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America's Uninsured Crisis: Consequences for Health and Health Care - Institute of Medicine

America's Uninsured Crisis: Consequences for Health and Health Care - Institute of Medicine | Advocacy Action & Issues in Cancer | Scoop.it

America's Uninsured Crisis: Consequences for Health and Health Care - Institute of Medicine For decades, the health insurance crisis has grown without any decisive action by policy makers to stop it. SCOTUS decision released today...

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Advocacy Action & Issues in Cancer
Awareness is nothing without Action... Here's what's happening now and how YOU can create change!
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Legal Challenges Begin for Biosimilar Agents - Cancer Therapy Advisor

Legal Challenges Begin for Biosimilar Agents - Cancer Therapy Advisor | Advocacy Action & Issues in Cancer | Scoop.it
As key biologics near the end of their patent-protection periods, industry is preparing for legal battles over biosimilar versions.
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The LIVESTRONG Foundation

The LIVESTRONG Foundation | Advocacy Action & Issues in Cancer | Scoop.it
The LIVESTRONG Foundation unites, inspires and empowers people affected by cancer. We provide free support services to anyone fighting cancer today.
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[RESOURCES]

The LIVESTRONG Foundation provides free cancer support services to help people cope with the financial, emotional and practical challenges that accompany the disease. Created in 1997 by cancer survivor and philanthropist Lance Armstrong, the Foundation is known for its powerful brand – LIVESTRONG – and for its advocacy on behalf of survivors and their families. With its iconic yellow LIVESTRONG wristband, the Foundation has become a symbol of hope and inspiration around the world. Since its inception, the Foundation has raised nearly $500 million to support cancer survivors and served 2.5 million people affected by the disease. For more information, visit LIVESTRONG.org.

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21st Century Cures Aims to Accelerate the Pace of Cures in America | ons connect

21st Century Cures Aims to Accelerate the Pace of Cures in America | ons connect | Advocacy Action & Issues in Cancer | Scoop.it
Chair and ranking member of the U.S. House of Representative’s Energy and Commerce Committee, Representatives Fred Upton (R-MI) and Diana DeGette (D-CO) are working together on bipartisan legislation that will fund the National Institutes of Health and U.S. Food and Drug Administration (FDA) as the United States seeks to find real treatments and cures for diseases.
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Chair and ranking member of the U.S. House of Representative’s Energy and Commerce Committee, Representatives Fred Upton (R-MI) and Diana DeGette (D-CO) are working together on bipartisan legislation that will fund the National Institutes of Health and U.S. Food and Drug Administration (FDA) as the United States seeks to find real treatments and cures for diseases. - See more at: http://connect.ons.org/columns/capitol-connection/21st-century-cures-aims-to-accelerate-the-pace-of-cures-in-america?utm_campaign=Connect+eNewsletter+Friend&utm_source=hs_email&utm_medium=email&utm_content=15142849&_hsenc=p2ANqtz-_3aGsw_PPvsMVsrOumkUBogLf0ju_hgk4d5nns0uEKtrA9IHmaJsniwJHosZW1n5HZlnGTEJCUNFsUo7Y0VeTVHtfqig&_hsmi=15142849#sthash.OLRyst0b.dpuf
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Week ahead: FDA may lift ban on blood donation by gay men

Week ahead: FDA may lift ban on blood donation by gay men | Advocacy Action & Issues in Cancer | Scoop.it
The American Red Cross and America’s Blood Centers voiced support for the policy change.
Heather Swift's insight:

The Hill reports that the FDA may lift its ban on blood donations from gay men. The American Red Cross has voiced its support for lifting of the ban.

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AACR Unveils the Cancer Progress Report 2014

AACR Unveils the Cancer Progress Report 2014 | Advocacy Action & Issues in Cancer | Scoop.it
Heather Swift's insight:

Building on the great momentum from the previous three reports, the AACR held a special briefing Sept. 17 on the newly released AACR Cancer Progress Report 2014 at the National Press Club in Washington, D.C. This year’s report highlights the remarkable progress that federal investments in the National Institutes of Health (NIH) and the National Cancer Institute (NCI) have made for cancer patients and survivors over the past year. . The report also issues calls on Congress and the administration to prioritize the growth of the NIH and NCI budgets at a predictable, robust pace by providing annual budget increases at least comparable to the biomedical inflation rate.

