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Nonprofit/Advocacy and fundraising for ALS. Find us on Twitter: @cure_ALS
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5K RACE IN GEORGIA PAYS TRIBUTE TO FORMER COACH WITH ALS

5K RACE IN GEORGIA PAYS TRIBUTE TO FORMER COACH WITH ALS | ALS Awareness | Scoop.it
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Hamilton, August 11, 2014 The 5th Annual Run for Jeremy 5K Run/Walk & 1 Mile Fun Run takes place Saturday, October 4, 2014 at Harris County High School in Hamilton, GA. Run for Jeremy is a 5k race that was started in 2010 in honor of Jeremy Williams, former football coach of Greenville High School. The event has raised more than $45,000 for the Emory ALS Center. Friends of the Williams family are the organizers of this event that brings out the entire community. Runners from all over Georgia, others from Alabama, pay tribute to Jeremy and others who are living with or have lost their lives to ALS.

 

Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease, can strike anyone and is universally fatal. It slowly takes away the ability to move, speak, swallow, and ultimately breathe. The average life span after diagnosis is 2 to 5 years.

 

Jeremy Williams, who was diagnosed with ALS in 2008. During his years playing football, Jeremy Williams was known as the “Georgia Assassin” and this community event unites Coach Williams’ supporters to “Assassinate Lou Gehrig’s one Step at a time.” Proceeds from the event benefit the Emory ALS Center in Atlanta, GA, where Jeremy receives his care. Led by Dr. Jonathan Glass, the Emory ALS Center is one of the largest clinical centers for ALS in the United States. The Center provides true multidisciplinary care for patients and families with ALS and related disorders. The team of neurologists, neurosurgeons, nurses, therapists, and dieticians care for both the physical and emotional needs of our patients and their families. The focus of the patient model is on independence and quality of life through state-of-the-art intervention.

 

Race morning will begin with the 1 Mile Fun Run on the track and starting at 8:30am. The 5k race will follow, starting at 9:00am. Each participant will receive a t-shirt and great post-race food, entertainment, and family fun. Online registration, and all event information is available at www.runforjeremy.com

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"WE THE RUNNERS” IS THE PERFECT START TO JULY 4TH

"WE THE RUNNERS” IS THE PERFECT START TO JULY 4TH | ALS Awareness | Scoop.it
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Cumming, GA, June 4, 2014– It is a custom in Georgia to begin Independence Day running a road race. We the Runners is quickly becoming a north Georgia tradition with distance options for all levels of runners with half marathon, 10k, 5k, and Sparkler Trot options. This is the second year for the event and the addition of a half marathon distance this year is exciting for local endurance runners. We the Runners road race will take place on July 4, 2014 at Fowler Park in Cumming, GA and will benefit the Forsyth County Parks and Recreation Foundation.

 

Races will start at the track at Fowler Park, 4110 Carolene Way, Cumming, GA 30040. Half marathon, 10k, and 5k runners will make their way onto the Big Creek Greenway for their respective distances before coming back to the track to cross the finish line. The Big Creek Greenway is a 12 foot wide concrete and boardwalk path that winds through woods along Big Creek and is a favorite route among north Georgia runners and walkers alike. The Sparkler Trot is a favorite of children 10 years and under, and those participants will enjoy a two lap race on the Fowler Park track.

 

Sponsors of We the Runners Half Marathon, 10k/5k, & Sparkler Trot are Totally Running, Atlanta Fitness, Children’s Healthcare of Atlanta, Rosati’s Pizza, Champion Physical Therapy, NaturAlmond, and Steve Dabbs-Nationwide Insurance. Participants are encouraged to register early because there is a cap on the number of runners allowed on the course. Participants will receive a t-shirt (guaranteed to those registered by June 15, 2014) and race bag.  All half marathon finishers will receive a We the Runners Commemorative Medal. Due to the high volume of runners/walkers and the limited space on the greenway, no dogs, baby strollers, bikes, or skates will be allowed.

 

Packet pick-up will be on July 3, 2014 from 11am to 7pm at Totally Running, 405 Peachtree Parkway, Cumming, GA 30041, and also at Fowler Park on race day beginning at 6:30am. Awards will be presented to: Overall Male/Female – 1st, 2nd, 3rd; Overall Masters Male/Female – 1st, 2nd, 3rd; and 1st Place in Age Group categories (10+Under through 65+ in 5 year increments).

 

RACE START TIMES:

7:30am – Half Marathon and 10k 

7:45am -   5k

9:45am -  Sparkler Trot

 

REGISTRATION: 

Online at RunSignup.com/WeTheRunners

Onsite at Totally Running

 

 

# # #

If you would like more information about this topic, please contact Kim Hall at 404-769-4408 or email at kimhall2007@gmail.com  .

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FIESTA 5K/15K CHALLENGE KICKS OFF ALS AWARENESS MONTH

FIESTA 5K/15K CHALLENGE KICKS OFF ALS AWARENESS MONTH | ALS Awareness | Scoop.it
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Cumming, GA, April 28, 2014– May is ALS Awareness Month so runners and walkers throughout Georgia will begin spreading awareness at the 8th annual FIESTA 5k/15k Challenge this Saturday in Cumming, GA. Participants will “get LOCO” at this fun family event at the Forsyth Conference Center at Lanier Technical College. All proceeds benefit the Emory ALS Center in Atlanta.

