Two pieces of BIG NEWS here --- 
• The first Saturday in May is Mother’s Day weekend so we race day is Saturday, April 30th.
• WE HAVE A NEW LOCATION! We are moving to Fowler Park in Cumming and you will be running/walking on the Big Creek Greenway. You will enjoy the beauty of the winding path among nature and you will love the flatter course.


Registration is OPEN athttps://runsignup.com/Race/GA/Cumming/FIESTA5k15kChallenge   and the fundraising site to donate or create your fundraising team is also open. Just click on the “donate” tab of registration to link to the Crowdrise page.


If you wish to sponsor you can download the 2016 sponsor package at www.FiestaRunGA.com from the Sponsor page.


You can start using the hashtag #runLOCO4ALS now and let the world know that we have been committed for 10 years and have no intention of letting up until we stop ALS!

                       ≈ ≈ ≈There are some of great local races coming up and we hope to see many of you at these events:

Thanksgiving Day – November 26, 2015: Dahlonega Turkey Trot 5k & Fun Run
It’s always a fun way to begin the day and get yourself ready for that big holiday meal. This race benefits Lumpkin County Family Connection.

You can register online at https://runsignup.com/Race/GA/Dahlonega/2015TurkeyTrot ;

____________________________________________________________

December 19, 2015: 28th annual Jingle Jog 5k/Jr./Elf Run
An Atlanta tradition, this is the best holiday race with great costumes, jingle bells, entertainment, and fun. It benefits the Salvation Army and is a great way to get into the holiday spirit.

Register www.jinglejog.com .

____________________________________________________________

February 6, 2016: 10th annual Tartan Trot 5k/10k

Raising funds for missions at St. Luke’s Presbyterian Church, this Dunwoody race is famous for kilt-wearing runners, bagpipes, and tons of fun. Another favorite is the yummy baked goods after the race!

Online registration and all information is at www.tartantrot.com .

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TERANCE MATHIS TO HOST 3RD ANNUAL CELEBRITY GOLF CLASSIC TO BENEFIT THE EMORY ALS CENTER

TERANCE MATHIS TO HOST 3RD ANNUAL CELEBRITY GOLF CLASSIC TO BENEFIT THE EMORY ALS CENTER | ALS Awareness | Scoop.it
Cure for ALS's insight:

 

Suwanee, GA, September 3, 2015– Former Atlanta Falcon, Terance Mathis, is once again teaming with Cure for ALS to host the Terance Mathis Celebrity Golf Classic on September 14th at Alpharetta Athletic Club in Alpharetta, GA. This is the third year Terance is hosting the event to raise funds for the Emory ALS Center.

 “Nobody is immune to getting ALS. It literally can strike anyone. I have run across more people over the past year that have lost love ones to ALS. Their stories are heart breaking, and the fact that so many professional athletes have been diagnosed really hits home with me,” says Mathis.

Tournament players and sponsors will raise awareness and help make a difference for pALS (people with ALS) while having the opportunity to socialize with some of their favorite NFL stars and other celebrities and VIPs. Each group of three will be joined by one of Terance’s celebrity friends. It will be like a Dirty Bird reunion with former Atlanta Falcons:


     Terance Mathis, Jamal Anderson, DJ Shockley, Peerless Price,      Brian Jordan, Ruffin Hamilton, Michael Haynes, Gerald RIggs,        Harold Green, Cornelius Bennett, Bobby Butler, Ray Buchanan,      David Brandon, OJ Santiago, Henri Crockett, Chris Mohr

 

Professional boxer, Evander Holyfield will be punching golf balls on the course instead of opponents in the ring. Other celebrity sports greats playing are: Angelo Taylor, Arthur Culbreath, Dan Bouchard, Nicole Watson, John Barrett – and NFL stars:  Tim Shaw, Greg Lloyd, Sterling Sharpe, Ronnie Brown, Bobby Humphrey, Alphonso

Carreker, Kevin Butler, Kordell Stewart, Nate Wayne, Fred Banks, Perry Kemp. VIPs from the entertainment industry attending are Ron Devoe, Drew Stevenson, Paul Goodloe, and Tommy Davidson.

 

An awards reception will follow the round where prizes will be presented to contest winners and the Top 3 Teams. Former Tennessee Titan Tim Shaw is the special guest speaker. Tim was diagnosed with ALS in 2014 and

 announced his diagnosis during the Ice Bucket Challenge. He has been a tireless advocate and inspiration in the ALS community with his energetic spirit and positive outlook.

 

Although the event has reached capacity in participants, donations can be made at:

https://www.crowdrise.com/TeranceMathis2015/fundraiser/karenduffy1 ;

 

About ALS

ALS is a neuromuscular disease that attacks the brain and spinal cord. There is no cure and the average life span after diagnosis is 2-5 years. It takes away the ability to move, speak, swallow, and ultimately breathe. There are approximately 30,000 people in the U.S. are living with ALS; over 500 are in Georgia.

 

About the Emory ALS Center

Located in Atlanta, the Emory ALS Center is one of the largest clinical centers for ALS in the United States. The team of neurologists, neurosurgeons, nurses, therapists, and dieticians care for both the physical and emotional needs of patients and their families, while scientists and researchers work in the laboratory to discover how to stop the disease. The focus is on independence and quality of life through state-of-the-art intervention.

 

# # #

If you would like more information about this topic, please contact Karen Duffy at 678-491-0639 or email at teamduffy@gmail.com .