“While we are continuing to make impressive progress against cancer, the pace of that progress is being slowed due to years of declining budgets at the NIH and NCI,” stated Carlos L. Arteaga, MD, president of the AACR and professor of medicine and cancer biology at Vanderbilt-Ingram Cancer Center in Nashville, Tennessee. “If we are to fully realize the promise of science to transform cancer care, it will require leadership in Congress and within the administration to ensure that biomedical research in cancer becomes a major priority for our nation.”

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News from The Associated Press

News from The Associated Press | Advocacy Action & Issues in Cancer | Scoop.it

Government Requires More Transparency In Clinical Trial Results.

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Government Requires More Transparency In Clinical Trial Results.

The AP (11/20, Neergaard) reports the government has proposed (11/20) new rules to expand what “researchers are required to publicly report” on clinical trials. While the results of many studies are reported in scientific journals or elsewhere, “researchers don’t always publicly reveal their results, especially when the findings show a treatment doesn’t work as initially hoped, said Dr. Francis Collins, director of the National Institutes of Health.” The new proposal looks to “change that by increasing information available on a public database.”

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An Updated Survivorship Care Planning Template and Identifying Barriers to Implementation - National Coalition for Cancer Survivorship (NCCS)

An Updated Survivorship Care Planning Template and Identifying Barriers to Implementation - National Coalition for Cancer Survivorship (NCCS) | Advocacy Action & Issues in Cancer | Scoop.it
Recently, the American Society of Clinical Oncology (ASCO) released an updated cancer survivorship care planning (SCP) template—news that was captured by several medical online news outlets including Healio, Medscape, and Cancer.net.

Via Marie Ennis-O'Connor
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An Updated Survivorship Care Planning Template and Identifying Barriers to Implementation - National Coalition for Cancer Survivorship (NCCS)

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AACR Cancer Progress Report Urges Increased Congressional Funding for NCI and NIH Research Budgets - Cancer Therapy Advisor

AACR Cancer Progress Report Urges Increased Congressional Funding for NCI and NIH Research Budgets - Cancer Therapy Advisor | Advocacy Action & Issues in Cancer | Scoop.it
Newly released 2014 Cancer Progress Report from American Association for Cancer Research highlights need for increased federal funding of cancer research.
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Now is the time for Congress to Work Together to Support the National Institutes of Health (NIH).

Now is the time for Congress to Work Together to Support the National Institutes of Health (NIH). | Advocacy Action & Issues in Cancer | Scoop.it
Heather Swift's insight:

Funding for the National Cancer Institute (NCI), which is part of the overall NIH budget, has failed to keep pace with inflation. In real dollars, our nation’s cancer research investment is at 2003 levels.

Because of NCI’s low funding levels, clinical trials in the community are in jeopardy. Limited resources have caused cuts to the newly reorganized National Clinical Trials Network (NCTN) and National Community Oncology Research Program (NCORP). These now at risk programs are important in fostering research initiatives directly from clinician investigators who see firsthand the importance of answering questions vital to their patients.

This failed investment is unacceptable when you consider the American Society of Clinical Oncology’s State of Cancer Care in America report announced that by 2030 cancer will become the leading cause of death in the United States. As the need grows, we must accelerate our investment in research in to life-saving cures.

Many young investigators report that funding cuts are making them reconsider a career in the field of medical research or move to other countries to pursue their work. Other researchers have reported being forced to lay off staff or slow enrollment in clinical trials.

Take Action and ask your lawmaker to invest in medical research today!

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Ask Your US Representative to Support HR 1801 Today!

Ask Your US Representative to Support HR 1801 Today! | Advocacy Action & Issues in Cancer | Scoop.it
Heather Swift's insight:

Please use the International Myeloma Association's prewritten letter to Congress and write to your representatives to support this important bipartisan legislation  (HR 1801)/  It will assure that all cancer patients can receive oral as well as IV anti-cancer treatments treated the same way so that the oral medications are not a financial burden.

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Ask Your US Representative to Support HR 1801 Today!

Ask Your US Representative to Support HR 1801 Today! | Advocacy Action & Issues in Cancer | Scoop.it

"The Cancer Drug Coverage Parity Act has been reintroduced and now has over 80 bi-partisan co-sponsors! But the work is not done yet. The more bi-partisan co-sponsors we have, the more likely the House will move to vote on this critical legislation.

We need you to reach out to your US Representative to ask him or her to co-sponsor HR 1801. The bill will require oral anticancer treatments to be covered at the same rate as IV treatments. Many insurance plans treat patient-administered anticancer treatments, like oral pills, differently than other forms of treatment creating a financial barrier to care for many myeloma patients.