 

Amyotrophic Lateral Sclerosis (ALS) is a neuromuscular disease that attacks the brain and spinal cord. It is universally fatal, taking away the ability to move, speak, swallow, and ultimately breathe. It can strike anyone without warning and the average life expectancy after diagnosis is 2-5 years. Approximately 30,000 people in the U.S. are living with ALS; over 500 are in Georgia.

 

The FIESTA 15K/5K features a 15K distance for long runners, a 5K distance on a certified Peachtree qualifying course, and a Fun Run. Participants will receive a t-shirt, and all 15K finishers will receive a medal. Awards will be presented in the 15K & 5K races to Overall, Masters, and Age Group winners. Organizers expect over 700 participants and a crowd of over 1500. The post-race party will have music, refreshments, and a Fiesta of Fun! Online registration is available until 3:00PM EST Thursday, May 1, 2014.

 

PACKET PICK UP & SPECIAL EVENTS:

Carb Up Party at Mellow Mushroom – Mellow Mushroom in Cumming (410 Peachtree Parkway) will have a Carb Up Party all day on Friday, May 2 supporting ALS research at the Emory ALS Center. 10% of purchases (dine-in or take out) will be donated. NOT LIMITED TO RACE PARTICIPANTS.

 

Early Packet Pick Up – Friday May 2, 2014 – 11am to 7pm at Totally Running, 405 Peachtree Parkway, Suite 105, Cumming, GA 30041. On site registration is available on Friday.

 

Author/Book Signing – 8 time Boston Marathon Finisher, Mike Stephens will be at Packet Pick Up from 4pm to 7pm on Friday, May 2 signing his newly published book, Don’s Brother: A Hike of Hope on the Appalachian Trail. Mike is a retired high school English teacher and cross country coach from Columbus, GA. Including his Boston Marathon Finishes, Mike, an avid runner for over 30 years, has completed 42 marathons. He has hiked over 3,000 miles on the Appalachian Trail. His new book tells of his 2013 thru-hike of 2,185.9 miles in memory of his brother who died from ALS. Books will be for sale for $15+tax. A portion of every book sold is being donated to the Emory ALS Center.

 

RACE DAY INFORMATION:

Race Day Registration and Packet Pick Up will open at 6:45am on Saturday, May 3 at the Forsyth Conference Center. The FIESTA 15K starts at 7:45am and the FIESTA 5K begins at 8:05am. The Fun Run starts at 9:00am.

Cure for ALS, a nonprofit organization whose mission is to support ALS Awareness, advocacy, and fundraising for viable treatments and an eventual cure, is the host of this annual event.

# # #

For more information about Cure for ALS visit www.cureforals.com .

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8TH ANNUAL ROAD RACE SUPPORTS EMORY ALS CENTER

8TH ANNUAL ROAD RACE SUPPORTS EMORY ALS CENTER | ALS Awareness | Scoop.it

                             FOR IMMEDIATE RELEASE - April 7, 2014

                                                www.FiestaRunGA.com

Cure for ALS's insight:

 

FIESTA 5k/15k Challenge Kicks Off ALS Awareness Month

 

Atlanta, GA, April 7, 2014– Runners throughout Georgia are preparing to “get LOCO” at the 8th annual FIESTA 5k/15k Challenge. The race is on Saturday, May 3, 2014 at the Forsyth Conference Center in Cumming, GA and all proceeds benefit the Emory ALS Center in Atlanta.

 

The FIESTA 15K/5K features a 15K distance for long runners, a 5K distance on a certified Peachtree qualifying course, and a Fun Run. Participants will receive a t-shirt – guaranteed to those registered by April 17, 2014. All 15K finishers will receive a medal, and awards will be presented in the 15K & 5K races to Overall, Masters, and Age Group winners. Organizers expect 800 or more participants and a crowd of over 1500. The post-race party will have music, refreshments, and a Fiesta of Fun!

 

Entry forms can be found at all Phidippides Atlanta and Totally Running stores. Online registration is available at RunSignup.com. Early packet pick up will be Friday, May 2, 2014 at Totally Running in Cumming, GA from 11am to 7pm. Race day registration will be available starting at 6:45am. The FIESTA 15K starts at 7:45am and the FIESTA 5K begins at 8:05am.

 

SPECIAL EVENT: Author, Mike Stephens, will be at packet pick up on May 2, 2014 from 4pm to 7pm for a book signing of “Don’s Brother: A Hike of Hope on the Appalachian Trail.” After his brother was diagnosed with ALS, Mike decided to honor Don with a 2,186 mile thru-hike of the Appalachian Trail. “Don’s Brother” recounts Mike’s journey and much more. A portion of every book sold is being donated to the Emory ALS Center. Books will also be on sale and available for signing on race day – before and after Mike, a lifelong runner, runs the FIESTA 5k!

 

Teams of fundraisers will gather to run or walk the 5K together, raising awareness for ALS and paying tribute to their loved ones living with, or who have died from the disease. Amyotrophic Lateral Sclerosis (ALS) is a universally fatal neuromuscular disease that attacks the brain and spinal cord. It takes away the ability to move, speak, swallow, and ultimately breathe.