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NORTH GEORGIA RUNNERS HIT THE STREET FOR EMORY ALS CENTER

NORTH GEORGIA RUNNERS HIT THE STREET FOR EMORY ALS CENTER | ALS Awareness | Scoop.it
Cure for ALS's insight:

9TH Annual FIESTA 5k/15k Challenge Raises $25,000


Cumming, GA, May 4, 2015– Nearly 700 participants gathered to #runLOCO4ALS at the 9th Annual FIESTA 5k/15k Challenge on Saturday. The event was held at the Lanier Technical College’s Forsyth Conference Center in Cumming.


Fifteen year old Byron Grogan wowed the crowd, finishing 1st overall in the 15k (1:00:50), and Abby Hotaling was the 15k overall female winner (1:06:46). In the 5k distance the overall winners were Noah Schaich (18:04) and Holly Jimenez (19:45). There was also a Fun Run where young children ran the perimeter of the Lanier Tech campus and crossed the finish line with giant smiles.


Sponsors for the event included Control Southern, Inc., Star 94/ESPN 790 The Zone, Community & Southern Bank, MECO, Children’s Healthcare of Atlanta, HisGrip Homecare, Andean Chevrolet, Billy Howell Ford, and more. Music, big sombreros, and some festive costumes added to the Fiesta atmosphere for a morning of great family fun.


May is ALS Awareness Month and the nonprofit organization, Cure for ALS, hosts the FIESTA 5k/15k Challenge each year on the first Saturday in May to begin the month long advocacy campaign. ALS (Amyotrophic Lateral Sclerosis) is a universally fatal neuromuscular disease that can strike anyone without warning. The average life span after diagnosis is only 2-5 years. It takes away the ability to move, speak, swallow, and ultimately breathe. There are approximately 30,000 people in the U.S. are living with ALS; over 500 are in Georgia.


The Emory ALS Center is one of the largest clinical centers for ALS in the United States. The team of neurologists, neurosurgeons, nurses, therapists, and dieticians care for both the physical and emotional needs of patients and their families, while scientists and researchers work in the laboratory to discover how to stop the disease. The focus is on independence and quality of life through state-of-the-art intervention. For more information about the Emory ALS Center visit www.als.emory.edu  .


The next event for Cure for ALS is the Terance Mathis Celebrity Golf Classic which will be held on Monday, September 14, 2015 at the Alpharetta Athletic Club. All proceeds from the event will benefit the Emory ALS Center. For more information visit www.terancemathisgolf.brownpapertickets.com .


# # #

 

Cure for ALS

www.cureforals.com 

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Take the 21 Day FIESTA Fitness Challenge

Take the 21 Day FIESTA Fitness Challenge | ALS Awareness | Scoop.it
Cure for ALS's insight:

Take the Pre-Race 21 Day Fitness Challenge!


We are excited to partner with 21 Day Fitness Challenge for a pre-race program that starts on April 11, 2015. The 21 Day Fitness Challenge is a fun way to make exercise, eating well, and other healthy lifestyle behaviors habits for life.

 

The 21 Day FIESTA Fitness Challenge is ready for you to sign up. We’ve chosen 6 simple action items. During your challenge you can login to your personal online dashboard to quickly score and track your progress. It’s simple and fun! The cost of the 21 Day Challenge is $10 ($5 of each challenge will be donated to the Emory ALS Center).

 

The 21 Day Fitness Challenge works for those who are just beginning the journey to a healthy lifestyle or those already committed who may want/need to get back on track. This is also a way for our global supporters of ALS to participate in the FIESTA 5k/15k Challenge even though you are far away from Georgia.

 

Read more about the program and signup at:  http://21daychallenges.com/fiesta-challenge/

 

Remember race day is Saturday, May 2, 2015. Join us at the Forsyth Conference Center at Lanier Tech in Cumming, GA to run LOCO for ALS! All proceeds benefit the Emory ALS Center.

 

www.FiestaRunGA.com 

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FIESTA 5k/15k Challenge for ALS Just 2 Months Away

FIESTA 5k/15k Challenge for ALS Just 2 Months Away | ALS Awareness | Scoop.it
Cure for ALS's insight:

Race day is Saturday, May 2, 2015 - are you registered yet? Those of you already registered have probably begun training. If you have not yet signed up go to www.runsignup.com/Race/GA/Cumming/FIESTA5k15kChallenge ; . You can choose from the 15k, 5k, or Fun Run races. If you plan on walking, you will want to choose the 5k or Fun Run. Strollers, wheelchairs, and dogs are welcome in those races. Awards will be presented in the 5k race for Overall Male/Female, Overall Masters Male/Female, and Top 3 in Age Groups of five year increments. Participants of all three races receive a t-shirt with entry fee -- guaranteed to those registered by April 16, 2015. 

 

Training plans are posted at www.FiestaRunGA.com  on the Race Info tab.There are plans for the 5k and 15k distances. These are written as nine week plans so now is the time to begin. 

 

IMPORTANT INFORMATION FOR 15K RUNNERS:

FINISHER MEDAL -Pictured above is the medal that all 15k runners will receive when they finish. This might even make you want to stretch yourself from the 5k to 15k distance this year.We are thrilled to welcome TIMEX Ironman as a sponsor. The Top 3 Overall Male and Female finishers in the 15k distance will receive a TIMEX Ironman watch! Other awards for the 15k distance are Overall Male/Female, Overall Masters Male/Female, and Top 3 in Age Groups of five year increments. (yes, if you are Overall Male or Female you’ll get double prizes!)No strollers or dogs are allowed on the 15k course. You must be able to finish in 2 hours, 15 minutes; any runners still on Peachtree Pkwy. at 9:30am will be moved to the sidewalk on the approach to Ronald Reagan Blvd.

 

Why are we running LOCO? We are LOCO for ALS.

All money raised from the FIESTA 5k/15k Challenge benefits the Emory ALS Center. If you want to donate beyond your entry fee click “Donate” from the registration page. We already have seven teams of fundraisers – you can designate a donation to a specific team or to the general fund for the race.