By entering your information below, you will be able to quickly and easily email your US Representative a prewritten letter.  After clicking next, take a moment to customize the letter with a personal story to increase your message's impact. You can share your story or click on the talking points to the right to add those into your message.

Thank you for your help ensuring cancer patients have fair and equal access to all types of treatments!"

 

 


Via Susan Zager
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Susan Zager's curator insight, July 30, 2014 4:32 PM

Please use the International Myeloma Association's prewritten letter to Congress and write to your representatives to support this important bipartisan legislation  (HR 1801)/  It will assure that all cancer patients can receive oral as well as IV anti-cancer treatments treated the same way so that the oral medications are not a financial burden. 

Tambre Leighn's curator insight, July 31, 2014 11:51 AM

Your voice counts...take action, create change.  Equal reimbursement for oral chemotherapy...it's the right thing to do.

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Why do we think more care is better for us?

Why do we think more care is better for us? | Advocacy Action & Issues in Cancer | Scoop.it
If we want to improve the health of our nation, we need to reduce the cost of medical treatment and stop wasting money on care that adds no value.
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Guest Post: Are Right to Try Laws a Good Idea? - National Coalition for Cancer Survivorship (NCCS)

Guest Post: Are Right to Try Laws a Good Idea? - National Coalition for Cancer Survivorship (NCCS) | Advocacy Action & Issues in Cancer | Scoop.it
Heather Swift's insight:

[ADVOCACY]

At first glance, right to try laws promise terminally ill patients the ability to try experimental drugs, devices, or biological products in their quest to save or extend their lives. While noting that the current system is far from perfect, guest blogger Alison Bateman-House argues that, under the new laws, the right to try is not really a "right" at all — with no obligation for companies to provide early access to patients. Bateman-House suggests that patients do not need a new law in order to be able to make "compassionate use" requests, and that right to try laws are more restrictive than the current system.

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Guest Blog: Fighting Cancer Means Fighting for Cancer Data - National Coalition for Cancer Survivorship (NCCS)

Guest Blog: Fighting Cancer Means Fighting for Cancer Data - National Coalition for Cancer Survivorship (NCCS) | Advocacy Action & Issues in Cancer | Scoop.it
Heather Swift's insight:

The second most common cause of death, cancer touches all of us. According to the Institute of Medicine, the numbers are only projected to increase and care costs are skyrocketing.Yet despite its toll, it’s virtually impossible to answer the question, “Who provides high quality cancer care?” This hinders patients, providers, payers, policymakers, and others to make informed decisions and improve the quality of care.

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ONS Advocates for Cancer Research Support During Lame Duck Session | ons connect

ONS Advocates for Cancer Research Support During Lame Duck Session | ons connect | Advocacy Action & Issues in Cancer | Scoop.it
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Landslide elections can change the entire direction of government. November’s midterm election was one of those times. With some unfinished legislative business such as appropriations bills to complete, Congress returned to Washington, DC, for a special work period between the election and the 2015 session in January.  - See more at: http://connect.ons.org/columns/capitol-connection/ons-advocates-for-cancer-research-support-during-lame-duck-session?utm_campaign=Connect+eNewsletter+Friend&utm_source=hs_email&utm_medium=email&utm_content=15142849&_hsenc=p2ANqtz-_CJZV-iS5HSbfyTzzDoY4mUqrdxZrf4cxqRKvxRj-6C2zwhKzflb7BCLakPVeW6Ok8jkVJZIzlfMf7K8ctK49DeccJdg&_hsmi=15142849#sthash.lnsiAQdB.dpuf
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AACR Cancer Progress Report Urges Increased Congressional Funding for NCI and NIH Research Budgets - Cancer Therapy Advisor

AACR Cancer Progress Report Urges Increased Congressional Funding for NCI and NIH Research Budgets - Cancer Therapy Advisor | Advocacy Action & Issues in Cancer | Scoop.it
But despite dramatic advances in anticancer targeted and immunotherapies, austere congressional research appropriations threaten to slow the pace of cancer research—and might even drive promising researchers from the field, claim the report's authors.
Heather Swift's insight:

[CALL FOR RESEARCH FUNDING]
Americans are “more likely to survive a cancer diagnosis today than at any other time in history,” according to the newly released American Association of Cancer Research's fourth annual Cancer Progress Report.