 

May is ALS Awareness Month nationwide and the FIESTA 5k/15k Challenge is a great way to kick off the month. Cure for ALS, whose mission is to support ALS Awareness, advocacy, and fundraising for viable treatments and an eventual cure.

 

# # #

For more information about Cure for ALS visit www.cureforals.com . Contact Karen Duffy at teamduffy@gmail.com or 678-491-0639.

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Open Letter to the ALS Community in Georgia

Open Letter to the ALS Community in Georgia | ALS Awareness | Scoop.it
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Dear Friends,

In 43 days, our family (affectionately known as “Team Duffy”) will go into team mode and host our 8th annual road race for ALS. The FIESTA 5k/15k Challenge is Saturday, May 3, 2014 in Cumming, GA on the campus of Lanier Technical College. Since our first race in 2007, we have donated 100% of the proceeds from this event to the Emory ALS Center, a place where many of you or your loved ones have been cared for and possibly participated in a clinical trial for ALS.

 

When we began planning our first event, we made a conscious choice to have it in the spring instead of the fall so supporters of ALS would not have to choose between the Walk to Defeat ALS in Atlanta, the Night of Hope Gala, or our event. Since May is ALS Awareness Month we hold the FIESTA 5k/15k Challenge on the first Saturday in May each year to kick off the month-long campaign of awareness and advocacy.

 

The team at the Emory ALS Center has 400+ active patients whom they are caring for and working with in the various trials and studies. The needs to continue the work of this amazing group of people are large and the success of this event is critical to help them.

 

WE NEED YOUR HELP! The ALS community in Georgia is a close-knit group and I am asking for your help in one (or more!) of the following areas:

Tell someone you know about the FIESTA 5k/15k Challenge!Invite your friends or family members to register to run, walk, or come and cheer for our participants. You can link to registration at www.FiestaRunGA.com .Register for the first time and join us for a morning where we “Celebrate Life…Imagine a Cure.”Donate $5, $10, $20 to one of our fundraising teams or to the event itself. http://www.crowdrise.com/fiesta5k15kchallengeforals2014Create a fundraising team of your own.Make this the year that you support this event if you have not done so in the past.

 

I promise you will be uplifted by our generous sponsors who come back year after year, the distance runners in the 15k race who will ‘wow’ you with their perseverance, the 5k runners and walkers who push themselves to reach a new goal or who are out there in support of a beloved pALS. You will smile as the Fun Run participants race around campus and finish with a big grin, and the music and energy of the morning will be the best start to your day – and to ALS Awareness Month.

 

With your help, we will reach our fundraising goal, and this will be the biggest and best race in our eight year history.

 

On behalf of Team Duffy – thank you,

Karen Duffy

www.CureForALS.com

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Mountain Ranger Run Gives Civilians Up-Close Look at Military Training

Mountain Ranger Run Gives Civilians Up-Close Look at Military Training | ALS Awareness | Scoop.it
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17th Annual Race Has Run and Mountain Bike Options


Dahlonega, GA, March 17, 2014.  Once a year, Camp Frank D. Merrill Ranger training facility opens its gates to welcome civilians for a day of racing and first-hand experience in tough Ranger military training. The 17th annual Mountain Ranger Run offers the most challenging and scenic cross-country/trail course that the North Georgia Mountains can provide, and it takes place on Saturday, April 26, 2014.

 

There are two running options, a 15k and a 5k, with both courses starting at Camp Frank D. Merrill and winding through the Chattahoochee National Forest in a hilly loop along non-paved forest service roads and trails. Mountain bikers will want to sign up for the 34k Mountain Ranger Bike Race which is for the somewhat more adventurous crowd. The bike course is challenging enough for advanced riders yet forgiving enough for beginners.

 

One of the three phases of Ranger training, known as the toughest of all military leadership training, takes place at Camp Merrill. It is the mountain phase and only about 50% of those who enter pass the 61 day training course. There will be a Battalion Open House during the Mountain Ranger Run where guests will be treated to a Rangers-in-action demonstration, as well as a hands-on display of U. S. military equipment and weapons. Many of the open house events will take place on the airfield and there will be fly-bys by Black Hawk helicopters, a military free fall parachute jump, and an exciting “spies and fries” demo where Rangers will do an extraction by helicopter.

 

Participants can register online for any of the three races at RunSignup.com or in person at Totally Running & Walking (locations in Dahlonega and Cumming).

 

Cost:

34k Bike Race - $40.00*

15k Run - $40.00*

5k Run - $25.00*

* Registration fees increase by $5.00 for each race after April 1, 2014.

 

There will be early packet pick up on April 25, 2014 from 11am to 6pm at Totally Running & Walking, 28 North Grove Street, Dahlonega, GA 30533.

 

  34k Bike Race starts at 7:00am

15k Run starts at 7:45am

5k Run starts at 8:00am

 

Awards will be presented to Overall male/female 1st, 2nd, 3rd. Overall masters male/female. 1st place age groups ages 10 & under-65+.

 

Contact race director, Kim Hall at kimhall2007@gmail.com with any questions.