 

New this year – you can designate a team you are supporting: During the online registration process you will be asked if you are running as part of one of our fundraising teams. Of course you can also make a donation to the team, too!

 

Make sure to visit www.FiestaRunGA.com often for updates and important race information.

 

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FIESTA 5k/15k Challenge another way to help your Ice Bucket Challenge commitment help others

FIESTA 5k/15k Challenge another way to help your Ice Bucket Challenge commitment help others | ALS Awareness | Scoop.it
Cure for ALS's insight:

Did you do the Ice Bucket Challenge last summer? Here is a way you can continue to support ALS.


The 9th annual Fiesta 5k/15k Challenge is Saturday, May 2, 2015 at the Forsyth Conference Center. This race has raised $150,000 for the Emory ALS Center since it began. We hope you'll continue your support of ALS and join us on May 2.


Register, sponsor, volunteer, or donate at www.FiestaRunGA.com .


Get LOCO for ALS!

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"ALS Just Sucks"

"ALS Just Sucks" | ALS Awareness | Scoop.it
Five years after being diagnosed with Lou Gehrig's disease, Mickey Beard sometimes wonders what's taking so long. But the blues-loving hot rod-building lacrosse coach shares his burden and ambraces the people drawn to his side.
Cure for ALS's insight:
Micky Beard has lived with ALS for five years. The Georgia high school girls' lacrosse coach has gone on by still embracing the people drawn to his side.
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What Color is ALS?

What Color is ALS? | ALS Awareness | Scoop.it
Cure for ALS's insight:

By Karen Duffy, Wednesday, October 29, 2014

 

Every year when the world turns pink I wonder – what color is ALS? Breast cancer is pink. When I see purple I think of Alzheimer’s disease and Crohns disease.  Bright yellow is the color of the Livestrong Foundation which supports people with all types of cancer. The puzzle piece in primary colors symbolizes Autism. Other diseases and causes have standard colors that unite their advocates, but ALS is kind of all over the place. The ALS Association uses red, while the ALS Division of the Muscular Dystrophy Association has a blue and white striped ribbon. Internationally, the Motor Neuron Disease (MND) has a combination of blue and orange in their messaging.

 

Amyotrophic lateral sclerosis (ALS) is a universally fatal neuromuscular disease that attacks the brain and spinal cord. The average life span after diagnosis is 2-5 years. ALS takes away the ability to move, speak, swallow, and ultimately breathe. ALS is a disease that struggles for identity in so many ways. It is considered an orphan disease. The generally accepted definition of orphan disease is: “a condition that affects fewer than 200,000 people nationwide.” In the United States it is estimated that 30,000 people are living with ALS at any given time.

 

I learned about ALS nine years ago while watching an NBC broadcast of the Ironman World Championship. Like most others, I’d heard of Lou Gehrig’s disease. I read Tuesdays With Morrie and had heard Lou Gehrig’s words, “I might have been given a bad break, but I've got an awful lot to live for,” but all I really knew was that Lou Gehrig’s disease was bad. Not only did I not know what the letters A L S stood for, but I had no idea that ALS was Lou Gehrig’s disease…and let’s face it, I didn’t truly know what that disease was. At the urging of our son, our family became involved in fundraising and advocacy for ALS. We educated ourselves on the disease – the onset, the symptoms, the progression – and then we met and visited people who had ALS, doctors who treated them, researchers who studied the disease. And then we dove in – full force, resolute to stay committed until a cure is found. We founded the nonprofit organization, Cure for ALS with this mission.

 

In nine years there have been great strides in research, treatments, and technology to help those living with ALS – but we all still await a cure. In the meantime, the small but mighty group of ALS Advocates across the country - the world - work tirelessly to give a voice to the voiceless and to get others to listen and learn. The recent Ice Bucket Challenge was mind-blowing for the ALS community. I hope Pete Frates and his friends have only opened the door and that the ice bucket challenge sensation was not a one-time campaign but the start of something much larger.

 

So getting back to my original question – What color is ALS? – how can we in the ALS community help to grow what Pete Frates and the Ice Bucket Challenge started? Perhaps one way is to unite in an identifying color…and what better color than something neon that stands out, hurts your eyes, and sticks in your memory? May is ALS Awareness Month in the U. S. and I propose we paint the country neon green. For one month next spring, May 2015, let’s change our logos to neon green, ask sports teams to wear jerseys, socks, or accessorize uniforms with neon green in support of ALS Awareness Month. Let us unite in a loud color to keep the momentum going and honor those we have lost, people living with ALS (pALS), and those who will be diagnosed.

 

For this article I’ve changed the Cure for ALS logo to neon green. In May we will kick off ALS Awareness month with our annual FIESTA 5k/15k Challenge and the event will be sporting a neon green color. Will you join us in painting the world neon for ALS? pALS are counting on you.

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FIESTA 5k/15k Challenge - Price Increase & Important Information

FIESTA 5k/15k Challenge - Price Increase & Important Information | ALS Awareness | Scoop.it
Cumming, GA - Help find a cure for ALS - register today!
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Inaugural Roswell Ball Raises $29,500 for Emory ALS Center

Inaugural Roswell Ball Raises $29,500 for Emory ALS Center | ALS Awareness | Scoop.it
Pictured left to right: Margie Powell, Manuela Davis, Scott Law – from Voila Salon, Dr. Jonathan Glass, Dr. Christina Fournier, Meraida Polak, RN – Emory ALS Center
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Atlanta, GA-April 5, 2016 - Scott Law and Manuela Davis, Owners, and Margie Powell, Stylist from Voila Salon in Roswell presented $29,500 to the Emory ALS Center from funds raised at the Inaugural Roswell Ball – Bow Ties & Pearls. The Mardi Gras themed gala was held at Country Club of Roswell on February 6, 2016 and sponsored by Brand Bank.

