Plans for the world’s first clinical trial for a vaccine targeting Alzheimer’s disease-like characteristics in those with Down syndrome have been announced
Stephanie Holland's insight:
Dr. Michael Harpold, LuMind Research Down Syndrome Foundation’s Chief Scientific Officer, stated: “We are very excited the LuMind Research Down Syndrome Foundation has been able to work and join together with AC Immune, UC San Diego and NIH in establishing the first ever private-public partnership for a clinical trial in the field of Down syndrome.
Of the roughly 5 million people in the United States living with intellectual and developmental disabilities today, around 71 percent live at home with a family caregiver; of that 71 percent, a full 25 percent — more than 860,000 people — live with a caregiver who is 60 or older.
Stephanie Holland's insight:
"Of the roughly 5 million people in the United States living with intellectual and developmental disabilities today, around 71 percent live at home with a family caregiver; of that 71 percent, a full 25 percent — more than 860,000 people — live with a caregiver who is 60 or older. "
In the 43 years between the births of Shane Ludwig and Preston Taylor, who both are diagnosed with Down syndrome, their parents agree that much has improved in society for their special family members.
In Rowland Heights, 77-year-old Sally Milano prepares her last wishes to make sure her son Philip will be cared for, from his health down to clean shirts hanging in his closet and his shoes checked for holes.
"People with disabilities are not a SIS number — we've been labeled all of our lives," Mcdougal said. "We are not a score or a number — we have a voice. We have feelings. We are people and individuals."
A federal judge has approved an agreement that calls for 1,115 developmentally disabled Oregonians to receive state support and coaching to gain jobs that offer at least 20 hours of work a week and pay minimum wage or more by June 30, 2022.
For some Portland-area young adults with intellectual disabilities, college will in fact be possible. Portland State University is preparing to open an entire program next year that will allow students with intellectual disabilities to get the coaching and support they need to go to college.
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