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sALSa Professionals Gather to Share Development Ideas

sALSa Professionals Gather to Share Development Ideas | ALS Awareness | Scoop.it
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Atlanta, GA, February 25, 2014:  Over 30 professionals from the Southeast ALS Alliance (sALSa) came together last weekend to share information and discuss topics such as ALS clinic management, patient care, respiratory management, and ALS research.

 

Jonathan Glass, Director of the Emory ALS Center in Atlanta, GA, organized and hosted the event. Attendees included neurologists, nurses, clinic coordinators, and allied health professionals supporting physical and occupational therapy, and speech/language specialists. Also in attendance were representatives from MDA and the ALS Association. 

 

The mission of sALSa, which is a network of 15 ALS clinics from Alabama, Florida, Georgia, North Carolina, South Carolina, and Tennessee, is “optimizing the care of pALS in the Southeast through collaboration, education, advocacy, and research.”

 

Topics included in the two day meeting were patient care, managing the VA system, respiratory management practices, and research biomarkers. Dr. Rick Bedlack, Director of the Duke ALS Clinic, presented on ALSUntangled, which helps patients with ALS (pALS) to review alternative and off-label ALS treatments. 

 

sALSa wants to foster the development and growth of expert ALS Clinics throughout the southeast to bring excellent care closer to the patients to expand access to research and teaching centers.

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Peachtree Parkway Runners Race for Cupcakes This Saturday

Peachtree Parkway Runners Race for Cupcakes This Saturday | ALS Awareness | Scoop.it

2nd Annual Race Benefits The Place of Forsyth County

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Cumming, GA, February 25, 2014  Motorists traveling on Peachtree Parkway/GA 141 in Cumming this Saturday, March 1, 2014 will see hundreds of runners racing to earn delicious cupcakes at the finish line of the Cupcake Road Race. Organizers are asking drivers to be cautious while driving to other activities to make sure participants and motorists safely reach their destination. The 15k and 5k courses will travel from Ronald Reagan Blvd. south on Peachtree Parkway/GA 141 for an out-and-back course. Runners/walkers will utilize the median lanes on Peachtree Parkway/GA 141. Intersections for motorists to take extra care and caution include Majors Rd., Stoney Pt. Rd., Sharon Rd., Old Alpharetta Rd., and Mathis Airport Highway. Access will remain easy to South Forsyth High School and business at the corner of Ronald Reagan Blvd.

 

Organizers expect the events (15k, 5k, and Baby Cakes runs) to draw over 1000 runners and walkers. Already there are 850 registered for the road races and 85 children under 10 years old who will run the Baby Cake race which is on a ½ mile closed course.

 

Once Upon a Cake will indulge the sweet tooth with their gourmet cupcakes, while Mama Makes Safe Cakes will offer a gluten/vegan cupcake baked in their facility free of wheat/gluten, dairy, eggs, peanuts, soy, tree nuts, fish, and shellfish. Other local sponsors include Rosati’s, NaturAlmond, Children’s Healthcare of Atlanta, and Nationwide Insurance-Steve Dabbs, American Protein, Publix, Advanced Disposal, Champion Physical Therapy, Cumming Local, Parrott and Associates, Georgia Highlands Medical, North Georgia Vein Institute, American Protein, Publix, Advanced Disposal, Champion Physical Therapy, Stepping Stone Montessori, and True Speed Photo.

 

All proceeds from the CUPCAKE ROAD RACE benefit The Place of Forsyth, a nonprofit Social Service Organization serving Forsyth County families with emergency basic needs in difficult times since 1975.  

 

There will be advanced packet pick up on Friday, February 28, 2014 from 11am to 6pm at Totally Running, 405 Peachtree Parkway, Suite 105, Cumming, GA 30041. This is also the start/finish location for Saturday’s race. Race day packet pick up and registration will open at 6am.

 

Notes for race morning: There is plenty of parking available at the Collection of Forsyth, which is directly across the street from Totally Running.

15k starts at 7:00am

5k starts at 7:30am

Baby Cake Run starts at 8:45am

Awards Ceremony will follow all races and prizes will be given to the Overall Male/Female – 1st, 2nd, 3rd Place, Overall Masters Male/Female 1st, 2nd, 3rd Place, and 1st Place only in age groups of 5 year increments (10+Under through 65+). 

 

Onsite registration is at Totally Running, and links to online registration and other information are available at www.totallyrunnng.com.

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Denim & Diamonds Fundraising Event Benefiting Chelsey Park Health & Rehabilitation

Denim & Diamonds Fundraising Event Benefiting Chelsey Park Health & Rehabilitation | ALS Awareness | Scoop.it
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March 15, 2014

Cottrell Ranch, 630 Porter Springs Road, Dahlonega GA 30533

5:00 p.m. Cocktail hour and silent auction

6:30-10:30 p.m. Dinner and dancing

Dress: classy denim, skirts, boots and sport coats

Dinner prepared and served by Chef Kern

Music by Radford Windham & Stepback Cadillac Band

Tickets: $250 per person

100% of ticket donations goes directly towards the purchase of  state of the art technology and furnishing of patient rooms.

Community Health Foundation  will match any corporate donation by 100%.