Live entertainment from Aerial Silks of Sky Gym Atlanta, a live “paint-off” by Atlanta Live Art Painters, silent and live auctions, and New Orleans jazz music from Ruby Red’s Band. Guests enjoyed dancing and celebrating late into the evening. Dr. Christina Fournier, Co-Director of the Emory ALS Center spoke about the work being done in the clinic and laboratory to care for those living with ALS, while conducting research to find a cure for the disease.

Hosts, Scott Law and Manuela Davis have been hosting fundraiser for 20 years. They began on a small level, holding a “cut-a-thon” where all proceeds would be given to a person in need in the community. Eight years ago, they organized their first art auction called “Art & Soul,” which benefited the Georgia Transplant Foundation. For 2016, the beneficiaries were chosen in honor of beloved friend, Jan Giordano, who is living with ALS, and also the Roswell Woman’s Club who service the greater North Fulton Area.

A strong team of volunteers worked to bring the Inaugural Mardi Gras Ball to Roswell, and they call themselves the “KREWE of Voila.” Members of the KREWE are: Liz Scull, David Sanders, Scottie and Travis Brewington, Brooke McGee, Libby Carbonell, Laura Jones, Susan Matherly, Ann Gordon, Joanne Carlton, Kelly Parish, Kelly Davis, Annette Whaley, Kendra Cox, Bridget Pulvarti, Patti Blalock, Ann Bailey, Chuck Milne, Amy and Robert Rios, and Melody Hardesty.

ALS (Amyotrophic Lateral Sclerosis), also known as Lou Gehrig’s disease, is a progressive neurodegenerative disease that affects the brain and spinal cord. It takes away the ability to move, speak, swallow, and ultimately breathe. There is no cure.

The Emory ALS Center is one of the largest clinical centers for ALS in the Unites States. Its team of neurologists, neurosurgeons, nurses, therapists, and dieticians care for both the physical and emotional needs of patients and families. The focus is on independence and quality of life through state-of-the-art intervention. The center’s physician-scientists also perform groundbreaking research.
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Click here to support Run Loco 4 ALS organized by Karen Duffy

Click here to support Run Loco 4 ALS organized by Karen Duffy | ALS Awareness | Scoop.it
Run Loco 4 ALS. Campaign ends Monday, April 04. Help us meet our fundraising goal of 100 shirts!
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Terance Mathis Presents Funds to Emory ALS Center from 3rd Annual Golf Fundraiser

Terance Mathis Presents Funds to Emory ALS Center from 3rd Annual Golf Fundraiser | ALS Awareness | Scoop.it
Cure for ALS's insight:

Atlanta, GA-December 7, 2015 - Former Atlanta Falcon, Terance Mathis presented a check for $10,800 to Dr. Jonathan Glass and Dr. Christina Fournier, Directors of the Emory ALS Center, from funds raised at the Terance Mathis Celebrity Golf Classic which took place on September 14, 2015. Partnering with Cure for ALS, Mathis was joined by an all-star roster of celebrities for the sold out event at the Alpharetta Athletic Club.

 

ALS (Amyotrophic Lateral Sclerosis), also known as Lou Gehrig’s Disease, is a progressive neurodegenerative disease that affects the brain and spinal cord. It takes away the ability to move, speak, swallow, and ultimately breathe. There is no cure.

 

The Emory ALS Center is one of the largest clinical centers for ALS in the Unites States. Its team of neurologists, neurosurgeons, nurses, therapists, and dieticians care for both the physical and emotional needs of patients and families. The focus is on independence and quality of life through state-of-the-art intervention. The center’s physician-scientists also perform groundbreaking research.

 

About Cure for ALS - Cure for ALS is a nonprofit organization whose mission is to host fundraising events, and support advocacy and awareness for ALS, to advance medical research that will discover a cure for this universally fatal disease. Our fundraising events benefit the Emory ALS Center in Atlanta, GA, supporting laboratory needs for clinical trials and research trials, and clinic needs such as staffing, therapies, and supplies needed to care for patients. www.cureforals.com 

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View as a webpage

View as a webpage | ALS Awareness | Scoop.it
Cure for ALS's insight:

Click the link below for information on the December 3rd Atlanta screening of CLIMB FOR KEVIN, and other upcoming ALS events.

http://campaign.r20.constantcontact.com/render?ca=7d38e99b-9afe-431b-a106-f28f082baf22&c=e034c4f0-203f-11e3-8208-d4ae528e486a&ch=e08778d0-203f-11e3-8257-d4ae528e486a

 

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TERANCE MATHIS CELEBRITY GOLF CLASSIC SCORES BIG FOR ALS

TERANCE MATHIS CELEBRITY GOLF CLASSIC SCORES BIG FOR ALS | ALS Awareness | Scoop.it
Cure for ALS's insight:

Sold Out event donates all proceeds to Emory ALS Center

 

Suwanee, GA  September 18, 2015– Atlanta Falcons all star, Terance Mathis announced that his 3rd annual Celebrity Golf Classic scored big for ALS awareness and funds raised for the Emory ALS Center. Partnering again with Cure for ALS, the former Pro Bowl wide receiver hosted a sold out event at Alpharetta Athletic Club on Monday.

 

ALS is a neuromuscular disease that attacks the brain and spinal cord. There is no cure and the average life span after diagnosis is 2-5 years. It takes away the ability to move, speak, swallow, and ultimately breathe, and it can strike anyone. Mathis understands that no one is immune to getting ALS and he pledges to remain committed until a cure is found. “If we can prolong life and the quality of life for patients, then we’re winning. But when we find a cure, we’ve won,” he says.  