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Fighting kids' cancer, one voucher at a time

Fighting kids' cancer, one voucher at a time | Advocacy Action & Issues in Cancer | Scoop.it
There are few new cancer drugs to treat kids, and not much research is being done.
Heather Swift's insight:
CNBC Highlights Lack Of Cancer Treatments Approved For Children.

Meg Tirrell reported in depth on Friday for the CNBC (11/24) website on the difficulty childhood cancer patients can face in obtaining pharmaceutical treatments, as few new medicines are aimed at fighting childhood cancers and most cancer medicines are not targeted for use in children. Many doctors thus have to resort to off-label use of existing drugs. CNBC explored the “compassionate use” system and the subsequent Creating Hope Act which expedited FDA reviews for pediatric medicines and awards vouchers for pharmaceutical companies whose products are approved. Examining industry efforts, CNBC said that in 2012 Roche’s Genentech unit set up a pediatric oncology drug development team, which is headed by Raphael Rousseau. In an interview, Rousseau told CNBC, “Historically, people have been reluctant (to expose) children to drugs, trying to protect them from research when really the right thing is to protect them through research.” CNBC also talked to Amgen’s Dr. Lisa Bollinger, who joined the company in 2012, after years with the FDA, to “really look at their entire pipeline and look at opportunities to study their products in the pediatric population.” Tirrell also highlighted the issue in a CNBC (11/24) broadcast.

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ASCO Calls for Medicaid Reform to Improve Cancer Care for Low-Income Americans - Cancer Therapy Advisor

ASCO Calls for Medicaid Reform to Improve Cancer Care for Low-Income Americans - Cancer Therapy Advisor | Advocacy Action & Issues in Cancer | Scoop.it
Spotlighting disparities in access to care and the quality of care among low-income Americans diagnosed with cancer, the American Society of Clinical Oncology (ASCO) has issued a new call for key reforms to the Medicaid health insurance program.
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CSC on Capitol Hill | Cancer Support Community Blog

CSC on Capitol Hill | Cancer Support Community Blog | Advocacy Action & Issues in Cancer | Scoop.it
On Tuesday, September 30th, Cancer Support Community, along with various other members of the Partnership for Part D Access, attended briefings on Capitol Hill.
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Support Armed Forces Breast Cancer Research Act (H.R. 4869)

Support Armed Forces Breast Cancer Research Act (H.R. 4869) | Advocacy Action & Issues in Cancer | Scoop.it
Research indicates breast cancer rates are significantly higher among military personnel. It's time to do something about it.
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Medicaid reimbursements may affect cancer screening rates among beneficiaries

Medicaid reimbursements may affect cancer screening rates among beneficiaries | Advocacy Action & Issues in Cancer | Scoop.it
A recent study has found that in states with higher Medicaid payments for office visits, Medicaid beneficiaries were more likely to be screened for breast cancer, cervical cancer, and colorectal...
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Three Big Problems With Facebook Activism | Big Think

Three Big Problems With Facebook Activism  | Big Think | Advocacy Action & Issues in Cancer | Scoop.it
“Slacktivism” online is exactly as deep as the paper-thin knowledge and commitment that fuels it. 

Via Marie Ennis-O'Connor
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Demand Insurance Coverage for Breast Cancer Genetic Marker Testing

Demand Insurance Coverage for Breast Cancer Genetic Marker Testing | Advocacy Action & Issues in Cancer | Scoop.it

Tell Secretary Sebelius to adopt a legislation requiring insurance companies to provide coverage for BRCA gene mutation testing. 

Mutation of the BRCA1 and BRCA2 genes have been linked to the development of hereditary breast and ovarian cancer. According to the National Cancer Institute, about 12% of women in the general population will develop breast cancer sometime during their lives, compared with about 60% of women who have inherited a harmful mutation in BRCA1 or BRCA2 genes. Genetic testing can reveal an inherited BRCA1 or BRCA2 mutation.

Although insurance companies often cover genetic testing, coverage is not guaranteed. Take action today - urge Secretary of the Department of Health and Human Services Kathleen Sebelius to adopt legislation requiring insurance companies to cover genetic counseling and testing for the BRAC1 and BRAC2 mutations upon medical recommendation."


Via Susan Zager
Heather Swift's insight:
Susan Zager's insight: All women who have a risk of carrying a BRCA gene mutation have a right to testing covered by insurance. SIGN today-IT's easy and pre-written.
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Susan Zager's curator insight, July 7, 2014 1:36 PM

All women who have a risk of carrying a BRCA gene mutation have a right to testing covered by insurance. SIGN today-IT's easy and pre-written.