Purchase tickets online at:

Chelseyparkhealth.org & events.chelseyparkhealth.org

 

SPONSORED BY:

Community Health Foundation

The Cottrell Foundation - Lynn & Mike Cottrell

Points North

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Kellogg Super Bowl Advertising Review: 2014 Results | #Empowering for those with ALS

Kellogg Super Bowl Advertising Review: 2014 Results | #Empowering for those with ALS | ALS Awareness | Scoop.it
The 2014 Super Bowl was a marketing extravaganza. Never has the world seen such massive hype and discussion about advertising; during the two weeks leading up to the game, companies released dozens...

Via TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
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@microsoft #ALS

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Wicked Local Belmont : JOHN REILLY: How a coach set his team on the right track

Wicked Local Belmont : JOHN REILLY: How a coach set his team on the right track | ALS Awareness | Scoop.it
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Ground broken for $10 rehabilitation facility - Groundbreaking ceremonies were held last week for the $10 million Chelsey Park Health and Rehabilitation project that is expected to bring as many as...

Ground broken for $10 rehabilitation facility - Groundbreaking ceremonies were held last week for the $10 million Chelsey Park Health and Rehabilitation project that is expected to bring as many as... | ALS Awareness | Scoop.it
Groundbreaking ceremonies were held last week for the $10 million Chelsey Park Health and Rehabilitation project that is expected to bring as many as 100 new jobs to Dahlonega.
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Karen Kelly - FREEDOM!

Karen Kelly - FREEDOM! | ALS Awareness | Scoop.it
Cure for ALS's insight:

This is an article I wrote for an upcoming ALS newsletter. I wanted to post it early this week because so many are traveling to Kona for the 2013 Ironman World Championship.

 

Karen Kelly – FREEDOM!

By Karen Duffy

 

I met Karen Kelly early in 2007; we had been communicating via email for a few months and finally got together for lunch at Atlanta Country Club. It was instant friendship and our lunch lasted nearly three hours. Karen found me through the War on ALS; I was the person who received all of the emails from people interested in supporting Team Blazeman, a team of multisport athletes competing for the purpose of raising awareness and funding for ALS. Team Blazeman was founded by Jon Blais, who was the only person with ALS to complete an Ironman triathlon. Jon’s story, shared in the 2005 NBC broadcast of the Ironman World Championship from Kona, touched the hearts of hundreds of people; my friendship with Karen was one of many formed because of Jon Blais.

 

During our long lunch, Karen told me her mother and grandfather had died from ALS and she was on a mission to qualify for the Ironman World Championship and use that race as a platform for ALS awareness; she also said she was determined to raise $50,000 for research. She was 57 years old and had just started competing in triathlon. A few months later, Karen did earn her slot at Ironman Brazil.

 

From May to October Karen trained for the big race, became actively involved in the Blazeman Foundation for ALS and met her goal of raising $50,000. Our friendship grew during these months – we worked closely as members of the Board of Directors for the Blazeman Foundation and Karen was the board President. At the Ironman World Championship in October 2007, Karen wore bib #179, the number Jon Blais wore in 2005 and competed with guts and determination – she did it as a personal goal, but more for the memory of her mother, grandfather, Jon Blais, and the cause of ALS Awareness.

 

Karen and I continued to be passionate participants in fundraising and awareness for ALS, and lifelong friends. She would eventually move from Atlanta to Kona, the place that brought her the most joy and peace in life. On May 3, 2012 Karen posted this on Facebook, “My first day as an official resident of Hawaii. Dreams do come true!”

 

Two months later I got a text from Karen that read, “Hi KD. I’ve had very ALS-like symptoms for quite awhile. Not sure if I’m just tired and working too much or…” I called immediately and during our conversation encouraged her to find a neurologist. August 7, 2012 was the day that Karen Kelly was diagnosed with ALS. Family and friends rallied around Karen with phone calls, visits, encouraging words on Facebook, and several of us created special fundraising campaigns in her honor. Our goal was to support our dear friend, keep her spirits up and raise money for research.

 

One friend who instantly went into action was April Hartsook. April had met Karen in 2007 on the race course at Ironman Brazil. As April encouraged Karen to keep moving, Karen shared why she was there - that she had to earn a slot to Kona to tell her ALS story. April completely understood as she had lost her mentor and friend to ALS. She also knew of and was inspired by Jon Blais. The chance meeting in the middle of an Ironman race evolved into a strong bond of friendship.

 

Karen Kelly died on September 13, 2013. Those of us lucky enough to call her our friend were crushed; we thought we had more time. Karen’s influence and “never give up” mantra will be with all of us forever. She faced ALS with a positive attitude, determined spirit, and peaceful resolve.

 

On October 12, 2013, athletes from all over the world will gather in Kona for the 2013 Ironman World Championship. Also present that weekend will be Karen’s family and April Hartsook. They will meet to scatter Karen’s ashes at the bay in Kailua; she will rest forever in her favorite spot. April has been fundraising all year in Karen’s honor; now in her memory. I invite you to read her story and make a donation if you are able at

http://www.active.com/donations/fundraise_public.cfm?force_a2=yes&ckey=teamblazeman&key=ahartsook.