 

Golfers in groups of three were paired with celebrity team captains for a great day on the course. In addition to host Terance Mathis and Tim Shaw, other celebrity captains were – from the NFL: Jamal Anderson, Morten Anderson, Fred Banks, Cornelius Bennett, David Brandon, Ronnie Brown, Kevin Butler, Alphonso Carreker, Henri Crockett, Randall Godfrey, Harold Green, Michael Haynes, Henry Hipps, Bobby Humphrey, Brandon Jacobs, Brian Jordan, Perry Kemp, Greg Lloyd, Chris Mohr, Peerless Price, Gerald Riggs, O.J. Santiago, Sterling Sharpe, DJ Shockley, Kordell Stewart, and Nate Wayne. Olympians, Arthur Culbreath and Angelo Taylor were celebrity team captains, as were Pete Smith, Dan Bouchard, Nicole Watson, Paul Goodloe, and John Barrett.

 

In addition to a gorgeous day on a course with excellent conditions, players were treated to an after-round reception that includedremarks from Jonathan Glass, MD, Director of the Emory ALS Center, and a moving presentation by former Penn State and NFL player Tim Shaw. The former Tennessee Titan linebacker was diagnosed with ALS in 2014. Tim shared his story and encouraged the attendees “stop taking life for granted. Be thankful for where you are right now and the God given abilities and gifts you have.” He also challenged everyone in the room to take the Ice Bucket Challenge if they didn’t this year – and to do it every year; to not look at it as a fad, rather an action that needs to be done until a cure is found.

 

The tournament took place on Monday, September 14th and incorporated a 50/50 cash prize putting contest, long drive and closest to the pin contests, as well as Hole-in-One opportunities and custom cigar rolling on the course. Sponsors included Crossroads Hospice Charitable Foundation, G2G, Woodruff Health Sciences, Harrah’s Cherokee Casino, Habersham Funding LLC, Integrity Medical, ALPHA Insulation & Waterproofing, Sign Kwik, Allgood Pest Solutions, Topgolf, Brand Mortgage, Mansfield Oil, GPI Financial, Palmer House Properties, Angel Oak Home Loans, Wash Me Fast, Octane 5, Chateau Cigar & Wine, Zaxby’s, Dabbs Keller Williams, Georgia Garage, CVS, Charity Golf International, and Dixon Golf. Awards were presented to the 1st, 2nd, and 3rd place teams and contest winners at a reception following the round.

 

All proceeds from the event will benefit the Emory ALS Center in Atlanta and help to fund research in the laboratory, clinical trials, and the Emory ALS Clinic. The Emory ALS Center is one of the largest clinical centers for ALS in the United States that provides true multidisciplinary care for patients and families with ALS and related disorders. Dr. Glass is the chief U.S. investigator for the Prjoect MinE, a global genetic research project. Emory will also soon be one of five sites in the U.S. for the Answer ALS Research Project.

 

For more information visit: Cure for ALS at www.cureforals.com  or Emory ALS Center at www.als.emory.edu .

 

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If you would like more information about this topic, please contact Karen Duffy at 678-491-0639 or email at teamduffy@gmail.com.

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ALS Association of Georgia and MDA Present Funds to Emory ALS Center from Joint Fundraising Even

ALS Association of Georgia and MDA Present Funds to Emory ALS Center from Joint Fundraising Even | ALS Awareness | Scoop.it

Pictured left to right: Karen Duffy-Cure for ALS, Ed Tessaro-ALS patient & advocate, Sarah Embro – ALSA GA Executive Director, Stephanie Jackson-MDA, Jonathan Glass, MD, Mark Stancil-ALSA GA Board Member

Cure for ALS's insight:

Atlanta, GA-June 30, 2015 - Representatives from The ALS Association of Georgia (ALSAGA) and the Muscular Dystrophy Association (MDA) presented $36,000 to Dr. Jonathan Glass, Director of the Emory ALS Center from funds raised at the inaugural Shoot Out ALS which took place on April 23, 2015. Blalock Lakes Hunting Club in Newnan, GA was the setting for the joint fundraiser hosted by ALSAGA and MDA. Jackson Healthcare was the Title Sponsor of the event that brought sportsmen and women out for a tournament of clay shooting, raffles, and ALS awareness.

 

Shoot Out ALS was a unique event in that it was a collaborative effort of the two national organizations who dedicate their work to ALS patients. ALS (Amyotrophic Lateral Sclerosis), also known as Lou Gehrig’s Disease, is a progressive neurodegenerative disease that affects the brain and spinal cord. It takes away the ability to move, speak, swallow, and ultimately breathe. There is no cure.

 

The Emory ALS Center is one of the largest clinical centers for ALS in the Unites States. Its team of neurologists, neurosurgeons, nurses, therapists, and dieticians care for both the physical and emotional needs of patients and families. The focus is on independence and quality of life through state-of-the-art intervention. The center’s physician-scientists also perform groundbreaking research.

 

About The ALS Association – Georgia Chapter

The ALS Association – Georgia Chapter is the only nationally affiliated not-for-profit health organization dedicated solely to the fight against Lou Gehrig’s Disease. The ALS Association – Georgia Chapter provides patient consultations, a medical equipment loan program, patient and caregiver support groups, and support for ALS clinics in Atlanta, Augusta and Macon. The local chapter also joins with chapters across the country to support research and participate in federal advocacy initiatives.

 

To learn more about Lou Gehrig’s Disease and The ALS Association – Georgia Chapter, visit www.alsaga.org.  