 

 

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TERANCE MATHIS HOSTS 2ND ANNUAL CELEBRITY GOLF CLASSIC FOR ALS

TERANCE MATHIS HOSTS 2ND ANNUAL CELEBRITY GOLF CLASSIC FOR ALS | ALS Awareness | Scoop.it
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Suwanee, GA, August 11, 2014– Terance Mathis, former All-American and Pro Bowl wide receiver for the Atlanta Falcons is partnering once again with Cure for ALS to host his 2nd annual Celebrity Golf Classic on Monday, September 15, 2014. The title sponsor for the event which will take place at the Alpharetta Athletic Club in Alpharetta, GA, is ChoicesToYou.com.

 

“As I have become more involved in the past couple of years with this cause, I realize that nobody is immune to getting ALS. It literally can strike anyone, and the fact that so many professional athletes have been diagnosed really has hit home with me,” says Mathis. “I know that it could be me fighting this disease.”

 

ALS is a neuromuscular disease that attacks the brain and spinal cord. There is no cure and the average life span after diagnosis is 2-5 years. It takes away the ability to move, speak, swallow, and ultimately breathe, and it can strike anyone.  

The funds raised from the tournament will benefit the Emory ALS Center. Located in Atlanta, the Emory ALS Center is one of the largest clinical centers for ALS in the United States. The Center provides true multidisciplinary care for patients and families with ALS, and is dedicated to performing groundbreaking research in the laboratory to discover treatments and a cure.

 

Golfers in threesomes will be paired with celebrity team captains. Joining Terance Mathis as celebrity captains are Atlanta Falcons favorites Jesse Tuggle, Ruffin Hamilton, Michael Haynes, Gerald Riggs, Jamal Anderson, Chris Mohr, and Keith Brooking. Other football greats playing are Greg Lloyd, DJ Shockley, Nate Wayne, Brian Jordan, and Carl Pickens. Stars from the MLB playing in the tournament are Kenny Lofton and Fred McGriff.

 

Registration/player check-in begins at 8:30am for the scramble format tournament. 10:00am is the shotgun start, lunch will be provided, and there will be fun contests on the course. An awards reception will follow the round, where prizes will be presented to contest winners and the Top 3 Teams.

 

All information including links to online registration and online donating can be found at CureForALS.com.

 

# # #

If you would like more information about this topic, please contact Karen Duffy at 678-491-0639 or email at teamduffy@gmail.com.

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FIESTA 5k/15k Challenge - Results & Photos Posted

FIESTA 5k/15k Challenge - Results & Photos Posted | ALS Awareness | Scoop.it
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FIESTA 5k/15k Challenge – ENTRY FEES INCREASE ON FRIDAY

FIESTA 5k/15k Challenge – ENTRY FEES INCREASE ON FRIDAY | ALS Awareness | Scoop.it
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Get LOCO for ALS in One Month at the FIESTA 5k/15k Challenge

Get LOCO for ALS in One Month at the FIESTA 5k/15k Challenge | ALS Awareness | Scoop.it
Cure for ALS's insight:

FIESTA 5k/15k Challenge is May 3, 2014

FiestaRunGA.com

 

 

On May 3, 2014 we will get LOCO at the 8th annual FIESTA 5k/15k Challenge! Fees increase in two weeks though so make sure you register by April 17. REGISTER AT https://runsignup.com/Race/GA/Cumming/FIESTA5k15kChallenge .

 

Race day is Saturday, May 3, 2014 at the Forsyth Conference Center in Cumming, GA. Important details are below and on our website, www.FiestaRunGA.com .

 

THINGS TO REMEMBER:

-Entry fees increase for the 15k and 5k on April 18.

-You must be registered by April 17 to guarantee a race t-shirt. Last year’s shirt was so popular that we are ordering the same brand – different color and updated design. Don’t miss your chance to get one!

T-shirts are comfy drifit in adult sizes S, M, L, XL 2XL (additional $2.00 for 2XL). Youth Large shirts available in 100% cotton.

-Chip timing for the 15k and 5k races.

-The FIESTA 5Kk course is a certified Peachtree Road Race qualifying course.

 

-START TIMES: FIESTA 15K starts at 7:45am. FIESTA 5K starts at 8:05am. **Ronald Reagan Blvd. will close by 7:30am so make sure to arrive for all races before road closure**

-Awards in the 15k and 5k races presented to Overall Male/Female, Overall Masters Male/Female, Top 3 in Age Groups in 5 yr increments.

-Medals to all FIESTA 15k finishers.

-Lots of parking, great post-race party, music, refreshments, and FUN!

-100% of the proceeds benefit the Emory ALS Center. www.als.emory.edu

 

PACKET PICK UP TIMES and Carb Up Party at Mellow Mushroom:

-Friday, May 2 from 11am to 7pm at Totally Running in Cumming. Registration also available.

-Mellow Mushroom at The Collection Forsyth is ready to help you load up on carbs for race day! Visit them for lunch or dinner on Friday, May 2 and a portion of your meal cost will be donated to the Emory ALS Center. Make sure to tell your server you are with the FIESTA 5k/15k Challenge.

-Saturday, May 3 beginning at 6:45am at the Forsyth Conference Center. Race day registration available.

 

CAN’T RACE WITH US THIS YEAR? MAKE A DONATION!

If you are unable to join us this year you can still make a difference in the lives of those living with ALS. To make a donation at http://www.crowdrise.com/fiesta5k15kchallengeforals2014 .