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FIESTA 5K/15K CHALLENGE KICKS OFF ALS AWARENESS MONTH

FIESTA 5K/15K CHALLENGE KICKS OFF ALS AWARENESS MONTH | ALS Awareness | Scoop.it
Cure for ALS's insight:

9th Annual Event Benefits the Emory ALS Center

 

Cumming, GA, April 28, 2015–Remember the Ice Bucket Challenge? May is ALS Awareness Month so here is another chance to support research to find treatments and a cure for ALS. Runners and walkers throughout Georgia will gather for the 9th year in a row this Saturday for the annual FIESTA 5k/15k Challenge. www.fiestarunga.com  Participants will “get LOCO” at this fun family event at the Forsyth Conference Center at Lanier Technical College. All proceeds benefit the Emory ALS Center in Atlanta. www.als.emory.edu 

 

Amyotrophic Lateral Sclerosis (ALS) is a neuromuscular disease that attacks the brain and spinal cord. It is universally fatal, taking away the ability to move, speak, swallow, and ultimately breathe. It can strike anyone without warning and the average life expectancy after diagnosis is 2-5 years. Approximately 30,000 people in the U.S. are living with ALS; over 500 are in Georgia.

The FIESTA 15K/5K features a 15K distance for long runners, a 5K distance on a certified Peachtree qualifying course, and a Fun Run. Participants will receive a t-shirt, and all 15K finishers will receive a medal.

 

AWARDS

15k Race: 1st, 2nd, 3rd Place Overall Male & Female will receive a TIMEX Ironman Watch. Additional awards will be given to Overall Male/Female, Overall Masters Male/Female, and Top 3 in Age Groups.

5k Race: Overall Male/Female, Overall Masters Male/Female, and Top 3 in Age Groups.

 

The post-race party will have music, refreshments, and a Fiesta of Fun! Online registration is available until 3:00PM EST Thursday, April 30, 2015. 

 

PACKET PICK UP & SPECIAL EVENTS:

Early Packet Pick Up – Friday May 1, 2015 – 11am to 7pm at Totally Running, 405 Peachtree Parkway, Suite 105, Cumming, GA 30041. On-site registration is available on Friday and at the race Saturday morning.

 

RACE DAY INFORMATION:

Race Day Registration and Packet Pick Up will open at 6:45am on Saturday, May 2 at the Forsyth Conference Center. The FIESTA 15K starts at 7:45am and the FIESTA 5K begins at 8:05am. The Fun Run starts at 9:00am.

 

Spectator/Volunteer Opportunity to Help With ALS Research on Race Day:

Blood samples from unrelated volunteers are needed now, for Clinical Research in ALS and in the future for studies that have yet to be imagined.  When used for research, these samples are “de-identified” meaning that when the blood is used, information about the donor is stripped of anything that will connect the material and information back to the participant.  The Emory ALS Center does retain a link that connects the sample to the person’s name, in case new information is learned and contact with the donor is needed.  But that link is kept secret and not shared with anyone outside of the Emory ALS Center.  We will be asking unrelated volunteers to donate samples when they accompany patients to clinic.  We will also be setting up donation opportunities for healthy unrelated volunteers who do not have any family history of ALS at community awareness and fundraising events whenever possible.

Cure for ALS, a nonprofit organization whose mission is to support ALS Awareness, advocacy, and fundraising for viable treatments and an eventual cure, is the host of this annual event.

# # #

For more information about Cure for ALS visit www.cureforals.com .

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Run LOCO for ALS in One Month at 9th Annual FIESTA 5k/15k Challenge

Run LOCO for ALS in One Month at 9th Annual FIESTA 5k/15k Challenge | ALS Awareness | Scoop.it
Cure for ALS's insight:

There is a lot of important information here so please make sure you read all the way through. At the top of the news is that entry fees will increase on Friday, April 17. Also, if you want to guarantee you’ll receive a t-shirt in the size you want you, make sure you are registered before April 17.

 

Race day is Saturday, May 2, 2015 at the Forsyth Conference Center at Lanier Tech in Cumming. Important details will be posted on the main website and registration page so be sure to check them often for any announcements.

 

REGISTRATION: https://runsignup.com/Race/GA/Cumming/FIESTA5k15kChallenge ;

 

MAIN WEBSITE: www.FiestaRunGA.com 

 

CAN'T JOIN US THIS YEAR? MAKE A DONATION AT https://www.crowdrise.com/2015fiesta5k15kALS

 

THINGS TO REMEMBEREntry fees increase for the 15k and 5k on April 17.You must be registered by April 16 to guarantee a race t-shirt. Chip timing for the 15k and 5k races.The FIESTA 5k course is a certified Peachtree Road Race qualifying course.START TIMES: FIESTA 15k starts at 7:45am. FIESTA 5k starts at 8:05am. **Ronald Reagan Blvd. will close at7:30am so make sure to arrive for all races before road closure**

Awards for 15k:

Top 3 Overall Male/Female will receive a TIMEX Ironman watchAdditional awards presented to: Overall Male/Female, Overall Masters Male/Female, and Top 3 in Age Groups of 5 year incrementsAll 15k finishers receive a Custom Finisher Medal

Awards for 5k:

Overall Male/Female, Overall Masters Male/Female, and Top 3 in Age Groups of 5 year increments.

Awards are not presented in the Fun Run but those registered do receive a t-shirt with their entry.

Lots of parking, great post-race party, music, refreshments, and FUN!

100% of the proceeds benefit the Emory ALS Center. www.als.emory.edu 

 

COMING SOON: Be on the lookout for an announcement for a 21 Day Fitness Challenge for you to 1) make sure you are ready for your best FiestaRun ever, and 2) keep fit and healthy beyond the Fiesta 5k/15k Challenge.