 

Cure for ALS

42 Lakecrest Circle, Suwanee, GA 30024

678-491-0639

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Cook & Duffy: Emory ALS Center & Cure for ALS

1/31/14 Sports Journalist, Karon Cook hosts Legacy Leaders Radio with guests Karen Duffy (Cure for ALS) and Steve King (Community Health Foundation). Karen talks…
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So Chris Can Walk 5k - March 22, 2014

So Chris Can Walk 5k - March 22, 2014 | ALS Awareness | Scoop.it
Cure for ALS's insight:

Run So Chris Can Walk 5k will be Saturday, March 22, 2014 at First Redeemer Church in Cumming, GA

 

All proceeds will provide intense activity-based recovery through Project Walk Atlanta to help Chris and other clients who have sustained a spinal cord injury. Chris Pickard was paralyzed on May 13, 2011, two weeks prior to his graduation from Lambert High School. Because of his injury, Project Walk Atlanta was opened in March of 2012.

 

Project Walk Atlanta is a 501(c)3 organization dedicated to improving the lives of those affected by spinal cord injury thru intense excercise based therapy.

 

Online registration and information at: http://www.runsochriscanwalk.com/

 

Race Day Schedule:

7:00am Race day registration begins

8:30am 5k Run/walk

9:30am Awards

 

Registration is $25 early entry; $30 on race day.

 

Awards will be presented to Overall Male/Female and Top 3 in Age Groups.

 

T-shirts are guaranteed to all paid 5k participants registered by March 10, 2014 and first come/first serve to race day registrants.

 

Location:

First Redeemer Church, 2100 Peachtree Parkway, Cumming, GA 30041

 

Contact info@runsochriscanwalk.com with any questions.

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ALS Assistive Technology: The Eyes Have It-- Eye Gaze Technology

ALS Assistive Technology: The Eyes Have It-- Eye Gaze Technology | ALS Awareness | Scoop.it
Eye Gaze technology may provide some people with disabilities with effective access to required communication and computer control functions where other methods prove too difficult or inefficient for them.
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Peachtree Parkway Runners Race for Cupcakes This Saturday

2nd Annual Race Benefits The Place of Forsyth County

Cure for ALS's insight:

Cumming, GA, February 25, 2014  Motorists traveling on Peachtree Parkway/GA 141 in Cumming this Saturday, March 1, 2014 will see hundreds of runners racing to earn delicious cupcakes at the finish line of the Cupcake Road Race. Organizers are asking drivers to be cautious while driving to other activities to make sure participants and motorists safely reach their destination. The 15k and 5k courses will travel from Ronald Reagan Blvd. south on Peachtree Parkway/GA 141 for an out-and-back course. Runners/walkers will utilize the median lanes on Peachtree Parkway/GA 141. Intersections for motorists to take extra care and caution include Majors Rd., Stoney Pt. Rd., Sharon Rd., Old Alpharetta Rd., and Mathis Airport Highway. Access will remain easy to South Forsyth High School and business at the corner of Ronald Reagan Blvd.

 

Organizers expect the events (15k, 5k, and Baby Cakes runs) to draw over 1000 runners and walkers. Already there are 850 registered for the road races and 85 children under 10 years old who will run the Baby Cake race which is on a ½ mile closed course.

 

Once Upon a Cake will indulge the sweet tooth with their gourmet cupcakes, while Mama Makes Safe Cakes will offer a gluten/vegan cupcake baked in their facility free of wheat/gluten, dairy, eggs, peanuts, soy, tree nuts, fish, and shellfish. Other local sponsors include Rosati’s, NaturAlmond, Children’s Healthcare of Atlanta, and Nationwide Insurance-Steve Dabbs, American Protein, Publix, Advanced Disposal, Champion Physical Therapy, Cumming Local, Parrott and Associates, Georgia Highlands Medical, North Georgia Vein Institute, American Protein, Publix, Advanced Disposal, Champion Physical Therapy, Stepping Stone Montessori, and True Speed Photo.

 

All proceeds from the CUPCAKE ROAD RACE benefit The Place of Forsyth, a nonprofit Social Service Organization serving Forsyth County families with emergency basic needs in difficult times since 1975.  

 

There will be advanced packet pick up on Friday, February 28, 2014 from 11am to 6pm at Totally Running, 405 Peachtree Parkway, Suite 105, Cumming, GA 30041. This is also the start/finish location for Saturday’s race. Race day packet pick up and registration will open at 6am.

 

Notes for race morning: There is plenty of parking available at the Collection of Forsyth, which is directly across the street from Totally Running.

15k starts at 7:00am

5k starts at 7:30am

Baby Cake Run starts at 8:45am

Awards Ceremony will follow all races and prizes will be given to the Overall Male/Female – 1st, 2nd, 3rd Place, Overall Masters Male/Female 1st, 2nd, 3rd Place, and 1st Place only in age groups of 5 year increments (10+Under through 65+). 

 

Onsite registration is at Totally Running, and links to online registration and other information are available at www.totallyrunnng.com.

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Fundraising Event to Assist New Neurological Center

Fundraising Event to Assist New Neurological Center | ALS Awareness | Scoop.it
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DAHLONEGA, GEORGIA–COMMUNITY HEALTH FOUNDATION (CHF) is pleased to announce they will

match all corporate donations by 100% in support of Chelsey Park Health & Rehabilitation (Chelsey Park). CHF is  a 501c(3) organization and has developed the Chelsey Park CAUSE to support in the purchase of state of the art  technology, room furnishings and ongoing support serving patients with neurological diseases while at Chelsey Park.

Chelsey Park Health & Rehabilitation (Chelsey Park) will be the first of it’s kind center in the state of Georgia and when complete, the fourth in the U.S.A. with this state-of-the-art technology installed.  The center will serve neurological patients with multiple sclerosis, ALS (Lou Gehrig’s), muscular dystrophy, Huntington’s and those who have experienced a cerebrovascular accident (CVA or stroke) along with patients needing short-term rehabilitation. Serving patients across Georgia.

Community Health Foundation is hosting the Denim & Diamonds fundraising event at the Cottrell Ranch on March 15th, 2014 in Dahlonega to raise money for Chelsey Park.  One hundred percent of all donations made to CHF, designated for Chelsey Park, will go directly to the center to purchase the specially designed equipment and technology, along with the ongoing operational costs associated with neurological patient care.

Please visit the websites listed below to learn more about Chelsey Park and to see the state of the art technology which the fundraising efforts will go towards. 

Web site: Chelseyparkhealth.org

For tickets: Events.chelseyparkhealth.org

PEAC system demo: http://chelseyparkhealth.org

Facebook: Chelsey Park Health

Press Release Contact: Lynne Palmer King

Vice President of Community Relations, Community Health Foundation     478.319.3752

                                                                         

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Cupcake Road Race Supports The Place of Forsyth County

Cupcake Road Race Supports The Place of Forsyth County | ALS Awareness | Scoop.it
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2nd Annual Race Will Offer Sweet and Gluten/Vegan Cupcake Options


Cumming, GA, January 24, 2014:  

It’s cupcakes for all as runners and walkers take to the street in Cumming, GA for the 2nd Annual CUPCAKE ROAD RACE. The event is on Saturday, March 1, 2014 at Totally Running and everyone who runs or walks will get a cupcake when they cross the finish line. When registering for the race runners/walkers have the option of choosing a decadent, gourmet cupcake or a gluten/vegan cupcake.

 

Two Alpharetta bakeries will be providing the cupcakes for the CUPCAKE ROAD RACE. Once Upon a Cake will indulge the sweet tooth with their gourmet cupcakes, while Mama Makes Safe Cakes will offer a gluten/vegan cupcake baked in their facility free of wheat/gluten, dairy, eggs, peanuts, soy, tree nuts, fish, and shellfish. Other local sponsors include Rosati’s, NaturAlmond, Children’s Healthcare of Atlanta, and Nationwide Insurance.

 

Participants can choose either the 15k distance or 5k distance (on a USATF certified course). Both distances will be chip timed and are flat and fast – a treat for runners and walkers! All participants in the 15k and 5k events will receive a t-shirt, cupcake, and goody bag, and will be entered into drawings for great door prizes.

 

There is also a Baby Cake Run, for children under 10 years old that is on a closed ½ mile course. Baby Cake Run participants all receive a medal and cupcake, and can purchase a t-shirt for $10. Parents are welcome to run alongside their children.

 

All proceeds from the CUPCAKE ROAD RACE benefit The Place of Forsyth, a nonprofit Social Service Organization serving Forsyth County families with emergency basic needs in difficult times since 1975. Last year the event raised $14,000 and organizers are hoping to increase the amount raised this year.

 

There will be advanced packet pick up on Friday, February 28, 2014 from 11am to 6pm at Totally Running, 405 Peachtree Parkway, Suite 105, Cumming, GA 30041. This is also the start/finish location for Saturday’s race. Race day packet pick up will open at 6am. Runners are encouraged to pre-register before February 15 to guarantee a t-shirt.

 

Notes for race morning: There is plenty of parking available at the Collection of Forsyth, which is directly across the street from Totally Running.

15k starts at 7:00am

5k starts at 7:30am

Baby Cake Run starts at 8:45am

Awards Ceremony will follow all races and prizes will be given to the Overall Male/Female – 1st, 2nd, 3rd Place, Overall Masters Male/Female 1st, 2nd, 3rd Place, and 1st Place only in age groups of 5 year increments (10+Under through 65+). 

 

Onsite registration is at Totally Running, and links to online registration and other information are available at www.totallyrunnng.com.

 

Contact Kim Hall at kimhall2007@gmail.com or 404-769-4408 with any questions.

 

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2 ALS Warriors -Pete Frates & Steve Gleason at Pearl Jam concert in New Orleans

Pete Frates & Steve Gleason back stage at the Pearl Jam concert in New Orleans. A couple of ALS warriors enjoying the show.

Via TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
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Local men take separate journeys but use similar motivation to hike entire Appalachian Trail | Sunday Living | Columbus Ledger Enquirer

Local men take separate journeys but use similar motivation to hike entire Appalachian Trail | Sunday Living | Columbus Ledger Enquirer | ALS Awareness | Scoop.it
Two local men at different ends of life took separate five-month journeys to hike the entire Appalachian Trail this summer.
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