 

PACKET PICK UP TIMES:

Friday, May 1 from 11am to 7pm at Totally Running - 405 Peachtree Pkwy, Suite 105, Cumming, GA 30041. Registration also available.Saturday, May 2 beginning at 6:45am at the Forsyth Conference Center. Race day registration available.EET'S NACHO ORDINARY RUN!Celebrate Life...Imagine a Cure. Run LOCO to stop ALS!
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TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS's curator insight, April 9, 2015 8:18 PM
VIA: Cure for ALS's insight:

There is a lot of important information here so please make sure you read all the way through. At the top of the news is that entry fees will increase on Friday, April 17. Also, if you want to guarantee you’ll receive a t-shirt in the size you want you, make sure you are registered before April 17.

 

Race day is Saturday, May 2, 2015 at the Forsyth Conference Center at Lanier Tech in Cumming. Important details will be posted on the main website and registration page so be sure to check them often for any announcements.

 

REGISTRATION: https://runsignup.com/Race/GA/Cumming/FIESTA5k15kChallenge ;

 

MAIN WEBSITE: www.FiestaRunGA.com 

 

CAN'T JOIN US THIS YEAR? MAKE A DONATION AT https://www.crowdrise.com/2015fiesta5k15kALS

 

THINGS TO REMEMBEREntry fees increase for the 15k and 5k on April 17.You must be registered by April 16 to guarantee a race t-shirt. Chip timing for the 15k and 5k races.The FIESTA 5k course is a certified Peachtree Road Race qualifying course.START TIMES: FIESTA 15k starts at 7:45am. FIESTA 5k starts at 8:05am. **Ronald Reagan Blvd. will close at7:30am so make sure to arrive for all races before road closure**

Awards for 15k:

Top 3 Overall Male/Female will receive a TIMEX Ironman watchAdditional awards presented to: Overall Male/Female, Overall Masters Male/Female, and Top 3 in Age Groups of 5 year incrementsAll 15k finishers receive a Custom Finisher Medal

Awards for 5k:

Overall Male/Female, Overall Masters Male/Female, and Top 3 in Age Groups of 5 year increments.

Awards are not presented in the Fun Run but those registered do receive a t-shirt with their entry.

Lots of parking, great post-race party, music, refreshments, and FUN!

100% of the proceeds benefit the Emory ALS Center. www.als.emory.edu 

 

COMING SOON: Be on the lookout for an announcement for a 21 Day Fitness Challenge for you to 1) make sure you are ready for your best FiestaRun ever, and 2) keep fit and healthy beyond the Fiesta 5k/15k Challenge.

 

PACKET PICK UP TIMES:

Friday, May 1 from 11am to 7pm at Totally Running - 405 Peachtree Pkwy, Suite 105, Cumming, GA 30041. Registration also available.Saturday, May 2 beginning at 6:45am at the Forsyth Conference Center. Race day registration available.EET'S NACHO ORDINARY RUN!Celebrate Life...Imagine a Cure. Run LOCO to stop ALS!
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PI DAY RACE COMBINES MATH & SCIENCE WITH RUNNING/WALKING

PI DAY RACE COMBINES MATH & SCIENCE WITH RUNNING/WALKING | ALS Awareness | Scoop.it
Cure for ALS's insight:

Race on 3.14.15 to Benefit Purchase equipment for special needs classrooms in Forsyth County.


Pi Day is 3.14.15. What better way to begin the day than with a 3.14 mile run/walk! The Pi Day Race will take place on Saturday, March 14, 2015 at Totally Running in Cumming. Join teachers, students and families at this race that provides the perfect opportunity to build excitement around mathematics and science.


Pi Day, 3.14.15, is a fun celebration used by educators to draw attention to the important mathematical number pi. Pi, a transcendental number, is the ratio of the circumference of a circle to the diameter. Schools, universities, businesses, and families to come out to run/walk together to support and foster excitement about mathematics and science education.


Pi Day Race has an innovative twist! While many 5K runs are 3.1 miles, the Pi Day 5-K will be a 3.14 mile run/walk. The race course starts and finishes at Totally Running, 405 Peachtree Pkwy, Cumming GA 30041 on a USTAF-Certified course.
Pi Day Race hopes to raise funds to buy equipment for special needs classrooms in Forsyth County Schools.


Local sponsors include Crave Pie Studio, Children's Healthcare of Atlanta, Rosati's Pizza, Atlanta Fitness, and Montessori Academy at Sharon Springs and Vickery.


Runners and walkers can register online at active.com  or onsite at Totally Running. There will be early packet pick up on Friday, March 13, 2015 from 11am to 7pm at Totally Running.


Participants can also pick up their packet on race morning.
Fresh Baked pie from Crave Pie Studio will be presented to Top 3 Overall Male/Female, Top 3 Overall Masters Male/Female, and Top 3 Male/Female in age groups beginning with 9+Under through 65+ (Don't worry, we will get a picture of you with your winnings).

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Raise a Glass to Kick ALS's A$$ Brings $4,000 to Emory ALS Center

Raise a Glass to Kick ALS's A$$ Brings $4,000 to Emory ALS Center | ALS Awareness | Scoop.it
Cure for ALS's insight:

 Raise a Glass to Kick ALS’s Ass was a terrific party! Host Becky Kidd’s goal for the evening was to thank the Emory ALS Clinic team for their dedication to help her and others living with ALS manage the disease and appreciate every day. A crowd of 150 came out to the Famous Pub in Atlanta for the event. While fundraising wasn’t the main task of the evening, a raffle and donations resulted in nearly $4,000 being raised to benefit the Emory ALS Center.

 

Becky kicked off the evening by welcoming everyone and showing a thank you film that was a compilation of videos sent in by pALS (people with ALS) and friends. Comedian, James Rodatus was up next and had everyone laughing for the next 25 minutes. Also living with ALS, James quickly made all comfortable with realizing that humor plays a big part in life – even when life is hard. He is like many others I see living with ALS who keep a positive attitude and live life to the fullest each and every day.

 

When James completed his act, local band Secret Sauce took the stage for the first of three music sets. It didn’t take long for the dance floor to become full as the happy crowd got into the music from the 80’s, 90’s and today. Between sets, Dr. Jonathan Glass, Director of the Emory ALS Center, and Dr. Christina Fournier, Emory ALS Center Neurologist, drew the raffle winners and received well-deserved raised glass toasts from the attendees.

 

Becky shares, “We call ourselves team 5 Smooth Stones for the story of David & Goliath.  I met my Goliath when I was diagnosed with ALS in January 2012.   ALS is a part of my life, but I refuse to allow it become my life. Every day for all of us is a gift, an honor and opportunity to live with joy...ALS does not have to change that. We will live with Courage, Confidence, Preparation and Trust until Victory has been achieved."

 

Good friends of Becky’s are riding as Team 5 Smooth Stones in the Snake Gap Time Trials. The Snake Gap Time Trials is a time trial series event along the Pinhoti Trail through National Forest Lands in Dalton, GA. It takes place on January 3, February 3, and March 7, 2015. Team 5 Smooth Stones has been fundraising during the series in honor of Becky. With one more ride left in the series they are half way to their goal of raising $5,000 for the Emory ALS Center. If you would like to help them reach their goal, you can make a donation at www.crowdrise.com/5smoothstones. ;

 

To find out more about the Emory ALS Center visit www.als.emory.edu.  

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TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS's curator insight, February 10, 2015 4:21 PM

Via CURE FOR ALS : Raise a Glass to Kick ALS’s Ass was a terrific party! Host Becky Kidd’s goal for the evening was to thank the Emory ALS Clinic team for their dedication to help her and others living with ALS manage the disease and appreciate every day. A crowd of 150 came out to the Famous Pub in Atlanta for the event. While fundraising wasn’t the main task of the evening, a raffle and donations resulted in nearly $4,000 being raised to benefit the Emory ALS Center.

 

Becky kicked off the evening by welcoming everyone and showing a thank you film that was a compilation of videos sent in by pALS (people with ALS) and friends. Comedian, James Rodatus was up next and had everyone laughing for the next 25 minutes. Also living with ALS, James quickly made all comfortable with realizing that humor plays a big part in life – even when life is hard. He is like many others I see living with ALS who keep a positive attitude and live life to the fullest each and every day.

 

When James completed his act, local band Secret Sauce took the stage for the first of three music sets. It didn’t take long for the dance floor to become full as the happy crowd got into the music from the 80’s, 90’s and today. Between sets, Dr. Jonathan Glass, Director of the Emory ALS Center, and Dr. Christina Fournier, Emory ALS Center Neurologist, drew the raffle winners and received well-deserved raised glass toasts from the attendees.

 

Becky shares, “We call ourselves team 5 Smooth Stones for the story of David & Goliath.  I met my Goliath when I was diagnosed with ALS in January 2012.   ALS is a part of my life, but I refuse to allow it become my life. Every day for all of us is a gift, an honor and opportunity to live with joy...ALS does not have to change that. We will live with Courage, Confidence, Preparation and Trust until Victory has been achieved."

 

Good friends of Becky’s are riding as Team 5 Smooth Stones in the Snake Gap Time Trials. The Snake Gap Time Trials is a time trial series event along the Pinhoti Trail through National Forest Lands in Dalton, GA. It takes place on January 3, February 3, and March 7, 2015. Team 5 Smooth Stones has been fundraising during the series in honor of Becky. With one more ride left in the series they are half way to their goal of raising $5,000 for the Emory ALS Center. If you would like to help them reach their goal, you can make a donation at www.crowdrise.com/5smoothstones. ;

 

To find out more about the Emory ALS Center visit www.als.emory.edu

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SnakeGap Time Trials - Team 5 Smooth Stones Rides for a Cure | Cure for ALS' Fundraiser on CrowdRise

SnakeGap Time Trials - Team 5 Smooth Stones Rides for a Cure | Cure for ALS' Fundraiser on CrowdRise | ALS Awareness | Scoop.it
All donations benefit the ALS Center at Emory University.

"We call ourselves team 5 Smooth Stones for the story of David & Goliath. I met my Goliath when I was diagnosed with ALS in January 2012. ALS is a part of my life, but I refuse to allow it become my life. Every day for all of us is a gift, an honor and opportunity to live with joy...ALS does not have to change that. We will live with Courage, Confidence, Preparation and Trust until Victory has been achieved," shares Becky Kidd.

Last year a dear friend of Becky's, Greg Rollins, and his buddy, Jack Cash rode in The Snake Gap Time Trials (a 30 mile mountain biking event) under the banner of Team Five Smooth Stones to raise awareness & funds for ALS. They have asked to ride for ALS again this year & have grown their team to 5 mountain bikers!! They will ride on the first Saturday in January, February & March and are raising funds to support the Emory ALS Clinic.

The Snake Gap Time Trials is a time trial series event along the Pinhoti Trail through National Forest Lands in Dalton, GA. It takes place on January 3, February 3, and March 7, 2015. If you would like to participate, please join Team 5 Smooth Stones when you register.

All monies donated here benefit the Emory ALS Clinic at Emory University. The Emory ALS Clinic provides multidisciplinary care to people with ALS (pALS) and their families, focusing on independence and quality of life through ...
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